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Arleen Buckley donated a kidney to her husband of 43 years, Tom Buckley. Photo by Erin Dueñas

By Erin Dueñas

Arleen Buckley ticked off the places she and husband Tom had traveled to before he fell ill. The Port Jefferson couple had visited Italy, Ireland and even China, but a planned trip to Belgium last year had to be canceled after Tom’s battle with polycystic kidney disease — a hereditary condition where cysts develop on the kidneys, leading to the organ’s failure — kept him from traveling.

“He was just too sick,” his wife said. “We were lucky we could get him to the corner.”

Tom Buckley spent months undergoing dialysis three days a week, but the treatments left him weak.

“He wasn’t having a good reaction to the dialysis,” Arleen Buckley said. “I told him we can’t live life like this. It was a tough time.”

Arleen Buckley said she couldn’t bear seeing her husband of 43 years so ill. She suggested giving him one of her kidneys to resolve his health issue but he refused.

“He felt guilty. He didn’t want me putting my life at risk,” she said. “I told him I wanted to live a nice long life — but with him.”

It took months but she eventually convinced her husband to take her kidney, and in September of last year, the couple underwent the surgeries.

Arleen Buckley was up and about just three days later, and while her husband’s recovery took much longer — about six months — he said he feels great. They’re even planning a trip to Scandinavia.

“I couldn’t go anywhere, not even to the movies,” Tom Buckley said. “Now that I’m better I can do whatever I want.”

Last Thursday, April 2, the couple attended the Living Donor Award Ceremony at Stony Brook University Hospital, which honored Arleen Buckley and about 200 other kidney donors. Sponsored by the hospital’s Department of Transplant, kidney recipients presented their living donors with a state medal of honor for the second chance at life.

The ceremony’s keynote speaker was Chris Melz of Huntington Station, who donated a kidney in 2009 to his childhood friend Will Burton, who suffered from end-stage renal failure. The surgeries were successful, and Melz now works with the National Kidney Foundation raising awareness for living donors.

“I want to spark the drive for people to do good,” he said. “Giving is a beautiful thing.”

Arleen Buckley said she was happy to give a kidney to her husband, whom she has known for 50 years.

“I told him, ‘When I was 14 years old, I gave you my heart. At 64, I gave you my kidney,’” the wife said.

Dr. Wayne Waltzer, director of kidney transplantation services and chair of the Department of Urology at Stony Brook University School of Medicine, called kidney transplants a “new lease on life” for patients who are on dialysis.

“Transplants restore them,” Waltzer said. “They get back the same sense of well-being they had before they got sick.”

According to the National Kidney Foundation, 118,000 Americans are on a waiting list for an organ —  96,000 of those wait for a kidney. Roughly 13 people die daily waiting for the organ, the group said.

Stephen Knapik, Stony Brook University’s living donor coordinator, said that every 10 minutes someone in need of a kidney is added to that list. He called it an honor to work with donors who keep the list from growing.

“I’ve never been in a room with so many superheroes in my life,” Knapik said. “The greatest gift you can give isn’t a boat or a car, it’s the gift of life.”

Waltzer said that donating a kidney involves meeting certain criteria including compatible blood groups and matching body tissues between donor and recipient, as well as ensuring that the recipient has no antibodies that will work against the transplanted organ.

While he said the surgery is sophisticated, he called the science and medicine an incredible achievement.

“The immunosuppressive therapy is so good and the medication so effective that you can override any mismatches,” he said.

This allows for donors to give to loved ones that are not related by blood.

With the most active renal transplant program on Long Island, Stony Brook has done 1,500 transplants since 1981. Waltzer said that donors are doing an “amazing service,” not just to their recipient but also to one of the thousands of people who are on the waiting list for a kidney.

“There is a shortage of organs,” he said. “By donating, you are giving a chance to someone else on that waiting list.”

