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Stony Brook Medicine

Photo from SBUH
Stony Brook Medicine experts discuss diagnosis, treatment, support and more during livestream event

WHAT:

Tic disorders are common, affecting about 15 percent of the overall population. Tourette’s Disorder, a subtype of tic disorder, is estimated to affect 1 out of every 162 children (0.6%). The nervous system disorder involves repetitive movements or unwanted sounds, such as repeatedly blinking one’s eyes or unintentionally uttering words that might be inappropriate. The first symptoms usually occur between the ages of 5 and 10 years, generally in the head and neck area and may progress to include muscles of the trunk, arms and legs. Motor tics generally occur before the development of vocal tics and simple tics often precede complex tics.

​​The Stony Brook Center for Tics and Tourette’s Disorder provides a comprehensive evaluation to devise a developmentally appropriate treatment plan to address tics. Treatment varies from person to person but may include:

  • Oral Medication
  • Botulinum toxin injections
  • CBIT (Comprehensive Behavioral Intervention for Tics) — a structured therapy specific for tics
  • DBS (Deep Brain Stimulation) — a surgical option for severe cases that don’t respond to other treatments

Experts from Stony Brook Medicine’s Center for Tics and Tourette’s Disorder will discuss treatments, diagnosis, support and more during a livestream event on Thursday, October 14, 2021 at 2pm EST. Viewers can submit questions via the comment section and have them answered by the experts.

To learn more about the Stony Brook Center for Tics and Tourette’s Disorder, visit:

https://neuro.stonybrookmedicine.edu/centers/movement/tics_tourette_center

WHEN:

Thursday, October 14, 2021 at 2PM EST

The livestream event can be seen on:

Facebook at https://www.facebook.com/stonybrookmedicine/posts/4361066807282521

Or

Youtube at https://www.youtube.com/watch?v=hsCjIRPv8g0

MODERATOR:

  • Wilfred Farquharson, IV, PhD, Licensed Psychologist, Director of Child and Adolescent Psychiatry Outpatient Services, Stony Brook Medicine

PANELISTS:

  • Carine Maurer, MD, PhD, Movement Disorders Neurologist, Director of Stony Brook Tics and Tourette’s Disorder Center
  • Jenna Palladino, PsyD, Comprehensive Behavioral Intervention for Tics (CBIT)-certified, Clinical Psychologist, Co-Director of Stony Brook Tics and Tourette’s Disorder Center

Photo by Julianne Mosher

Congressman Lee Zeldin (R-NY1) rallied with health care workers to boycott Gov. Kathy Hochul’s (D) vaccination deadline, Sept. 27.

Zeldin, who is campaigning for governor, joined other elected officials outside the state building in Hauppauge Monday just hours before health care workers were required to get the COVID-19 vaccine by midnight or risk losing their jobs.

On Monday night, Hochul signed an executive order to significantly expand the eligible workforce and allow additional health care workers to administer COVID-19 testing and vaccinations. 

According to the mandate, if health care workers do not receive at least one dose of one of the COVID-19 vaccines by the end of day Monday — without a medical exemption or having previously filed for a religious exemption — they will forfeit their jobs. 

The congressman has been vocal over the mandates, locally and nationally. 

“Our health care workers were nothing short of heroic the past 18 months,” Zeldin said. “We shouldn’t be firing these essential workers. We should be thanking them for all they’ve done for our communities.”

Zeldin was calling on Hochul to work with medical facilities and the state’s health care workers to “implement a more reasonable policy that does not violate personal freedoms, fire health care workers who helped us through the pandemic’s worst days, and cause chaos and staffing shortages at hospitals and nursing homes.”

Hochul stated this week that to fill the vacancies in hospitals, she plans to bring in the National Guard and other out-of-state health care workers to replace those who refuse to get vaccinated.

“You’re either vaccinated and can keep your job, or you’re out on the street,” said Zeldin, who is vaccinated.

