Pictured from left, Three Village Historical Society Executive Director Mari Irizarry, NYS Assemblywoman Rebecca Kassay and The Long Island Museum of American Art, History & Carriages Co-Executive Director Joshua Ruff
New York State Assemblywoman Rebecca Kassay, her staff members, Long Island Museum staff and board members, and fellow government representatives gathered with members of the community at The Long Island Museum in Stony Brook on Thursday, May 15, for a special “Meet Your Elected Officials” event.
This event was coordinated by Assemblywoman Kassay’s office and the Long Island Museum, and was held in conjunction with the museum’s exhibition, Building the Ballot Box: Long Island’s Democratic History, which is part of the Agora New York Voices and Votes project. The exhibit, which explores the history of American democracy, was on display at the museum through May 18.
Suffolk County Legislator Steve Englebright and NYS Assemblywoman Rebecca Kassay.
The event provided attendees with an opportunity to engage directly with local elected officials, including Assemblywoman Rebecca Kassay and Suffolk County Legislator Steve Englebright, while reflecting on the significant role Long Island played in the development of American democracy. Assemblywoman Kassay formally invited local legislative representatives— from the town, county, state, and federal government positions to participate or send staff to table at this event.
“My staff and I are grateful for the Long Island Museum’s collaboration in coordinating such a meaningful event. It was a perfect opportunity to connect with our community and celebrate our shared history,” said Assemblywoman Rebecca Kassay. “This exhibition not only highlights the rich democratic heritage of Long Island but also encourages active civic participation. It was truly a pleasure to engage with the community, offer them resources, and discuss how we can continue to work together for a better future.”
“It was wonderful to be able to join Assemblywoman Rebecca Kassay to greet members of the public at the Long Island Museum against the backdrop of their extraordinary exhibition Building the Ballot Box: Long Island’s Democratic History,” said Suffolk County Legislator Steve Englebright. “It was a privilege to welcome our contemporary voters in the presence of paintings by William Sidney Mount that depict citizens practicing democracy in our community more than 150 years ago.”
“The Museum has been proud to host the Voices and Votes and Building the Ballot Box exhibitions and we so appreciate Assemblywoman Kassay and her office for planning this great forum for conversation with the community, which offered people a relaxed chance to enjoy the project in its final days,” shared Joshua Ruff, The Long Island Museum of American Art, History & Carriages Co-Executive Director
The Building the Ballot Box exhibition is a traveling project that explores the history of voting rights and the democratic process, with stops at 12 museums throughout New York State through 2026. The exhibit highlights the critical role of voting and civic engagement in shaping American society.
For more information, please call Assemblywoman Kassay’s office at 631-751-3094.
Garden lovers in Long Island are in for a treat this Saturday, May 24, with three unique opportunities to explore three diverse private gardens through the Garden Conservancy’s Open Days program. The featured gardens are:
Tranquility
Tranquility (Mount Sinai). Hundreds of perennials, shrubs, trees, and annuals are combined with water features, lawn art, and recently relocated garden trails that allow the visitor to enter the owner’s vision of an Impressionistic garden painting. Footpaths wind through the extensive garden, allowing visitors to immerse themselves in the sights and sounds of nature and escape the general stress of modern lifestyles.
Two Grey Achers
Two Grey Achers (Setauket/East Setauket). This garden was designed by its owners to provide beauty and interest in all seasons. Adjacent to Conscience Bay on Long Island’s North Shore, the mild maritime microclimate is reflected in the broad range of taxa thriving on this intensively planted site. A remarkable collection of choice conifers and Japanese maples, amassed over three decades, creates a year-round tapestry of color, texture, and form. Come, enjoy, and find specific ideas for stunning, hardworking woody plants to add to your own garden.
Woodland Garden
Woodland Garden – Bill & Veronica Schiavo (Wading River). The property features a heavily wooded landscape with one large pond, three small ponds, and two streams. Twelve- to fifteen-foot rhododendrons and flowering shrubs encircle the house. The lawn-less, deer-resistant terrain showcases diverse plants, including a new shade and fern garden with a stone patio. A nature trail winds through the front woods alongside a 75-foot stream and waterfall. Behind the house, two ponds, one with a Japanese red maple and waterfall, are surrounded by trees and grasses. The woodland garden is a Certified Wildlife Habitat.