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By David Dunaief

Now that spring has sprung, the pace of life tends become more hectic. Although some stress is valuable to help motivate us and keep our minds sharp, high levels of constant stress can have detrimental effects on the body.
It is very likely that there is a mind-body connection when it comes to stress. In other words, it may start in the mind, but it can lead to acute or chronic disease promotion. Stress can also play a role with your emotions, causing irritability and outbursts of anger, and possibly leading to depression and anxiety. Stress symptoms are hard to distinguish from other disorders but can include stiff neck, headaches, stomach upset and difficulty sleeping. Stress may also be associated with cardiovascular disease, with an increased susceptibility to infection from viruses causing the common cold and with cognitive decline and Alzheimer’s (1).
A stress steroid hormone called cortisol is released from the adrenal glands and can have beneficial effects in small bursts. We need cortisol in order to survive. Some of cortisol’s functions include raising the glucose (sugar) levels when they are low and helping reduce inflammation and stress levels (2). However, when cortisol gets out of hand, higher chronic levels may cause inflammation, leading to disorders such as cardiovascular disease, as recent research suggests. Let’s look at the evidence.

Inflammation
Inflammation may be a significant contributor to more than 80 percent of chronic diseases, so it should be no surprise that inflammation is an important factor with stress. In a recent meta-analysis (a group of two observational studies), high levels of C-reactive protein, a biomarker for inflammation, were associated with increased psychological stress (3).
What is the importance of CRP? It may be related to heart disease and heart attacks. This study involved over 73,000 adults who had their CRP levels tested. The research went further to suggest that increased levels of CRP may result in more stress and also depression. With CRP higher than 3.0 there was a greater than twofold increase depression risk. The researchers suggest that CRP may heighten stress and depression risk by increasing levels of different proinflammatory cytokines, inflammatory communicators among cells (4).
In one recent study, results suggested that stress may influence and increase the number of hematopoietic stem cells (those that develop of all forms of blood cells), resulting in specifically an increase in inflammatory white blood cells (5). The researchers suggest that this may lead to these white blood cells accumulating in atherosclerotic plaques in the arteries, which ultimately could potentially increase the risk of heart attacks and strokes. Chronic stress overactivates the sympathetic nervous system — our “fight or flight” response — which may alter the bone marrow where the stem cells are found. This research is preliminary and needs well-controlled trials to confirm these results.

Infection
Stress may increase the risk of colds and infection. Cortisol over the short term is important to help suppress the symptoms of colds, such as sneezing, cough and fever. These are visible signs of the immune system’s infection-fighting response. However, the body may become resistant to the effects of cortisol, similar to how a type 2 diabetes patient becomes resistant to insulin. In one study of 296 healthy individuals, participants who had stressful events and were then exposed to viruses had a higher probability of catching a cold. It turns out that these individuals also had resistance to the effects of cortisol. This is important because those who were resistant to cortisol had more cold symptoms and more proinflammatory cytokines (6).

Cortisol
When we measure cortisol levels, we tend to test the saliva or the blood. However, these laboratory findings only give one point in time. Thus, when trying to determine if raised cortisol may increase cardiovascular risk, the results are mixed. However, in a recent study, measuring cortisol levels from scalp hair was far more effective (7). The reason for this is that scalp hair grows slowly, and therefore it may contain three months’ worth of cortisol levels. The study showed that those in the highest quartile of cortisol levels were at a three-times increased risk of developing diabetes and/or heart disease compared to those in the lowest quartile. This study involved older patients between the ages of 65 and 85.

Lifestyle and the Cellular Level
Lifestyle plays an important role in stress at the cellular level, specifically at the level of the telomere, which determines cell survival. The telomeres are to cells as the plastic tips are to shoelaces; they prevent them from falling apart. The longer the telomere, the slower the cell ages and the longer it survives. In a recent study, those women who followed a healthy lifestyle — one standard deviation over the average lifestyle — were able to withstand life stressors better since they had longer telomeres (8).
This healthy lifestyle included regular exercise, a healthy diet and a sufficient amount of sleep. On the other hand, the researchers indicated that those who had poor lifestyle habits lost substantially more telomere length than the healthy lifestyle group. The study followed women 50 to 65 years old over a one-year period.
In another study, chronic stress and poor diet (high sugar and high fat) together increased metabolic risks, such as insulin resistance, oxidative stress and central obesity, more than a low-stress group eating a similar diet (9). The high-stress group was caregivers, specifically those caring for a spouse or parent with dementia. Thus, it is especially important to eat a healthy diet when under stress.
Interestingly, in terms of sleep, the Evolution of Pathways to Insomnia Cohort study shows that those who deal with stressful events directly are more likely to have good sleep quality. Using medication, alcohol or, most surprisingly, distractors to address stress all resulted in insomnia after being followed for one year (10). Cognitive intrusions or repeat thoughts about the stressor also resulted in insomnia.
Psychologists and other health care providers sometimes suggest distraction from a stressful event, such as television watching or other activities, according to the researchers. However, this study suggests that this may not help avert chronic insomnia induced by a stressful event. The most important message from this study is that how a person reacts and deals with a stressors may determine whether they suffer from insomnia.

