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Parkinson’s Disease Awareness Month

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APDA Long Island Information and Referral Centers supports area Parkinson’s community in April and year-round.

April is Parkinson’s Disease Awareness Month, and the American Parkinson Disease Association (APDA) will commemorate the month with a “Did You Know?” campaign that will educate the public about Parkinson’s disease (PD) – highlighting everything from statistics and symptoms to personal stories and ways to get involved – while also helping those affected by PD feel empowered with the resources and support they need.

Through a nationwide network of Chapters and Information & Referral (I&R) Centers, APDA works every day to provide the support, education, and research that will help everyone impacted by PD live life to the fullest. The APDA I&R Centers at St Charles Hospital and Catholic Health Ambulatory Center Commack supports people living with PD throughout Long Island NY and beyond, as well as their care partners and loved ones by helping them assemble the resources, support, and medical expertise they need to feel more empowered, connected, and optimistic.

Throughout Parkinson’s Disease Awareness Month (and always), the APDA I&R Centers at St Charles Hospital and Catholic Health Ambulatory Center Commack have a variety of programs and events planned, with many ways for people to get involved. April’s activities include an in person PD Educational Lecture at St Charles Hospital, a Lunch and Learn, Support Groups for both PWP and their Care partners and family members and much more. Additionally, throughout the month, APDA will share educational information and resources on all APDA social media channels using #DidYouKnow.

With approximately one million people living with PD in the United States –65,000 of which are in New York State – and 90,000 new diagnoses every year, it is critical to engage, inform, and support the PD community and raise public awareness about the disease. Parkinson’s Disease Awareness Month is the perfect time to shine a spotlight on this issue.

“With a new diagnosis every six minutes, nearly 7,200 people in this country will learn they have PD in April alone,” said Julie Garofalo, RN, APDA I& R Centers Coordinator at St. Charles Hospital and Catholic Health Ambulatory Center in Commack. “Here on Long Island, we are the boots on the ground. From support groups and exercise classes to educational events and access to PD experts, the APDA Long Island I&R Centers are here for every member of our local PD community, working tirelessly to help make their journey more positive.”

Beyond Long Island, APDA offers extensive virtual programming and a robust resource library – with many resources available in Spanish and Mandarin/Simplified Chinese – to ensure that all members of the PD community have access to high-quality information and services no matter where they live and to help them to feel connected to the community even from a distance. From popular webinar series like Dr. Gilbert Hosts, Unlocking Strength Within, and Let’s Keep Moving with APDA to a variety of virtual exercise and movement classes, there is something for everyone.

Support from the public is crucial, and Parkinson’s Disease Awareness Month is an especially meaningful time to take action to help those coping with this progressive neurodegenerative movement disorder. People can support by raising awareness of PD and/or by making a donation @ www.apdaparkinson.org that will enable APDA to continue their critical work and fund research that will lead to better treatments and ultimately, a cure. Every effort makes a difference.

The APDA Long Island I&R Centers at St Charles Hospital and Catholic Health Ambulatory Center Commack offers a wide range of Parkinson’s disease programs, resources, education, and support. To learn more, visit www.apdaparkinson.org/ny  or [email protected]  or call 631-862-3560

About the American Parkinson Disease Association:

The American Parkinson Disease Association (APDA) is a nationwide grassroots network dedicated to fighting Parkinson’s disease (PD) and works tirelessly to assist the more than one million people with PD in the United States live life to the fullest in the face of this chronic, neurological disorder. Founded in 1961, APDA has raised and invested more than $282 million to provide outstanding patient services and educational programs, elevate public awareness about the disease, and support research designed to unlock the mysteries of PD and end this disease. To join in the fight against Parkinson’s disease and to learn more about the support APDA provides nationally through a network of Chapters and Information & Referral (I&R) Centers, as well as a national Research Program and Centers for Advanced Research, please visit us at www.apdaparkinson.org. 

April is Parkinson’s Disease Awareness Month and the American Parkinson Disease Association (APDA) Information and Referral Center at St Catherine of Siena Wellness Center in Suffolk Count is hard at work to raise awareness of Parkinson’s disease (PD), deliver vital programs and services in the community, and help local residents get involved and support a cause that is important to them. The APDA Information and Referral Center has a full roster of activities planned for the month (and beyond) and many ways for people to get involved. (For the safety of all involved, all events and programs are held virtually.)

The extensive health concerns and restrictions of the COVID-19 pandemic have been challenging for everyone, but for people with PD and their care partners who were already tackling the daily challenges of life with PD, the impact has been significant. Now more than ever, it is critical to support, engage and inform the PD community and raise awareness about this disease, and Parkinson’s Disease Awareness Month is a great time to shine a spotlight on this issue.

Over the past year, APDA has created extensive virtual programming to make sure that people living with PD have what they need during this difficult time. From online exercise programs to help keep people moving when they can’t get to their in-person fitness classes to educational webinars where they can ask PD experts their questions right from their own living rooms, and even virtual group singing and art programs — APDA has been there for them every step of the way.

For the month of April, the APDA Information and Referral Center at St Catherine of Siena Wellness Center will hold a Parkinson Disease Seminar, Loud and Lyrical Therapeutic Singing Group, APDA Press Program for those diagnosed 5 years or under, and Support groups for both those with Parkinson Disease and their Care-partners as well.

“Every nine minutes there is a new diagnosis of PD, which means that in April alone nearly 5,000 people in this country will learn they have PD,” states Julie Garofalo, RN Coordinator of APDA’s Information and Referral Center at St Catherine’s. “Here in Suffolk County, New York we are the boots on the ground – we are in the communities, providing the support, education, programs, and services people need to live their best lives. We’ve been able to maintain this support despite the pandemic thanks to virtual opportunities, and we look forward to seeing our PD community in person as soon as it is safe to do so.”

The support of the general public is crucial, and April is the perfect time to take action that can help the more than one million people in the United States coping with this chronic neurological movement disorder, and also fund research that will lead us to better treatments and ultimately, a cure. Visit www.apdaparkinson.org to learn more.

For more information about APDA programs, services and support in Suffolk County NY, contact the APDA Information and Referral Center at St Catherine of Siena Wellness Center at 631-862-3560 or [email protected]

About the American Parkinson Disease Association:

The American Parkinson Disease Association (APDA) is the largest grassroots network dedicated to fighting Parkinson’s disease (PD) and works tirelessly to help the more than 1 million Americans with PD live life to the fullest in the face of this chronic, neurological disorder. Founded in 1961, APDA has raised and invested more than $207 million to provide outstanding patient services and educational programs, elevate public awareness about the disease, and support research designed to unlock the mysteries of PD and ultimately put an end to this disease. To join us in the fight against Parkinson’s disease and to learn more about the support APDA provides nationally through our network of Chapters and Information & Referral (I&R) Centers, as well as our national Research Program and Centers for Advanced Research, please visit us at www.apdaparkinson.org.