Open Days offers a unique opportunity for visitors to peek behind the garden gates of otherwise private gardens for one day only, and to explore a variety of garden styles and horticultural traditions.
The gardens will be open from 10 a.m. to 4 p.m. for registered guests. Tickets for garden visits are $10 per person, or $5 for members of the Garden Conservancy. Children 12 and under are admitted for free when accompanied by a parent or guardian. All registrations must be processed online through the Garden Conservancy’s website. Visit gardenconservancy.org/opendays.
Fueling America’s passion for gardens, the Garden Conservancy’s Open Days™ program is the only nationwide garden visiting program. In 2025, Open Days marks its 30th year. Over three decades, Open Days has welcomed more than 1.4 million visitors into thousands of inspired private landscapes—from urban rooftops to organic farms, historic estates to suburban sanctuaries—in 41 states.
Long Island native and RSOM graduate Kevin Langbart, center, is among the new MDs who will stay at Stony Brook Medicine for their residencies. Photo by Kristy Leibowitz
A group of new MDs from the RSOM celebrate with each other during the school’s 51st Convocation. Photo by Kristy Leibowitz
A total of 133 graduates of the Renaissance School of Medicine (RSOM) recite the Physicians’ Oath for the first time as newly minted MDs. Photo by Kristy Leibowitz
The RSOM Class of 2025 pose and wave during the Convocation on May 19 at Stony Brook University. Photo by Kristy Leibowitz
133 RSOM graduates celebrate during the school’s 51st Convocation; residency training begins in July
The Renaissance School of Medicine (RSOM) at Stony Brook University celebrated its 51st Convocation on May 19 when 133 graduates received their Doctor of Medicine (MD) degree. The newly minted physicians will start their residency training in early July.
A talented and diverse group set to practice medicine in more than 20 specialties – such as residencies related to primary care, anesthesiology, emergency medicine, neurology, radiology, surgery and psychiatry – the RSOM graduates, collectively, will practice at leading hospitals and academic medical centers in New York State and 17 other states. A majority (55 percent) will remain in New York, with nearly 15 percent staying at Stony Brook Medicine.
The need for more physicians in the United States and globally remains high, particularly because of aging populations and the need for physician specialists. With ever increasing new technologies to diagnose and treat diseases, and the emergence of AI and telemedicine, opportunities to further advance Medicine in this 21st Century will expand. New MDs entering the workforce will be a major part of that advancement.
Peter Igarashi, MD, the Knapp Dean of the RSOM and Presider over the Convocation, congratulated the 133 graduates and cited their dedication, perseverance, and achievements during this celebration of their journeys that brought them all to this moment as new physicians.
“Over the last four plus years at the Renaissance School of Medicine, you have received the best medical education that New York State has to offer,” said Dr. Igarashi. “The combination of training in the science and art of medicine and the social determinants of health has prepared you to be doctors, well-equipped for whoever walks in the door.”
Susan M. Wolf, JD, a nationally recognized leader in medicine, law, and ethics, Chair of the Consortium on Law and Values in Health, Environment & the Life Sciences, Regents Professor, and Professor of Medicine at the University of Minnesota, delivered the Convocation Address.
Professor Wolf has devoted her academic career to solving ethical and legal challenges in patient care and biomedical research. Her pioneering work has influenced how medicine approaches end-of-life care, the return of research results and incidental findings, and the ethical integration of technologies like genomics and AI.
She encouraged the students to practice medicine with the highest ethics and to be patient advocates during the caregiving process, helping to empower patients and their decisions in an age when medicine is advancing at a rapid pace even as quality of life and death issues remain paramount.
The 133 new MDs celebrated with each other, RSOM faculty, friends and family members throughout the day. This included a special shout out and a rousing applause from them during the ceremony directed to their parents and loved ones, who sacrificed much time and means throughout the graduates’ medical school journey.
The RSOM Class of 2025 join a long history of the school’s graduates. Since the first graduating class of 1974, the RSOM has issued more than 5,000 MD degrees, more than 600 PhD degrees, and nearly 750 master’s degrees to more than 6,200 graduates.
Photo courtesy of Stony Brook University Athletics
The Stony Brook baseball team broke a 2-2 tie with four runs in the bottom of the fifth inning — highlighted by a three-run blast from Erik Paulsen — and rolled to a 12-5 win over Monmouth on May 17 to celebrate 2025 Senior Day at Joe Nathan Field.