State Sen. Mario Mattera (R-St. James) said he was angered when health care employees were given limited ability to negotiate the vaccine mandate through their unions.

“This isn’t a state of emergency, like a hurricane,” he said. “This is a state of emergency that people get fired, and not going to have unemployment insurance. I am a union leader. This is a disgrace to all Americans.”

According to the state Department of Labor, unvaccinated workers who are terminated from their jobs will not be eligible for unemployment insurance benefits. A new Republican-led bill introduced in Albany would restore those jobless benefits.

On Tuesday, the state released data noting the percentage of hospital staff receiving at least one dose was 92% (as of Monday evening) based on preliminary self-reported data. The percentage of fully vaccinated was 85% as of Monday evening, up from 84% on Sept. 22 and 77% on Aug. 24.

 “This new information shows that holding firm on the vaccine mandate for health care workers is simply the right thing to do to protect our vulnerable family members and loved ones from COVID-19,” Hochul said in a statement. “I am pleased to see that health care workers are getting vaccinated to keep New Yorkers safe, and I am continuing to monitor developments and ready to take action to alleviate potential staffing shortage situations in our health care systems.”

Long Island’s three health care providers have already implemented the mandate and are taking action. 

Northwell Health, the state’s largest private employer and health care provider — and which includes Port Jefferson’s Mather Hospital and Huntington Hospital — previously notified all unvaccinated team members that they are no longer in compliance with New York State’s mandate to vaccinate all health care workers by the Sept. 27 deadline.

“Northwell regrets losing any employee under such circumstances, but as health care professionals and members of the largest health care provider in the state, we understand our unique responsibility to protect the health of our patients and each other,” Northwell said in a statement. “We owe it to our staff, our patients and the communities we serve to be 100% vaccinated against COVID-19.”

Catholic Health Executive Vice President and Chief Medical Officer Jason Golbin said in a statement that the provider is “incredibly proud of our staff’s dedication to protecting the health and safety of Long Islanders during the COVID-19 pandemic and are grateful for their heroic efforts over the last 18 months.”

He added, “In keeping with our commitment to ensuring the health and safety of our patients, visitors, medical staff and employees, we are complying with the New York State vaccine mandate for all health care workers.”

Golbin said that as of Tuesday, Sept. 28, the vast majority of staff is fully vaccinated with only a few hundred people furloughed from across six hospitals, three nursing facilities, home health care, hospice and other physician practices. 

Stony Brook University officials added Stony Brook medicine has been preparing for New York State’s mandate all healthcare workers get at least one dose of the COVID-19 vaccine by the deadline. 

As of 8 p.m. on Sept. 28, 94.07% of Stony Brook University Hospital employees have been vaccinated, and this number continues to increase, 134 Stony Brook University Hospital employees are being placed on suspension without pay and will be scheduled to meet with Labor Relations representatives to discuss their circumstances. While awaiting this meeting, they can use vacation or holiday time off. If they continue to elect not to receive the vaccine, they will be terminated in accordance with the NYS DOH order. 

Less than 1% of the hospital’s total employee population are in a probationary employment period and while they are currently suspended without pay, they are still eligible to be vaccinated before their terminations are processed and could still return to work. 

Officials said these numbers are fluid and are expecting further declines.

From left, Tahmid Rahman, MD, Cardiologist and Associate Director, Center for Advanced Lipid (Cholesterol) Management and Associate Director, Quality and Safety in Cardiology; On Chen, MD, Interventional Cardiologist and Director, Center for Advanced Lipid (Cholesterol) Management; Director, Outpatient Services; and Director, Cardiac Care Unit (CCU) and Telemetry; and Sahana Choudhury, AGPCNP-C, MSN, CMSRN, Adult Cardiology Nurse Practitioner. Photo from Stony Brook Medicine

Specialty heart care is once again expanding at Stony Brook Medicine with the addition of the Center for Advanced Lipid (Cholesterol) Management at the Stony Brook University Heart Institute, the first of its kind in Suffolk County. Lipids are fatty substances in the blood that can lead to blockages in heart arteries. The new center will use testing tailored to each patient to get a complete understanding of inflammatory markers, lipid profile, apolipoprotein B levels and more. From there, Stony Brook experts can develop a cardiac disease prevention and cholesterol management plan.

