Times of Huntington-Northport

Sen. Schumer was among the most forceful opponents of Trump’s decision. File photo by Kevin Redding

By Victoria Espinoza

President Donald Trump (R) presented his blueprint for the 2017-18 federal budget and if passed by Congress as it stands, it spells out cuts to programs on which North Shore residents depend.

The draft includes more than $54 billion in cuts to federal programs and departments, with the biggest cuts to the U.S. Environmental Protection Agency and the U.S. State, Labor and Agriculture departments.

State officials on both sides of the aisle were quick to condemn cuts to the U.S. Department of Energy, to the tune of $1.7 billion or 5.6 percent less than last year’s funding, that could impact Brookhaven National Laboratory. BNL was established by the DOE in 1947 and has housed the work of seven Nobel Prize winners. The lab hosts public tours and special programs, as well as school science fairs and robotic competitions, also scientific lectures for community residents.

Trump’s budget blueprint intends to cut $900 million in funding to the DOE’s Office of Science, under which BNL receives its funding among other national labs.

U.S. Sen. and Senate Minority Leader Chuck Schumer (D-NY) held a press conference on the front steps of the Brookhaven lab in Upton March 17, calling the proposed cuts a blow to the community since the lab supplies jobs for as many as 3,000 Long Islanders.

Schumer said in recent years BNL has received an annual $537.3 million in federal funds from the Office of Science budget, about $5 million in federal funds from the Office of Energy Efficiency and Renewable Energy and about $3 million from the Nuclear Energy Office.

A volunteer delivers a meal to a senior in the Meals on Wheels program. File photo

“This major Department of Energy budget cut is a cut to our future, a cut to our knowledge, a cut to our research and a cut to good-paying Long Island jobs,” he said. “Brookhaven National Lab is home to some of the world’s brightest minds and most cutting-edge innovations, which both advance human knowledge and spur our economy. … These kinds of cuts not only hurt us today but they hurt the future jobs and the companies of tomorrow who would otherwise plant their roots on Long Island.”

Schumer was not the only member of Congress from the area to speak out about the president’s cuts. U.S. Rep. Lee Zeldin (R-Shirley) has voiced his concerns while also assuring constituents there are many parts of Trump’s budget that are beneficial to the United States.

“I strongly oppose the proposed cuts to Brookhaven National Lab, SUNY Stony Brook and other sources of scientific research in the 1st Congressional District,” he said in a statement. “Throughout the years, we have seen some of the world’s greatest science research conducted at these facilities.”

Zeldin made sure to reiterate Trump’s blueprint is a draft with nothing set in stone.

“Regardless of who is in the White House, the Constitution puts government funding strictly under Congress to initiate through the appropriations process,” he said. “The president’s budget request is just that — a request. It has no force of law or legislation.”

The U.S. Department of Housing and Urban Development’s budget could also see a $6.2 billion or 13.2 percent reduction, which means grants for certain local programs could be ended including the popular Meals on Wheels program that has branches in Three Village and Smithtown. Meals on Wheels is a national program providing meals to senior citizens who cannot leave their homes to shop on their own. Chapters in different states rely on funding from the Community Development Block Grant program through the H.U.D. In Trump’s budget blueprint he proposes eliminating the program, cutting $3 billion to community service organizations such as Meals on Wheels, among others.

Although the Three Village Meals on Wheels is not in jeopardy, as all of its funding comes from community donations, Susan Hovani, president of the Three Village branch, said it would be a shame for other communities to lose funding — like Smithtown Meals on Wheels, which relies on federal funding to operate.

“This major … budget cut is a cut to our future, a cut to our knowledge, a cut to our research and a cut to good-paying Long Island jobs.” — Chuck Schumer

“These programs are very necessary,” she said in a phone interview. “It’s sad to see [federal funding] could be cut, and I think it would be much better to cut from other places.”

Another heap of programs on the chopping block are those funded by the U.S. Department of Education’s budget. Compared to last year’s budget, the department’s funding would decrease by $9 billion, or 13 percent.

Trump’s blueprint proposes completely eliminating the 21st Century Community Learning Centers program, which supports before and after-school programs as well as summer programs.

“The Trump administration’s call for zero funding for the 21st CCLC after-school initiative is a betrayal of the millions of students and parents who depend on after-school and summer-learning programs,” Afterschool Alliance Executive Director Jodi Grant said in a statement.

Afterschool Alliance is one of the after-school initiatives from the 21st CCLC that is responsible for many New York students after-school hours.

“It is painfully shortsighted and makes a mockery of the president’s promise to make our country safer and to support inner cities and rural communities alike,” she added.

Grant said after-school programs enable many parents to work and cutting these programs could jeopardize their ability to hold a job, as well as create a safe space for kids when they have nowhere else to go or no other positive activities to turn to.

The president said the budget proposal is meant to advance the safety and security of the American people.

