Monthly Archives: August 2017

Setauket firefighters battle a 2010 Old Field barn fire. Photo by Dennis Whittam

Residents of Old Field Village will see a new line on their Brookhaven tax bill for 2018.

At a July 20 Brookhaven Town public hearing, the town council unanimously approved a motion to extend the boundaries of the Setauket Fire District to include Old Field. The change means that instead of paying for contractual services through the village budget, residents will pay taxes for fire, rescue and emergency services to the town when the new tax billing period begins Dec. 1.

Towards the end of last year, Old Field Mayor Michael Levine and the village board of trustees requested the expansion after the village received fire and emergency protection services from the district on a contractual basis for decades. The village includes approximately 400 homes and no commercial properties, and while residents received the same services from Setauket fire departments as residents in the district, they were unable to vote in district elections or run for a position on the board.

Marie Michel, assistant town attorney, said the hearing was required by the state.

“While a fire district is its own municipal entity, New York State town law requires that the town in which the fire district is situated conduct a public hearing to consider the proposed fire district extension,” Michel said.

According to the plan prepared by Hauppauge-based law firm Farrell Fritz, P.C. and posted on the Brookhaven Town website, the cost of the one-year contract for Old Field in 2017 was $515,000 with the right to renew in 2018 at the same rate. From 2012 to 2016, the village paid a contractual rate, which increased slightly each year. The cost of the contract ranged from $340,000 in 2012 to $382,673 in 2016.

The increase in the cost of the contract was attributed to the fire district’s plans to expand and refurbish the existing Main Street Fire Station at a cost of approximately $14 million dollars.

Both Stephen Shybunko, Old Field deputy mayor, and Jay Gardiner, vice chairman of fire commissioners, were in attendance at the July 20 public hearing.

Shybunko said the village’s reasons to be included in the fire district were monetary.

“The amount of payment proposed in the most recent contract would be equal to what the tax rate was so in fairness and equity we have been going through the steps to be included in the fire district as we will be paying a rate equal to all other members of the fire district,” Shybunko said.

Gardiner said the board of fire commissioners was in favor of the resolution.

“We have been providing fire and emergency services to Old Field for over 50 years, and we intend to continue to provide excellent fire, rescue and emergency services,” the commissioner said.

Brookhaven Councilwoman Valerie Cartright (D-Port Jefferson Station) said residents who spoke at a previous town board meeting asked if taxes would increase for residents within the fire district’s current boundaries.

“Their taxes will not be raised as a matter of this extension,” Michel said.

Resident trying to repair cracked bulkhead calls fee "highway robbery"

Rocky Point Beach. File photo by Kevin Redding

By Kevin Redding

Things are rocky between the North Shore Beach Property Owners Association and surrounding residents.

Locals from the close-knit beach community of Culross Drive in Rocky Point are voicing their frustrations over what they call an egregious hike in fees and membership requirements put in place by board members of the private beach association in the aftermath of Hurricane Sandy.

According to residents, the association has been charging homeowners who live on the bluff up to $3,800, and now possibly more, just to gain access to their beach. If a Culross Drive resident has a bulkhead in need of repair, the fee is for vehicles to drive a few hundred feet over the association’s private beach in order to reach Culross Beach homes.

Rocky Point resident Susan McCormick, who lives on Culross Drive beach, is having issues with a fee from the North Shore Beach Property Owners Association to access a cracked bulkhead for repair. Photo by Kevin Redding

There is no other way for the machinery to enter Culross Beach, residents said, and in the past all who needed access through the association’s property were charged with a performance bond of about $250 and asked that the contractor include the association on their construction insurance policy in case any damage to their beach occurred.

The North Shore Beach Property Owners Association so far has not provided an explanation to residents as to why the fee was raised so high, despite numerous attempts to get answers by email and phone.

The group did not respond to multiple requests for comment. Only members can log onto the website in order to read the constitution and by-laws.

While repairs to bulkheads are usually few and far between — as most are projected to last several decades — bulkhead maintenance is crucial for those who live in the beach side community, according to Susan McCormick, a Culross Drive resident since 1981.

“We are religious about it here,” McCormick said. “Every single one of us, at some point in time, have needed bulkhead repairs. If you don’t maintain it, all of the sand slides down, the bulkhead could disappear and then the sand would  just creep onto the next property. Once all that slides down, the top of your property is going to go. It’s cost me a fortune over the last few years — after the two hurricanes — to repair.”

McCormick, 66, the co-owner of School of Fish Swim and Scuba in Rocky Point, said she first heard of the hiked-up fee about a month ago when she pursued the replacement of a cracked piling on her bulkhead.