“Our goal is to provide earlier diagnosis so that our patients can be proactive and prevent premature heart disease,” said Lipid Center Director On Chen, MD, who is also the Director of the Cardiac Care Unit (CCU) at Stony Brook Medicine. “As an interventional cardiologist, I treat patients with severe disease and blockages to the heart, and I’d much rather see patients early to be aggressive with prevention. Today, there is so much we can do to get ahead of heart disease.”

With clinic hours available in East Setauket and Commack, the Lipid Center is staffed with cardiologists who have specialized training and certification through the American Board of Clinical Lipidology. The opening coincides with September’s National Cholesterol Education Month, which aims to raise awareness about cardiovascular disease, high cholesterol levels, and stroke.

“At Stony Brook Heart Institute, our cardiac specialists work to fight heart disease from every angle, and the new Center for Lipid Management is an important part of bringing advanced management of cholesterol disorders to our patients in a holistic and comprehensive way,” said Hal A. Skopicki, MD, PhD, Co-Director, Stony Brook Heart Institute; Chief, Cardiology; and Ambassador Charles A. Gargano Chair, Cardiology, Renaissance School of Medicine at Stony Brook University. “Our clinicians are not only involved in the treatment but are also actively involved in the science of lipids and the role they play in our health and disease — so that we can be on the forefront of bringing best-in-class knowledge to our patients and community.”

High cholesterol is a major risk factor for heart disease, which is the leading cause of death in the United States. High cholesterol has no symptoms, so patients might not know that their cholesterol is too high – unless it’s measured by a doctor with a blood test.

“While there are risk factors that are not within our control — such as age or family history — there are many crucial factors that we can influence,” said Tahmid Rahman, MD, Associate Director of the Center for Advanced Lipid (Cholesterol) Management. “Even if you already have cardiovascular disease, it’s not too late to lower your risk. In fact, an effective lipid-lowering treatment plan can be lifesaving.”

“For patients who have already suffered a heart attack, had coronary artery bypass surgery or received stenting of their arteries, the need for optimum cholesterol management may even be higher as the consequences of a heart attack in these patients may be even more dangerous,” adds Dr. Chen.

About Stony Brook University Heart Institute:

Stony Brook University Heart Institute is located within Stony Brook University Hospital as part of Long Island’s premier university-based medical center. The Heart Institute offers a comprehensive, multidisciplinary program for the prevention, diagnosis and treatment of cardiovascular disease. The staff includes full-time and community-based, board-certified cardiologists and cardiothoracic surgeons, as well as specially trained anesthesiologists, nurses, physician assistants, nurse practitioners, respiratory therapists, surgical technologists, perfusionists, and other support staff. Their combined expertise provides state-of-the-art interventional and surgical capabilities in 24-hour cardiac catheterization labs and surgical suites. And while the Heart Institute clinical staff offers the latest advances in medicine, its physician-scientists are also actively enhancing knowledge of the heart and blood vessels through basic biomedical studies and clinical research. To learn more, visit www.heart.stonybrookmedicine.edu.

 

From left, Dr. Korbin's wife, Seth Korbin, MD, and Legislator Bridget Fleming at the Suffolk County Legislature office in Riverside on Thursday, September 9th.
Seth Korbin, MD, joint reconstruction specialist at Stony Brook Orthopaedic Associates and clinical associate professor at the Renaissance School of Medicine at Stony Brook University, was presented a Proclamation by Suffolk County Legislator Bridget Fleming this week in acknowledgement of his rescue of a man, woman and her 7-year-old son from the waters in Hampton Bays on Wednesday, August 25.
After deciding to go surfing in the ocean off Dune Road, Dr. Korbin noticed three people clinging to a boogie board and realized that they were caught in a rip current. He first brought the 7-year-old boy to shore, and then went back out for the man and woman. Everyone was safe and no medical attention was needed, thanks to the quick and selfless actions of Dr. Korbin.

