Authors Posts by Rita J. Egan

Rita J. Egan

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On March 22, the Centereach Civic Association hosted a St. Baldrick’s Day event at the Centereach Fire Department’s main firehouse on Washington Avenue.

The night included head shaving to raise money for pediatric cancer, and barbers and hairdressers from Rockabilly in Stony Brook and Blondie’s Salon in Centereach were on hand to shave the heads of men, women and children.

The event also included food, raffles and a performance by Irish step dancers from the Mulvihill-Lynch Studio of Irish Dance. A grand total of $28,608 was raised.

AnnMarie Pszybylski, from St. James, said she was prepared to have her head shaved March 20 at an event at R.C. Murphy Junior High School in Stony Brook to raise money for Alexa, a Murphy student who is a cancer survivor. When she found out the event was only for students, she reached out to the organizer of the Centereach event, Jennifer Bielmeier Dickson, to see if she could get her head shaved there and donate the money to Alexa’s team. The answer was yes.

“These children are the brave ones and the strong ones,” Pszybylski said. “If I was able to help in some small way, I’m thrilled and blessed.”

Pszybylski said when she arrived at the firehouse she met the team Soul Sisters for Sophia comprised of shavees Diane Miller, Liann Dennis, Linda Esposito-Azmitia and  Lisette Robustelli and volunteers Susan Smith and Renata Ptak. The women, who were raising money for a Dawnwood Middle School student named Sophia diagnosed with stage three nasopharyngeal carcinoma in December, invited her to get her head shaved with them. Miller said her team raised nearly $8,000, with Robustelli raising  more than $2,500 of the amount.

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The Ebo Hill mansion is returning to its former glory after a devastating fire burned it to its studs last year. Photo from Facebook

Last year a pizzeria owner never would have imagined that his love for an old mansion would take him from hope, to devastation, and back to hope.

It was March 26 last year when Ebo Hill, a nearly 175-year-old three-story mansion on Edgewood Avenue in Smithtown, burned to its studs. Owner Richard Albano bought the house just a few weeks before with the hopes of restoring it to its former glory. Hundreds of firefighters from Smithtown Fire Department as well as surrounding areas were on the scene to fight the fire.

A fire started inside a second-floor wall next to the fireplace in Ebo Hill March 26. Photo by Laura Johanson

A year later, Albano said, at times, he’ll be driving at night down Edgewood and feels he can still see the flames.

“In some ways, it feels like it was just yesterday, and sometimes it feels like it was decades ago,” he said.

Fire inspectors found that the fire started inside a second-floor wall next to the fireplace, which had been in use earlier that day. Albano said floor beams were about a foot into the chimney for support and over the years the mortar decayed, which allowed the heat to get to the beams and start the fire.

The homeowner, formerly of Deer Park and owner of Richie’s Pizza in both Deer Park and Commack, was looking for a new house when he stumbled upon Ebo Hill, a home that included 17 bedrooms, two kitchens, a ballroom and numerous bathrooms. The house, which hadn’t been occupied since 2001, belonged to descendants of Smithtown founder Richard Smythe for generations and was once the starting point for the town’s fox hunts.

While he could have sold the property after the fire, Albano said he didn’t give up hope in living in his dream home. With the house’s 1908 floor plans in hand — found by his fiancé at the Smithtown Library — he decided he would replicate the mansion.

Albano said he is grateful for the mild winter, which created favorable conditions for construction. The outside of the home should be completed in the next month, and he’s hoping the landscaping and driveway will be done in the middle or end of May. The HVAC system is already done, and the electricity and plumbing will be completed in the next couple of weeks.

Albano said the home was once moved back on the property, and he rebuilt it 125 feet forward from the original location, which has given him 200 feet of backyard and more than 200 feet of front yard, which has also made the house more centrally located on the property.

Smithtown Historical Society historian Brad Harris said when he first heard of the fire last year he thought history was lost.

“I figured that was the end of it,” Harris said.

The remains of Ebo Hill mansion after the March 26 fire. Photo by Rita J. Egan

However, after meeting with Albano he realized the homeowner had a deep appreciation for its history, and the historian thinks he’s doing a good job in replicating the mansion.

Albano said during his journey with Ebo Hill, besides meeting with Harris, people who have lived in the neighborhood for decades and others who lived in the home have shared their stories with him. With an appreciation of the property’s history, Albano salvaged anything he could from the rubble left behind after the fire. He said steel beams that were still standing after the fire will be incorporated into items such as a table. Flooring from a room he called the ballroom will be used for a closet floor. Also, he had a needlepoint of a Christian hymnal verse and the original weather vane in a storage unit.