“Our aim is to meet the simple, but crucial demands of our citizens — a government that puts the needs of its own people first,” he said in the blueprint. “When we do that, we will set free the dreams of every American, and we will begin a new chapter of American greatness.”

Trump said the proposed cuts are crucial to streamlining government spending and operations.

“These cuts are sensible and rational,” he said. “Every agency and department will be driven to achieve greater efficiency and to eliminate wasteful spending in carrying out their honorable service to the American people.”

The Kaiser Family Foundation, a nonprofit organization that analyzes health policies, has created an interactive map so Americans can compare changes in their premiums and tax credits from the Affordable Care Act to the American Health Care Act. Image from the Kaiser Family Foundation Website

Republicans in Congress have vowed to repeal and replace the Affordable Care Act, commonly referred to as Obamacare, since its inception in 2010, and after much adieu, a bill has finally been introduced to take its place.

The American Health Care Act has been met with opposition from both parties, while elected officials and hospital administrators weighed in on what the changes might mean for North Shore residents.

The most notable changes in the new health care plan compared to the existing one include an elimination of the individual mandate, which required all Americans to purchase health insurance or be subject to a fine — a sticking point for many Republicans on Obamacare; a cut of federal Medicaid funding for Planned Parenthood for one year; adjusting tax credits based on age instead of income; and shifting Medicaid expansion set forth by Obamacare to the discretion of states instead of the federal government, among many others.

The Kaiser Family Foundation, a nonprofit organization established to deliver health policy analysis to the public, has created an interactive map on its website to illustrate the estimated changes in premiums paid and tax credits for several demographics from the ACA to the AHCA.

“This is bad news for New York. … We cannot support this legislation in its current form.”

—Kevin Dahill

Tax credits, or the amount a taxpayer can offset what is owed in federal income tax, are a component of both the current health care law and the proposed replacement, though their implementation is very different.

According to the map estimates, a 27-year-old living in Suffolk County making $30,000 per year would receive about 50 percent less in tax credits in 2020 if the new bill became law. A 27-year-old making $40,000 per year would see the tax credit slashed by only 14 percent, but a $10,000 raise would net that same 27-year-old an approximate additional 52 percent in tax credits under the AHCA compared to the ACA.

A 40-year-old Suffolk County resident making $30,000 annually would receive 24 percent less in tax credits, while a 40-year-old making $50,000 would see a 128 percent boost in tax credits. Additionally, a 40-year-old making $75,000 annually would receive $3,000 in tax credits — under Obamacare no tax credits would be received.

Similarly, a Suffolk County resident who is aged at least 60 and earns $75,000 per year would receive a $4,000 tax credit under the proposed bill, despite being ineligible for a tax credit under Obamacare. A 60-year-old making $30,000 annually would receive a 2 percent increase in tax credits.

U.S. Rep. Lee Zeldin (R-Shirley), who has said in the past he would like to maintain certain aspects of Obamacare, like allowing people aged 26 or younger to remain on their parents’ health plans and coverage for people with preexisting conditions, weighed in on the Republican plan in an emailed statement through spokeswoman Jennifer DiSiena.

DiSiena reiterated Zeldin’s stance on kids remaining on parents plans and coverage for individuals with preexisting conditions, though she added he believes a smooth transition from the ACA to the new plan is the most important thing.

“Obamacare has resulted in higher premiums, higher deductibles, lost doctors and canceled policies, among many other challenges,” she said. “Deductibles are so high, many people now feel like they don’t even have insurance anymore. One-third of the counties in our country only have one option left under the exchange. That’s not choice. That’s a monopoly.”

“Deductibles are so high, many people now feel like they don’t even have insurance anymore. One-third of the counties in our country only have one option left under the exchange.”

—Lee Zeldin

DiSiena also sought to dispel what she called misconceptions being perpetuated about the new bill and what the policy might do to people’s coverage. She said no one will be kicked off Medicaid under the new bill, premiums might rise in the short term but are expected to be 10 percent lower by 2026 than their current levels, and the claim by the Congressional Budget Office that 24 million Americans covered under Obamacare would lose coverage can be attributed to people who were forced to purchase health care opting to go without.

DiSiena added Zeldin is generally supportive of the bill as written but intends to monitor proposed amendments.

U.S. Rep. Tom Suozzi (D-Glen Cove) was far less supportive during an interview on MSNBC’s “Morning Joe” March 14.

“We have to continue to point out that 24 million people are going to be kicked off, that their premiums are going to go up, that there’s a transfer of cutting taxes on the wealthiest Americans, and raising premiums on senior citizens and others,” he said in the interview. “This is really a life and death thing.”

Suozzi’s office did not respond to a request for comment.

Kevin Dahill, president and CEO of Suburban Hospital Alliance, an organization that represents the advocacy interests of Long Island health systems including St. Catherine of Siena in Smithtown and St. Charles Hospital in Port Jefferson, issued a statement regarding the House bill March 13.