PSMA Riverhead Imaging. Photo from Stony Brook Medicine

According to the American Cancer Society, an estimated one in eight men will be diagnosed with prostate cancer in their lifetimes. Until now, conventional imaging, especially at low PSA (Prostate-Specific Antigen) levels, has not been able to identify the location and extent of the disease in the majority of cases of men with a suspected cancer recurrence. Now, Stony Brook University Cancer Center, in conjunction with Stony Brook Advanced Imaging, is the first on Long Island to offer men with prostate cancer targeted Positron Emission Tomography (PET) imaging with PYLARIFY® (piflufolastat F 18) Injection, a Prostate-Specific Membrane Antigen (PSMA) imaging agent.

PSMA Riverhead Imaging. Photo from Stony Brook Medicine

Backed by the experts and state-of-the-art technology at Stony Brook Advanced Imaging Center, this type of imaging enables visualization of lymph nodes, bone and soft tissue metastasis to determine the presence or absence of recurrent and/or metastatic prostate cancer.

Dr. Dinko Franceschi, Chief of Nuclear Medicine and Director of Clinical PET in the Department of Radiology at the Renaissance School of Medicine, states, “For years, there has not been good imaging modalities for prostate cancer – now we have this tool to see exactly where the tumor is in a patient, which will help in determining the best approach going forward.”

Developed by Lantheus, PYLARIFY® was recently approved by the U.S. Food and Drug Administration (May 2021) as the first commercially available PSMA PET imaging agent for prostate cancer.  Those with suspected metastasis who are candidates for initial definitive therapy or those with suspected recurrence based on elevated serum PSA level are eligible for the scan.

PSMA scans are available at two Stony Brook Medicine imaging centers (Riverhead and Stony Brook) with more locations to follow.

For more information or to make an appointment, visit imaging.stonybrookmedicine.edu. To learn more about Stony Brook Cancer Center and prostate cancer treatment, visit cancer.stonybrookmedicine.edu.

About Stony Brook Medicine:

Stony Brook Medicine integrates and elevates all of Stony Brook University’s health-related initiatives: education, research and patient care. It includes five Health Sciences schools — Dental Medicine, Health Technology and Management, Medicine, Nursing and Social Welfare — as well as Stony Brook University Hospital, Stony Brook Southampton Hospital, Stony Brook Eastern Long Island Hospital, Stony Brook Children’s Hospital and more than 200 community-based healthcare settings throughout Suffolk County. To learn more, visit www.stonybrookmedicine.edu.

About PYLARIFY® 

PYLARIFY® (piflufolastat F 18) injection s a fluorinated small molecule PSMA-targeted PET imaging agent that enables visualization of lymph nodes, bone and soft tissue metastases to determine the presence or absence of recurrent and/or metastatic prostate cancer. For men with prostate cancer, PYLARIFY PET combines the accuracy of PET imaging, the precision of PSMA targeting and the clarity of an F 18 radioisotope5 for superior diagnostic performance. The recommended PYLARIFY dose is 333 MBq (9 mCi) with an acceptable range of 296 MBq to 370 MBq (8 mCi to 10 mCi), administered as a bolus intravenous injection.

Photo from Stony Brook Medicine

As we continue to battle against the coronavirus and approach flu season, it’s imperative that we know the facts about the vax. This Tuesday, August 17, join experts from Stony Brook Medicine as they discuss the importance of and science behind vaccines during a LIVE virtual event. Our experts will dispel misconceptions and address concerns surrounding key vaccinations, including those for COVID-19, the flu, and human papillomavirus (HPV).