“It’s cruel and they don’t need this money. I can’t imagine what they’re even using it for or what their excuse is for doing it.”

— Susan McCormick

After a neighbor informed her of the $3,800 charge just to get the repair equipment over to her property, she called the association. She didn’t receive a response, and proceeded to contact members of local government, including Brookhaven Town Councilwoman Jane Bonner (C-Rocky Point), Highway Superintendent Dan Losquadro (R), and a representative from the Environmental Conservation Office in Stony Brook.

While she said those in Brookhaven have been sympathetic and supportive of her concerns, McCormick was told there was nothing the town could do about it because the beach belonging to the association is private property.

She said the association did not waive the fee, even for a neighbor whose house was and still is in danger of sliding down the bluff due to severe damage from Hurricane Sandy.

“It’s wrong what the North Shore Beach Association is doing and I’m not giving up,” McCormick said of her determination to speak with someone on the association’s board. “I would never do to another person what they’re doing. It’s cruel and they don’t need this money. I can’t imagine what they’re even using it for or what their excuse is for doing it. We’re not doing any damage to their little section of beach. This is what I call highway robbery — they’re making money from people’s misfortunes.”

Pete Falcetta, president of the private Culross Corporation said McCormick is doing the right thing.

“[She’s] trying to make an emergency repair the proper way by stopping the bleeding, and yet she’s being forced to pay this exorbitant fee that’s more than the original repair,” he said.

Mickey Wolcson, one of McCormick’s neighbors who has lived on Culross Drive for 11 years, said he’s long thought about filing a lawsuit against the association ever since he became the first and last person to pay the $3,800 charge two years ago. His house and bluff plantings were in danger of sliding down, so he needed to make the urgent repair. He said he was flabbergasted when he discovered how much it would cost.

Rocky Point resident Susan McCormick’s cracked bulkhead. Photo by Kevin Redding

According to Wolcson, the association also pushed a 10-year membership on him in order to maintain his bulkhead. When he called and finally reached someone on the board at the time, he said he received no sympathy.

Recalling the conversation, Wolcson said when he informed the board member he didn’t want the 10-year membership, explaining that he had his own beach, he was told, “that’s the only way that this can happen.”

“They’re forcing you to become a member even when you don’t want to be one,” Wolcson said. “There’s no justification in this. I think it’s just pure greed. I don’t think they want more members, they want more money. Are they running on a deficit? Why are they stealing money from their neighbors?”

Losquadro called the access charge “excessive and unwarranted” in an email.

“I have been contacted many times about this issue and the sentiment is always the same; the association is just punishing the very neighbors they are purportedly protecting,” Losquadro stated.

Bonner said she is also continually contacted by people losing bulkheads and running the risk of losing their homes because of the charge.

“One of the nice things about Rocky Point is that it’s a very cohesive community and everyone works very well together, except in this instance, and it’s very disappointing,” the councilwoman said. “It’s just not neighborly and is an instance where some compassion and kindness would go a very long way, especially when you’re talking about people that run the very real risk of losing their house.”

Gene Cook. File photo by Rohma Abbas

By Victoria Espinoza

Term limits could be the law of the future, as one Huntington town councilman is looking to the public for encouragement on drafting legislation for term limits for local offices.

Back in late June, Councilman Gene Cook (R) asked Huntington residents and business owners to let him know their thoughts on term limits for all elected officials in the town. The survey asked if people were in favor of term limits, supported them for all elected officials and if they supported two terms of four years each or three terms of four years each for officials.

By mid-July the results were in and Cook feels positive about moving forward to schedule a public hearing to hear more from the residents on the matter.

“For years I have wanted term limits,” Cook said in a phone interview. “So many people have come up to me on the street and said we should have term limits for everyone. I truly believe in it, and I think it makes for a healthier environment.”

According to Cook’s office, 98.07 percent of the people who responded are in favor of term limits, 86.54 percent supported that term limits include all elected officials, 63.46 percent supported two terms of four years compared to 17.31 percent for three terms of four years each.

Cook said he went to Supervisor Frank Petrone (D) after he got the results and said he plans to present a resolution for a public hearing for proposed legislation on term limits scheduled for the September town board meeting.

The proposed legislation would support term limits of two terms of four years each for all elected officials including town supervisor, town council, town clerk, receiver of taxes and superintendent of highways. This legislation also includes if the town board ever wishes to change term limits that it go before a public referendum.   

“I feel very strongly about this, that it’s the right thing to do,” Cook said. “In a business world it’s always good to have competition, it should be the same in politics. We can make government better by doing this.”