“The House bill neither truly repeals nor meaningfully replaces the Affordable Care Act,” Dahill said. “This is bad news for New York. … We cannot support this legislation in its current form.”

Chief Medical Officer at Huntington Hospital Michael Grosso said in an email his facility will continue to hold itself to the highest standards regardless of the federal health care law.

“That said, we must bear in mind as an informed citizenry that when effective, preventive health care is delayed or denied, society pays the price several times over,” Grosso said.

The House of Representatives is scheduled to vote on the bill today, March 23. House Republicans introduced several amendments to the original legislation earlier this week.

Photo by Wendy Mercier

The aim of allowing deer hunting to control the population in Asharoken and Eaton’s Neck has not exactly hit the target for many Huntington residents.

Members of the public expressed their continuing concerns over the policy enacted last year, which allowed bow hunting of deer in Eaton’s Neck during hunting season, during the March 21 town board meeting, and town officials assured them they understand many are not satisfied with the current law.

“I know there has to be a better solution because I think the solution that’s in place now is causing a hardship for the taxpayers and the people that live here,” Cindy Gabel, an Eaton’s Neck resident, said.

Gabel said she and friends have witnessed hunters assembling tree stands at night, a method to hunt deer, and she fears hunters are out when there is almost no visibility.

“It’s really dark out there at night and they’re hunting out there at night — I am sure of it,” she said. “I think one of the troubles you have is there really isn’t anyone besides the residents — I am trying to do it myself — going out at night and seeing if illegal hunting is happening. There’s not someone patrolling the streets and the police that are patrolling can’t really do anything about it anyway. There’s an awful big burden on us, the residents, about the deer hunting and it’s not really solving the problem.”

Gabel said whenever she calls the police about possible illegal hunting they instruct her to call the New York State Department of Environmental Conservation, and those officers are allowed to deal with any illegal hunters. But Gabel said it usually takes the DEC officers more than a half hour to get to the scene, leaving the chance of catching hunters slim.

Gabel was not alone in her fear night hunting could lead to dangerous situations.

“My fear too is that after 60 years on Locust Lane a stray arrow may mistake me or you for its quiver, so I ask you to deliver us from men in tree stands, from those deer slayers in tree stands,” Charlotte Koons, an Eaton’s Neck resident, said at the meeting.

Huntington Town Supervisor Frank Petrone (D) assured the residents the town is listening.

“We’re looking at many, many different things because we are all concerned with the hunting,” Petrone said at the meeting. “We are looking at this very seriously because we know there’s a problem and we know that there are other problems as a result of this happening. So we share your concern, and the hunting situation that exists does not seem to solve the problem.”

The main problem the bow hunting for deer was intended to solve was the overpopulation in areas like Asharoken and Eaton’s Neck. Residents attended multiple town hall meetings last year citing their fear of deer causing car accidents and spreading Lyme disease as tick carriers.

But some community members feel this solution was not the right way to go.

“This is going to be the worst tick season we’ve had … the deer yes they carry ticks — so do we and so do white mice,” Gabel said. “We could kill all the deer in Eatons Neck, we’re still going to have the problem of the ticks and the Lyme disease so what do we do then? If someone gets killed in the process what have we all accomplished here?”

Councilwoman Tracey Edwards (D) said she and Asharoken officials intend to work together to try and find a new solution.

“Mayor [Greg] Letica is committed to working with us and the town attorney to see where we could have some common ground and also bring a proposal for you [Petrone] to review and consider for an amendment that would care for some of the issues and safety concerns,” she said.

At a March village board meeting Letica confirmed he spoke with Edwards about a possible change to the law.

“I had a phone conversation with Huntington Councilwoman Tracey Edwards about the status of the draft law to amend the existing town deer ordinance,” he said at the meeting, “Councilwoman Edwards informed me that once a draft is complete she will share it with the village.”

A view of the main page of a piece of Reclaim NY’s Transparency Project. Image from ReclaimNY website

Transparency and honesty play a major role in healthy democracies, and now New York State municipalities will have a watchdog tracking their effectiveness, providing feedback publicly to concerned citizens, by concerned citizens.

Last week, Reclaim New York, a nonpartisan, nonprofit organization established to “educate New Yorkers on issues like affordability, transparency and education,” launched a website designed to rate government accessibility and transparency based on an index of recommendations.

The site is part of the group’s New York Transparency Project, an initiative launched in 2016, which kicked off with 2,500 Freedom of Information Law requests for basic expenditure information to county, town and village governments, as well as school districts across Long Island and the state.

“This is an accountability tool,” Reclaim New York Communications Director Doug Kellogg said. “Anybody who wants to help do something to make government more accessible and accountable, go spend 30 minutes and input ratings.”

