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Stony Brook Children’s Hospita

Pixabay photo

By Daniel Dunaief

For many local health care workers, the pandemic transitioned from triggering uneasiness about reports of a respiratory illness coming out of China to a significant threat to area residents.

Dr. Susan Donelan, Photo from Stony Brook Medicine/Jeanne Neville

Health care workers were in an all-out scramble to save lives even as information about the disease, its course and treatment, changed.

Five years after the start of a world-altering pandemic, infectious disease experts and emergency medicine specialists shared a range of thoughts about their initial reactions and concerns about this illness as well as insights about lessons learned and readiness to manage through future significant health threats.

Dr. Susan Donelan, Medical Director of Healthcare Epidemiology at Stony Brook Medicine, remembers raising questions about this virus towards late December of 2019. People urged her to go home and have a nice Christmas.

When Hospital CEO Carol Gomes called her on a Sunday and told Donelan she had an hour to get back to her, she recognized the approaching storm.

“I remember saying, ‘It’s a Sunday and she needs me in an hour,’” Donelan recalled. “We’re in it.”

Indeed, over the following months and, as it turned out, years, doctors dealt with numerous unknowns amid a fluid situation that threatened the population and, in particular those who were immunocompromised, had diabetes or respiratory or cardiac issues.

“People forget how bad things were,” said Dr. Gregson Pigott, Commissioner of the Suffolk County Department of Health Services. “So many people were dying” that hospitals needed to figure out where to put the deceased.

Residents also lined up to get the scarce tests for the presence of the virus and often waited days or longer for a result.

Fluid situation

Health care professionals were reacting to a fluid situation in which best practices in terms of treatment and prevention changed even as the virus was mutating.

“It seems like a blur, going back and thinking about those moments,” said Dr. Jennifer Goebel, emergency room doctor at Huntington Hospital. “It was very surreal, taking care of a disease process you knew nothing about and attempting to be the expert when we were still learning.”

Federal, state and county health officials were unsure of the best guidance for a range of safety measures, including the use of masks.

Additionally, health care experts struggled with the level of contagion based on different environments.

“I don’t think anyone really knew about the continuum that could occur depending on the ambient circumstances,” said Donelan. “I think we probably could have done a better job of letting the public know that our communications would evolve as our knowledge evolved.”

Sharing safety messages

During the worst of the pandemic, health care professionals struggled to share messages that would help people make informed decisions about protecting themselves, their families and their communities.

Dr. Sharon Nachman. Photo frm SBU

“Trust in public health was completely undermined,” said Dr. Sharon Nachman, Chief of the Division of Pediatric Infectious Diseases at Stony Brook Children’s Hospital “That hurt all of us.”

Nachman also listened to health care professionals on national TV who were discussing the health crisis. These pundits were sharing information that included far too many inaccessible words and concepts.

“Smart professionals were talking” but people weren’t understanding them, she said.

Additionally, the echo chamber of social media distorted messages, often questioning the developing science and best practices, suggesting conspiracy theories as well as treatments that were either unproven or ineffective.

Having local professionals from area hospitals made a difference on Long Island, Nachman said.

Whenever Nachman went to ShopRite, people who knew she was a part of their community saw her and asked questions.

“When it’s someone local from Northwell, Stony Brook, NYU Winthrop or others, [local communication] really works better,” she said.

Goebel added that she continues to share her medical knowledge not only with patients, but also with family members who have come to the hospital to provide support.

Hospitals, for their part, learned their lesson about stocking personal protective equipment.

“People have learned their lessons” at hospitals, said Pigott. “We need a more adequate stock of PPE.”

Health care provider PTSD

During the worst of the pandemic, one in five doctors who responded to an American Medical Association poll in 2022 said it was likely they would leave their practice within two years.

Dr. Jennifer Goebel. File photo from Northwell Health

“It was so staggering to hear some of these numbers,” said Goebel. Doctors go through over a decade of training. Seeing so many people leave was difficult.

Health care workers struggled, and continue to struggle, with memories and experiences in the midst of a crisis that killed millions around the world.

“I remember going to room nine, intubating a patient and being called to bed 12 and intubating another patient, within a matter of minutes,” said Goebel. 

As the director of wellness in the Emergency Medicine Service Line, Goebel has created new initiatives to help reduce burnout and provide support.

She developed a peer to peer pilot program that started in September in which new physicians, physician’s assistants and nurse practitioners were matched with a more experienced professional from day one.