Petrone, who has served the town for more than 20 years, said he’s going into these discussions with an open mind.

“I objected in the past because drafts didn’t include all elected officials,” he said in a phone interview. “But I believe this may be different. In the past I’ve said if we had term limits it should be all the way up the line to Congress.”

The supervisor said he’ll see if a public hearing is a better vehicle to get information.

Cook said he hopes he can get bipartisan support for this bill and show that real leadership starts at the town level.

He will be sponsoring a resolution to schedule a public hearing in September on term limits at the Aug. 15 town board meeting.

“It is extremely vital for the future of  Huntington that the residents and business owners take the time out of their busy day to attend either the August … meeting at 2 p.m., the September … meeting at 7 p.m. or email Jo-Ann Raia, Huntington town clerk to ensure their voices are heard on term limits,” Cook said in a statement. “In the six years that I have served Huntington I have had many conversations with Huntington constituents regarding their thoughts on the need for term limits. This is why I have taken a stance to sponsor legislation this important topic.”

Meghan Chiodo gets to know her new service dog Polly, who was given to her thanks to Canine Companions for Independence. Photo by Jenna Lennon

By Jenna Lennon

After interviews, reference forms, applications and a year and a half of waiting, 10th-grader Meghan Chiodo from Greenlawn was finally able to meet her assistance dog, Polly.

Meghan and Polly were introduced thanks to Canine Companions for Independence Wednesday, July 26, at the nonprofit’s headquarters in Medford.

Polly, a black female Labrador-Golden Retriever will help Meghan with many different tasks aside from becoming a loyal and loving companion. Meghan was born with spina bifida and has little to no feeling or control of her legs from her knees down, so Polly will be especially helpful with giving her all the assistance she needs.

“Meghan is sort of an ideal candidate in the sense that she’s in that age where she wants to be more independent and the dog can really help provide that to her especially as she’s getting into her later years of high school,” Jessica Reiss-Cardinali, the participant program manager for the Northeast Region of Canine Companions said in an interview.

Meghan said Polly will help with tasks like “bringing my laundry from the living room to my room … the dog can carry something or I can carry it and the dog can open the door,” she said at the event. “I think those are the two [commands] I’ll probably use the most.”

Meghan’s mother Kerri said Polly will be a great assistance around the house.

“The wheelchair is now in our home, so she doesn’t have her hands free always,” her mom said. “So the dog will provide an extra set of hands for her for a little more independence and companionship. That’s going to be a big one. She’s one of four children. She’s the youngest, two are leaving off for college, so it’s nice to have a buddy.”

Canine Companions, the nation’s largest provider for trained assistance dogs, is an organization founded in 1975 aimed at providing service dogs, hearing dogs, skilled companions and facility dogs to people with disabilities free of charge. The Northeast Regional Center for CCI opened in Medford in 1989 and has since placed 861 Canine Companion teams together.

Golden Retriever, Labrador and Golden-Lab puppies are trained by volunteer puppy raisers who provide them with a safe and happy living environment, a healthy diet, obedience training and socialization.

When they are about a year and a half old, the puppies then receive professional training at a Canine Companion training center for six to nine months, learning 40 advanced commands. Then, they are matched with a child or an adult with a disability.

“Four times a year we invite people that are on our waiting list to come, and they stay with us here in Medford,” said John Bentzinger, the public relations and marketing coordinator for the Northeast region of Canine Companions. “They stay at our facilities, and we call it ‘team training.’ The dogs are already fully trained, but we’re teaching the people how to use the commands and how to care for the dog.”

Participants spend the first few days getting acquainted with the different dogs and with the commands necessary to interact with them.

On the third day of the two-week program, the matches are revealed to the participants. Matches are based on the interactions that trainers and program coordinators see during the first few days of the program between the dogs and the participants, as well as what the participants need from the dogs.

“It’s like a jigsaw puzzle where everybody has to fit together,” Reiss-Cardinali said. “We like to say this is like a 10-year commitment, so if you’re going to sign on for 10 years, we’d like it to be something that’s going to work for you. It’s a very happy time, and for the staff too. We’re all crying in the room because there’s a lot of work that goes into that 20 minutes.”

As for the matchup between Polly and Meghan, Reiss-Cardinali said it was a no brainer.

“They’re sort of at the same stage in life,” she said. “Polly is just coming out of young adulthood so I really feel like as Meghan grows, it will be a really nice way for them to grow together.”

By the day that the matches are revealed, participants in the program have already learned several commands to use as part of their team training with their new companion.

“We did sit, down, heel, let’s go, side, release, wait, kennel and okay,” Meghan said. “That’s it so far.”