The new system allows citizens to grade local governments based on 29 indicators, including whether contracts are posted on the internet, there’s access to expenditure records, notices of meetings and the minutes to the meetings are available and contact information is listed for elected officials. The municipalities will receive an overall, objective grade. The grade will indicate which are transparent and law-abiding, as budget information and records access officers need to be publicly available.

“Anybody who wants to help do something to make government more accessible and accountable, go spend 30 minutes and input ratings.”

— Doug Kellogg

“Citizens can hold their governments accountable at every level if they have the right tools for the job,” executive director for the organization Brandon Muir said in a statement. “This is a truly unprecedented moment for New Yorkers who want to reclaim ownership of their government. Working with this new site they can make proactive transparency a reality.”

To input data, users must register with an email address. When data is put into the system, it is vetted and sited prior to going live to avoid a “wild west” feel, according to Kellogg. The process of imputing data to extract a rating for municipalities has only just begun. Kellogg said it will take time to have an all-encompassing collection of information.

In May 2016, Port Jefferson Village and Commack school district failed to comply with FOIL requests as part of the organization’s Transparency Project.

New York’s FOIL requires governments and school districts respond to records requests within five business days, whether with the information requested, a denial or an acknowledgement of the request. The response needs to include an estimated date when one of the latter two will occur. Denials can be appealed but  not allowed “on the basis that the request is voluminous or that locating or reviewing the requested records or providing the requested copies is burdensome, because the agency lacks sufficient staffing.”

As part of a project it dubbed the New York Transparency Project, Reclaim New York sent 253 Freedom of Information requests to school districts and municipalities on Long Island. It reported on its findings, saying that while many entities complied with state guidelines on processing such public records requests, and after the findings were released, Port Jefferson Village and Commack school district eventually complied with the requests.

Entities that it said complied included Suffolk County; Brookhaven, Smithtown and Huntington towns; Belle Terre and Lake Grove villages; and the Port Jefferson, Kings Park, Huntington, Smithtown, Mount Sinai, Miller Place and Rocky Point school districts, among others.

To become an evaluator for the website or to view data, visit www.reclaimnewyork.org and click on the Transparency tab.

Liana Hunt as Emma Carew and Nathaniel Hackmann as Henry Jekyll in a scene from 'Jekyll & Hyde' at the Engeman Theater. Photo by Michael DeCristofaro

By Victoria Espinoza

For theatergoers with one personality or more, the newest production at the John W. Engeman Theater has something for all. The Northport playhouse kicked off its seven-week run of “Jekyll and Hyde The Musical” this past weekend to a full house, and the multiple Tony-nominated production felt alive as ever on the Engeman stage.

Led by director Paul Stancato, who also serves as choreographer and has been at the helm of several other shows at the Engeman theater, the classic tale of Dr. Henry Jekyll and his doomed science experiment draws you in from the moment you meet the leading man.

The show starts with a stiff rejection, coming from the hospital board that refuses to support Jekyll’s experiments to understand why man is both good and evil and to separate the good from the evil. However, the doctor does not take defeat lying down and eventually decides to make himself the patient in the experiment. As the name of the show suggests, soon we have two leading men fighting for the spotlight, as Jekyll’s potions give birth to Edward Hyde, the purest projection of evil who lives inside Jekyll.

Above, Nathaniel Hackmann as Henry Jekyll In his laboratory in a scene from ‘Jekyll & Hyde.’ Photo by Michael DeCristofaro

Jekyll and Hyde are played to perfection by Nathaniel Hackmann. As soon as you hear him sing a soft and sad goodbye to his dying father in the first scene, you can’t help but be excited to hear him sing an evil tune, as his voice seems to have no limits. Hackmann makes you feel safe and happy as he sings “Take Me As I Am,” with his betrothed, Emma Carew, played by Liana Hunt, and then just a few songs later sinister seems much more fun as Hackmann belts his way through “Alive” and becomes Hyde.

Not only does Hackmann transport you through love, torment, sin and more with his voice, but he also convinces with his body language. He lurks and awkwardly shuffles across the stage as the murdering Hyde, while embodying the perfect gentleman when playing Jekyll. It becomes hard not to root for the antagonist when it’s so fun to watch his every move on stage.

Of course, Hackmann is not the only star of the show. Caitlyn Caughell plays a seductive yet vulnerable Lucy Harris, a lady of the night who entices both Jekyll and Hyde. Harris’ formidable voice is the perfect partner to Hackmann’s, and the moments featuring the couple are among the most enchanting, including the tragic love song “Dangerous Game.” It’s also not hard to understand why both the successful doctor and the mysterious Hyde enchant the young wench when Hackmann plays both — can you blame her?

