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World Trade Center

These composite brain images from the study of WTC responders reveal evidence of amyloidosis. Areas shaded in red and yellow indicate regions of the brain with amyloid. Image courtesy of Sean Clouston, Stony Brook Medicine

By Daniel Dunaief

Even over 23 years after first responders raced to the smoldering site of the World Trade Center terrorist attacks, many emergency crews continue to battle the effects of their exposure.

With a combination of toxic aerosolized particles infusing the air, first responders who didn’t wear personal protective equipment and who had the highest degree of exposure have suffered from a range of symptoms and conditions.

Sean Clouston

In a recent study of 35 World Trade Center first responders in the Journal of Alzheimer’s Disease, lead author Sean Clouston, who is a Professor in the Department of Family, Population and Preventive Medicine in the Renaissance School of Medicine, found evidence of amyloid plaques, which are often linked to Alzheimer’s Disease.

The paper links exposure to a neurodegenerative protein.

Research with World Trade Center first responders not only benefits those who worked tirelessly to try to find survivors and to restore the area after the attack, but also could help other people who inhale aerosolized toxins.

Indeed, such research could help those who are spending hours battling the ongoing wildfires in Los Angeles, which have been consuming forests and trees, homes and commercial buildings, at a furious and uncontrolled pace.

People have a feeling that fresh air is safe, but what scientists have learned from their studies of the World Trade Center first responders is that “just being six feet away from a pile of rubble that’s smoldering, even if you can’t see that it’s dangerous, doesn’t mean it isn’t,” said Clouston. “There is at least some risk” to human health from fires that spew smoke from burned computers and refrigerators, among others.

Given the variety of materials burned in the fires, Minos Kritikos, Senior Research Scientist and a member of the group in the collaborative labs of Clouston and Professor Benjamin Luft, suspects that a heterogeneity of particles were in the air.

People in Los Angeles who are inhaling these particles can have them “linger in their circulation for years,” said Kritikos. “It’s not just a neurological issue” as the body tries to deal with carrying around this “noxious” particulate matter. Since most neurons don’t regenerate, any toxicity induced neuronal death is irreversible, making damage to the brain permanent.

Even in non-emergency situations, people in polluted cities face increased health risks.

“There is a recognition that air pollution is a major preventable cause of Alzheimer’s Disease and related dementias, as noted by the latest Lancet Commission,” Clouston explained.

Two likely entry points

People who breathe in air containing toxic chemicals have two likely pathways through which the particulates enter the body. They can come in through the nose and, potentially, travel directly into the brain, or they can enter the lungs, circulate through the body and enter the head through the blood-brain barrier. The olfactory route is more direct, said Kritikos. 

Minos Kritikos in front of Stony Brook Hospital.

The amyloid plaques in these first responders was found primarily in the area near the nose, which supports the idea that maybe inhaling the dust was the problem, Clouston said.

Once these chemicals enter the brain, Clouston and his team believe the body engages defenses that are designed much more for viruses than for toxic compounds. The immune system can encapsulate these chemicals in amyloid plaques.

Amyloid plaques, in moderation and under conditions that protect the brain against pathogens, are a part of a protective and helpful immune response. Too much of a good thing, however, can overwhelm the brain.

“When there’s too much plaque, it can physically disturb neuronal functions and connections,” said Kritikos. “By being a big presence, they can also molecularly and chemically react with its environment.”

A large presence of amyloid can be toxically necrotic to surrounding neural tissue, Kritikos added.

What the scientists believe they are tracking is the footprint of an adaptive response that may not help the brain, Clouston added.

Clouston cautioned that the plaques and cognitive decline could both be caused by something else that scientists haven’t yet seen.

The findings

The research, which used positron emission tomography and magnetic resonance imaging scans to search for evidence of amyloid plaques, found evidence that doesn’t look like old age Alzheimer’s, explained Clouston. Usually these levels of plaques are not located in one spot, but occur throughout the brain during Alzheimer’s. 

The immune response may be causing some of these plaques.

The amount of amyloid plaque doesn’t look like Alzheimer’s Disease and does not appear abnormal in the traditional way of testing, but with careful analysis of the olfactory system, the researchers can find elevated levels.

“I was surprised by how little amyloid was necessary to show this association,” said Clouston.

Researchers at Mt. Sinai have examined the effect of exposure to these same particulates in mice.

“The answer is very much similar to what we see in humans,” said Clouston. “That supports this work.”

