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St. Charles Hospital

As the number of drug-related overdoses on the Long Island grows, one parent refuses to bury his head in the sand.

On the one-year anniversary of his son’s fatal heroin overdose, William Reitzig wasn’t in bed grieving. Instead, the Miller Place parent was on stage at Cedar Beach in Mount Sinai asking hundreds of community members to hug one another.

“Hug your loved ones like I hugged my son every day … My hope is that you leave here today with the same mission as my wife and I — that with love and compassion, we have the power to overcome the perils of drug addiction.”

—Michael Reitzig

“Hug your loved ones like I hugged my son every day … don’t let a minute go by without saying ‘I love you,’” Reitzig said to a crowd of emotional parents, extended family members, friends and strangers. “My hope is that you leave here today with the same mission as my wife and I — that with love and compassion, we have the power to overcome the perils of drug addiction.”

That mission resonated throughout Hope Walk for Addiction, an April 22 fundraising event created by Reitzig and co-sponsored by Brookhaven Town and Hope House Ministries — a nonprofit based in Port Jefferson that supports people suffering the disease of addiction.

Reitzig, whose 25-year-old son Billy struggled for years with opioid pills and ultimately died after a one-time use of heroin last April, kickstarted “a war on addiction” by raising awareness, educating about addiction, raising money to help those struggling and unite the community.

“This is [really] for the community — it’s not about me, it’s not about my son, it’s to try and make a difference moving forward,” Reitzig said. “I can’t do anything about the past at this point, but going forward we can all chip in … we’re all in the same boat. Today is about all the families that struggle every day with this disease getting together because this is no longer acceptable and we need to do something.”

The large crowd, mostly loved ones of those battling addiction or those who died from it, collectively walked Cedar Beach’s Nature Pathway in memory of those who overdosed. About a dozen names could be seen on signs along the scenic trail.

“I don’t think people realize how many people are depressed and they don’t know how to handle that and so people self-medicate and that’s part of the issue. Ninety-one young people die every day [from this] and that’s unconscionable.”

—Francis Pizzarelli

Local leaders, self-help experts and bands occupied the stage to address the issue that brought everyone together. Various sponsors, including WALK 97.5 and St. Charles Hospital in Port Jefferson, were set up at tables taking donations and educating others, and representatives from the Suffolk County Sheriff’s Office gave seminars on how to use Narcan, a life-saving nasal spray that can revert the effects of an overdose.

More than 500 people registered for the event, and all proceeds — totaling more than $34,000 at the end of the day — went to Hope House, which currently doesn’t have enough space for the overwhelming amount of people who need its services.

Father Francis Pizzarelli, founder of Hope House, counseled Billy while he was rehabilitating in the facility’s outpatient treatment program for a few months, and ultimately presided over his funeral.

Reitzig worked closely with Pizzarelli, and Councilwoman Jane Bonner (C-Rocky Point), to make the Hope Walk a reality.

“Billy was a loving and caring guy, but like a lot of people today, he had his demons and struggled with that,” Pizzarelli said. “I don’t think people realize how many people are depressed and they don’t know how to handle that and so people self-medicate and that’s part of the issue. Ninety-one young people die every day [from this] and that’s unconscionable. [William] elected to say ‘we’re not going to let this continue, we’re going to do something about it and we’re going to protect the quality of life of all our younger and older people addicted to heroin.’”

This is a time to come together as a community, Pizzarelli added, and celebrate the hope Reitzig embodies.

“We need to help stop the stigmatized feeling that comes with addiction. The users feel alone as it is, they don’t feel proud of themselves. They are good people that made one bad decision.”

—Sue Meyers

“I don’t think I’ve met more resilient, strong, dedicated and passionate people in my whole life as I have in William and his family,” Bonner said. “He’s changing the future of so many people by doing this. We’re losing a generation to addiction and this is an opportunity to lift each other up and strip the layers of shame back. It’s all around us and no community is safe from it.”

Patty Eiserman, of Sound Beach, wore a shirt bearing the face of her nephew David Smallwood, who died in 2013 when he was just 22. She said her goal is to educate children as young as possible so they don’t start using.

“I don’t want to say it’s impossible to get them clean,” she said, “but it’s very, very hard.”

Manorville resident Melanie Ross, whose brother died last year after a 10-year battle with addiction, said the situation ravaged the family. It was the first time she’d attended an even like this.

Sue Meyers, a Setauket resident, said she was walking for her son, Michael Moschetto, a Ward Melville graduate who died in December at 28.