Senior John Rizzo got the start on his special day and worked around a two-out walk with a groundout to short to keep Monmouth off the board in the first.
James Schaffer led off the bottom half with a single and stole second, then scored on a gap shot by Paulsen to give Stony Brook a 1-0 lead. After a popout, Nick Solorzano doubled to right-center to bring home Paulsen and make it 2-0.
Monmouth answered in the top of the second, scoring two runs on three hits to tie the game at 2-2. Mike Villani led off the bottom half with a walk, but the Seawolves were kept off the board.
Rizzo came back with a 1-2-3 third, inducing two groundouts. The Seawolves also went down in order.
In the fourth, Rizzo worked around a one-out single after Solorzano threw out the runner at second with help from Matt Miceli. He issued another walk but stranded the runner with a groundout to short.
The game stayed tied at 2-2 after a quiet bottom half from the Seawolves.
Monmouth threatened again in the fifth, putting runners on the corners with two outs after back-to-back hits, but Rizzo escaped the jam with a caught stealing to end the inning.
Kincaid Bergthold led off the bottom of the frame with a double down the third base line. After Nick Zampieron moved him to third on a bunt, Miceli knocked him in with a single to center. A few batters later, Paulsen crushed a three-run homer to right, giving the Seawolves a 6-2 lead.
The Hawks cut the lead to 6-4 with a two-run homer in the top of the sixth.
In the home half, Villani walked and Bergthold was hit by a pitch to start the rally. Miceli doubled down the left field line to bring home Villani, and Schaffer followed with a single to center that scored both Bergthold and Miceli. After Schaffer scored on an error, Cam Santerre ripped a two-run double down the line to cap a six-run inning and push the lead to 12-4.
Monmouth added a run in the seventh on two hits to trim the deficit to 12-5. The Seawolves were retired in order in the bottom half.
After a Monmouth leadoff double in the eighth, Matthew Jackson and Miceli connected with Solorzano at the plate to cut down the runner trying to score. Vincent Mariella induced a groundout to first to end the inning and keep the lead intact.
Following another quick bottom of the eighth, Monmouth opened the ninth with back-to-back hits. Mariella received a standing ovation as he exited the game, and Aidan Colagrande came on in relief. Solorzano picked off the runner at first for the first out, and after a hit-by-pitch, Colagrande closed it out with a flyout and a strikeout to seal the sweep.
Head coach Matt Senk earned his 970th career win in his 1,666th game. He finishes his career seventh among active head coaches in victories and is the only active Division I coach to win 970 games at a single program.
The Seawolves concluded the 2025 season at 25-27 overall (11-16 CAA), including a 13-11 mark at Joe Nathan Field.
Ancient civilizations had hieroglyphics, we have QR codes: the patterned graphic boxes prompting you to access restaurant menus, pay for parking, find out information about a package and more.
Generally, quick response (QR) codes are safe, but they can be used to redirect you to malicious websites, so caution is important. Here’s how it works.
• You get prompted to use your device’s camera.
• You scan the code and a link pops up.
• You click the link, exposing you to threat actors.
• You’re directed to apps, websites, locations using your maps and much more.
Bad actors understand people are in a rush, so this is an appealing form of attack. It’s a cost-efficient scam because these codes are easy to generate and distribute. And they are creative in finding new ways to make them appear legitimate. In public places, criminals can cover an official code with a sticker or printout showing a fraudulent code. Some of the more prevalent and convincing scams include:
• Parking Ticket Scams. Criminals place fake parking tickets with QR codes on windshields, causing unsuspecting victims to scan the code and click the link to learn of their offense and digitally pay the alleged fine.
• Brushing Scams. A criminal will ship goods you never ordered, then require you to scan the QR code and click the link to see who sent you the gift.
• Payment Scams. Criminals cover a legitimate QR code with a sticker that has a fraudulent code that directs to a malicious site. This can happen at gas pumps, bank windows, parking lots, etc.
• Crypto Scams. Crypto transactions are often made through QR codes associated with crypto accounts, making this an appealing target for fraudsters, especially since once crypto payments are made, it’s unlikely those funds will be recovered.
To stay safe when using QR codes:
• Check the URL: Once you scan and the link pops up, stop! Examine it for unusual domain names or shortened URLs before clicking.