To be sure, Clouston and Kritikos are hoping to build on this research. They are particularly interested in following up with participants to measure the rate of change in these plaques from the observed amyloid signals they measured at baseline.

“Doing so would enable us to calculate the rate of amyloid buildup allowing us to assess our responders more precisely, opening doors to possible therapeutic interventions such as the recently approved anti-amyloid therapies,” Kritikos explained. 

Additionally, they hope to expand on the study beyond the 35 people who participated.

It is unclear whether tamping down the immune system could make patients better or worse. By reducing amyloid plaques, scientists might enable the harmful dust to cause damage in other areas of the brain. Alternatively, however, a lower level immune response with fewer plaques might, in the longer term, be better for the brain.

This study “does open the door for some of those questions,” Clouston said. Kritikos and Clouston plan to study the presence of tau proteins and any signs of neurodegeneration in the brains of these first responders.

“More research needs to be done,” Clouston said, which specifically targets different ways of measuring exposure, such as through a biomarker. He’s hoping such a biomarker might be found that tracks levels of exposure.

Future research could also address whether post traumatic stress disorder affects the immune response.

“It’s certainly possible that PTSD is playing a role, but we’re not sure what that might be,” said Clouston.

The researchers are continuing this research as they study the effects of exposure on tau proteins and neurodegeneration.

“We are hopeful that this will be an important turning point for us,” Clouston explained

From the Medditerranean to the Atlantic

Born and raised in Cyprus, Kritikos comes from a large family who are passionate about spending time with each other while eating good food.

He earned his doctorate from the University of Bristol in England.

Kritikos met his wife Jennifer LoPresti Kritikos, who is originally from Shirley, New York, at a coffee shop in Aberdeen, Scotland, where he was doing postdoctoral research.

LoPresti, who works at Stony Brook as the Department Head Administrator for Biomedical Engineering, and Kritikos live in Manorville and have an eight year-old daughter Gia and one-year old son Theseus.

As for his work, Kritikos is grateful for the opportunity to contribute to research with Clouston and Luft, who is the Director of the Stony Brook WTC Health and Wellness Program.

“I’m happy to be in a position whereby our large WTC team (the size of a small village) is constantly pushing forward with our understanding for how these exposures have affected” the brain health of WTC first responders, Kritikos explained. He would like to continue to uncover mechanisms that underly these phenomena, not just for WTC responders but also for similarly exposed populations.

 

World Trade Center worker. Photo courtesy Steven Spak

By Daniel Dunaief 

First responders who raced to the World Trade Center site on 9/11 or who helped with the massive clean up effort did so at risk to themselves.

That was as true during those days and weeks after the attack as it is now, with many of the first responders experiencing a range of diseases and conditions linked to the difficult work they did in 2001.

In a study released recently in the journal JAMA Network Open, Sean Clouston, Professor in the Program in Public Health and in the Department of Family, Population and Preventive Medicine in the Renaissance School of Medicine at Stony Brook University, showed that 4.6 percent of the responders in a study developed dementia. That compares with 0.5 percent for the general population of people who would develop cognitive declines in a similar age group.

Between November of 2014 and January of 2023, 228 responders without dementia and under 60 years old at the start of the study developed dementia over the next five years.

“It’s stunning to see these kinds of symptoms in such young people,” said Clouston.

Through the Stony Brook WTC Health and Wellness Program, Clouston and other researchers have documented some of the cognitive declines in this population, who likely inhaled the kinds of fine particulate matter that can enter the brain and cause damage even as the immune system fights to try to target the unwelcome contaminants.

“We assume this made it in the brain, but in such a way that it wasn’t overwhelming immediately,” said Clouston. “Once you get into a neurodegenerative space, most of these diseases take a long time to develop” with neurodegenerative processes sometimes taking decades to occur.

The exposure could have caused an immune reaction. They are not sure whether symptoms emerged because the reaction was stronger or if the symptoms developed because higher exposure triggered a stronger reaction.

“It’s like trying to fight a fire, and the truck rolls over a garden to do it,” said Clouston.

Fortunately, the brain has considerable redundancy, which makes it possible to reroute brain signals to compensate for problems. Over time, however, that ability might be damaged by that work or by the exposure.

Determining which particular chemical or chemicals causes the greatest damage is difficult, particularly because the collapse and burning of the buildings caused a heterogeneous mixture of so many industrial products to enter the air. It may not matter much, as any material in the brain could be a problem. The type of exposure may also affect the severity of the immune reaction or which parts of the brain are damaged.