“I just want to use as much as possible out of the home,” he said.

Albano said he has been overwhelmed with the support he’s received from the community. As soon as news of the fire broke, social media began buzzing and many who belong to the Facebook page he created to document the renovation of the mansion encouraged him to replicate the structure.

“I’m just amazed at how supportive a community can be,” he said, adding Town of Smithtown officials from Supervisor Ed Wehrheim (R) to the building department, inspectors and engineering department also have been a big help to him.

“Everybody wants to see the home rebuilt, and I will replicate it the best I can,” he said.

Michal Frankowski, an IT worker who is currently starting a construction company, has worked with Albano on the house since last year. He said when he first saw the remains of the mansion he was surprised that the homeowner was planning to restore it.

“He really loves that place, the whole lot,” Frankowski said. “That old mansion, he just really wants to show the people a replica of it, and I admire him for it.”

He said Albano hasn’t seemed stressed at all, even though he’s sure he is, but he keeps things under control. Frankowski, who recently moved to Kings Park from Bushwick, said he wasn’t too familiar with the history of the mansion but is looking forward to learning more about it in the future.

“That place is magical,” Frankowski said. “Just walking around it. I don’t know there’s something in there. Something in it that has really good energy. I’m really looking forward to it being done.”

While reconstructing the house was a financial undertaking that Albano wasn’t prepared for, the homeowner said he’s a passionate person who isn’t afraid to take on a big project.

“I fell in love with the home,” he said. “It’s tough to rationalize what you should do when you’re in love with something like I am with this home.”

Albano said he is looking forward to sharing his love for the mansion with residents after construction and before he moves in by opening the house to the public for one day. For updates of the Ebo Hill mansion construction, visit The Mansion at Ebo Hill Facebook page.

The Town of Brookhaven began a capital improvements project at West Meadow Beach March 18. Photos by Rita J. Egan

While some residents are dieting and exercising in anticipation of the summer, a town beach is getting a makeover of its own.

Suffolk County plans to have a walking trail, dotted line in Old Field Farm that will wrap around West Meadow Creek and end at the beach. Photo from Kara Hahn’s office

The Town of Brookhaven will temporarily close the parking lot of West Meadow Beach in Stony Brook until Memorial Day weekend, May 25-27, according to a press release from the Town of Brookhaven Parks, Recreation and Sports and Cultural Resources Department. On March 18, the town began work on new curbs, sidewalks, plantings and pavilion renovations as part of the town’s parks capital improvement program. During the parking lot closure, residents will be permitted to park along Trustees Road.

Brookhaven Councilwoman Valerie Cartright (D-Port Jefferson Station) said the work will address necessary repairs to maintain the park that she called “cherished” by the community.

“West Meadow Beach is not only a beautiful, relaxing recreation location, but also an environmental marvel,” Cartright said. “Each year, I work with the Parks Department to continue my commitment to making improvements at West Meadow Beach.”

In 2017, the town refurbished the bathrooms’ interiors and exteriors and added new outdoor shower pedestals and a lifeguard tower, according to Ed Morris, town parks commissioner.

In the near future, Suffolk County will begin work at Old Field Farm to create a walking path that will lead to the beach, according to Suffolk County Legislator Kara Hahn (D-Setauket). She said the goal is to finish the trail by Memorial Day.

Hahn said there will be a pedestrian entrance on West Meadow Road on the eastern side of the farm, and the trail will run along the creek and come out on Trustees Road before visitors enter the walking section of the path. She said she’s excited about the location due to the beautiful views of the creek and historic farm.

“This is part of my efforts to make our public lands accessible to our community for recreational and respite enjoyment,” she said.

In the past, the legislator has spearheaded initiatives for a parking lot and walking path at Forsythe Meadow Woods County Park in Stony Brook and a parking lot at McAllister County Park in Belle Terre.

The Old Field Farm trail will be closed during the six horse shows that take place at the location throughout the year so as not to disturb the horses; however, the park will be open for the public to enjoy.

For more information about the town’s capital improvement project at West Meadow Beach, residents can call 631-451-8696.

A deer tick is a common type of tick on Long Island. Stock photo

North Shore communities have found a partner in the battle against ticks and the diseases they carry.

“This new partnership is another example of local governments working together to save taxpayer dollars and protect the public health of our residents.” 