• Verify the source: Only scan QR codes from trusted sources, like official websites or apps. Codes from unfamiliar sources are more likely to be malicious.
• Check for tampering: Look for signs of tampering, like altered graphics, design flaws or stickers placed atop original codes.
• Be suspicious: Treat sites asking for a password or login information as a red flag.
• Be wary of promotions: Be cautious of offers that seem too good to be true.
• Use a secure connection: Look for a secure connection (HTTPS) or padlock.
• Confirm validity of request: Before taking action, like making a payment or entering personal information, confirm a request to scan with the company. If you receive a QR code from someone you know, reach out to them through a known number or email to verify they sent it.
• Protect your device: Use antivirus and antimalware software.
• Report. If you identify a suspicious QR code or fall victim to a QR code scam, notify your bank and report it to law enforcement and the Federal Trade Commission.
If you scan a fake QR code, your bank account, email and identity could all be at risk. For actions to take, consult PNC Bank’s Reporting Fraud page on pnc.com.
Cyber criminals are always finding new ways to defraud their victims, and QR codes are no exception. With a little caution however, you can better protect yourself. (StatePoint)
On May 8, Cardinal Robert Francis Prevost was elected and chose the name Pope Leo XIV after a two-day conclave. He is the first American pope. But with any change comes controversy, especially when there is conflict between tradition and modernization. What do locals think of this new pope?
TBR News Media tackles this question by asking Long Islanders to share their opinions about recently elected Pope Leo XIV.
Nicole Connelly
Nicole Connelly looks forward to seeing a pope from the same city as her, Chicago, and one that enjoys tennis as much as she. While this is a simple validation, it leads her to feel a connection to the new pope because of it.
Thomas Worthington
Based on the information received, Thomas Worthington thinks Pope Leo XIV will continue the work of Pope Francis. In addition, Pope Leo XIV seems to be a good humanitarian who supports marginalized individuals. Worthington says, “He appears to be looking out for the underdogs in the world.”
Anonymous, East Setauket
This resident reflects on the matter by explaining how she thinks Pope Leo XIV will effectively enforce Catholic tradition, while still maintaining a more humane aspect that previous popes lacked. She also feels that many American Catholics can relate to him because of his nationality. “He has shown he’s a very human person with his enthusiasm for baseball,” Moody explains.
Jeanine Lewis, Holbrook
When asked about Pope Leo XIV, Jeanine Lewis responded, “I like him because he has a very kind smile and he’s a people person. You can see he connects with the people.” Another quality Lewis appreciates from the pope is his ability to keep Catholic traditions, but modify some of them to fit modern times.
Layla Fayed, East Setauket
Layla Fayed welcomes the new pope with cautious optimism in hopes to see him successfully modernize church doctrine. She looks to Pope Leo XIV to allow female leadership in the Catholic Church and openness toward the LGBTQ+ community. Fayed states, “overall, his papacy will be closely observed for how seriously it regards equality and inclusivity.
Number 9, Bryce Tolmie, playing lacrosse for Hofstra University against Fairfield University in Spring of 2017 after overcoming an extensive 3-month concussion recovery. Photo courtesy Hofstra Athletics
By Kristina Garcia
The Centers for Disease Control and Prevention (CDC) reports that 70 percent of emergency room visits for traumatic brain injuries and concussions during high contact sports involve patients 17 and younger.
Bryce Tolmie, an athletic trainer at Orlin and Cohen who works with the PAL Jr. Islanders experienced a concussion in his junior year of high school that required an emergency CT scan to check for hemorrhaging.
Tolmie, a former Hofstra University lacrosse player and NY Riptide box lacrosse professional, recalled not being able to remember the events of the day he got hit. His frustration came days later, when he was incapable of solving simple math problems in school.
Many young athletes don’t report symptoms, fearing they will lose their team position or appear weak.
“Think about long-term effects. There is a lot of research now on second-impact syndrome which can change the course of your life, even cause death,” said Tolmie. “You may play your sport for a set amount of time, but the rest of your life is much longer.”
He reiterates how important it is to have trust in supporting staff.
“Trust in coaches and your athletic trainer is huge not just for the injury, but for the mental health aspect that comes with it,” said Tolmie.
His experience helps him relate to his athletes personally, encouraging them to discuss how they are feeling. Increased concussion awareness helps eliminate the stigma of athletes feeling pressured to play through injury.