The ongoing pandemic has created unprecedented challenges for healthcare providers and patients. A recent study showed a 71% drop in healthcare visits for 7 to 17-year-olds, when critical vaccines like Tdap, HPV, and meningitis are given. The HPV vaccine is recommended for boys and girls at age 11 or 12 because it works best when given before exposure to HPV. It can be given as early as age nine, and through age 26 for both men and women, if they did not get vaccinated when they were younger. The vaccine is safe with more than 270 million doses having been given worldwide since 2006. Even though the HPV vaccine can prevent many cancers caused by HPV infection, nearly half of adolescents in New York State are not getting the vaccine as recommended.

Every year in New York, nearly 2,600 people are diagnosed with cancer caused by HPV. To help educate those across Long Island about the importance of HPV vaccination for cancer prevention in adolescents, the Stony Brook University Cancer Center received a grant funded by the New York State Department of Health and Health Research Inc. This allows Stony Brook, the first and only institution on Long Island to be part of the Cancer Prevention in Action (CPIA) program, an opportunity to further promote the importance of the HPV vaccine as cancer prevention.

WHEN:

Tuesday, August 17, 2021 at Noon EST

The livestream event can be seen on:

Facebook at https://www.facebook.com/stonybrookmedicine/posts/4181276798594857

Or

Youtube at https://www.youtube.com/watch?v=WlmY5d_QUTE

Moderator Sharon Nachman

MODERATOR:

  • Sharon Nachman, MD, Professor of Pediatrics and Associate Dean for Research at the Renaissance School of Medicine, Stony Brook University & Chief of the Division of Pediatric Infectious Diseases, Stony Brook Children’s Hospital

PANELISTS:

  • Jill Cioffi, MD, FAAP, Assistant Professor of Clinical Pediatrics at the Renaissance School of Medicine, Stony Brook University and Medical Director of Ambulatory Primary Care Pediatrics, Stony Brook Children’s Hospital

  • Lauren Ng, DO, FAAP, Assistant Professor of Pediatrics at the Renaissance School of Medicine, Stony Brook University and Primary Care Pediatrics, Stony Brook Children’s Hospital

For more information on Stony Brook Medicine’s vaccine program visit, https://www.stonybrookmedicine.edu/vaccine

This program is supported with funding from the State of New York. The views expressed in this educational event and by speakers and moderators do not necessarily reflect the official policies of the State.

Pet Therapy Dog Molly
There’s a new top dog of Stony Brook University Hospital’s volunteer program. Stony Brook Medicine has awarded Pet Therapy Team Doreen Monteleone and her seven-year-old Labrador partner Molly the 2020 Volunteers of the Year. Doreen and Molly, from West Sayville, joined the hospital volunteer program in March of 2019 and together have donated nearly 200 hours of service since.
Doreen Monteleone and Pet Therapy Dog Molly

Molly came to Stony Brook with an already impressive resume. She is certified by Therapy Dogs International (TDI) and is recognized by the American Kennel Club (AKC) as a Therapy Dog (THD) for her work over the past several years. Besides her visits at Stony Brook University Hospital, Molly is a reading companion for children at a library. Molly is also highly skilled in scent detection. She competes in events that showcase skills similar to bomb or narcotics detection and is currently trialing at the elite level with the National Association of Canine Scent Work (NACSW). Through AKC, Molly earned obedience titles Beginner Novice (BN) and Companion Dog (CD); and has one leg on her Companion Dog Excellent (CDX) title. AKC has also awarded her the Trick Dog Advanced (TDA), Canine Good Citizen (CGC), AKC Temperament Test (ATT) and Farm Dog Certified (FDC) titles.

Before the pandemic, Doreen and Molly engaged in hospital visits primarily involving Stony Brook’s geriatric patients. Regular visits were arranged by Carolyn O’Neill, NICHE (Nurses Improving Care for Healthsystem Elders), Elder Life Coordinator and Geriatric Educator at Stony Brook Medicine.