Constant stress is something that needs to be recognized. If not addressed, it can lead to suppressed immune response or increased levels of inflammation. CRP is an example of an inflammatory biomarker that may actually increase stress. In order to address chronic stress and lower CRP, it is important to adopt a healthy lifestyle that includes sleep, exercise and diet modifications. A good lifestyle may be protective against cell aging when exposed to stressors.

References:
(1) Curr Top Behav Neurosci. 2014 Aug. 29. (2) Am J Physiol. 1991;260(6 Part 1):E927-E932. (3) JAMA Psychiatry. 2013;70:176-184. (4) Chest. 2000;118:503-508. (5) Nat Med. 2014;20:754-758. (6) Proc Natl Acad Sci U S A. 2012;109:5995-5999. (7) J Clin Endocrinol Metab. 2013;98:2078-2083. (8) Mol Psychiatry Online. 2014 July 29. (9) Psychoneuroendocrinol Online. 2014 April 12. (10) Sleep. 2014;37:1199-1208.

Dr. Dunaief is a speaker, author and local lifestyle medicine physician focusing on the integration of medicine, nutrition, fitness and stress management.  For further information, go to the website www.medicalcompassmd.com and/or consult your personal physician.

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A view of Cold Spring Harbor Laboratory. File photo

Cold Spring Harbor Laboratory and the North Shore-LIJ Health System say they are partnering up to align research with clinical services in an effort to treat the health system’s nearly 16,000 cancer cases each year.

The partnership, announced last week, will benefit from more than $120 million investment that will be used to accelerate cancer research, diagnosis and treatment. The money will also be used to develop a new clinical research unit at the North Shore-LIJ Cancer Institute in Lake Success, NY. The unit will support the early clinical research of cancer therapies while also being used to train clinicians in oncology, the branch of medicine that deals with cancer. The source of the investment is not being disclosed.

“This is a transformative affiliation for both institutions, bringing the cutting-edge basic discovery science and translational cancer research at CSHL to one of the largest cancer treatment centers in the United States,” Cold Spring Harbor Lab President and CEO Bruce Stillman said in a press release.

As part of the affiliation, clinician-scientists will also be trained to perform preclinical cancer research and conduct early-stage human clinical trials to help further research.

“Cancer patients at North Shore-LIJ are going to benefit from the world’s leading cancer research centers,” Dagnia Zeidlickis, vice president of communications for Cold Spring Harbor Lab said in a phone interview Monday.

The partnership is just the latest move made by North Shore-LIJ to improve cancer care. Over the past two years, the health system invested more than $175 million to expand cancer treatment centers throughout Long Island and New York City.

Recently, North Shore-LIJ completed an $84 million expansion of the institute’s headquarters in Lake Success. It consolidated all cancer services offered by North Shore University Hospital and Long Island Jewish Medical Center in a state-of-the-art 130,000-square-foot facility, including ambulatory hematology/oncology, chemotherapy and radiation medicine, surgical oncology and brain tumor services, according to a press release.

North Shore-LIJ is also building a new $34 million, 45,500-square-foot outpatient cancer center in Bay Shore and is pursuing other major expansions on Long Island and in Manhattan, Queens, Staten Island and Westchester County.

“Bringing the scientists of Cold Spring Harbor Laboratory together with the more than 200 academic oncologists and clinicians of the North Shore-LIJ Cancer Institute will transform our approach to cancer research and treatment throughout the New York area,” North Shore-LIJ President and CEO Michael Dowling said in a statement.

Cold Spring Harbor Lab’s researchers have been studying cancer since the early 70s and have made several discoveries that have helped diagnose and treat cancer patients. In 1982, the lab was part of the discovery of the first human cancer gene. The Cold Spring Harbor Laboratory Cancer Center has been a National Cancer Institute-designated cancer center since 1987, and is the only such center on Long Island, according to the statement.

