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Ray Manzoni

The Pendergast family admires the new sign. Photo by Julianne Mosher

The corner of Grandview Boulevard and Lower Rocky Point Road in Miller Place will now have a sign saying Pendergast Path in honor of the street’s former resident and founder of ALS Ride For Life. 

Local officials, friends and family joined together on Monday, June 21, next to the street sign to remember Pendergast’s legacy and honor his efforts in the fight against amyotrophic lateral sclerosis — a degenerative neurological disease that ultimately leads to a loss of muscle control throughout the body, also known as Lou Gehrig’s disease. Monday was Global ALS Awareness Day.

“What a beautiful day to have this event,” said Ray Manzoni, president of ALS Ride For Life. “We’ve got somebody up there keeping an eye on us.”

Chris Pendergast’s grandson had the honor of unveiling the new sign. Photo by Julianne Mosher

Pendergast died on Oct. 14, 2020, after a 28-year battle with the disease. His nonprofit has helped raise more than $10 million in research for ALS. 

During the annual Ride For Life, Pendergast was known to ride his motorized wheelchair hundreds of miles to raise funds and awareness of the disease. His longest ride was 350 miles in two weeks.

“He defied the odds in so many ways, his endurance was remarkable,” Manzoni said. “He was extraordinary.”

Pendergast, a former teacher in the Northport school district, was told he only would have a few years to live after his diagnosis. He beat the odds and spent over two decades educating people on the disease and devoting his life to helping others. 

His daughter, Melissa Scriven, told the crowd of people that the ALS Ride For Life board started in their house on Grandview Boulevard. Team meetings were held in the kitchen, and the dining room became an office. In 1991, the family moved to the street and two short years later he was diagnosed.

“Our lives were forever changed — dreams for this new house and our new life were shot,” she said. “But only briefly … his positive attitude and optimism shaped how we would handle this ALS diagnosis. We were a team and we’re going to live with this disease — and live we did.”

Scriven said her father adored this house. 

“It’s quite fitting that he lived on Grandview Boulevard,” she said. “My dad would for sure say that he was blessed with a grand view of the goodness of humanity, of the loyalty of friends, of the generosity of strangers and the grandest view of all, the love of his family.”

As part of a street renaming, the Town of Brookhaven requires an individual to have provided the town with an outstanding service. 

And that he did. 

Councilwoman Jane Bonner embraces Christine Pendergast. Photo by Julianne Mosher

Councilwoman Jane Bonner (R-Rocky Point) presented the Pendergast family with a proclamation from the town shortly before the curtain unveiled Pendergast Path. Bonner said she had a special connection to the day’s event. 

“My grandfather died from ALS in the early 1980s, long before anybody really knew what ALS was,” she said. “I have learned so much about ALS because of Chris, because of this organization and because of the people with ALS that really don’t ever let you forget that this disease should not be forgotten, that we need a tremendous amount of research dollars.”

She added there is a lot of time to make up due to the COVID-19 pandemic. 

“People need to be as generous as possible because there are many more people suffering and so we must find a cure,” she said. “And I can think of no person that deserves this honor more than Chris.”

Pendergast’s wife, Christine, was honored to have her husband’s name across the green sign. 

“I think he would be grinning ear to ear,” she told TBR News Media. “He took his ALS bike to the streets, literally, and we now have a street named after him. I think it’s a very fitting way to honor him and his work.” 

Chris Pendergast passed away last October at the age of 71. Photo from SB

By Melissa Arnold

Each year, 5,000 people in America lose their lives to amyotrophic lateral sclerosis (ALS), a degenerative neurological disease that ultimately leads to a loss of muscle control throughout the body. Beloved Yankee first baseman Lou Gehrig and physicist Stephen Hawking were well-known for their public struggles with ALS, which often carries a hefty price tag because of the necessary medical care, home equipment and renovation.

Elizabeth Hashagen

The prognosis is unfortunately grim for all who are diagnosed with ALS, with most living less than five years after diagnosis. But some do achieve surprising longevity. Among them was Chris Pendergast, a Suffolk County educator and literal trailblazer who dedicated 27 years of his life to ALS awareness before his death last year.

In 1997, Pendergast founded ALS Ride for Life, a charitable organization known for its annual treks to raise awareness and funding for people with ALS, nicknamed “PALS.” The first Ride for Life in 1998 took more than two weeks as PALS in motorized wheelchairs journeyed from Manhattan to Washington, D.C.

These days, the organization has a more local focus and the ride itself is shorter, covering Long Island only. But regardless of the changes, it was always Pendergast leading the way.