Scientists suggest that some of the contaminants that have contributed to health defects may come from the various tools in offices, such as computers and air conditioners.

“As we go forward [with other studies], that will be a focus of ours, to see if we can’t isolate at least one or maybe a couple” of chemicals that could exacerbate the cognitive decline, Clouston said.

Different exposures

Clouston and his collaborators used surveys to find out exposure at the site.

Some of the first responders, for example, used face masks and wore personal protective equipment, including hazmat suits. The incidence of dementia among that group was considerably lower than it was for those who didn’t wear masks.

Five or six out of every 1,000 workers who wore PPE developed dementia, while those without protection developed cognitive decline at the much higher rate of 42 out of 1,000.

The researchers tried to address the possibility that those people who were masks lived a healthier lifestyle prior to 9/11 and may have already been less likely to develop diseases or health conditions.

“We tried to account for that,” Clouston said. In most cases, people aren’t avoiding the kinds of activities or decisions that likely contribute to dementia, such as diet and exercise, which, the general population “widely ignores already,” he said.

Additionally, while a family history of dementia or other medical conditions mattered to some degree for the reported cases, they weren’t sufficient to invalidate the statistically significant result.

To be sure, Clouston acknowledged that the study could have a screening bias, as cognitive evaluations every 18 months likely far exceeds how often most people in the same age group receive testing for their mental acuity.

This is one reason they developed a minimally exposed group that could account for that bias. In that group, dementia was close to, but still higher than the expected rates for the general population.

The number of first responders with dementia far exceeded this group.

Other health threats

Medical professionals have been studying the impacts of other events that release aerosolized particles that could be hazardous to people’s health and could damage the environment.

Burn pits, which the military used in Iraq and Afghanistan, among other locations, contributed to cancers and other diseases among members of the military serving overseas.

Natural disasters, such as the Maui fire last August that not only burned through forests but also destroyed commercial buildings, also create a hazard.

People fled the fire quickly and then returned to search for their loved ones, Clouston said, which exposed them to aerosolized dust.

It would be “good to think about studies to consider risk of dementia” from these events, he added. 

“These studies would probably take a while to complete as the risk grows with time and with age.”

9/11 Memorial at the World Trade Center. Pixabay photo

This Sunday will mark 21 years since our nation was attacked on Sept. 11, 2001. The fear that many of us felt on what was a beautiful late summer day and the compassion toward the victims and their loved ones will never be forgotten.

In addition to those who lost their lives on that tragic occasion, there were many who coordinated evacuation efforts and others who helped clean up the wreckage. It’s imperative for Americans to remember and honor these heroes, too. 

Since 2001, more than 4,000 first responders, volunteers and survivors have died, according to the World Trade Center Health Program. More are suffering from cancers and illnesses that medical professionals believe are linked to working at Ground Zero. These reported deaths are over 1,000 more than the nearly 3,000 killed at the World Trade Center on the day itself.

The images of first responders trying to save people will be forever seared into Americans’ collective memories. 

In the days and the months after 9/11, police officers, firefighters, tradespeople and more put their country and fellow humans first. They dedicated their time and energy to help New York City heal, rebuilding a hurt but unbroken nation, bringing dignity to those perished beneath the rubble. Their dedication allowed families and friends of the victims to properly grieve, and offered a sense of closure.

This was no ordinary work. It took immense courage and selflessness to confront the horrors of Ground Zero. The first responders and the rest put others before themselves, knowing that what they uncovered within the debris could not be forgotten. 

And despite the trauma and shock in the days and weeks after the attacks, these brave souls likely never imagined the physical strain their work would have later in life. 

They could not know that one day they would need additional health care because of their work, emotional support, and possibly financial assistance to help with mounting medical bills.

Ground Zero volunteers and workers, as well as 9/11 first responders, still need our help. Whether it’s listening to their stories, running an errand for them when they are sick or simply thanking them for their bravery, every bit means something.

When tragic memories become part of the distant past, for those who were removed from the scene, it’s easy to forget those who suffered the most or, even worse, ignore them. However, we should never forget the repercussions of 9/11 as our heroes continue to heal from it.

This 9/11, as we honor those lost on that tragic day, we must also remember the thousands on the scene in the months following who have died since then. They helped New York City recover, and their sacrifices should never be forgotten.

