Ray Manzoni named new ALS Ride for Life president

The ALS Ride for Life board of directors unanimously appointed Ray Manzoni as president of the organization.

Manzoni, of Miller Place and proprietor of Manzoni Real Estate located in Mount Sinai, replaces Chris Pendergast, a beloved community member and founder of the nonprofit, who died of amyotrophic lateral sclerosis in October after a 28-year-long battle.

But Manzoni said Pendergast’s legacy will live on, and he’ll be there to help see the organization through.

When ALS Ride for Life was incorporated back in 1997, Manzoni stood alongside Pendergast — a man he became good friends with. 

“We had been friends for years before he was diagnosed. Then he sucked me in and here I am 28 years later,” he laughed. “I knew him well. I knew his mind. He taught me well.”

While Pendergast was still alive and spreading awareness on ALS (often referred to as Lou Gehrig disease), the new president served on the board of directors, eventually — and currently — as board chairman. 

“Chris was a nationally known leader in the world of ALS,” Manzoni said. “I was proud to be his friend. I look forward to continuing his mission and that of our organization toward providing patient services, awareness and supporting research so that a cure can one day be found.”

ALS Ride for Life started when Pendergast embarked on a ride with his electric scooter from Yankee Stadium in the Bronx to Washington, D.C., 22 years ago to raise awareness about the disease and raise funds for research. After a few years, the ride was contained to New York state — from Riverhead to the Bronx — where participants stop by schools along the way that take part in the organization’s presentations throughout the school year. 

Pendergast, a Miller Place resident and former Northport elementary teacher, had lived with the disease for 28 years. When doctors diagnosed him, they thought he only had a few years to live. He lived to be 71.

Pendergast became an icon and symbol for the North Shore for never giving up. 

Even as he lost the ability to speak and had to communicate with an eye-to-speech device, his determination never seemed to relent. Just this year, Pendergast, alongside his wife Christine, released the book “Blink Spoken Here: Tales from a Journey to Within” about his life since his diagnosis in 1993.

The ALS Ride for Life organization has raised over $10 million for advocacy and research. Their yearly Ride for Life trips were later accompanied by visits to close to 90 school districts on Long Island.

“His story still resonates,” Manzoni said. “ALS is not gone.”

The new president is looking forward to keeping Pendergast’s legacy alive. 

“We fortunately have this great team,” he said. “We held it all together and are refining in these COVID times.”

Known to visit schools and give presentations on the disease, the group had to change shape to get their word out, while adhering to coronavirus guidelines. But he is asking people to continue supporting their local nonprofits. 

“The kids want this, administrators want this,” he said.