The lab’s research focuses on many different types of cancers: breast, lung, prostate, pancreas, cervix, ovary and skin, as well as leukemia and lymphoma, carcinoid tumors, sarcomas and more.

The cancer institute is part of the 19 health systems that makes up the North Shore-LIJ Health System. According to Zeidlickis, North Shore-LIJ cares for more than 16,000 new cancer cases each year and is New York State’s largest hospital system.

Under the terms of the partnership, both North Shore-LIJ and Cold Spring Harbor Laboratory will continue as independent organizations governed by their respective boards of trustees.

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State Assemblyman Steve Englebright is putting pressure on the knocking down of Pine Barrens forrest in favor of a solar farm. File photo

A new bill protecting children from toxic chemicals is making its way through the state Assembly as elected officials work to keep chemicals out of children’s products.

The bill — commonly known as the Child Safe Products Act — would empower New York State to identify and phase out dangerous chemicals in products marketed to kids, lawmakers said. State Assemblyman Steve Englebright (D-Setauket) helped craft the legislation and has been pushing it forward with hopes of keeping young people safe from what they cannot see.

If the legislation is passed, the state would compile a list of high-concern chemicals made up of those known to cause health problems such as cancer, learning and developmental disorders, asthma and more, officials said.

Then, a list of priority chemicals used in children’s products will be drafted for disclosure, lawmakers said.

“This bill addresses issues of poisonous products for children,” Englebright said. “It’s very important to protect the children. And that’s what I intend to do.”

The makers of children’s products would also be required to report their use of priority chemicals in their merchandise after a year, and phase out their use of such chemicals three years later.

Suffolk County Legislator William “Doc” Spencer (D-Centerport) said legislation like this is important because there is always a need to prevent innocent children from being exposed to such harmful chemicals like arsenic, mercury, cadmium, formaldehyde and more.

“Kids are more vulnerable and more likely to put things in their mouth,” Spencer said. “Almost any toy could potentially have toxic chemicals.”

Spencer also said toxic chemicals are found in many children’s products such as clothes, dolls, toys and more. He said they can be in found things such as paint on a button or a bracelet a child wears.

According to Englebright, there are some 84,000 chemicals on the market today. The federal law that was supposed to protect against them — the Toxic Substances Control Act of 1976 —  “is a very weak law and has never been updated,” the lawmaker said.

The assemblyman also said he feels a bill like this is important for everyone in the state as it sets the standards manufacturers would be held to.

“We all benefit when children are protected from poorly regulated toxic chemicals that have the potential to harm development, cause illness and impair learning,” Englebright said. “I think it’s very important to get this bill to the governor’s desk.”

Spencer also said while he does support the bill, there should be guidelines and parameters set as there is the ability to detect parts per million, billion and even trillion. He said it is unnecessary to be overly restrictive as something at a certain parts per billion or trillion, may not be harmful.

Late last year, a press conference was held in Hauppauge to show parents the toxins present in certain items geared toward kids. While many of the toys at the conference had toxic chemicals in them, such a Hot Wheels cars or dresses bought in Long Island stores, there are toys on the market that are manufactured without them.

“A lot of times the effects of these toxic substances aren’t seen right away. But the impact lasts for a lifetime,” Spencer said at the December conference.

When asked why certain toys have chemicals and others don’t, Spencer said some manufacturers may be unaware of the chemicals present and others could possibly use the chemicals to maximize profit.

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Locals stopped by Hurricane Grill & Wings on Route 112 In Port Jefferson Station on March 22 to go bald for a good cause.

The bold attendees shaved their heads or cut their hair short to raise money for childhood cancer research through the St. Baldrick’s Foundation. Many of those buzzing their heads clean were children themselves.

There is another St. Baldrick’s shaving event in the area coming up, on Saturday, March 28. The event will be at Schafer’s restaurant, on West Broadway in Port Jefferson, from 6 to 9 p.m.