Her mother said that’s no small feat.

“That’s it so far, but that’s a lot in two days … I think today we get six whole new commands, so that’s a lot,” she said. “The instructors are incredibly patient. You’ve got so many different people with so many different needs, and they’re accommodating all of us. I’m really impressed with this whole facility and what they do here. It’s incredible. These dogs are amazing.”

Meghan and Polly and the rest of their Team Training Class will graduate Aug. 4 at 2:30 at the Genesis Center in Medford.

To learn more about canine companions visit www.cci.org.

Leukemia survivor Aubri Krauss collected Band-Aid box donations for Stony Brook University Hospital’s hematology and oncology unit. Photo from Darcy Krauss

By Jenna Lennon

Three years ago, Jericho Elementary School student Aubri Krauss decided to start a Band-Aid drive to benefit Stony Brook University Hospital’s hematology and oncology unit.

She had been diagnosed with leukemia in 2011. At just over 3 years old, she toughed out the treatment, and when finished, decided she wanted to do something to help others.

“[I want to] bring smiles to other kids who are going through what I went through,” she said.

Leukemia survivor Aubri Krauss collected Band-Aid box donations for Stony Brook University Hospital’s hematology and oncology unit. Photo from Darcy Krauss

“We were at the pediatrician’s office, and she saw all the Band-Aids they had and she was like ‘You know what mom? We used so many Band-Aids when I was sick — wouldn’t it be great if we could get a bunch of Band-Aids for all the kids that are still sick?’” Aubri’s mother Darcy Krauss said. “When they have to get their finger pricked, those plain Band-Aids are boring. That was one of the great things for Aubri was she got to pick her own fun, kid Band-Aid.”

Last year, Aubri decided to try something different and hosted a wrapping paper drive for the events that the clinic holds for the children during the holidays.

Aubri decided to return to the Band-Aid drive this year because “she thinks it’s more personal to the kids,” Krauss said. When she began, she hoped to beat her collection of 700 boxes from her previous Band-Aid drive, and she’s done just that, collecting over 800.

“And they’re not all the little 20 packs,” Krauss said. “Some people brought boxes that have hundreds of Band-Aids, some people bought boxes that have 200 Band-Aids in it. So it’s a lot of Band-Aids.”

Middle Country Board of Education member Dina Phillips met Aubri in 2012 when her father was the assistant coach of her son’s baseball team.

“When I met Aubri, she endured countless tests, procedures, chemo treatments and much more, yet managed to do so without ever losing her sense of joy,” Phillips said. “She had to learn what it means to live part of her life in a hospital room, to lose her hair, and to lose some of the freedoms that other kids her age get to enjoy.”

“She endured countless tests, procedures, chemo treatments and much more, yet managed to do so without ever losing her sense of joy.”

Dina Phillips

She said she was blown away by how Aubri did not let her circumstances define her.

“With a maturity far beyond her years, Aubri turned her illness into an opportunity to help other kids like her, and turned her pain into a way to bring smiles to others,” Phillips said. “I am extremely proud of her. I hope we can all do a simple gesture and help her achieve her goal.”

Band-Aid drives were held at Aubri’s elementary school, Raymour & Flanigan Furniture and Mattress Store in Lake Grove, and Stagecoach Elementary School, where Phillip’s son goes to school. The students there decorated the box for a collection at Stagecoach’s 50th Anniversary celebration on June 9th.

“I think when you go through something so hard and you can come out on the other end and be empathetic and understanding … it just makes me very happy and blessed to be her mom,” Krauss said. “Everyone is like ‘she’s so lucky to have you as her mom,’ and I’m like no, I definitely think I’m the luckier one to have her as my daughter.”

When Charles Murphy returned home to Northport in 1971 after serving 14 months in the Vietnam War, he wasn’t greeted with open arms or hand shakes. In fact, it was just the opposite.

“There was no band, no rallies, no thank you’s,” said Murphy, 68, an Army veteran. “You went back into the population and tried to cope with who you were. And you were a different person then. As a group, we Vietnam vets got the short end of the stick.”

Thomas Semkow, 71, who was in Vietnam between 1968 and 1969, said he remembers being looked down on when he came home.

“People weren’t very nice to us,” the Wading River resident said. “We were the outcasts of society.”

But Aug. 1 — more than 50 years since members of the U.S. Armed Forces first set foot on the battlegrounds in Vietnam — Murphy, Semkow and dozens of other Vietnam veterans within Rocky Point VFW Post 6249 and beyond finally got the recognition they’ve always deserved.

“People weren’t very nice to us. We were the outcasts of society.”