There will be a significant reduction in the number of people who can commemorate 9/11 this year, with many like the annual event in Shoreham being closed to the public due to COVID-19. File photo by Kyle Barr

TBR News Media reached out to several local elected officials at the national, state and county level to let them share their thoughts as we head into another commemoration of the attacks on the World Trade Center.

*This post will be updated as more officials respond to our questions.*

Sen. Gaughran Shares his Thoughts on 9/11

State Sen. James Gaughran (D-Northport) spoke with the TBR News Media on the eve of the 19th year since the 9/11 terrorist attacks.

TBR: What do you think of when you reflect on 9/11 today?

Gaughran: When I think of 9/11, I obviously think of the heroism and the number of people I know who died. I certainly think of the police officers and the firefighters and the first responders who, without hesitancy, ran right into those buildings. Probably, some of them knew they were going to get killed. Maybe others figured it was another day when they were going to try to save people.

TBR: Who is the first person you think of in connection with 9/11?

On Sept. 11, 2019, Gov. Cuomo signs 9/11 bill, sponsored by N.Y. State Sen. Jim Gaughran.

Gaughran: Since I have been in the senate, the first person that comes to mind more than anyone else is Tim DeMeo, who is a constituent of mine, who was working for the Department of Environmental Conservation. He was in charge of dealing with oil spills, other contaminated sites and other hazardous clean ups. He was in Manhattan, driving over the Brooklyn Bridge to Brooklyn, when the plane crashed. He got a call, “You should turn around, go back to Manhattan. This is something we’ll have to deal with.”

He turned around. The second plane crashed. He was permanently injured by debris. He stayed there. The next day and the next day, throughout [the clean-up] with all the other heroes…

He worked alongside police and firefighters and others working at the scene. He got very sick. He was not entitled to the same disability retirement benefits that everybody else was who was there. The way the state legislature wrote the bill, it was written so it would [be for] uniformed employees. He was not one of them. He was in the Department of Environmental Conservation. There were eight or nine other people like him. One of the first who came to see me in my district office, he came and told me a story … He said, “everybody else has been helped and I haven’t.”

He has significant medical issues. Attempts to pass a bill never went anywhere. I ended up writing a bill. We passed a bill last year, on 9/11. The Governor [Andrew Cuomo (D)] signed the bill.

It’s my proudest achievement so far. It didn’t help as many people as some of the other legislation I dealt with. I’m proudest of [that bill]. All these people were just as much heroes as everyone else. They were left out. New York was ignoring them.

TBR: How would you compare the heroism of first responders who raced to the burning buildings in Manhattan to the heroism of first responders and health care workers who have dealt with the ongoing unknowns and challenges from the pandemic?

Gaughran: I think it’s basically the same. A nurse or a doctor or a firefighter or an EMT who picks up somebody and puts them in an ambulance and brings them to the hospital are doing this knowing they could easily contract COVID and face the same issues that people they are trying to help are facing. The risks are the same. Running into a burning building is a more immediate risk. Dealing with a sick COVID patient, who may give you the disease, you’re facing a risk that potentially could cost you your life.

TBR: Do you think the divisiveness of today will ease during 9/11?

Gaughran: I would hope so. I remember on 9/11, watching George W. Bush at the site, that iconic image, with the bull horn and everything. That wasn’t that long after the election. My kids were young. They paid attention to everything. [They said] “dad, you didn’t vote for him.” This is a moment when we all have to stand behind him. It was a different world then. It’s hard to get people to agree to the same thing today. The president we have now is not going out of his way to try to create national unity.

I voted for Al Gore, but Bush did push for national unity after that, including visiting mosques, to make it clear that even though the terrorists who killed us were of a certain background, the folks who were living in the United States who happened to be Muslim are patriotic citizens like everyone else.

Rep. Lee Zeldin Shares his Thoughts on 9/11

U.S. Rep. Lee Zeldin (R-NY-1) responded to questions from TBR News Media on the eve of the 19th year since the 9/11 terrorist attacks.

TBR: What do you think of when you reflect on 9/11 today?

U.S. Rep. Lee Zeldin. Flie photo by Alex Petroski

Zeldin: The bravery, selflessness, fearlessness, and resolve of first responders, Americans, and our entire nation as a whole. When so many of us think about 9/11, we remember exactly where we were that day, when ordinary Americans became extraordinary heroes. We vividly remember what we heard, what we saw and how we felt. We remember first responders running towards danger at the greatest possible risk to their own lives.