Caitlyn Caughell as Lucy Harris and Nathaniel Hackmann as Edward Hyde in a scene from ‘Jekyll & Hyde.’ Photo by Michael DeCristofaro

Tom Lucca, who plays John Utterson, Jekyll’s loyal friend and lawyer, is also worth mentioning. Scenes where the two share the stage are very entertaining. The ensemble cast also has some stand-out moments, and it starts at the beginning with the hospital board all denying Jekyll. Each board member is worth focusing on for a minute, especially Joey Calveri as Lord Savage, whose facial expressions in every scene bring added fun to the stage. Ensemble songs like “Façade” and “Girls of the Night” highlight the singing strength of the cast.

The set, designed by Stephen Dobay, helps make Hyde even more menacing, with several long screens that cast Hyde as a prowling red shadow on the hunt. Each screen also has two empty frames hanging from the top, subtly reminding the audience of Jekyll’s original inspiration of each person having two sides in them: good and evil. And, of course, the orchestra, under the direction of Kristen Lee Rosenfeld, brings the pop rock hits of the original score to life and makes the evil tunes of the show all the more fun.

The John W. Engeman Theater, 250 Main St., Northport will present “Jekyll and Hyde The Musical” through April 30 with Thursday, Friday and Saturday night shows, as well as afternoon shows on Saturdays and Sundays. Valet parking is available. Tickets range from $71 to $76. To order, call 631-261-2900 or visit www.engemantheater.com.

Cami Gallagher and Emma Brandt smile during A Mighty Lass event. Photo from Jana Raphael-McDonough

Empowering a generation of girls and young women will require the efforts of society as a whole, but two Huntington residents have taken on a leadership role in the endeavor.

Cami Gallagher and Emma Brandt are the co-founders of A Mighty Lass, an organization that provides tools and strategies to promote confidence, compassion and independence for females of all ages. A Mighty Lass holds educational events and programs across Long Island to help promote a culture that celebrates individuality, bravery, strength and kindness.

The duo first started developing their mission when Gallagher was teaching in Old Brookville in 2009. She said she noticed girls needed more education for the issues they deal with outside of the normal school curriculum and was able to lace that together with one of her own passions — running.

“As an educator I saw it in the classroom, and I saw it with my daughter, these girls were putting so much pressure on themselves,” she said in a phone interview.

“Me and a couple of my colleagues decided to start a running program with an empowerment, classroom piece to it.”

Gallagher said the first year they had 15 girls in the program, and talked about body image, nutrition and dealing with tough relationships.

Gallagher and Brandt pose with girls during an education program. Photo from Jana Raphael-McDonough

“I struggled as a young girl with body images, that drive for perfection and competing with other girls,” she said. The following year the program doubled in size, and soon enough Gallagher called on a friend to help.

“We set up a girl’s forum to discuss what was going on in their lives and how to support each other,” Brandt said in a phone interview. “Every minute of every day we think about how we can expand this to more people.”

The pair has expanded their initiative since then. They created “A Mighty Box,” a monthly subsription delivery filled with products, motivational messages and confidence building activities for women and girls.. Each month’s box has a different theme, like planning and achieving dreams, self-empowerment and more. Activities include a kindness journal, where the girls are encouraged to document every kind act they see, and a pin project, where each girl is given a pin with the portrait of a famous female leader who they must research and learn more about. Gallagher’s daughter has also helped with the boxes — suggesting each girl starts out with a charm bracelet and each month the box comes with a new charm.

“That was all her idea — it was so creative and fun,” Gallagher said proudly of her daughter. “We’ve gotten such great feedback on the charms and she’s very proud of that.”

A Mighty Lass holds educational events throughout the year. This past weekend they held their flagship event, “Mpower,” an all-day conference for both girls and moms.

“This event is meant to get girls inspired and motivated, and teach them new strategies to deal with problems in their lives,” Brandt said. But it’s meant to help mothers out.

“There’s no handbook on motherhood — especially for social media,” Brandt said. “We have no idea about this world.”

The programs for mothers that day included a course on understanding social media, improving communication with your daughter and understanding and treating their anxieties.

“Before we started this I would turn to friends and talk to them about their experiences,” Gallagher said. “I need this education just as much as the attendees at our events.”

For the girls at Mpower, workshops included improving public speaking, reflecting on perfection, improving self-esteem and maintaining a healthy body.

Programs span different age groups, and the team said as they continue to grow they hope to expand their teachings to include workshops for young women who are starting to make the transition into the professional world.

“It means everything to be able to be a leader in this arena,” Brandt said. “It’s a dream come true.”

To learn more about A Mighty Lass visit their website at www.amightylass.com.

Nicholas Bono was arrested for robbing a bank. Photo from SCPD.

Suffolk County Police arrested a man who robbed a bank in East Northport Wednesday night, March 15.

Major Case Unit detectives arrested Nicholas Bono at 9:40 p.m. for robbing the Bank of America, located on Larkfield Road. He demanded money, and the teller complied with the Bono’s demands and gave him cash from the drawer. He then fled the bank on foot.