“I have heard countless stories on how visits from Molly and Doreen have greatly benefited our patients,” says O’Neill. “Molly has brought so much cheer to those who need it and she has touched the hearts of many at Stony Brook.” Doreen recalls one patient who had a profound reaction to one of Molly’s visits. After having a stroke, a woman would not talk to anyone. That was until Molly came to see her. After the four-legged volunteer left, the patient’s nurse asked, “What did you think of Molly?” The patient responded, “I love that dog!”

Pet Therapy Dog Molly

When COVID-19 suspended Volunteer services and in-person visits, Pia York, Therapeutic Intervention Coordinator at Stony Brook Medicine, took the lead to bring virtual Pet Therapy visits to staff. Rounding with an iPad, Pia with help from recreation therapists Chris Brigante, Diane Dignon and Casey Carrick, visited various units bringing tale wags, virtual kisses and tricks to help relieve the stress. They virtually visited every area of the hospital from the pharmacy on the first floor to the 19th floor.

During these visits, Molly became a celebrity. Her name was mentioned hospital-wide and requests for visits increased ten-fold. In addition to visits, Doreen and Molly creatively used photos to help emphasize the importance of social distancing, proper mask wearing, and hand washing to name a few. Some were even written in Spanish. The photos also contained various inspirational messages for Stony Brook staff as they worked tirelessly to care for patients during the height of the pandemic.

Doreen says she simply wants to share the special joy Molly brings. “She always puts a smile on my face and makes me laugh. Patients and staff would often say that Molly made their day,” says Doreen. “When the COVID crisis hit, I thought about the enormous stress and uncertainty at the hospital. Continuing our visits remotely to raise spirits was the least I could do.”

Molly is also a bit of a celebrity outside of Stony Brook. She can be seen running with a little girl at the end of the current Primatene Mist commercial.

To learn more about Pet Therapy at Stony Brook Medicine, visit https://www.stonybrookmedicine.edu/patientcare/hospital-volunteers/pet-therapy

Reese Tiller, right, with his physician Dr. Laura Hogan, division chief of Pediatric Hematology/Oncology and director of the Pediatric Oncology Survivorship Program at SBCH, during the July 27 10th anniversary event. Photo from Stony Brook Medicine

Stony Brook Children’s Hospital gathered doctors, nurses, physicians and staff to celebrate their 10th anniversary of pediatric care this Tuesday, both in person and virtually. 

Throughout the years, SBCH has provided innovative research, clinical trials and breakthrough techniques to benefit pediatric patients. The hospital has more than 180 skilled pediatric specialists who cover more than 30 specialties.

“We have a long history of caring for children, and it was with the generational knowledge and passion that we made the commitment to create an institution that would better meet the needs of nearly half-a-million children in Suffolk County,” said Maurie McInnis, president of Stony Brook University. 

Even during the pandemic, SBCH had pediatric investigators on duty, researching the effectiveness the COVID-19 vaccine has on children. 

During the event, photos were displayed showing the history of Stony Brook Children’s Hospital. Photo from Stony Brook Medicine

Holbrook high schooler Reese Tiller attended the event and shared his experience with the children’s hospital that helped treat him when he had a cancer diagnosis. 

After a soccer accident left Tiller with a concussion, it was SBCH who found out through testing that he had a large mass on his chest which was discovered to be leukemia. 

“I was extremely confident that Reese was in the best place and was only going to get the best care possible,” said his mother Jaimi Tiller.

The Tiller family expressed their gratitude for SBCH and the effort it put into curing Reese’s illness. The hospital kept the family, including Reese, informed on every update possible. 

“The second I got there, I felt loved and cared for,” Reese said. 

The transition to the children’s hospital was easy for the Tiller family and despite being there for treatment, the overall feeling of the hospital was welcoming for all. 

SBCH has become a vital part of the academic and clinical mission of SBU and Stony Brook Medicine, which aim to provide the highest quality of education and training. 