While our memories of those moments have not faded, most importantly, neither has our resolve to rise stronger than ever before. New Yorkers remain committed, especially this year, to remember, honor and exemplify those Americans, who in the face of unconscionable evil, were the very best of who we are.

TBR:  Who is the first person that comes to mind in connection with 9/11?

Zeldin: It’s difficult to choose just one person who comes to mind, but with the full permanent funding of the 9/11 Victim Compensation Fund signed into law last year, one of the first people who comes to mind is Luis Alvarez. While he wasn’t with us to witness the legislation he fought so hard for signed into law, he spent his final weeks with us continuing the fight until the very end so other 9/11 first responders wouldn’t have to.

TBR: In the context of the pandemic, is 9/11 overlooked?

Zeldin: Even in the midst of a pandemic, the commitment of New Yorkers to Never Forget, as we’ve seen with the Tribute in Light and the Tunnel to Towers Foundation, underscores how dedicated New Yorkers are to the memory of those who died on that day and the so many who have passed since due to 9/11 related illnesses.

TBR: How would you compare the heroism of first responders who raced to the burning buildings in Manhattan to the heroism of first responders and health care workers who have dealt with the ongoing unknowns and challenges from the pandemic?

Zeldin: The same bravery in the face of clear danger and uncertainty that drove so many first responders on 9/11 to save countless lives at the expensive of their own, is the same bravery that has spurred so many of our local first responders and health care workers to serve throughout the novel outbreak of coronavirus.

17-foot long World Trade Center steel beam is focal point of monument remembering 9/11 victims

By Sara-Megan Walsh

A 17-foot World Trade Center steel beam stand in Cold Spring Harbor, more than 35 miles from New York City, as a solemn reminder of those who lost their lives in the 9/11 attacks.

The Cold Spring Harbor Volunteer Fire Department officially dedicated its 9/11 memorial in Fireman’s Park, directly across from its headquarters at 2 Main Street, in a June 16 ceremony. More than 2,750 people were killed in the terrorist attacks, which includes 42 residents from the Town of Huntington.

“We will never forget those who perished on 9/11,” said Thomas Buchta, chairman of the fire department’s 9/11 Committee. “We will remember the sacrifices of those who rushed into the building to fight the fires, to rescue those who were trapped, and the thousands of people who simple went to work that morning and never returned home.”

“[Peter Martin] left behind his wife and two young sons, but he also left behind a legacy. ”
– Chad Lupinacci

Two fire department members, brothers Dan and John Martin, are following in the footsteps of their father, Peter Martin, who died on 9/11. Peter Martin served as a lieutenant in the Fire Department of New York’s Rescue 2 in Brooklyn. He was 43.

“He left behind his wife and two young sons, but he also left behind a legacy,” Huntington Supervisor Chad Lupinacci (R) said. “He loved his occupation and left a record of how many fires he fought over the years and many stories to tell.”

Martin also served as a volunteer firefighter in the Miller Place Fire Department, where he lived with his family at the time.

“While our grief recedes with time and our lives move on in different ways and directions, our resolve and the memories of love friends, co-workers and family will never wane,” said Cold Spring Harbor Fire Chief of Department Daniel Froehlich.

The brothers both served as members of the 9/11 Committee which has worked for more than two years to erect the monument. In May 2016, the 17-foot by 4-foot artifact from World Trade Center Tower One’s 62nd floor was transported from where it was stored at John F. Kennedy Airport out to the Town of Huntington Recycling Center for safekeeping while plans for the memorial were finalized.

“Now 17 years later, think about whether we’ve slipped back into everydayness.”
– Tom Suozzi

Volunteers started constructing the memorial in the fall of 2017, featuring the nearly 18,000-pound beam in a shape reminiscent of a cross being lowered into the ground Sept. 9. Three saplings grown from offshoots of the Callery pear tree that endured the 9/11 attacks, called the “Survivor Tree,” were planted around the memorial with a plaque to explain their significance.

“When you look at it don’t forget the anguish and loss, but don’t forget about the other things this symbolizes, the strength and resilience of spirit,” said Greg Cergol, husband of Huntington Councilwoman Joan Cergol (D) and master of ceremonies. “Those are the things that unite and define us as Americans.”