— Steve Bellone

On March 6, Suffolk County Executive Steve Bellone (D) announced the SuffolkSHARE Public Health Partnership. A part of the county’s shared services initiative, the new partnership will leverage the efforts of 10 local governments and the Suffolk County Department of Health Services to research and combat ticks and tick-borne illness, according to a press release from the county.

“This new partnership is another example of local governments working together to save taxpayer dollars and protect the public health of our residents,” Bellone said in the statement. “By taking collective action, we are expanding education, collection, and analysis to ensure that we have the information and resources at our disposal to deal with these illnesses head on.”

With the new partnership, towns and villages will be able to strengthen their efforts to combat ticks in ways that were previously prohibitive due to high cost and limited resources, according to the release.

The new partnership draws on efforts that include collecting data and procuring materials at lower costs while tracking progress over time. These processes are already underway by the Suffolk County Tick Control Advisory Committee, which researches and combats ticks and associated illnesses. According to the county, each year approximately 650 Suffolk residents contract a tick-borne illness, including Lyme disease.

Eight villages and two towns will work in conjunction with the county, including Asharoken, Northport, Head of the Harbor, Old Field and Belle Terre, according to the press release.

“Having the ability to work with other local governments and Suffolk County on this issue will give us the opportunity to address it effectively and affordably.”

— Bob Sandak

“Protecting public health is a priority for the Village of Belle Terre, and mitigating the risk of ticks and tick-borne illness is an important mission,” Bob Sandak, the Village of Belle Terre mayor, said in a statement. “Having the ability to work with other local governments and Suffolk County on this issue will give us the opportunity to address it effectively and affordably.”

Recently, Belle Terre moved to allow deer hunting within the village, citing that New York State is the only governing body that can restrict hunting. Sandak said at a Jan. 15 village meeting, where the possibility of deer culling in part with Port Jefferson Village was discussed, that in the near-mile radius of the village boundaries, there could be as many as 300 deer. It was expected that culling could bring the number of deer down to approximately 50.

The Department of Health Services will provide resources and guidance when it comes to ticks, while the county will facilitate testing of samples, collection of data and additional analysis. The cooperative procurement of corn, tickicide and other materials, as well as municipalities working together to collect samples to have them analyzed will happen at a cheaper rate due to consolidation, according to county officials.

The county health department and Suffolk County Department of Public Works Vector Control Unit will consult with villages launching their initial efforts at tick mitigation, tick-borne illness mitigation and deer mitigation, which may include municipalities sustaining a four-poster (also known as a deer feeder); using environmental controls, such as landscaping; and utilizing birth control. The participating local governments will assist the Department of Health Services with community education regarding the risk of ticks and how to avoid bites, tick collection for testing and health monitoring of residents.

According to the press release, North Haven, Saltaire and Shelter Island already operate four-posters. The deer feeders brush tickicide onto the animals to keep them free of ticks.

“While tick-borne illnesses remain a major concern amongst our community, we continue to look for new and innovative ways to protect the public’s health,” said Michael Levine, Village of Old Field mayor, in a statement. “Thanks to the work of County Executive Bellone and the creation of this new partnership, we will now be able to asses tick conditions, develop a comprehensive plan to combat this public health issues, and educate our residents on ways to stay safe.”

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It was a great day for the Irish March 16 as thousands lined Lake Avenue to enjoy the 35th annual St. James St. Patrick’s Day Parade.

The sun was shining as firefighters, drum and pipe bands, Scouts, legislators and more marched through St. James to celebrate St. Patrick’s Day. This year Denise Davis, vice president of the St. James Chamber of Commerce, led the parade as grand marshal.

Check back in the next few days for more photos from the parade.

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Denise Davis. St. James Chamber of Commerce

By Grace Smith

St. James resident Denise Davis will experience the 35th annual St. James St. Patrick’s Day Parade from a different perspective this year.

“I was shocked. I don’t know how they did it without me knowing.”

— Denise Davis

Since joining the hamlet’s chamber of commerce in 2004, Davis has marched at the forefront of the parade followed by floats, bagpipers and a sea of green. This year, she’ll trade carrying the chamber’s “St. Patrick’s Day” banner for a green checkered sash emblazoned with gold capital letters that will read “GRAND MARSHAL.”

“I was shocked. I don’t know how they did it without me knowing,” Davis said with a chuckle, referring to the board’s decision. “It’s really very special. I’m very honored.”

The 51-year-old, who has served as the chamber’s vice president since 2018, said her first thought upon being announced as grand marshal was of her late mother, Margaret Murphy.