“It’s in his name, but I’m also here to help show support for other people and donate as much money as I have in my pockets,” Meyers said. “We need to help stop the stigmatized feeling that comes with addiction. The users feel alone as it is, they don’t feel proud of themselves. They are good people that made one bad decision. I think events like this really give people hope and a sense of direction.”

The Kaiser Family Foundation, a nonprofit organization that analyzes health policies, has created an interactive map so Americans can compare changes in their premiums and tax credits from the Affordable Care Act to the American Health Care Act. Image from the Kaiser Family Foundation Website

Republicans in Congress have vowed to repeal and replace the Affordable Care Act, commonly referred to as Obamacare, since its inception in 2010, and after much adieu, a bill has finally been introduced to take its place.

The American Health Care Act has been met with opposition from both parties, while elected officials and hospital administrators weighed in on what the changes might mean for North Shore residents.

The most notable changes in the new health care plan compared to the existing one include an elimination of the individual mandate, which required all Americans to purchase health insurance or be subject to a fine — a sticking point for many Republicans on Obamacare; a cut of federal Medicaid funding for Planned Parenthood for one year; adjusting tax credits based on age instead of income; and shifting Medicaid expansion set forth by Obamacare to the discretion of states instead of the federal government, among many others.

The Kaiser Family Foundation, a nonprofit organization established to deliver health policy analysis to the public, has created an interactive map on its website to illustrate the estimated changes in premiums paid and tax credits for several demographics from the ACA to the AHCA.

“This is bad news for New York. … We cannot support this legislation in its current form.”

—Kevin Dahill

Tax credits, or the amount a taxpayer can offset what is owed in federal income tax, are a component of both the current health care law and the proposed replacement, though their implementation is very different.

According to the map estimates, a 27-year-old living in Suffolk County making $30,000 per year would receive about 50 percent less in tax credits in 2020 if the new bill became law. A 27-year-old making $40,000 per year would see the tax credit slashed by only 14 percent, but a $10,000 raise would net that same 27-year-old an approximate additional 52 percent in tax credits under the AHCA compared to the ACA.

A 40-year-old Suffolk County resident making $30,000 annually would receive 24 percent less in tax credits, while a 40-year-old making $50,000 would see a 128 percent boost in tax credits. Additionally, a 40-year-old making $75,000 annually would receive $3,000 in tax credits — under Obamacare no tax credits would be received.

Similarly, a Suffolk County resident who is aged at least 60 and earns $75,000 per year would receive a $4,000 tax credit under the proposed bill, despite being ineligible for a tax credit under Obamacare. A 60-year-old making $30,000 annually would receive a 2 percent increase in tax credits.

U.S. Rep. Lee Zeldin (R-Shirley), who has said in the past he would like to maintain certain aspects of Obamacare, like allowing people aged 26 or younger to remain on their parents’ health plans and coverage for people with preexisting conditions, weighed in on the Republican plan in an emailed statement through spokeswoman Jennifer DiSiena.

DiSiena reiterated Zeldin’s stance on kids remaining on parents plans and coverage for individuals with preexisting conditions, though she added he believes a smooth transition from the ACA to the new plan is the most important thing.

“Obamacare has resulted in higher premiums, higher deductibles, lost doctors and canceled policies, among many other challenges,” she said. “Deductibles are so high, many people now feel like they don’t even have insurance anymore. One-third of the counties in our country only have one option left under the exchange. That’s not choice. That’s a monopoly.”

“Deductibles are so high, many people now feel like they don’t even have insurance anymore. One-third of the counties in our country only have one option left under the exchange.”

—Lee Zeldin

DiSiena also sought to dispel what she called misconceptions being perpetuated about the new bill and what the policy might do to people’s coverage. She said no one will be kicked off Medicaid under the new bill, premiums might rise in the short term but are expected to be 10 percent lower by 2026 than their current levels, and the claim by the Congressional Budget Office that 24 million Americans covered under Obamacare would lose coverage can be attributed to people who were forced to purchase health care opting to go without.

DiSiena added Zeldin is generally supportive of the bill as written but intends to monitor proposed amendments.

U.S. Rep. Tom Suozzi (D-Glen Cove) was far less supportive during an interview on MSNBC’s “Morning Joe” March 14.

“We have to continue to point out that 24 million people are going to be kicked off, that their premiums are going to go up, that there’s a transfer of cutting taxes on the wealthiest Americans, and raising premiums on senior citizens and others,” he said in the interview. “This is really a life and death thing.”

Suozzi’s office did not respond to a request for comment.

Kevin Dahill, president and CEO of Suburban Hospital Alliance, an organization that represents the advocacy interests of Long Island health systems including St. Catherine of Siena in Smithtown and St. Charles Hospital in Port Jefferson, issued a statement regarding the House bill March 13.