St. Baldrick's Foundation
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Family and friends watch 9-year-old Joseph Savage, of East Setauket, get his head shaved at the Hurricane Grill & Wings event on March 22 for the St. Baldrick's Foundation. Photo by Bob Savage
Joseph Savage, 9, of East Setauket, gets his locks lopped off at the Hurricane Grill & Wings event on March 22 for the St. Baldrick's Foundation. Photo by Bob Savage
Christopher Ribaudo, 6, of Farmingville, shares his bald-headed happiness with his dad at the Hurricane Grill & Wings event on March 22 for the St. Baldrick's Foundation. Photo by Bob Savage
Christopher Ribaudo, 6, of Farmingville, is happy to be bald at the Hurricane Grill & Wings event on March 22 for the St. Baldrick's Foundation. Photo by Bob Savage
Christopher Ribaudo, 6, of Farmingville, gets his head shaved at the Hurricane Grill & Wings event on March 22 for the St. Baldrick's Foundation. Photo by Bob Savage
Basket winners Kieran, Cormac and Brad Leiber, of Brooklyn, are all smiles at the Hurricane Grill & Wings event on March 22 for the St. Baldrick's Foundation. Photo by Bob Savage
Auction winners are announced at the Hurricane Grill & Wings event on March 22 for the St. Baldrick's Foundation. Photo by Bob Savage
A shaved kid looks over paperwork at the Hurricane Grill & Wings event on March 22 for the St. Baldrick's Foundation. Photo by Bob Savage
9-year-old Regan Carlson, of Tobyhanna, Penn., holds her hair after it was cut off at the Hurricane Grill & Wings event on March 22 for the St. Baldrick's Foundation. Photo by Bob Savage
Attendees take a group photo at the Hurricane Grill & Wings event on March 22 for the St. Baldrick's Foundation. Photo by Bob Savage
10-year-old Annmarie Ong, of Tobyhanna, Penn., prepares to have her hair chopped off at the Hurricane Grill & Wings event on March 22 for the St. Baldrick's Foundation. Photo by Bob Savage
Selden residents Joshua Skinner, 12, Zak Jackson, 12, and Jake Donovan, 7, are happy to have lost their locks at the Hurricane Grill & Wings event on March 22 for the St. Baldrick's Foundation. Photo by Bob Savage

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Narcan, a drug that reverses opioid overdoses, can be administered either through the nose or intravenously. File photo by Rohma Abbas

Suffolk County Legislator Kara Hahn (D-Setauket) is hosting a free Narcan training seminar later this month, with the goal of teaching local residents how to administer the drug that reverses opioid overdoses.

At the Comsewogue Public Library on March 31, starting at 7 p.m., community members will also learn how to identify an overdose and administer the lifesaving medication.

The seminar will take place in the community room of the library, located on Terryville Road in Port Jefferson Station, and participants must be 18 years or older.

Hahn said in a press release that the training is important “because it is often the family and friends of a victim who are first on the scene when someone is overdosing.”

Those who wish to attend must pre-register by calling the legislator’s office at 631-854-1650.

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Jack Muise, 14, is a national Tourette Syndrome Association youth ambassador. Photo from Jack Muise

A Northport teen will be standing on the steps of Capitol Hill, in Washington, D.C., this month to speak with lawmakers about Tourette’s syndrome.

Jack Muise, 14, is a national Tourette Syndrome Association youth ambassador. Photo from Jack Muise
Jack Muise, 14, is a national Tourette Syndrome Association youth ambassador. Photo from Jack Muise

Jack Muise, 14, is a ninth-grader at Northport High School. At the age of 10, Jack was diagnosed with Tourette’s syndrome, a neurological disorder characterized by repetitive, stereotyped, involuntary movements and vocalizations called tics, according to the National Institute of Neurological Disorders and Stroke.

Sponsored through the national Tourette Syndrome Association, Jack was selected as a youth ambassador — a title that will give him the opportunity to attend a two-day training in Arlington, Va., with 39 other 13- to 17-year-olds, from March 23 to 25, to learn how to educate peers about the disorder.

Jack, who says he is very excited about the training, learned about the program through his Tourette’s syndrome support group, which generally meets once a month from September through June in Old Brookville in Nassau County.

The youth ambassador program originated from Jack’s own support group — the national group’s Long Island chapter. Jennifer Zwilling, now 24, who also has Tourette’s syndrome, started the training program in 2008.