“You couldn’t get more Irish than her,” Davis said, recalling her mother’s “Irish corner” — a small space in her childhood home’s kitchen filled with Irish plates and wooden plaques that read ‘Proud to be Irish.’ “I know she’s smiling down.”

Davis moved to St. James in 2003 after falling in love with the hamlet’s small-town feel. Having grown up in Brentwood, she said she wanted to raise a family in a close-knit community. It was also the perfect place to start her graphic design business, Artpix Studio, which she runs out of her home’s converted attic space.

Davis’ handiwork can be seen throughout the town. Since starting her business, the St. James resident has been the hamlet’s go-to artist for banners, logos and acrylic paintings, according to chamber President Scott Posner.

“She is awesome at what she creates,” he said.

However, Davis said her top responsibility this year is to bring the community together and pay homage to her Irish roots.

“Everyone’s Irish on St. Patrick’s Day,” she said.

Parade Director Kerry Maher, who has served on the chamber’s board of directors for the past 18 years, referred to her colleague as “the perfect fit” for grand marshal.

“She really is the town’s unsung hero,” she said.

“She really is the town’s unsung hero.”

— Kerry Maher

Maher pointed to Davis’ volunteer work as a board member for the Deepwells Farm Historical Society, a nonprofit organization that runs year-round events at the historic 1845 mansion, and active involvement in the Mills Pond Elementary School’s Parent Teacher Association.

“Her love of the town is endless,” Maher said.

On March 16, Davis will walk along Woodlawn and Lake avenues amid children from the community dressed as Irish princes and princesses. She said it sparks memories of when her daughters, Jillian and Jacqueline, did the same. However, this year Davis will be joined not by her daughters, but rather by her dog, Eloise, who also serves as the chamber’s mascot.

“The parade is fabulous, the town is fabulous because we have everyone working together,” Davis said. “Like anything else, you’re stronger together.”

The St. James St. Patrick’s Day parade will kick off at 1 p.m.starting at the Smithtown High School East parking lot on Woodlawn Avenue traveling to Lake Avenue and continuing to the St. James Gazebo at the railroad station.

Suffolk County Legislator Kara Hahn, center, receives the Brookhaven Community Leadership Award from Brookhaven Town Councilwoman Valerie Cartright and Holiday Inn Express owner John Tsunis. Photo by Rita J. Egan

A familiar face in the Three Village and Port Jefferson areas was honored for her career achievements the day before International Women’s Day.

On March 7, Suffolk County Legislator Kara Hahn (D-Setauket) received the Brookhaven Community Leadership Award at a ceremony held at the Holiday Inn Express Stony Brook. At the event, which was sponsored by the hotel and Gold Coast Bank, Hahn was surrounded by family members, friends and community members, including Brookhaven Town Councilwoman Valerie Cartright (D-Port Jefferson Station), Setauket Fire District Fire Commissioner Jay Gardiner, and Jane Taylor and Carmine Inserra, Three Village Chamber of Commerce 2nd vice president and executive director, respectively.

John Tsunis, owner of the Holiday Inn Express Stony Brook and CEO and chairman of Gold Coast Bank, said as a resident of Hahn’s legislative district he is a proud supporter of her and her work. The CEO admired her passing of policies that helped ensure emergency workers were trained in the use of Narcan to revive patients who overdose and a bill that increased background checks of daycare workers. He also called her a tireless advocate for domestic abuse survivors and a “champion of our environment,” citing her work to help to protect ground and drinking water along with her promotion of recreational activities at local parks.

“As we all know, Kara cares deeply for our community, because of her thoughtful leadership Kara was elected to serve as legislature majority leader in 2016 and again in 2017,” he said.

Cartright said when she first ran for town office in 2013 she felt “blessed” to know Hahn. The councilwoman described her county counterpart as a worker bee who looks at her job from different perspectives.

“What’s so special about Kara Hahn is that she not only looks at things from a legislator perspective, but she looks at it from a community member perspective — a perspective that she’s one of us,” Cartright said. “She’s gone through the process. She understands the struggles and tribulations that many of us have to face within our communities.”

Hahn said she was humbled and honored to represent the community. She described the legislative district as an area where people work together to help make it an even better place to live. She cited a recent example where a member of Cartright’s office reached out to her to ask how they could help members of a Port Jefferson Veterans of Foreign Wars post attend the Rocky Point St. Patrick’s Day Parade so they wouldn’t have to park too far away. Hahn reached out to the Holiday Inn Express, and Tsunis offered the hotel’s shuttle bus for the veterans’ use.