Last month, Brain Injury Awareness Month, Hofstra University held a seminar on Concussion Outreach, Prevention, and Education with the Brain Injury Association of New York State (BIANYS). Expert Kristin LoNigro, MSEd, ATC, noted how concussion protocols have changed significantly since she first started athletic training 35 years ago.
When asked about gaps in concussion education, she pointed to youth leagues.
“You have coaches or parents who might’ve played a long time ago when concussions were evaluated differently,” LoNigro said. Concussion protocol is not what it used to be, more research has shown that concussion timelines differ, and not all are the same.
LoNigro advises parents to “…do their research and advocate to leagues for an athletic trainer to be present during practices and games,” and “have all coaches become certified in CPR and concussion awareness prior to them coming on the field.”
When resources are limited, there are still steps that can be taken to ensure the safety of young athletes. “In New York City, public high school coaches have to complete an online certification through the CDC,” she said. “They have a program called Heads Up Concussions.”
HEADS UP to Youth Sports Coaches, is an online concussion training program sharing the latest guidance on concussion safety, prevention, how to spot signs and symptoms, and what action to take. Proper training and awareness in youth sports can minimize potential harm, and help athletes and parents turn their attention to enjoying sports for the fun of them
What to watch out for
According to the CDC, a concussion is “…a type of traumatic brain injury caused by a bump, blow, or jolt to the head or by a hit to the body that causes the head and brain to move quickly back and forth. This fast movement can cause the brain to bounce…creating chemical changes…and sometimes stretching and damaging the brain cells.”
Common symptoms include headaches, nausea, imbalance, dizziness, blurred vision, confusion, and memory loss. More serious warning signs include worsening headache, pupil enlargement, drowsiness, slurred speech, seizures, unusual behavior, and loss of consciousness even if for a brief moment.
Parents and coaches should watch for athletes appearing dazed, forgetting instructions, being unsure of what is going on in a game, moving clumsily, and losing memory of events before or after the impact.
Reports from the Brain Injury Association of America have shown that a teen who reports one or more of the symptoms a hit or fall, has a high concussion risk or other type of serious traumatic brain injury.
Kristina Garcia is a reporter with The SBU Media Group, part of Stony Brook University’s School of Communication and Journalism’s Working Newsroom program for students and local media.
This summer marks a major milestone as the StonyBrookFilmFestival celebrates its 30th anniversary at Stony Brook University’s Staller Center for the Arts. Running from Thursday, July 17, through Saturday, July 26, audiences are invited to experience ten nights of extraordinary films from around the world, including world premieres, U.S. debuts, and must-sees that you cannot see anywhere else.
Early Bird Passes are on sale now, offering the best value for access to the film screenings and festival events. Pass options include the VIP Gold Pass, Regular Pass, and the Flex Pass, which grants access to any five days of the festival. Whether you’re a longtime attendee or a first-time guest, there’s a pass to match your interest and availability. Pass prices increase after June 9, so film lovers are encouraged to secure their passes early for the best price at stonybrookfilmfestival.com.
What began in 1995 as a modest campus initiative to enliven the quiet summer months has grown into a nationally recognized festival known for its bold storytelling and strong community of filmmakers and filmgoers. Over the past three decades, the festival has remained a champion of hard-to-find films, selected from over 2,000 annual submissions, and continues to thrive as a live, in-theater experience. This year’s lineup features 36 amazing short films and powerful feature-length dramas, thrillers, and comedies—many of which are screening for the very first time. These exceptional American independent and international titles cannot be seen in local theaters or streamed on any platform. They are only available on the region’s largest screen at Staller.
All passholders receive guaranteed Priority Seating, entry to filmmaker Q&As, eligibility to vote for the Audience Choice Awards, discounts at local partner businesses, and a commemorative festival gift. Each pass level includes its own set of perks, which can be found at stonybrookfilmfestival.com/pass.
Take this opportunity to be part of a cinematic tradition 30 years in the making. For more information and to purchase Early Bird Passes, visit stonybrookfilmfestival.com.
Discover Long Island (DLI) has appointed current Board Chair Mitch Pally as Interim President & CEO, following the recent announcement that longtime President & CEO Kristen Reynolds’ departure to take the lead of Choose Chicago, according to a press release.