Bono, 29, of East Northport, was charged with third-degree robery. He will be held at the 2nd Precinct and is scheduled to be arraigned at First District Court in Central Islip March 16.

Ron Widelec, a member of Long Island Activists speaks during the event Saturday. Photo by Victoria Espinoza

By Victoria Espinoza

Activism is on the rise in the aftermath of the 2016 election on the North Shore and beyond, though at an event in Huntington concerned citizens signed up to do more than carry signs and initiate chants.

On Saturday, March 11, more than 100 people gathered at Unitarian Universalist Fellowship of Huntington to participate in a training program to run for office hosted by the Working Families Party, along with Long Island Activists, the New York State United Teachers and the Long Island Progressive Coalition.

Ron Widelec, a member of the Long Island Activists, said he believes activism and running for office should go hand in hand.

“These are not separate things, they actually have to work together,” he said. Recently the groups have banded together to support issues like a new health care law for New York, and Widelec said that’s an issue in particular dependent on having the ear of politicians. For a health care rally he played a part in organizing this month, he said he invited his local state Sen. Carl Marcellino (R-Syosset) to the event, but Marcellino instead sent an aide in his place.

“As I was speaking, I looked [the aide] dead in the eye and said, ‘Our state senators need to know that they’re going to vote for this bill, or they’re not going to be our state senators very much longer,’” he said. “That threat only works if when in 2018 he’s up for re-election we can actually run a candidate, mount a campaign and flip that seat. So these things have to work together.”

Long Islanders ask questions and work in groups as they learn about running for office. Photo by Victoria Espinoza

At the event residents learned how to run a successful campaign including conducting fundraisers, getting out the vote and more.

“The concept behind trainings like this is to start running an army of activists citizens who are running for office, not because they’ve been waiting in line for 20 years and finally the local party meets in their little smoke-filled rooms and decides so and so is going to be the candidate,” Widelec said. “The idea is that we get regular people who identify with the struggles of ordinary people and working families … nurses, teachers, small business owners.”

Town officials also came to encourage a new generation of politicians.

Brookhaven Town Councilwoman Valerie Cartright (D-Port Jefferson Station) said she came up through the same channels as attendees of the training program.

“I am excited to be here today and even more excited to look around this room at the people who are here to get more information and be more engaged,” she said at the event.

Cartright said she was asked to run for office in 2013 and said “no” twice before reconsidering.

“I never thought of running for office because all I knew of politics was what I saw on television which was negative and corrupt,” she said. However she realized she could help more people while holding public office and is happy she ultimately said “yes,” adding, “People in this room, you’re already starting to say ‘yes’ by being here — and that’s important.”

Cartright said she understands some people may be sharing the same hesitation she once had, but she encouraged them to push through.

“I understand for many of you the reason for being here is what’s going on the national level,” she said. “But let’s not forget that all politics are local. If you don’t want to be political or never thought of yourself as a political person, like I used to think, put that to the back burner … because as much as you might not think so everything is political. Even when you decide which family members to invite to Thanksgiving — that’s political.”

Jeff Friedman, Long Island political organizer for the NYSUT, voiced concerns for the nation’s state of education under the administration of President Donald Trump (R).

Long Islanders ask questions and work in groups as they learn about running for office. Photo by Victoria Espinoza

“In recent months and with political characters like Betsy DeVos … they really threaten to undermine public education as we know it,” he said.

He said every issue can be traced back to the need for effective elected officials.

Centerport resident Marge Acosta ran for a seat on the Harborfields school board in 2016, but was defeated. She said she attended the event because important issues are being debated on multiple levels of government right now.

“It was very motivating,” Acosta said of the event. ‘They gave a lot of really good advice. Everyone learned a lot about getting involved early enough, spreading the word and raising money.”

She said she was disheartened to realize how large of a role money plays in running a successful campaign.

“It’s a shame how much time people have to spend in fundraising,” she said. “One woman there said it was a big part of why she lost her campaign and it shouldn’t be that way. There are loads of highly qualified people who shouldn’t have to worry about raising huge sums of money.”

While Acosta said she’s not sure if she’s interested in running for office again, the event was still invaluable to her.

“Never say never,” she said. “But I think I could help bring this information to a lot of people who are ready to run for public office.”

U.S. Rep. Lee Zeldin said there is not much risk of the Dwyer program being defunded any time soon. File photo by Kevin Redding

The quality of Long Island waters has been on the mind of elected officials from all levels of government recently, and a representative from the federal government has joined the fray, calling for more funding for two Environmental Protection Agency programs.

“There’s much we can do to improve water quality in the Long Island Sound and National Estuary and I’ll continue working in congress to ensure our waterways are preserved for generations to come,” U.S. Rep. Lee Zeldin (R-Shirely) said during a press conference March 13.