The keynote address was given by U.S. Congressman Tom Suozzi (D-Glen Cove) who recalled his own desire to help in response to 9/11 in his position as mayor of Glen Gove and visit to ground zero. He questioned if Americans were losing the focus and sense of community that united them in the days that followed.

“Now 17 years later, think about whether we’ve slipped back into everydayness,” Suozzi said. “Love matters. Forgiveness matters. Our friends, our families and our communities matter.”

After a moment of silence was held for the 9/11 victims, the Martin family rang the bell of Cold Spring Harbor Fire Department five times each in four intervals. It’s part of a long-held tradition in the fire department that signals the last alarm of a firefighter who has answered his or her last call.

Firemen salute the American flag during the East Northport Fire Department's 9/11 memorial on Sunday, Sept. 11. Photo by Kevin Redding

By Rich Acritelli

It was 15 years ago this week, Sept. 11, 2001, that Americans were putting their children on school buses and going about their daily routines when our nation was attacked. Terrorists boarded and later commandeered passenger planes that were fully loaded with fuel and flew them into the World Trade Center, the Pentagon and the fields of Shanksville, Pennsylvania. The terrorists that took over Flight 93 originally planned to strike the Capital building or the White House, but cries of “Let’s roll” rang out, and the passengers fought back against the perpetrators.

While Mike Piazza of the New York Mets was an exceptional baseball player, he also served as a leader for his team and the community, and even helped with a humanitarian drive that was based out of Shea Stadium to aid the recovery workers. He spoke about that day during his Baseball Hall of Fame induction speech in July.

“To witness the darkest evil of the human heart and how it tore many loved ones from their families will forever be burned in my soul.”

— Mike Piazza

“Sept. 11, 2001 is a day that forever changed our lives. To witness the darkest evil of the human heart and how it tore many loved ones from their families will forever be burned in my soul,” the transplanted New Yorker, who was born in Philadelphia, said. “But from tragedy and sorrow came bravery, love, compassion, character and, eventually, healing. Many of you give me praise for the two-run home run on the first game back on Sept. 21 to push us ahead of the rival Braves. But the true praise belongs to police, firefighters, first responders, who knew they were going to die, but went forward anyway.”

The New York Yankees, who were in pursuit of another World Series title, visited firehouses, and players had tears in their eyes moments before they played in games.

Today, Americans are watching a hotly contested election. It was 15 years ago that many citizens put aside their political beliefs to be unified against a common enemy. Rescue crews traveled from all over the nation to head toward the remains of the World Trade Center, yellow ribbons were tied on trees across the United States and the undeniable will of our people was quickly demonstrated to the world. While it seems like yesterday that we watched these horrific events occur, there are current high school students that may have lost a parent that day. It is these boys and girls who were so young that they do not easily recollect their loved ones that were amongst the almost three thousand Americans killed tragically. This is not just another historic day to briefly remember — it is still with our citizens on a daily basis. Our children have lived under the heightened security at our airports, infrastructure centers like Pennsylvania Station and the George Washington Bridge, and during major sporting events. During every home game since 9/11, the New York Yankees invite veterans and rescue workers to be honored, as both teams line up to listen to “God Bless America.”

Our North Shore communities were a considerable distance from the destruction of the World Trade Center towers. But unflinchingly, local rescue and support workers from these towns traveled every day and spent hours away from their families to be at ground zero. May we never forget the sacrifices of members of these numerous agencies that are currently suffering from 9/11-related illnesses. It should also be remembered that while our North Shore towns are miles from the city, these communities and schools lost residents and graduates as a result of these acts of terrorism. Thank you to all our rescue workers and military branches that continue to protect the security and values of the United States, at home and abroad.

A piece of Tower 1 from the World Trade Center made its way to the Cold Spring Harbor Fire Department Wednesday to be used as a memorial for the community.

Thomas Buchta, a member of the department, said receiving the metal is important for many reasons.

Brothers Daniel and John Martin, of the Cold Spring Harbor Fire Department, lost their father, Peter C. Martin, a lieutenant in the Fire Department of New York’s Rescue 2 in Brooklyn, during the 9/11 terrorist attack.

“It’s significant for us and for the community to remember … what really took place that day and how many people sacrificed and are still to this day perishing because of illnesses that they received from the Trade Center,” he said. “It’s never-ending. [There are] so many to remember. We don’t ever want to forget what happened. We never want to see that happen again, so that’s why it’s important to remember what transpired that day so we keep vigilant and never let it happen again.”