“With Pally at the helm, the organization is confidently moving forward, maintaining its strong momentum and unwavering dedication to promoting Suffolk County Long Island as a premier travel destination. A well-respected figure in the region with decades of leadership experience, Pally brings a deep understanding of the destination’s economic, political, and tourism ecosystem, as well as a steadfast commitment to ensuring a seamless transition at Discover Long Island,” read the release.
“Long Island’s tourism industry has never been stronger, and I’m honored to step into this interim role to help keep the incredible momentum going,” said Pally. “Kristen built a world-class organization over the past decade, and I’m excited to continue working with this outstanding team to ensure 2025 continues to be a landmark year for tourism, economic growth, and community pride within Suffolk County and the greater Long Island region.”
“As a longtime board member and tourism advocate, I’ve seen firsthand the positive trajectory that Discover Long Island has cultivated over the years,” said Hilton Long Island General Manager and DLI Board Treasurer, Gus Montesantos. “Even with this leadership change, our collective momentum is undeniable and the future for Long Island’s visitor economy is brighter than ever.”
Pally is no stranger to Long Island tourism and economic development. He is the former Chief Executive Officer of the Long Island Builders Institute, from 2010 to 2022, and current chair of the Midway Crossing Local Development Corporation, chair of the Long Island MacArthur Airport Advisory Board, co-chair of the Long Island Business Development Council, and a member of the Town of Brookhaven Industrial Development Corp. Pally has also served as a member of the board of commissioners of the Metropolitan Transportation Authority for 14 years and Vice President of the Long Island Association from 1986 to 2009.
Since 2012, he has also been a member of the Board of Directors of AAA Northeast, one of the four largest auto clubs in the country. Additionally, Pally has served as a partner in Weber Law Group from 2005 to 2010. He also served in the New York State Legislature from 1975 to 1985, including a position as Chief Counsel of the NYS Senate Transportation Committee. Pally has been a member of the board of Discover Long Island for the past eight years and previously served on the board of its previous tourism organization, the Long Island Convention + Visitors Bureau and Sports Commission for 12 years.
Discover Long Island’s Chief Operating Officer, Sharon Wyman, will continue to provide operational leadership and strategic support during the transition, alongside the rest of the DiscoverLong Island Board of Directors.
“Our team is energized and fully aligned in our mission,” said Wyman. “With Mitch’s trusted leadership and our dedicated staff, we won’t be skipping a beat. Long Island’s future is bright, and we’re ready to build on the strong foundation Kristen helped establish.”
“Change in leadership is a natural part of any thriving organization,” said HIA-LI President & CEO and DLI Board Member, Terri Alessi-Miceli. “What sets Discover Long Island apart here is the unity, passion, and professionalism of its team and board. The organization’s innovative approach and strong partnerships have always set the standard for destination marketing, and under Mitch’s interim leadership, I have every confidence DLI will only continue to grow stronger and more influential.”
Discover Long Island’s Board of Directors will soon initiate a formal search for a new full-time President & CEO. In the meantime, the organization remains laser-focused on its mission to drive year-round tourism, support local businesses, and celebrate the vibrancy and diversity of Suffolk County’s communities.
“Kristen Reynolds had taken Discover Long Island to new heights and amplified its impact exponentially, and Mitch Pally’s extensive experience in economic development will serve the organization well as we search for a new leader to build upon the foundation Kristen established,” said Long Island Association President & CEO and DLI Board Member, Matt Cohen.
“Adventureland has proudly partnered with Discover Long Island for many years, and we’ve never been more confident in the organization’s future,” said Steve Gentile, President of Adventureland. “The DLI team’s commitment to collaboration, innovation, and community makes us proud to stand alongside them during this next phase.”
If an amusement park suddenly changed the criteria that would allow visitors to ride on a roller coaster or log flume, the number of potential customers would suddenly climb.
The same holds true for the number of people whom doctors are diagnosing with autism.
Over time, health care professionals have changed the definition of autism, recognizing the heterogeneous nature of a diagnosis that is often different from one individual to the next.
Debra Reicher. Photo courtesy Stony Brook University
Recently, Robert F. Kennedy Jr., the head of Health and Human Services, suggested that he planned to share a detailed analysis of autism by this September to explain the increase in the number of people who receive such a diagnosis.