Each year, Ride for Life hosts a benefit honoring those with ALS and others who have made major contributions in the search for a cure. This year’s benefit, held virtually on April 28, will honor Pendergast’s great legacy as the organization looks to the future.

“Chris would want us to have fun as we remember him and to keep on enjoying life,” said Ray Manzoni, chairman and president of Ride for Life. “We want to make sure that the arrow that Chris launched all those years ago continues to fly. He created so much hope, and we still have work to do.”

The event will feature appearances from an eclectic group of performers with a little something for everyone, Manzoni said. Emmy Award-winning anchor Elizabeth Hashagen of News 12 Long Island will emcee the evening. Performers will include musician Mike DelGuidice (on tour now with Billy Joel), comedian Bob Nelson and father-son Tik Tok duo Joe and Frank Mele.

Clinton Kelly

Also appearing for interviews and audience questions are former MLB pitcher and Yankees commentator David Cone; executive producer Elise Doganieri of the CBS reality hit “The Amazing Race,” and TV personality Clinton Kelly.

Kelly, who is best known for his long-running tenures on “What Not to Wear” and “The Chew,” grew up in Port Jefferson Station and graduated from Comsewogue High School. Later in life, he became friends with Christine Pendergast, Chris’ wife of nearly 50 years and a former physical education teacher at Comsewogue.

“[Christine] is a really special person and her marriage to Chris was truly inspirational,” said Kelly, who now hosts “Self-Made Mansions” on HGTV. “Beyond that, a close friend of my family passed away from ALS a few years ago. And so I am happy to bring attention to this disease in any way that I can, as well as raise funds for patient care. I’m hopeful that scientists can find a cure for this debilitating disease sooner than later.”

Chris’ son, 36-year-old Buddy Pendergast, was in the third grade when his father was diagnosed with ALS.

“As a family unit we were definitely put on an entirely different life path,” he recalled. “When my dad came to see that his progression was remarkably slower than other people with ALS, he very naturally turned his energy toward advocacy, just as he had in the past for other causes he was passionate about, particularly education and the environment.”

Mike Delguidice

To date, Ride for Life has raised more than $10 million in funding for research and support, and the organization’s efforts were instrumental to the creation of the Christopher Pendergast ALS Center of Excellence at Stony Brook University Hospital. But Buddy also admitted his dad would have mixed feelings about the benefit focusing on him this year.

“To be honest, he would have rather focused on other people instead … He was more compelled than anyone I’ve ever met to make a difference, even if it was just for a small community. Ride for Life became one of the most influential ALS organizations, and it’s very much like an extended family, not just one person,” he said. “It’s about remaining hopeful and optimistic in what the future holds. He envisioned a future where all of our hard work will pay off to make ALS a thing of the past.”

The 24th Annual Ride for Life Honoree Recognition Benefit will be held virtually beginning at 7 p.m. on April 28. The event is sponsored by TFCU, Symbio Research, Quontic Bank and The Rohlf Family. Individual tickets are $25, household watch party $100. To buy tickets, participate in raffles or donate to the cause, visit http://one.bidpal.net/alsrfl. To learn more about Chris and ALS Ride for Life, visit www.alsrideforlife.org. For further information, call 631-444-1292.

Ray Manzoni Photo from ALS Ride for Life

The ALS Ride for Life board of directors unanimously appointed Ray Manzoni as president of the organization.

Manzoni, of Miller Place and proprietor of Manzoni Real Estate located in Mount Sinai, replaces Chris Pendergast, a beloved community member and founder of the nonprofit, who died of amyotrophic lateral sclerosis in October after a 28-year-long battle.

But Manzoni said Pendergast’s legacy will live on, and he’ll be there to help see the organization through.

When ALS Ride for Life was incorporated back in 1997, Manzoni stood alongside Pendergast — a man he became good friends with. 

“We had been friends for years before he was diagnosed. Then he sucked me in and here I am 28 years later,” he laughed. “I knew him well. I knew his mind. He taught me well.”

While Pendergast was still alive and spreading awareness on ALS (often referred to as Lou Gehrig disease), the new president served on the board of directors, eventually — and currently — as board chairman. 

“Chris was a nationally known leader in the world of ALS,” Manzoni said. “I was proud to be his friend. I look forward to continuing his mission and that of our organization toward providing patient services, awareness and supporting research so that a cure can one day be found.”