Southold Town Council members and residents from the 1st Congressional District gathered at Veterans Memorial Park in Mattituck as Zeldin called on the federal government to fully fund at least $10 million to the Long Island Sound Study and $26.5 million to the National Estuary Program in its upcoming appropriations process at the end of April, and also to support the passage of the Long Island Sound Restoration and Stewardship Act. He said funding for the two EPA programs is essential to address urgent and challenging issues that threaten the ecological and economic well-being of Long Island’s coastal areas, such as nitrogen, harmful algae blooms and flooding or wetland loss.

East Beach in Port Jefferson is on the Long Island Sound. File photo by Elana Glowatz

“Over the years, water quality around Long Island has suffered from pollution, overdevelopment and other negative impacts…and I’m calling on my colleagues to make sure these programs are fully supported and funded, and certainly not eliminated,” Zeldin said, highlighting the significant impacts each of the programs have had on the region.

The Long Island Sound is one of our natural treasures, the congressman said, and is a precious feature of the life, culture and economy of more than 9 million people living in the coastal communities around it. He voiced his admiration of the Long Island Sound Study for its dedication to water quality and wetlands restoration in addition to local conservation projects to restore beaches and protect wildlife.

He called the National Estuary Program “an important EPA wetlands protection program for 28 estuaries in the U.S.,” two of which being Long Island Sound and Peconic Bay. The program was established by the Clean Water Act in 1987 to provide grants to states where nationally significant estuaries are threatened.

Zeldin said he will continue to work alongside Democrats and Republicans in the region to secure the funding as he did to stop President Barack Obama’s (D) proposed 22 percent cut to the Long Island Sound Study in 20

The Long Island Sound Restoration and Stewardship Act, he said, was introduced at the last congress by himself and former 3rd District U.S. Rep. Steve Israel (D-Huntington) and will propose tens-of-millions of dollars in funding per year through 2020 for a water quality and shore restoration program. Zeldin plans to reintroduce the bill during this congressional session.

Setauket Harbor Task Force Trustee George Hoffman voiced support for Zeldin and his call for funding to protect local waters.

“With Congressman Zeldin’s strong advocacy and leadership, the Long Island Sound Study, a consortium of federal, state and environmental organizations has turned the corner on cleaning up the water in LI Sound and its harbors and bays.”

—George Hoffman

“With Congressman Zeldin’s strong advocacy and leadership, the Long Island Sound Study, a consortium of federal, state and environmental organizations has turned the corner on cleaning up the water in LI Sound and its harbors and bays,” he said. “Federal funding is critical to survival of this important and productive estuary.”

Southold Town Supervisor Scott Russell spoke briefly in response to Zeldin’s longtime presence in the area.

“The people of the East End and people of the first congress have made it clear time and time again that the environment is a top priority and the congressman has been a zealous advocate on behalf of us, on behalf of the environment, and on behalf of our natural resources,” Russell said. “Time and time again, he’s disproved the myth that Republicans aren’t friends of the environment…Republicans are and he is.”

Councilman Bob Ghosio took to the podium to speak about the importance of the proposed funding.

“Talking about nitrogen in the bays and creeks and knowing the Long Island Sound and estuaries [here], particularly in Southold are what drives our economy, our tourism, our jobs and our recreation, just tells me how important this is,” Ghosio said. “Getting the funds to keep this area healthy for the future for my kids, my grandkids and generations thereafter is very important to us.”

When asked by a resident what he thinks of some of his Republican colleagues advancing toward eliminating EPA entirely, Zeldin reminded those in attendance he voted against a 17 percent cut to the EPA last year.

“There are 535 members of congress, all with very different ideologies and backgrounds and you get a whole lot of diversity on these issues and so I have a lot of colleagues who would support completely eliminating the EPA altogether,” Zeldin said. “But again, I voted against the 17 percent cut so to ask me how I feel about a 100 percent cut, there’s some precedent in it.”

Above, members of the New York Chapter of The Children’s Heart Foundation present CSHL Research Assistant Professor Michael Ronemus with a $50,000 check from The Children’s Heart Foundation for his recently funded research grant on Feb. 23. Photo courtesy of ©C. Brukin, 2017/Cold Spring Harbor Laboratory

By Daniel Dunaief

Just before he took a holiday break in December, Michael Ronemus received a welcome surprise. “In the last afternoon before the holidays, I got a call from William Foley. He said, ‘Congratulations,’” recalled Ronemus, a research assistant professor at Cold Spring Harbor Laboratory. “I submitted the application in May and I didn’t know what to expect.”

Foley, the executive director at the Children’s Heart Foundation, was reaching out to Ronemus to let him know he was one of seven researchers — six in North America and one in Europe — to receive funding for his research. Ronemus received a check for $50,000 at a presentation ceremony on Feb. 23.

Scientists are seeking out private foundations more as they search for sources of funding, said Ronemus. The funds will help Ronemus use next-generation sequencing to look closely at 120 families for evidence of copy number variation in their genes.