“The goal of this exciting program is to educate children all over the country about TS, a widely misunderstood disorder,” Zwilling said in a press release. “We are following the motto ‘think globally, act locally.’ Understanding and tolerance are the program’s goals.”

Since 2008, the youth ambassador program has completed more than 1,000 activities, including presentations, interviews and training sessions and, through its combined efforts, has reached over 5.5 million people.

Following the training, all of the youth ambassadors, Jack included, will meet with their respective local representatives on the steps of Capitol Hill on March 25.

Jack will be meeting with U.S. Rep. Steve Israel (D-Huntington), New York’s 3rd Congressional District representative, to advocate for support for the neurological disorder, he said.

“I think people don’t understand, for me personally, it’s when I say inappropriate things that I can’t control and people think I’m weird,” Jack said. “I just want to be able to explain what it is and make them aware and hopefully make them better people in general.”

After returning to Long Island, Jack, along with the three other Long Island youth ambassadors, will visit schools throughout Nassau and Suffolk County to educate children about the disorder.

Jack, who joined his support group three years ago, said that prior to joining, he never really knew or understood what the disorder was.

“Jack’s been through a lot,” Jack’s mom, Stephanie Muise said. “He’s had a lot of challenges, even just today. He’s really focused on training and how to talk to people about Tourette’s and hoping to raise awareness. He really wants people to understand him.”

Jack said that in his free time he likes to solve Rubix’s Cube and do card tricks. He also sings and is learning to play the piano.

“Over the years I’ve heard great stories about the training in D.C. and presentations the other kids have made,” Jack said in a press release. “I’m really excited that it’s my turn. It will be great to be able to share my story and educate others about a very misunderstood disorder.”

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Emma, one of the Angela’s House children, rides a pony earlier this year. Photo from Bob Policastro

By Jenni Culkin

The Town of Smithtown will host a night of saying thanks to a group known for its generosity.

The Watermill Caterers of Smithtown is set to hold a special gala on Thursday, March 19, to honor two important contributors to the nonprofit group, Angela’s House.

Hundreds of children and their families reach out to Angela’s House each year to provide them with a safe and comfortable place to go to ease the pressure of caring for a child with specific medical needs: 24-hour nursing care, case management, family counseling and other beneficial programs sustain the caring and attentive environment of the organization.

The two honorees, Ron and Rob Brigati of White Post Farms, donate their time, effort and resources toward an annual summer party for the residents of Angela’s House and their families. Their actions provide a carefree summer day to relax and take a breather from their daily responsibilities.

“The smiles and joy that they see as a result makes it very special,” Ron Brigati said.

Now it was time for Angela’s House to return the favor, the organization said. At $100 per ticket, local residents can enjoy an evening at one of the area’s most distinguished wedding halls by socializing at a cocktail hour, a reception and a formal dinner. Guests will also have the opportunity to win prizes during auctions and raffles. The money raised from the event will go toward the children that Angela’s House assist on a daily basis.

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Linda Ventura memorializes her late son Thomas by putting her face at the forefront of the ongoing battle to curb illegal drug use and its unintended consequences. Photo from Linda Ventura
Linda Ventura memorializes her late son Thomas by putting her face at the forefront of the ongoing battle to curb illegal drug use and its unintended consequences. Photo from Linda Ventura

By Chris Mellides

The legislative office building in Albany hums with activity as concerned Long Island parents and members of the addiction treatment community prepare to convene with state assemblymen and insurance company executives for a roundtable discussion.

King’s Park residents Linda Ventura and Maureen Rossi, who both endured the long drive to the state capital the previous night, break away from their group moments before the meeting and casually walk to the nearest bathroom.

Inside the brightly lit lavatory, where toilet paper lines the old tiled floor, Ventura reaches into her purse and retrieves a piece of Tupperware, like she has many times before, and together with Rossi the two of them pray.

Ventura, a mother of three, watched helplessly as her eldest son Thomas succumbed to his heroin addiction two years ago. And now his ashes, tucked neatly inside that plastic container, serve as a reminder of why she tirelessly works toward spreading opiate awareness and tirelessly lobbies for political change. For such efforts Linda Ventura has been selected as one of the People of the Year by this paper.

Jeffrey Reynolds, president and chief executive officer of the Family and Children’s Association, was among those concerned parents and addiction treatment advocates who joined the dozens of insurance executives at the round table meeting.