Based on numerous reports, Kennedy indicated he would present research findings at the end of the summer that explains why and how the number of cases of autism and other childhood chronic diseases has risen.
“The biggest, most widely agreed reason for the increase in numbers is the broadening of the diagnostic criteria,” said Debra Reicher, Clinical Psychologist and Assistant Professor at the Renaissance School of Medicine at Stony Brook University.
Over her 35 years in the field of autism, Reicher said the definition of autism has changed.
“We are getting better at diagnosing people at the higher end of the spectrum,” she said.
When Reicher started in the field, about 80 percent of those diagnosed with autism also had an intellectual developmental disorder or cognitive delay. That is currently closer to 40 percent.
“We are getting better at identifying people who have good cognitive skills,” and who have autism, Reicher added.
Over time, the male-female gap has also narrowed. Historically, boys and men were more likely to receive an autism diagnosis.
Clinicians are getting better at understanding the presentation of autism in females, who have different symptoms that can fly under the radar.
Girls are more likely to “mask or camouflage” autism, which physicians might miss, Reicher added.
Matthew Lerner
People are also more aware of autism as a diagnosis.
“Young parents are tracking their child’s development and are asking their pediatricians questions,” Reicher said. That leads to earlier detection.
On a smaller but not insignificant level, some studies suggest that older ages of fathers can also contribute to autism.
“Advanced paternal age is a statistically significant predicator of increased rates of autism,” said Matthew Lerner, Research Associate Professor and Research Director of the Autism Initiative at Stony Brook University.
Premature babies, who are much more likely to survive today than they were even a few decades ago, can also receive an autism diagnosis as they develop.
More support
At the same time, health systems are not only more actively screening for autism, but they are also providing more support and benefits.
By offering people and their families services, these health care systems are providing people with autism care, making a diagnosis a potential starting point for more care.
“If somebody was diagnosed with autism in the 1980s, there weren’t a lot of things that folks could do,” said Lerner, who is also Associate Professor and Leader of the Life Course Outcomes Program Area at the AJ Drexel Autism Institute at Drexel University.
Some research also suggests a correlation between environmental exposure or pollutants and the incidence of the condition.
Researchers, however,caution that a correlation doesn’t necessarily indicate a causation, which is a significant challenge in the world of science and medicine.
A correlation may or may not be relevant in the context of a disease or the treatment for it. Researchers who can conclude based on larger and statistically significant samples a cause between something like environmental exposure and a disease can reduce the likelihood of a condition.
To be sure, despite considerable chatter through online forums, the Internet and people who have limited or no medical expertise, people in the autism field have not seen any evidence that vaccines for diseases like measles have any connection with autism.
The studies that were done in the 90s and early 2000s that suggested a potential link between autism and vaccines were biased and were eventually retracted in a journal, Reicher said.
“Research shows no difference in the rates of autism between vaccinated and unvaccinated children,” she added.
Some new or expectant mothers are hesitating to give their children a measles, mumps and rubella shot.
Reicher urges parents to study the issue carefully and to provide the kind of protection that will prevent the spread of infectious diseases and the lifelong consequences of contracting measles.
Reicher suggested that some of the fear comes from the fact that MMR is given around the time physicians recognize the symptoms of autism.
“With vaccines, there’s no evidence to support” a connection with autism, Reicher added.
New research
Researchers and clinicians welcomed the possibility of new studies that might help the heterogeneous community of people with autism.
New work done with “rigorous science that have reputable approaches and ask meaningful questions” could be “fantastic” for people with autism and their support networks, Lerner said.
To be sure, Lerner doesn’t anticipate any major findings in the development of autism, particularly in the context of vaccines or any other speculation that researchers have tested for decades.
The notion that significant studies from around the world that thousands of researchers conducted over the course of decades would suddenly be overturned in the next four months “seems highly implausible,” he said.
Lerner hopes that any focus on autism research that the current administration conducts respects and adheres to the level of rigor necessary to make any changes in diagnosis, treatment or potential causes.
At this point, Reicher, who has spent decades working with a wide range of people with autism, has seen many people with autism live “wonderful, successful, fulfilling lives.” People with autism are “making huge contributions to the arts, to science and to everything in between.”
Understanding and enhancing an awareness of autism through well-documented and rigorous research could help some people with the diagnosis, although a one-size-fits-all approach won’t work for a larger population that has different symptoms and needs.