—Thomas Semkow

It happened during the intermission of  Suffolk County Legislator Sarah Anker (D-Mount Sinai) and the VFW’s annual Rocky Point free concert series.

Each of them stood together in front of a grand stage outside St. Anthony of Padua R.C. Church as Anker and Military Liaison Steven Castleton presented Vietnam veteran lapel pins on behalf of the U.S. Department of Defense and a special proclamation signed by President Barack Obama in 2012. Family members of veterans were also honored.

The veterans smiled with gratitude and hundreds of residents applauded as they received the accolades. Part of the proclamation read, “Let us strive to live up to their example by showing our Vietnam veterans, their families, and all who have served the fullest respect and support of a grateful nation.”

“I salute you all, thank you for your service … and welcome home,” said Joe Cognitore, the VFW post commander.

Cognitore, who served in an Army reconnaissance unit in Vietnam between 1969 and 1971, said the VFW has been putting on summer concerts for the community for more than 10 years and was excited at the prospect of giving back to those who warrant the attention.

“They were never welcomed home, and so I’m anxious to see them all come up tonight,” Cognitore said earlier in the evening. “Us Vietnam veterans look out for the guys and girls that are out serving now — we’re dedicating our lives to help them. Men and women who serve today are just unbelievable and we don’t want anything to happen to them like it happened to us.”

“Us Vietnam veterans look out for the guys and girls that are out serving now — we’re dedicating our lives to help them.”

—Joe Cognitore

Daniel Guida, of Shoreham, was an Army lieutenant in 1967 and 1968. He said it felt really good to be recognized not just with medals, but love and support from the community.

“Recently, when I had my Vietnam veteran hat on walking into K-Mart, six or seven people thanked me and wanted to shake my hand before I even got in the store,” Guida said. “That’s a foreign concept to me and it really brings a certain reality to what you did and shows that people do appreciate it.”

Members from the Long Island Young Marines stood holding flags during the concert’s opening pledge of allegiance and “God Bless America” performance before Cognitore addressed all the veterans in the crowd, from those who served in World War II to those currently enlisted.

The pin and proclamation ceremony ended with residents and veterans holding hands in a large group circle, swaying and raising them in the air to the chorus of the Southbound band’s cover of Lee Greenwood’s “God Bless the USA.”

“We’re all forever brothers,” Murphy said of his fellow Vietnam veterans. “No matter where we go. Forever brothers. We’re the only ones who know what we dealt with.”

New York State Senator Ken LaValle does not approve of the decision

John T. Mather Memorial Hospital in Port Jefferson. File photo from Mather Hospital

A Port Jefferson institution established in 1929 is set to undergo an unprecedented change, the likes of which has never occurred during its near-90-year history. John T. Mather Memorial Hospital leadership has signed a letter of intent to join Northwell Health, New York’s largest health care provider, which has 22 hospitals under its umbrella. Prior to the agreement, Mather was one of just two Long Island hospitals unaffiliated with a larger health system. Mather’s board considered affiliation with Stony Brook University Hospital, though ultimately decided on Northwell.

Mather Hospital is set to join Northwell Health. Photo from Huntington Hospital.

“I don’t think it’s a good decision,” State Sen. Ken LaValle (R-Port Jefferson) said in a phone interview. LaValle is a fervent supporter of the university, often publicly spotted wearing a red SBU baseball cap. “For 50 years-plus there’s been a culture in place if people needed tertiary care they would go from Mather to Stony Brook. Stony Brook will still be in place, will still offer services and people still if they choose can go to Stony Brook.”

LaValle said he didn’t know why Mather decided to go with Northwell, and members of Mather’s board declined to discuss specifics of the agreement with Northwell because discussions are ongoing. The changeover could take place as soon as prior to the end of the year.

“I would have wished that the Mather board would have been considerate of the people in their area rather than for whatever other reasons they made this decision,” LaValle said. “I don’t know whether Northwell came in with a bag of cash and that’s why they made the decision; but if they were making the decision based on the people they serve in their catchment area they would have gone with Stony Brook.”

Mather Hospital Vice President of Public Affairs Nancy Uzo, said Stony Brook was considered an option for affiliation and offered an explanation by email as to why it was ultimately spurned.

“I don’t think it’s a good decision.”

— Ken LaValle

“Our goal through this process is to ensure that our communities continue to have access to advanced, high quality care and superior satisfaction close to home and to serve the best interests of our medical staff and employees,” she said.

Mather Board of Directors Chairman Ken Jacoppi and President Ken Roberts declined to comment further through Uzo.

“Our community, employees and medical staff have a deep commitment to Mather Hospital,” Roberts said in a press release. “We chose a partner that would support our culture of caring as well as our future growth.”