Bob Thornton, another firefighter at Cold Spring Harbor, said the moment has been 14 years in the making.

“It all started back on 9/11, when we got the call to go in,” he said. “I was fortunate [enough] to be one of the 12 guys from our department that went in.”

Thornton said he and other firefighters were sent to Belmont Park to wait to go to Ground Zero, but after three days, they were discharged and sent home.

“It’s like the end of a dream,” he said of finally having the metal come to their community. “I’ve written letters for 14 years to try and get this metal. You kind of lose steam when nothing happens and the years roll by. Now we’re finally coming to fruition.”

Members of the department picked up the beam early Wednesday morning at The Port Authority of New York and New Jersey storage facility, transported it to the North Shore along with units from the New York City Police Department, the Suffolk County Police Department and others.

The steel beam is 17 feet long and 4 feet wide and weighs about 18,000 pounds. According to the department, it is one of the last remaining pieces of steel available for use as a memorial.

North Shore natives travel to Washington with hopes of swaying lawmakers to renew health care benefits

John Feal speaks at the September 11 memorial ceremony in Commack last week. Photo by Brenda Lentsch

The 9/11 first responders who have fought for years to get health care support are heading back to Washington, D.C., in hopes of ushering in the renewal of the James L. Zadroga 9/11 Health & Compensation Act. And for one Nesconset resident, change cannot come soon enough.

Parts of the bill will expire next month, and other parts in October 2016.

The James Zadroga 9/11 Health and Compensation Reauthorization Act would extend the programs of the original Zadroga act indefinitely. It was introduced to Congress in April and currently has 150 bipartisan co-sponsors.

“When this bill expires, our illnesses do not expire,” said John Feal, founder of the FealGood Foundation, in a phone interview. Feal, of Nesconset, has been walking the halls of Congress for the past eight years to help get this bill passed.

He is also a 9/11 first responder who worked on the reconstruction at Ground Zero, and lost half of his foot in the process. He suffered from gangrene, but he says his injuries “pale in comparison to other first responders.”

President Barack Obama signed the current Zadroga act into law in 2011 and established the World Trade Center Health Program, which will expire in October if not renewed.

The WTC program ensured that those whose health was affected by 9/11 would receive monitoring and treatment services for their health-related problems. It consists of a responder program for rescue and recovery workers and New York City firefighters, and a survivor program for those who lived, worked or went to school in lower Manhattan on Sept. 11, 2001.

The Zadroga act also reopened the September 11th Victims Compensation Act, which allows for anyone affected to file claims for economic losses due to physical harm or death caused by 9/11. That will expire in October of next year.

Feal said he was asked by television personality Jon Stewart to come on “The Daily Show” in December 2010, but the Nesconset native said he did not want to leave the real legislative fight in D.C. Instead, he helped get four 9/11 responders to the Dec. 16, 2010, episode, who helped shed light on the ongoing battle these responders were dealing with in Congress.

“He was definitely one of the reasons the bill got passed,” Feal said of Stewart. Stewart accompanied Feal and many other first responders when they traveled to Washington, D.C, on Wednesday, Sept. 16, and took part in a mini rally.

The bill did not pass the first time it was presented to Congress back in 2006. A new version was drafted in 2010 and passed in the House of Representatives, but was having trouble getting through the Senate due to a Republican filibuster. The bill received final congressional approval on Dec. 22, 2010, and was enacted by the president on Jan. 2, 2011.

“As we get older these illnesses will become debilitating,” Feal said. “Not extending this bill is criminal. People will die without it. It’s a life-saving piece of legislation.”

Jennifer McNamara, a Blue Point resident and president of The Johnny Mac Foundation, is also actively involved in the fight to keep responders health costs covered. Her late husband, John McNamara, passed away in 2009 from stage IV colon cancer.

He was a New York City Firefighter and worked more than 500 hours at the World Trade Center in the aftermath of 9/11. He worked with responders to get support for the Zadroga bill before he died.

“I made him a promise to continue to lend support to get this legislation passed,” Jennifer McNamara said in a phone interview. When her husband passed away, she said there weren’t as many responders getting sick as there are now. “People are dying more quickly, and more are getting diagnosed with cancers and other illnesses.”

The two big issues that McNamara said she feels need to continue to be addressed are monitoring these diseases and coverage of costs once someone is diagnosed. McNamara said she believes that if there were better monitoring programs earlier on, her husband could’ve been diagnosed before his cancer was stage IV, and he could’ve had a better chance.