The effort is designed to help new staff navigate the health system and address any questions or concerns.

“We’re looking to put these processes in place” throughout Northwell, Goebel said. 

Remote medicine

While remote medical choices, such as telehealth, predated the pandemic, these options have become increasingly common, particularly for residents who might struggle to get to a medical visit.

“Because people were forced to use it, with practice, they got better at it,” said Pigott.

Many organizations invested more in telehealth, which also reduces the burden on Emergency Departments.

Teleheatlh has its “risks and benefits,” said Goebel, as it can keep patients who might be vulnerable out of an environment where they might otherwise be exposed to other pathogens.

Goebel appreciates the importance of a visit with a doctor, who can differentiate between an ear ache and a potential indication of shingles.

Fortunately, for many people, Covid has become a much more manageable infection.

Pigott contracted Covid in September. He took Paxlovid, which helped knock out the symptoms within three days.

Pigott is also grateful for vaccines, which provided a dramatic reduction in mortality during the worst of the pandemic, particularly for people who are over 65.

The vaccine was “saving lives,” said Pigott. “There was real evidence that these are doing their jobs and are working out.”

Stony Brook University Hospital (SBUH), Stony Brook Children’s Hospital, Stony Brook Southampton Hospital (SBSH) and Stony Brook Eastern Long Island Hospital (SBELIH) have been named “LGBTQ+ Healthcare Equality Leaders” for 2024 in the Human Rights Campaign Foundation’s Healthcare Equality Index (HEI). All hospitals received the top score of 100 on a survey encompassing non-discrimination and staff training, patient services and support, employee benefits and policies, and patient and community engagement.

“We are honored to be recognized as LGBTQ+ Healthcare Equality Leaders by the Human Rights Campaign Foundation’s Healthcare Equality Index,” said William A. Wertheim, MD, MBA, Interim Executive Vice President for Stony Brook Medicine. “This recognition reaffirms our unwavering commitment to providing inclusive and equitable care to all individuals, regardless of sexual orientation, gender identity or expression. We stand as advocates for diversity, champions for equality and partners in health for every member of our community.”

Stony Brook Medicine continues to grow its dynamic LGBTQ+ Committee, amongst all of its hospitals, to address the needs of the LGBTQ+ community, including patients, faculty, staff and trainees. The Stony Brook Medicine LGBTQ+ Committee is co-chaired by three SBUH-affiliated colleagues: Rose Cardin, MSN, RN, Director, Patient Education, Stony Brook University Hospital; Allison Eliscu, MD, FAAP, Chief, Adolescent Medicine, Stony Brook Children’s Hospital; and Adam Gonzalez, PhD, Vice Chair, Behavioral Health, Stony Brook Medicine. The multidisciplinary group is made up of medical and behavioral health providers and trainees, nurses, students, education specialists, and representatives from Human Resources, Information Technology and hospital administration. Its mission is to review, address and affirm the specific and unique needs of LGBTQ+ individuals, as well as promote respectful and culturally sensitive care to the LGBTQ+ community.

Each year SBUH seeks new ways to address and affirm the specific and unique needs of LGBTQ+ individuals. In 2023, SBUH updated their electronic medical record to add pronouns to the banner bar, so they are front and center for healthcare workers. Pronouns are words used to refer to either the person who is talking (like “I” or “you”) or a person being talked about in the third person (like “she/her,” “he/him,” and “they/them”). “They/Them” are common gender neutral pronouns. Being intentional about using someone’s pronouns is a simple way to show respect. Another accomplishment in 2023, SBUH scholars published results from Stony Brook Medicine’s LGBTQ+ Health Needs Assessment Survey, a collaborative effort in 2021 involving over 30 Long Island-based organizations and community leaders. Survey results are being utilized to guide our health system’s efforts to address health equity for the LGBTQ+ community.

A core mission for SBUH is fostering health equity for both its patients and staff. This past February, Stony Brook University Hospital was among the first eight hospitals in the United States to attain the Health Care Equity Certification from The Joint Commission and the only awarded organization on Long Island. Recognition was given to SBUH for implementing exemplary practices, such as employing health equity screening and data collection tools, documenting social work effectively, and making accommodations to meet the needs of patients with disabilities, among other activities.