Stony Brook University Senior Vice President for the Health Sciences and Dean of the School of Medicine Ken Kaushansky declined to comment on Mather’s decision via email. President Samuel L. Stanley Jr. did not respond to a direct request for comment nor through a university spokeswoman.

In 2016 the American Hospital Association released research suggesting hospital mergers like the one Mather is set to undertake result in cost savings and quality improvements. According to the research, mergers decrease costs due to economies of scale, reduced costs of capital and clinical standardization among other efficiencies. An analysis showed a 2.5 percent reduction in annual operating expenses at acquired hospitals. Other benefits include the potential to drive quality improvements through standardization of clinical protocols and investments to upgrade facilities and services at acquired hospitals, an expansion of the scope of services available to patients and improvements to existing institutional strengths to provide more comprehensive and efficient care.

New York State Sen. Ken Lavalle did not agree with Mather’s decision to join Northwell Health over Stony Brook University Medicine. File photo

Huntington Hospital joined North Shore-LIJ in 1994, which became known as Northwell Health in February 2016. After the merger is official, Mather and Huntington hospitals will be the only Northwell hospitals on the North Shore in Suffolk County.

“Mather Hospital is known for patient-centric care both in the community and throughout the industry,” Michael Dowling, Northwell’s president and CEO said in a statement. “That deeply embedded sense of purpose is the type of quality we want to represent Northwell Health, along with an excellent staff of medical professionals and physicians. Together, Mather and Northwell will play a crucial partnership role expanding world class care and innovative patient services to Suffolk County residents.”

In what some view as a related move, Stony Brook announced in a press release Aug. 1 that Southampton Hospital would become a member of the Stony Brook Medicine health system.

“Today we celebrate a unique opportunity in which academic medicine and community medicine can come together to benefit our entire region,” Stanley said. “We will continue to build on successful collaborations achieved over the past ten years, which have already brought many new programs to the East End, including a robust number of internship and residency programs at Stony Brook Southampton Hospital, and where students enrolled in graduate programs in the health sciences on the Stony Brook Southampton campus can put their training to good use as the next generation of allied health professionals to help address the shortage of providers on the east end and beyond.”

The acquisition will result in new offerings at Stony Brook including a provisional Level 3 Trauma Center, with 24-hour coverage by emergency medicine doctors and a trauma surgeon available within 30 minutes, a Hybrid Operating Room with sophisticated imaging capabilities and a new cardiology practice in Southampton with Stony Brook cardiologists, among other benefits.

LaValle declined to classify Mather’s decision as a “loss” for Stony Brook and added he expects Mather and the university to continue to enjoy a mutually beneficial relationship going forward.

“Stony Brook is close by and they will reach out and still try to encourage both local physicians and people to come to Stony Brook,” he said.

This version was edited Aug. 7 to include comments from Michael Dowling.

Members of the community gather at Jackson Edwards’ Terryville home July 31 to welcome him home from a lengthy hospital stay in Maryland to battle leukemia. Photo by Kyle Barr

By Kyle Barr

After more than four months of treatment battling acute myeloid leukemia, a blood and bone marrow cancer, 11-year-old Jackson Edwards returned home Monday from Johns Hopkins Hospital in Baltimore, Maryland to the sound of a Terryville fire truck honking and the cheers of friends and family.

“I don’t know how to put it — it’s such a wave of emotions,” Jackson’s mother Danielle Edwards said. “We’re happy, finally. Jackson’s a little nervous because he’s so far away from the hospital and he’s thin from the treatment, but he’s happy to be with his people.”

Jackson waives to the crowd assembled at his home. Photo by Kyle Barr

Tired from the long trip and overwhelmed by the number of people who had shown up for the surprise homecoming, Jackson only stood outside for a few minutes July 31, waving to his friends and family before heading back inside. They had taken a 6-hour drive to get back to Terryville from Johns Hopkins.

“[Jackson and his mom] had no idea what was here,” Jackson’s aunt DeeDee Edwards said. She had helped plan the surprise homecoming, and was in charge of keeping the mother and son in the dark. “Jackson was counting the stoplights until we got here, and he was so overwhelmed by all the people who came to support him.”

Though the drive home was long, the real difficulty for Jackson and his family was the more than 100 days he spent in Baltimore fighting the rare form of cancer.. Jackson has always been a charismatic young man, according to his family. He’s a typical 11-year-old — he loves wrestling and football. His favorite comic book and show characters are Captain America and Optimus Prime. In December 2013 Jackson was diagnosed with AML. It was the start of an arduous treatment process that saw Jackson go into remission in May 2014.