ALS Ride for Life started when Pendergast embarked on a ride with his electric scooter from Yankee Stadium in the Bronx to Washington, D.C., 22 years ago to raise awareness about the disease and raise funds for research. After a few years, the ride was contained to New York state — from Riverhead to the Bronx — where participants stop by schools along the way that take part in the organization’s presentations throughout the school year. 

Pendergast, a Miller Place resident and former Northport elementary teacher, had lived with the disease for 28 years. When doctors diagnosed him, they thought he only had a few years to live. He lived to be 71.

Pendergast became an icon and symbol for the North Shore for never giving up. 

Even as he lost the ability to speak and had to communicate with an eye-to-speech device, his determination never seemed to relent. Just this year, Pendergast, alongside his wife Christine, released the book “Blink Spoken Here: Tales from a Journey to Within” about his life since his diagnosis in 1993.

The ALS Ride for Life organization has raised over $10 million for advocacy and research. Their yearly Ride for Life trips were later accompanied by visits to close to 90 school districts on Long Island.

“His story still resonates,” Manzoni said. “ALS is not gone.”

The new president is looking forward to keeping Pendergast’s legacy alive. 

“We fortunately have this great team,” he said. “We held it all together and are refining in these COVID times.”

Known to visit schools and give presentations on the disease, the group had to change shape to get their word out, while adhering to coronavirus guidelines. But he is asking people to continue supporting their local nonprofits. 

“The kids want this, administrators want this,” he said.

Members of the Comsewogue High School girls varsity and junior varsity field hockey team dump water on themselves at the second annual ALS Ice Bucket Challenge on Wednesday Aug. 26. Photo by Giselle Barkley

As the president of the Port Jefferson Station Teachers Association, Beth Dimino is rarely hit in the face with whipped cream. But on Aug. 26, Dimino sat wearing a large black garbage bag as whipped cream from a pie toss dripped down her face and body — all in support of the second annual ALS Ice Bucket Challenge at Heritage Park in Mount Sinai.

Hundreds of people attended the event, which aimed to raise awareness of amyotrophic lateral sclerosis and money for research into the disease, through the Stony Brook-based organization Ride for Life. People who purchased a ticket could trade it for a chance to throw a whipped cream-filled plate at volunteers like Dimino.

Councilwoman Jane Bonner (C-Rocky Point) was one of many, including local school principals and teachers, to participate in the event’s dunk tank or pie-throwing games. For Bonner, supporting the cause is important, as her grandfather died from the rare disease around 35 years.

“It robs your body, not your mind,” Bonner said.

ALS affects nerve cells in the brain and spinal cord, causing motor neurons to degenerate. People with the disease lose control over their muscles, leaving them unable to speak, eat, move or breathe on their own. The cause of the disease is not yet known.

Bonner jumped at the chance to participate in the event this week.

“Chris just makes you want to [be involved],” she said about Christopher Pendergast, who founded Ride For Life in 1997 and has lived with the disease for more than 20 years. “He just inspired so many people to participate and bring awareness.”

According to Ray Manzoni, a member of the Ride For Life Board of Directors, Pendergast wanted to make this year’s event at Heritage Park bigger and better than last year’s ice bucket challenge, which focused on the ice bucket challenge itself.

Last year’s event occurred during the height of a worldwide trend in which people dumped buckets of ice water over their heads, and challenged others to follow suit, in order to bring publicity to the disease. Lori Baldassare, president of the Mount Sinai Heritage Trust, Bonner and Legislator Sarah Anker (D-Mount Sinai), all of whom attended this year’s event, were “instrumental in getting [the event] approved quickly” last year, according to Manzoni. That inaugural event was organized in four days.

Manzoni said this year they added the pie-tossing event, balloon twisting and face painting booths, cotton candy, hot dogs and more.

The Comsewogue girls’ varsity and junior varsity field hockey teams were also at the event. While many of them were dancing to the music there, they also donated money and helped organize the buckets for people to dump water on themselves or others during the ice bucket challenge. The buckets were arranged at the end of the event to spell out “ICE ALS.”

“The goal is to have this and other events that Ride For Life supports and make them bigger and better,” Manzoni said.

Although he did not know how much money the group raised this year, Manzoni hoped it matched or exceeded the amount of money raised last year, $5,000. He added that successful research into ALS can also help research for Alzheimer’s and Parkinson’s disease, which are more common but have similarities.

According to the ALS Association’s website, the disease affects around 6,400 people annually in the United States alone. Only 10 percent of people who are diagnosed with the disease inherited it, while the rest are affected by the disease at random.

For people and organizations like Ride For Life, these events are important.

The goal is “to build awareness and money so that we can continue [our efforts],” Manzoni said.