“This recognition is a testament to the meaningful work carried out at Stony Brook University Hospital each day in support of the LGBTQ+ community on Long Island,” said Carol A. Gomes, chief executive officer for Stony Brook University Hospital. “For decades, our healthcare system has developed programs and offered services to help patients access the highest quality of care, and we want to continue to build on that strong foundation.”

Stony Brook Southampton Hospital’s Rose Walton Care Services has administered HIV prevention and care since the 1990s. In 2021, the hospital expanded services to include LGBTQ+ healthcare and opened the Edie Windsor Healthcare Center in Hampton Bays. The practice has a dedicated, full-time physician, Dr. Eric Lella, and provides confidential medical services in an accessible and caring environment, affirming all sexual orientations and gender identities and expression.

In 2023, SBSH implemented a LGBTQ+ Health Equity and Education Initiative program focusing on further educating staff in LGBTQ+ health care services, needs and protocols, including pronoun identification. The Edie Windsor Healthcare Center (through a NYSDOH AIDS Institute subcontract with PFY™) expanded mental health services and case management services, and the Center introduced patient navigation services to assist with insurance enrollment and access to entitlements/benefits, medical and other supportive services. The Center continues to administer mpox vaccinations to those who have been exposed to mpox or are at risk.

“The HEI Leadership designation recognizes our unyielding commitment to educate our staff in providing high-level LGBTQ+ healthcare with respect,” said Fredric I. Weinbaum, MD, CMO, COO and Interim CAO, Stony Brook Southampton Hospital. “As well as our efforts to provide LGBTQ+ patients with access to resources, programs and services.”

Stony Brook Southampton’s Hospital’s Diversity, Equity, and Inclusion Leadership Council, a committee of 25 administrators, physicians, nurses, and other staff, actively educates, informs, and provides resources for the wider hospital community about diversity issues while seeking opportunities to build an inclusive and safe environment for all who work in, seek care at, or visit the hospital’s facilities. To foster a sense of inclusion and compassion for all, the hospital has provided training to staff through the Responding to Equity, Diversity and Inclusion (REDI) program and the Greater New York Hospital Association’s Cultural Competency and Health Literacy education programs.

Upon reviewing HEI recommendations and criteria to better understand the behavioral health and medical needs of its local LGBTQ+ community, SBELIH revised human resource and hospital-wide policies, employee documents, terminology in medical records and facility signage. The changes enhanced SBELIH’s already strong focus on providing non-discriminatory and compassionate care. With a long history of serving the LGBTQ+ community, SBELIH continues to add clinicians and other staff members who specialize in LGBTQ+ care. The hospital’s history of service contributed to HEI naming SBELIH a Leader in LGBTQ Healthcare Equality.

SBELIH proudly participated in several initiatives promoting LGBTQ health equality. In June 2023, we joined the Greenport Pride Parade, demonstrating Stony Brook’s commitment to inclusivity and diversity. Collaborating with SBSH Edie Windsor Healthcare Center, SBELIH presented “LGTBQ* and Healthcare: Empowering Health, Embracing Diversity, in Southold NY,” underscoring the importance of LGBTQ-inclusive healthcare practices.

Additionally, SBELIH took part in “Queer Pride & Progress” by QUEERLI, in Jamesport NY, an event emphasizing inclusivity and understanding. Discussions covered a range of topics, including gender and sexuality, pronoun usage, and fostering a culture of care. SBELIH’s Chief Nursing Officer Suzie Marriott provided impactful contributions to these conversations.

“Ensuring health equity for all, regardless of sexual orientation or gender identity, is not just a moral imperative but a fundamental aspect of our commitment to compassionate care and inclusivity,” said Paul Connor, Chief Administrative Officer of Stony Brook Eastern Long Island Hospital. “Let’s continue to educate ourselves, engage in positive dialogue, and respect each other’s identities. Together, we can cultivate a world where everyone feels accepted and valued.”

The Human Rights Campaign Foundation is the educational arm of America’s largest civil rights organization working to achieve equality for lesbian, gay, bisexual, transgender and queer people. HRC envisions a world where LGBTQ+ people are embraced as full members of society at home, at work and in every community.

Stony Brook Medicine offers a range of specialized LGBTQ+ health services including a Talking About Gender (TAG) support group for teens to explore gender identity and expression, and a free educational support group for Parents of Transgender and Gender Diverse Children. For more information on Stony Brook Medicine’s LGBTQ+ care, visit:stonybrookmedicine.edu/LGBTQ.