Around Christmas 2016, Jackson started to feel sick again, and after taking him to Stony Brook University Hospital, the family learned that the his disease had returned and he had relapsed. In April he was transferred to Johns Hopkins in Maryland where he underwent a long and painful process of chemotherapy in preparation for a later bone marrow transplant. Meanwhile, friends and family worked hard to fund raise and help Jackson’s mother in finding options for his treatment.

Deirdre Cardarelli, a friend of the family, worked hard to help throw the surprise welcome for the Edwards’. For months Cardarelli was co-running the StayStrongJackson Facebook page alongside Jackson’s mom, and she was instrumental in forming a T-shirt drive and an Easter egg hunt to support the family’s travel and medical funds. The Facebook page and all the other social media efforts helped galvanize the local community in its support of Jackson, even those who were not necessarily close to the Edwards’..

Onlookers for the surprise homecoming brought signs of support to hold. Photo by Kyle Barr

“I don’t know the family personally, but our oldest, Michael, is in the same school with Jackson,” said community member Yoon Perrone. “We bought the shirts to support the family and we wanted to be here. I can’t imagine one of our own children having the disease.”

For the bone marrow transplant the family had to find a donor that was as close of a match as possible. Rocco Del Greco, a friend of the family, said he felt a deep need to help the young man and his family once he learned of the cancer’s relapse.

“Since I was not so emotionally connected to their son I was able to channel my anger for what happened to the young man,” Del Greco said. He helped to jump-start a YouCaring page to crowd fund for Jackson, which managed to raise more than $8,000. Del Greco  also managed several bone marrow drives during the search for a suitable donor. From January to early April, Del Greco helped facilitate for almost 1,800 people to test their DNA for matches to Jackson.

Finding a sufficient match was not easy for the Edwards’. Jackson’s mother had a 50 percent match from her own marrow. She served as the donor, and the transplant was successful. After about a month-long recovery, the doctors said he was safe to continue treatment from home.

The process kept Jackson away from school and friends and forced him to endure weeks of treatment, including chemotherapy. Jackson was not able to attend his fifth-grade graduation ceremony from elementary school in the Comsewogue School District, but his older brother Cortez James “C.J” Edwards walked up on stage in his place. Jackson’s mother said that while the treatment process and lengthy hospital stay did get tough, her son powered through it by making new friends.

Members of the community gather at Jackson Edwards’ Terryville home July 31 to welcome him home from a lengthy hospital stay in Maryland to battle leukemia. Photo by Kyle Barr

“He met a whole bunch of new people, because he’s very charismatic, and he stole a bunch of other people’s hearts,” she said.

The transplant has left his immune system weak, and for another eight months Jackson is restricted from coming too close in contact with other people while he heals. This will prohibit him from attending school for several months, but his mother said they plan on continuing his education with tutoring.

Though he said he is excited to eventually go back to school, for now Jackson celebrated a Christmas in July, including a tree and presents surrounding it. He was unable to celebrate Christmas with his family when his cancer relapsed back in December.

According to the United States Centers for Disease Control and Prevention, more than 47,000 people were diagnosed with leukemia in 2014, the most recent year on record with data on leukemia.

The William Miller House is located at 75 North Country Road in Miller Place. File photo

A Gardiner grant is growing one local historical society’s reach.

The Miller Place-Mount Sinai Historical Society announced the approval of a $4,750 grant from the Robert David Lion Gardiner Foundation, which will be used to upgrade and enhance the format and capabilities of its website and social media platforms.

The Daniel Hawkins House was donated to the Miller Place-Mount Sinai Historical Society. Photo from Edna Giffen

“The website itself will allow us to better communicate with our members and the general public, and to build awareness about our society and the local history that we are stewards for,” historical society trustee Matthew Burke said. “Once the upgraded website is unveiled, we anticipate launching multiple social media outlets that will seamlessly connect with and populate our website to further enhance our outreach efforts.”

The Miller Place Historical Society was founded in 1979. In 1982, the name was changed to Miller Place-Mount Sinai Historical Society to reflect the membership and the close ties that the two communities have had since the 1600s. Burke filled out the application, emphasizing how upgrading can continue to raise awareness of the historical significance of the hamlets and the buildings the society owns.

The main property is the 1720 William Miller House — the namesake of the town and the oldest house in Miller Place. Its listing on the National Register of Historic Places enabled the eventual preservation and restoration of the structure beginning in the early 1980s. In 1998, the Daniel Hawkins House, located just east of the William Miller House, both on on North Country Road, was donated to the society. It has undertaken a major fund drive to finance the restoration of the historic gem, with the hopes of using it an archival library and exhibition space. Doing this, will also allow for the William Miller House to become a living museum.