With the dedication and passion of Stony Brook’s health care workers, SBCH has become a regional and national leader in children’s health care, and the first children’s hospital in the nation that created a center for the treatment of pediatric multiple sclerosis.

“You should all be proud of the outstanding clinical quality and breadth of services Stony Brook Children’s provides,” said Dr. Margaret McGovern, vice president for Clinical Programs and Strategy for SBM. “For me personally, it has been an honor to work with all of you and see your dedication and passion for improving children’s lives has been a daily inspiration.”

Coffee and snacks are available, and snacks have been individually wrapped during the pandemic. Photo from Stony Brook Medicine

The Ronald McDonald Family Room — a part of Stony Brook Children’s Hospital — has served as a sanctuary for parents and family members who have a child that is in prolonged care of the facility.

Officially opening in 2013, the purpose of the family room is to provide a respite space for parents to spend their downtime while their child is being treated in the hospital, whether that be long or short term. 

However, since the pandemic began, the lounge promptly shut down and is currently awaiting the green light from the hospital to reopen.

“It is sad because it shut down a great resource room,” said Tricia Telemaque, host and board member of the family room. “When we open really depends on the day-to-day and what happens with COVID. However, we are on alert and ready to go back full force.”

Coffee and snacks are available, and snacks have been individually wrapped during the pandemic. Photo from Stony Brook Medicine

The lounge emulates an apartment-style environment with countless amenities for family members such as a fully stocked kitchen, private showers and laundry machines.

Pre-pandemic, volunteers would solicit the community to have restaurants, pizza places and bigger chains such as Chick-fil-A and McDonald’s deliver food that the volunteers would serve to the families of the sick children. The lounge offered breakfast, lunch and dinner.

Providing emotional support for families is another key aspect of the volunteer work. Having a person to talk to could serve as a stress reliever for the unfortunate circumstances going on in a parent’s life.

“I remember one day I was sitting in the room and this one woman was folding her laundry and she asked, ‘Could I just sit and talk to you because talking to someone while folding laundry feels normal’ so it really is more of a solace room,” Telemaque said. 

According to her, the children admitted in the hospital also have siblings who come to the lounge and are often forgotten about. The volunteers make sure there are plenty of books and toys to play with, not only for the child admitted but for their siblings too. 

“The intent is to not have any white coats [doctors] in the lounge,” Telemaque said. “So, it’s not a place where doctors and nurses can come in.” 

One of the biggest goals for Ronald McDonald House Charities is to bring awareness to Long Islanders about what the lounge is and its purpose for the families that use it. 

Since the pandemic began, the organization has continued to work hard for families who were suffering through the COVID period. However, donations of food have become more complicated due to the need to have items individually wrapped such as chips and granola bars. 

The family room relies fully on donations from the surrounding community and businesses, as it serves approximately 3,600 families a year, so fundraising is essential for their need to remain active. 

“When I started working in the room, I was amazed at how few of my friends knew that there was a Ronald McDonald [room] here in Stony Brook,” Telemaque said. “So simple awareness that there is such a need for something like this is very important and I think that is an underserved opportunity.” 

The Ronald McDonald Family Room at Stony Brook Children’s Hospital has an area where families can sit and talk. Photo from Stony Brook Medicine

Among many parents who have used the family room, Karen Maher said using the room has been a huge stress reliever on both her and her daughter, who is undergoing cancer treatment.

“I look at the Ronald McDonald House as a blessing,” Maher said. “They really helped my daughter’s treatment go much easier for me and her. They’d bring little gifts for her too, something as simple as a teddy or a blankie.” 

With the help of the lounge and their conveniences, Maher was finally able to get the rest and relaxation she needed.

For more information on how to donate to the Ronald McDonald Family Room in Stony Brook Children’s Hospital, visit www.rmhcnym.org or call 516-775-5683. 