“That’s the kind of community we have,” Hahn said. “Everybody wants to chip in. Everybody wants to help. Everybody knows it’s a great place to live and knows that it can be even better. We have a vision for that, and we keep every day trying to find a way to make things better whether it’s for our environment or our schools.”

The Brookhaven Community Leadership award has been presented annually since 2014. Past winners include Charlie Lefkowitz, Three Village Chamber of Commerce vice president; Leah Dunaief, TBR News Media publisher; and Gloria Rocchio, president of The Ward Melville Heritage Organization.

Photo from Suffolk County District Attorney’s Office

An East Setauket man faces a multicount indictment for allegedly receiving more than $400,000 through insurance fraud.

On Feb. 28, Suffolk County District Attorney Tim Sini’s (D) office announced the unsealing of a 70-count indictment against former health care worker Joseph Basile, 50. It is alleged he fraudulently received more than $400,000 through a health insurance fraud scheme where he would file claims for unperformed procedures and list a former employer, a colorectal surgeon, on the forms.

“This was an act of pure greed,” Sini said. “He used his knowledge of the health care insurance system to illegally pocket hundreds of thousands of dollars, money that would have otherwise been used to care for people who were sick and in need.”

Basile was charged with insurance fraud in the first degree, three counts of health care fraud in the second degree, two counts of grand larceny in the second degree, health care fraud in the third degree, grand larceny in the third degree, scheme to defraud in the first degree and 60 counts of criminal possession of a forged instrument in the second degree.

Basile was employed as an office manager for a private health care practice by a colorectal surgeon in Port Jefferson before the practice closed in 2013, according to the DA’s office. From January 2014 through July 2016, Basile allegedly fraudulently filed insurance claims for medical procedures, including colorectal surgeries, to Empire BlueCross BlueShield in excess of $3.8 million on behalf of himself and others, listing his former employer as the provider. The medical procedures had not been performed.

Basile then allegedly forged the signature of his former employer and deposited the checks into his own account. The more than $400,000 received was paid by both the insurance company and John T. Mather Hospital.

The former health care worker also allegedly filed fraudulent insurance claims on behalf of another individual whose health care is provided through Teamsters Local 1205’s welfare fund, according to Sini’s office. Basile allegedly stole more than $3,000 from the fund by filing false health care insurance claims.

Basile was released on $5,000 bond and is due back in court March 12. If convicted of the top count, he faces a maximum sentence of eight and one-third to 25 years in prison.

He is being represented by Legal Aid of Suffolk County attorney Kathleen Evers who could not be reached for comment.

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File photo

A Smithtown man has pleaded guilty to threatening to harm United States senators.

On Feb. 28, Ronald DeRisi pleaded guilty at the federal courthouse in Central Islip to threatening to assault and murder two U.S. senators in retaliation for their support of the nomination and confirmation of Justice Brett Kavanaugh to the U.S. Supreme Court.

“This defendant threatened to assault and murder two sitting United States senators in an effort to intimidate them and interfere with their performance of official duties,” said U.S. Attorney Richard Donoghue. “Ours is a system of laws — not threats — and the Department of Justice will vigorously prosecute those who seek to undermine the integrity of our constitutional system through violence.”

In September and October of 2018, DeRisi telephoned and left more than 10 threatening voice messages at the offices of two United States senators using a prepaid cellular telephone that was recovered when DeRisi was arrested Oct. 19, 2018. Live ammunition during the execution of a search warrant was also seized. Federal prosecutors have not identified the two senators threatened.

According to an Oct. 25, 2018, article in The Times of Smithtown, police said they believe DeRisi left two voice mails Sept. 27 for one senator, who is only identified as their home state “is not New York.” While the male caller did not identify himself, in the first message it was said he had a “present” for the elected official, specifically, “a 9mm [gun].”

In a second voice mail recorded less than an hour later, the caller ranted, “We’re tired of this guy. Sucking taxpayers’ money! Getting a free [expletive] ride! How many more years you gonna do it? None! He’s a dead man!”

In addition, DeRisi allegedly left 10 voice mails at the Washington, D.C., office of a second senator between Oct. 6 and 8, according to capital police. The male caller did not identify himself by name in any of the messages. In one call, the man police believe to be DeRisi allegedly attempted to get the senator’s home address.