He recalls the tension choking the room and the moment a state legislator asked Ventura to make her case for why she thinks insurance companies are handling treatment coverage poorly.

“Linda opened her purse, took out a Tupperware, put it on the table and said, ‘This is my son Thomas. This is what outpatient treatment looks like.’ And the room was stunned,” said Reynolds. “You know I’ve seen it all and done it all and heard it all, and it left me and everybody else in the room speechless.”

Reynolds says that he met Ventura roughly two years ago through a mutual contact and that his work with her became much more focused when they started their legislative push.

“She has been at the forefront of our push for a number of bills in Albany. The thing about Linda is that addiction messed with the wrong mom,” Reynolds said.

Ventura, 54, was born and raised in Oceanside and moved to Kings Park in 1993, where she’s continued her work as a financial advisor.

In March 2012, her son Thomas died from a heroin overdose. He was 21. In the years leading up to his death, Ventura says that a tumultuous family life had put stress on her children.

“My mom and dad passed and my ex-husband’s mom passed. Every year we lost one of them and him and I were going through a divorce,” Ventura said. “So there was a lot of loss, tremendous loss in the family and Thomas was especially sensitive.”

At 15 years old, Thomas began smoking marijuana and drinking beer, and by his senior year of high school Ventura recognized that her son had a problem with prescription painkillers. During the fall after his graduation, Thomas went to his first rehab.

That’s when Ventura said she realized how difficult it was to get insurance coverage for her son’s treatment.

“While he was covered under his dad’s policy, the family as a whole was entitled to one stay at a rehab. So we used that the first time that he went. It was then covered under me,” Ventura said. “We heard things through the next few years and [were told] that he’s not high enough for treatment, which still boggles my mind.”

In order to receive continued coverage for treatment services, Thomas had to continually fail at outpatient services before he could be approved for more comprehensive residential treatment, according to Ventura, who claims that this rule was “insane.”

After her son’s fatal overdose, Ventura said she knew that she needed to bring awareness to the opiate problem affecting Long Islanders, and help to change how insurance providers offer coverage to families seeking help for their sons and daughters struggling with addiction.

On the one-year anniversary of her son’s death, she launched Thomas’ Hope, a nonprofit foundation that promotes drug awareness, prevention and advocacy. Through this effort, Ventura has spoken at numerous events to raise awareness and has raised money to assist families battling with substance abuse.

During a Thomas’ Hope fundraiser Ventura met Maureen Rossi, chairperson of Kings Park in the kNOw (KPITK), a grassroots nonprofit designed to help eradicate illegal drugs from the Kings
Park Community.

“From the first time I heard Linda speak, I knew she had the gift — she has an outstanding ability to reach people,” Rossi said. “I was impressed with her work and shortly after I hired her to speak at our annual Preventing Destructive Decisions event. Linda’s actions and words move mountains.”

Together, Ventura and Rossi joined parents and community leaders in what would be several legislative visits to Albany.

Late this spring, they pushed for passage of Senate Bill S4623, which would reign in the insurance companies and force them to pay for treatment when it’s warranted. That bill and a number of others passed the state Senate and will go into effect April 1, 2015.

County Legislator Robert Trotta (R-Fort Salonga) represents Suffolk’s 13th District, has followed Ventura’s work with KPITK and has recognized the impact she’s made on the local community and on New York state as a whole.

“She went up to Albany and she got 13 different pieces of legislation passed, and the most important one is that insurance companies will be paying for treatment programs,” Trotta. “She’s driven, she’s smart, capable and she knows what’s going on. She’s really led the charge.”

Ventura said she hopes to see a sober high school brought to Long Island this year that would serve as “a place kids can come back to and be treated differently when they come out of rehab.” She also said she plans to discuss prescription protocol and the need for better education among medical professionals who prescribe controlled substances when she returns to Albany.

When it comes to stomping out the heroin and opiate epidemic on Long Island Ventura said it’ll have to be done as a group effort.

“New York and Long Island is the epicenter of the epidemic, which is something we should not be proud of,” Ventura said. “We can’t legislate ourselves out of it and we can’t police our way out of it. Those things are important measures to take, but everybody’s got to step up to the plate.”

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