Becoming connected with the Gardiner foundation, according to Burke, could help the society in this process.

“We like to see organizations try to become more sustainable by broadening their outreach and embracing technology to make regional history more accessible.”

—Kathryn Curran

“We’re thrilled not only to have received the financial assistance, but to start developing a relationship with the Robert David Lion Gardiner Foundation,” he said. “Executive Director Kathryn Curran has already introduced us to other members of the Long Island preservation and history communities who may help us.”

Besides handing out the capacity-building grant, networking, according to Curran, is part of what the foundation is all about.

“We want historical societies to link to each other, so if somebody likes going to a Revolutionary War house or Civil War site, they would want to go to another — their success would be built on each other to create tourism,” she said. “We also want them to come to us in the future for funding for different kinds of projects to build their base, their audience and their supporters.”

She said history is hot — noting a rise in genealogy searching and finding different connections to their communities — so she said this is a good time for historical societies to be growing.

“We like to see organizations try to become more sustainable by broadening their outreach and embracing technology to make regional history more accessible to a new audience,” Curran said. “Historical societies don’t like change, and they really need to grow. These investments by the foundation are there specifically to help them become more self-sufficient and have a broader outreach. It’s all about making history an important part of the community.”

Suffolk County Legislator Sarah Anker speaks during a press conference in 2017 about the creation of a permanent panel to address the ever-growing opioid crisis. File photo by Kyle Barr

By Kyle Barr

Following another year of rising opioid use and overdoses, Suffolk County officials announced legislation that would create a new permanent advisory panel to try to address the issue.

“We have lost people from this [problem],” Suffolk County Legislator Sarah Anker (D-Mount Sinai) said during a July 25 press conference. “Children have died, adults have died and we’re here to do more.”

The panel would have 24 members, including representatives from health and science groups, members of law enforcement, hospital employees and individuals from the Legislature’s Committees on Health, Education and Human Services and would focus on prevention, education, law enforcement and drug rehabilitation across the county, Anker said. The panel is planned to be broken up into sub-committees, which would tackle a specific area.

“This is an issue that needs all hands on deck,” Suffolk County Police Commissioner Tim Sini said. “We are not going to arrest ourselves out of this — this is a public health issue [of historic proportion], but law enforcement plays a critical role.”

Over 300 people from Suffolk County died from opioid-related overdosess in 2016, according to county medical examiner records. Sini said that in 2016, the police administered Narcan, a nasal spray used as emergency treatment to reverse the effects of an opioid overdose, in Suffolk County over 700 times.

A 2010 bill saw the creation of a similar advisory panel with 13 members, many of whom are members of the new proposed panel. The original, impermanent panel ended five years ago, but had made 48 recommendations to the legislature focused mainly on prevention education, treatment and recovery. Two recommendations from this committee that were put in effect were the Ugly Truth videos shown in public schools, and countywide public Narcan training.

Though proud of the work they did on that panel, members agreed the situation has worsened since it was disbanded.

“[Seven] years ago we stood here and announced the initial panel — I had the privilege of co-chairing that group — a lot of the things we recommended actually happened, some things didn’t,” said Dr. Jeffrey Reynolds, chief executive officer of the Family and Children’s Association. “Regardless, the problem hasn’t gotten any better, and in fact, it’s gotten progressively worse. Some of the gaps in prevention, access to treatment, recovery and law enforcement haven’t yet been filled. For us to have an ongoing opportunity to have a dialogue together — to brainstorm some new solution to disrupt the patterns here — is very, very valuable.”

On the education side, Islip School District Superintendent of Schools Susan Schnebel said at the press conference that education has to begin at a very young age.

“It’s important that schools take hold of what happens in the beginning,” she said. “That includes educating students at a very early age, educating the parents to know what’s there, what are the repercussions, what is the law. That needs to happen with a 5 or 6-year-old.”

Executive director of the North Shore Youth Council Janene Gentile, and member of the proposed panel, feels that the advisory panel is an important step. She said she hopes that it will be able to do more in helping prevent people, especially young people, from using opioids in the first place, and hopefully help those exiting rehab.

“Implementing a family component when they are in rehab is really crucial, while they are in rehab and when get out,” Gentile said. “There are other agencies like mine — 28 in Suffolk County. If we can reach out to them they can help with re-entry [into society]. They go on the outside and the triggers that started them on opioids are still there, and they need to have places where there are no drugs. We’ve gone through a lot, but we’ve got to do more — and prevention works.”