 

When a person has a different number of copies of a part of a specific gene, that can be a positive, neutral or negative event, depending on the consequence for the individual. Most copy number variations are neutral, which is why people have hundreds of them in their genes. Copy number variations can contribute, however, to de novo mutations, presenting changes in a genetic code that can make the genes of an offspring different from those of his or her parents. If these mutations damage a gene that’s essential for normal development of the heart, they can contribute to congenital heart defects.

Michael Ronemus explains the relevance of his research to the community at the check presentation event on Feb. 23. Photo courtesy of ©C. Brukin, 2017/Cold Spring Harbor Laboratory

Indeed, the Children’s Heart Foundation has contributed $8.7 million to research, hoping to improve the ability to prevent, diagnose and treat the 40,000 people born each year in the United States with a heart defect. Of the children born with a heart defect, about one in four, has a form of critical congenital heart disease, said Jon Kaltman, the chief in the Heart Development and Structures Diseases Branch of the National Heart, Lung and Blood Institute. That means he or she will most likely require surgery within the first year of life, although most have it within the first month.

At this point, doctors and researchers understand the genetic cause of congenital heart disease for a small percent of people. The work of the Pediatric Cardiac Genomics Consortium hopes to make this true for a larger number of people with a congenital heart defect, Kaltman said.

Knowing the genetics of a patient and his or her family could be “helpful for that family to understand what might have caused the congenital heart disease” said Kaltman, who has been a pediatric cardiologist since 2005. “If that family were to have another child” the genetics could help assess the “risk that a second child will also have a congenital heart defect.”

A greater awareness of the genes involved in heart disease could also provide a guide for the way the defect might react to treatment. “We see patients with identical looking hearts [on an echocardiogram] from different families in which they undergo surgery” and have different reactions, Kaltman said. “One does well and has few complications and the other develops arrhythmias at 15 and heart failure at 25.”

The differences in respones to treatment for those patients may be genetic. “For the patient with the genetic signal for the complicated course, we can do more interventions early on,” Kaltman said, which could include earlier valve replacements or more aggressive arrhythmia surveillance.

Working with Bruce Gelb, a professor in pediatrics and cardiology at Mount Sinai Hospital, Ronemus is focusing on a group of patients with a condition called tetralogy of Fallot. Children with this defect develop a bluish color in their skin and can have trouble breathing when they exercise.

New York Chapter president of the Children’s Heart Foundation Jackie Pecora speaks at the check presentation event. Photo courtesy of ©C. Brukin, 2017/Cold Spring Harbor Laboratory

Doctors treat people with this condition with open heart surgery, which fixes a hole between the ventricles and opens up a narrowed right ventricular outflow tract. “Early diagnosis can lead to a straightforward procedure and good outcome,” Ronemus said. “If there is any reason to suspect [that a developing fetus has this condition], we’d like to know.”

By studying copy number variation, Gelb and Ronemus can search for signatures or markers in prenatal screening, which doctors can do through amniocentesis or cell-free fetal DNA analysis, which is a noninvasive form of prenatal testing. A definitive diagnosis even before birth could help doctors prepare for quick intervention that could be more effective, Ronemus said. If not diagnosed, a third of the children with the condition die within the first year and 50 percent in the first three years, Ronemus explained. If doctors know a child has the condition, they can take precautions, like have supplementary oxygen or drugs nearby.

Ronemus, who started his career in plant genetics and then became involved in the study of autism, is applying a genetic technique he co-developed at CSHL for copy number variation detection called SMASH. He applied for the Children’s Heart Foundation grant because of a meeting at CSHL with Jackie Pecora, a resident of East Northport, who is New York Chapter president of the Children’s Heart Foundation. The foundation has 11 chapters throughout the country and raises funds through events like the Long Island Congenital Heart Walk, which will take place on May 21 in Sunken Meadow State Park. Ronemus will be an honorary co-chair for the walk.

Foley said Ronemus’ approach is a “unique way” of looking at congenital heart defects. During the medical advisory board’s discussion of which projects to fund “there was a lot of enthusiasm” for this project. Ronemus is the first New York researcher to receive CHF funds since 2009.

A resident of East Meadow, Ronemus lives with his wife Ana Rodriguez-Fernandez, who is an associate professor of microbiology at the NYU School of Medicine. The couple has three children, Martin, 14, Silvia, 12, and Daniel, 11.

Pecora has family experience with congenital heart disease. After she gave birth to twins 18 years ago, doctors discovered that her daughter Chloe had a heart defect that required surgery. Nine days after she was born, Chloe died from an infection. Pecora got involved because of a bumper sticker for another grassroots fundraiser for a baby with the same heart condition as Chloe. That led her to the Children’s Heart Foundation. While the awareness among the public is improving, there’s still a way to go to combat a prevalent condition, Pecora said. “Look at the clock: Every 15 minutes a baby is born with congenital heart disease. People don’t realize the magnitude.”