“These people did tremendous things for their country,” McNamara said. “They shouldn’t have to guess about whether they are going to be taken care of.”

Community members gathered to commemorate the 14th anniversary of the September 11 terrorist attack on the United States. During memorial events across Suffolk County, ceremonial shots were fired, victims’ names read aloud and flowers laid down.

Members of the Setauket Fire Department participate in the annual ceremony in memory of those lost on Sept. 11, 2001. The event is a cherished annual event on the North Shore. File photo by Barbara Donlon

By Giselle Barkley & Victoria Espinoza

After 14 years, the tragic events of Sept. 11, 2001, have not been forgotten, by residents across the North Shore.

In honor of those who lost their lives on 9/11, this Friday, from 7:30 to 8:00 p.m., the Setauket Fire Department is holding their annual 9/11 Memorial service. The department is holding the ceremony at September 11 Memorial Park on the Setauket Fire Department’s Nicolls Road Station.

The East Northport Fire Department will also be hosting its 13th annual memorial service this Friday, with two separate events, both being held at the 9th Avenue side of the Larkfield Road firehouse at the 9/11 Memorial Monument on Friday, Sept. 11. The morning ceremony will begin at 9:45 a.m., and the evening candlelight vigil begins at 8 p.m.

Both ceremonies are set around an eight-foot, 8,000 pound steel beam from Ground Zero that the department received from the Port Authority of New York and New Jersey. During the ceremony, firefighters will read victims’ names, and the sirens will sound at the time of the collapse of the twin towers. The Suffolk County Police Department’s helicopter will do a flyover during the ceremony, and the Northport High School Tights will sing the national anthem and “America, the Beautiful.”

The Commack school district will also be presenting a night of remembrance, also for the 14th year in a row, and the theme this year is patriotism, remembrance and resiliency. The ceremony will be held at the Commack High School football fields at 6:30 p.m. on Friday, Sept. 11. Music will be performed by J.D. Leonard, and honorary guest speakers will attend. This year, there will also be a dedication of the three survivor trees planted in their memorial garden.

Residents, or anyone who wishes to pay their respects, are free to attend this candlelight ceremony. According to Dave Sterne, district manager of the Setauket Fire District, the department will serve light refreshments at the event.

“When it comes to September 11th tragedies, it’s one of the worst things to befall the United States of America, and it was in our own backyard,” Sterne said.

According to Sterne, in light of Sept. 11, the fire department’s park was established and dedicated on Sept. 11, 2004. The park was originally designed by Emily Quinn, who was a Ward Melville High School student at the time. Sterne said Quinn implemented steel beams from the World Trade Center into her design of the park. Additional features were added over time, including lights and a granite wall, which illustrates the twin towers and shows the names of those who lost their lives 14 years ago.

“Unfortunately, in the fire service, it’s a close knit community, and we all knew people that unfortunately [lost their lives].” Sterne said

The Setauket Fire Department’s ceremony is one of several ceremonies responders on Long Island are dedicating to those who died on 9/11. This Friday, Sept. 11, the Port Jefferson Fire Department is holding its annual 9/11 memorial ceremony at 9:30 a.m. on Maple Place in Port Jefferson. Rocky Point Fire Department also scheduled its ceremony on Sept. 11. Residents can attend the service from 7:00 to 8:00 p.m. in Shoreham, next to the Firehouse. Locals can also go to 9/11 Responders Remembered Park in Nesconset at 10 a.m. on Saturday, Sept. 12, for a reading of the names.

John A. Meringolo, first assistant chief of the Stony Brook Fire Department said his team of heroes would be doing its part to make sure the memories of those lost live on.

“We continue to be mindful of the sacrifices made on that day and believe that it is important that a memorials take place so such events remain in the memory of all those who continue to benefit from living in a free society,” he said.

While many lost their lives on 9/11, Sterne acknowledged that there are also people, including responders, who are still suffering from the injuries or health complications they acquired from 9/11. Regardless of whom someone is remembering, Sterne said it’s simply important to remember him or her.

“It’s important for ourselves and future generations, as time goes by, that we remember to remember,” Sterne said. “And [that we] gather in a beautiful place that was dedicated just for this reason, and that they respect those that were lost, and continue to be lost, as a result of that tragedy.”

Huntington Town will also be holding a small ceremony at Heckscher Park at noon this Friday, Sept. 11.