“Thanks to you [Senator], we now have a sexual predator on the Supreme Court …,” the caller stated in one voice mail, according to court records. “Good job [senator], thank you very much. We will proceed to correct it …”

DeRisi has a prior record of making threatening phone calls dating back to February 2015. He pled guilty to one count of second-degree aggravated harassment in Nassau County 1st District Court after repeatedly calling a victim’s home and office more than 15 times.

DeRisi faces up to 10 years in prison, and as part of his plea agreement with the government will forfeit two rifles to the United States.

Make-A-Wish of Suffolk County granted Amelia Calderone's, right, wish to meet actress Sofia Carson. Photo from Alexandra Calderone

A Three Village family is helping to raise awareness about a rare disorder.

Hope for Histiocytosis is hosting a fundraiser April 7 in Port Jefferson. The foundation was inspired by the frustrations felt by Setauket residents Alexandra and Christopher Calderone after the couple struggled to find a diagnosis for their daughter Amelia a few years ago. Doctors eventually diagnosed Amelia with Langerhans cell histiocytosis, a disorder where the body produces too many of a type of white blood cell that helps the body fight off infection.

Amelia Calderone during her last chemo treatment in 2018. Photo from Alexandra Calderone

Now 8 years old and in third grade in Setauket Elementary School, Amelia was only 5 years old and in kindergarten, her mother said, when she started to complain that her back was sore in the morning. At first the Calderone family thought it was due to a new mattress being too firm for her or from wearing a backpack to school. Periodic fevers soon followed, and she would come home from school feeling nauseous. She would also complain of seeing black spots in her vision and said she had a wood taste in her mouth. As the school year progressed, her teacher told her mother that Amelia was having trouble reciting what she learned that day.

While the parents brought her to a group practice of pediatricians continuously, doctors couldn’t come up with a diagnosis, and while Lyme disease was first suspected, it was initially ruled out. It wasn’t until the parents asked to see the head doctor of the practice who reviewed her tests that Lyme disease was considered as a possibility.

The diagnosis led to Amelia, who at the time was 6, to visit a rheumatologist where doctors found a mass on her spine.

“The red flag was up, ‘OK, there’s something wrong here,’” Alexandra Calderone said.

The parents then brought her to Cohen’s Children Medical Center where Dr. Carolyn Fein Levy treated Amelia and the LCH diagnosis was finally given. While the journey to an answer was a difficult one, Calderone said her daughter was a trooper during everything, and her last chemo treatment was in September 2018.

“She’s really so mature, and handled the doctors, the scans, the blood work, the pain,” she said.

Last year friend and neighbor Jennifer Scarlatos, co-owner of Toast Coffeehouse in Port Jefferson, decided she wanted to do something to help Amelia who is friends with her son Everett. She said she wasn’t sure what she was going to do but wanted to do something.

“She’s spirited,” Scarlatos said. “She’s just so sweet, and I don’t know, you just love her from the beginning.”

Scarlatos organized a fundraiser at Theatre Three where attendees enjoyed a children’s musical and afterward gathered in the downstairs area for a party that included raffles and balloon animal making for the children.

The Setauket Elementary School student relaxes in between treatments. Photo from Alexandra Calderone

She told Calderone to use the money for what she thought was best. These funds helped the mother establish Hope for Histiocytosis. Scarlatos said she is happy she was able to help kick start the foundation after last year’s fundraiser.

“I would love to help with anything else they’re going to do in the future too because they’re a wonderful family,” she said.

Calderone hopes her foundation and the fundraiser will bring awareness to the disease, which she said many pediatricians are unaware of. She said when trying to find what’s wrong with a child, parents need to have faith in their gut feelings.

“You know your kid, and you know when things are wrong,” she said. “You can’t cower down to someone saying, ‘You’re exaggerating.’”

She said when it comes to starting a foundation or raising awareness, it has to feel right.

“I feel like this is the right next step,” Calderone said. “Now it can be sort of a healing for us to talk about it and to have the awareness.”

The mother said proceeds from the event will go toward the Pediatric Oncology Rare Tumor and Sarcoma program at Cohen’s Children Medical Center, which is led by Fein Levy.

The April 7 fundraiser will be a Sunday brunch from 10 a.m. to 2 p.m. at The Waterview at Port Jefferson Country Club located at 44 Fairway Drive. Admission is $65 for adults and $40 for children 5 through 12 years old. The event includes a Sunday brunch with Bloody Marys and mimosas. There will also be raffle prizes, face painting and entertainment by the Sugaree Band.

For more information about the foundation, visit www.hopeforhistiocytosis.org.