Pixabay photo
Dr. On Chen. Photo from Stony Brook Medicine

Now that temperatures are on the rise and humidity is surging , it is important to protect our hearts from the hazards of the summer sun. On Chen, MD, interventional cardiologist and Director of the CCU and Telemetry Units, Outpatient Cardiology Services and the Lipid Program at Stony Brook Medicine, has some suggestions to help you stay heart-safe all summer long.

People with an existing heart condition need to be careful with warmer temperatures, but even a healthy heart can be put under stress when temperatures climb. Following are tips for helping to make your summer heart-safe:

  1. Hydrate. Adequate hydration is nothing less than your best friend as the summer heat moves in. Drinking plenty of water helps regulate your temperature, helps your heart pump more easily and keeps all your organs functioning properly. Remember to drink before you are thirsty, and avoid alcohol and caffeinated beverages, which can dehydrate the body. And, it is important to know that some common heart medications can make you more vulnerable to high heat and increase your hydration needs. Talk to your doctor about your specific hydration needs.

  2. Staying Cool. If you don’t have access to air conditioning, cold compresses (an ice-pack or ice-water filled bottle) applied to your ‘pulse points’ — the areas where your veins are closest to your skin’s surface, including wrists, neck, temples and armpits — can help you cool down.

  3. Eat Water-Rich Foods. You get about 20 percent of your water from the foods you eat. A hot weather diet that emphasizes cold soups, salads and fruits can both satisfy hunger and provide extra fluid. Strawberries, watermelon, peaches, cucumbers, celery, tomatoes, peppers and spinach, are all fruits and veggies that are 90 percent or more water.

  4. Know Heat Illness Warning Signs. Spending too much time in extreme heat may lead to heat exhaustion and, in turn, heatstroke, two serious heat-related illnesses in which your body can’t control its temperature.

    1. Heat Exhaustion Symptoms: Heavy sweating, nausea or vomiting, muscle cramps, tiredness, dizziness and fainting. Treatment: Move to a cool place, loosen clothing, use cold compresses, sip cool (not cold) water. If symptoms persist, call 911.

    2. Heatstroke (also called Sunstroke) Symptoms: Fever of 104 degrees or more; severe headache; behavioral changes; confusion; hot, red skin; no sweating; rapid heartbeat and loss of consciousness. Treatment: Heatstroke is a life-threatening medical emergency. Call 911 immediately. Quickly move the individual to a cooler place, use cold compresses, do not give anything to drink.

  5. Know Your Numbers. See your doctor to get a careful look at your “numbers,” including your cholesterol and triglyceride levels, your blood pressure and more. Knowing your numbers and your risk factors are an important part of heart health, especially before engaging in warm-weather activities.

  6. Timing is Everything. Avoid being outdoors during the hottest times of the day, when the sun is at its strongest and temps are at their highest. Your cardiovascular system has to work harder on a hot day in an effort to keep your body cool. In fact, for every degree that your body temperature rises, your heart has to pump an additional ten beats per minute. Everyone is at risk in extreme heat, but high temperatures and humidity are particularly stressful for those who already have a weakened heart.

  7. Be Sun Savvy. A sunburn can dehydrate you and impede your body’s ability to cool. If you’re going to be outside during the peak sun of the day, be sure to apply sunscreen 30 minutes before you head out. Reapply every couple of hours.

  8. Dress for Sun-cess. Think loose, light-colored clothing (to help reflect heat) that is made of a lightweight, breathable fabric like cotton. Add well-ventilated shoes, a wide-brimmed hat, shades and sunscreen and you’re good to go.

  9. Pace Yourself. Make your warm weather workouts shorter and slower, aim for morning or evening when the temps and humidity are lower, choose shady pathways and trails or an air-conditioned space. Work with your healthcare team to develop a plan that is best for you.

  10. Listen to your body. If you aren’t used to regular exercise, are over 50, have heart disease or have questions about your heart health, see your doctor before participating in any strenuous outdoor summer activities.

Although anyone can be affected by heat illness, people with heart disease are at greater risk.

For more information, visit www.heart.stonybrookmedicine.edu or call (631) 44-HEART.