“The House bill neither truly repeals nor meaningfully replaces the Affordable Care Act,” Dahill said. “This is bad news for New York. … We cannot support this legislation in its current form.”

Chief Medical Officer at Huntington Hospital Michael Grosso said in an email his facility will continue to hold itself to the highest standards regardless of the federal health care law.

“That said, we must bear in mind as an informed citizenry that when effective, preventive health care is delayed or denied, society pays the price several times over,” Grosso said.

The House of Representatives is scheduled to vote on the bill today, March 23. House Republicans introduced several amendments to the original legislation earlier this week.

File photo

A motor vehicle crash Feb. 18 in Rocky Point killed a woman from Port Jefferson and seriously injured her husband. Suffolk County Police 7th Squad detectives are still investigating the incident.

Florin Tilinca was driving a 2014 Jeep on Route 25A and was preparing to stop for a red light at the intersection of Fairway Drive at about 12:20 p.m. when a 2015 Subaru traveling in the westbound lane of Route 25A crossed into the eastbound lane and struck the Jeep.

The driver of the Subaru, Lucio Costanzo, 73, of Port Jefferson, was airlifted via Suffolk County Police helicopter to Stony Brook University Hospital in serious condition. His wife, Stephanie Costanzo, 73, who was a passenger in the vehicle, was transported to John T. Mather Memorial Hospital in Port Jefferson where she was pronounced dead. Tilinca and his 16-year-old son were transported to St. Charles Hospital in Port Jefferson with non-life-threatening injuries.

The vehicles were impounded for safety checks. Anyone with information on this crash is asked to call the 7th Squad at 631-852-8752.

 

By Kevin Redding

While many young people look to television, YouTube videos and sports arenas for a glance at their heroes, a 23-year-old Shoreham resident sees hers every night around the kitchen table.

In Rachel Hunter’s own words in a heartfelt email, her parents — Jeffrey Hunter, a respiratory therapist at Brookhaven Memorial Hospital in Patchogue, and Donna Hunter, a neonatal nurse practitioner at St. Charles Hospital in Port Jefferson — are “the hardest working, most loving, supportive and beautiful people” she’s ever known.

Jeffrey Jr., Jake, Rachel, Jeff Sr., and Donna Hunter at Rachel’s graduation party in June of last year. Photo from Rachel Hunter

“My parents exude the meaning of character, integrity, respect, responsibility, kindness, compassion and love,” Hunter said. “I can honestly say I’ve never seen two adults that are more amazing standards for human beings.”

Newfield High School sweethearts, the Hunters have been providing care and service for people across Long Island, consistently going above and beyond to ensure their patients are as comfortable, safe and as happy as possible.

For Jeffrey Hunter, 55, whose day-to-day job is to be responsible for every patient in the hospital — from making sure their cardiopulmonary conditions are steady, to drawing blood from arteries, to being on high alert as a member of the rapid response team — the passion for helping people comes from his upbringing in Selden.

“We lived a simple life, and I was always taught to treat people with dignity and respect … the way you would want to be treated,” he said. “I try to practice that every day of my life, not only in work, but with my daily activities.”

He said while the job can be emotionally harrowing at times — working at Brookhaven Memorial Hospital for 31 years, Hunter establishes close relationships with patients who end up passing away after fighting conditions that worsen over time  — but it’s worthwhile and extremely rewarding when he can help somebody and bring relief to family members.

“Just to see the look on someone’s face if you can make them feel better, even just by holding their hand … it’s the simple things and it really doesn’t take much, but I think the world needs a lot more of that these days,” he said. “I’m just a general people-person and try to comfort patients in their time of need. It can be really dangerous and sad at times, but I just try to remain hopeful.”

“Just to see the look on someone’s face if you can make them feel better, even just by holding their hand … it’s the simple things.”

— Jeffrey Hunter

Rachel Hunter recalled a day when her father came home from work and told her about an older man in the hospital who felt abandoned and forgotten by his kids, who never called or sent birthday cards.

“I held back tears as my dad told me he sent him a birthday card this year,” she said. “Many leave their workday trying as hard as possible to forget about the long, stressful day, but not my dad. He left work thinking ‘what else can I do? How else can I make a difference?’”

Donna Hunter, 54, said her passion for providing care to neonates, infants and toddlers and emotional support and compassion for their parents and families started when she found out her own parents had full-term newborns who died soon after delivery.

She graduated from Adelphi University with a degree in nursing and received a master’s degree as a perinatal nurse practitioner from Stony Brook University. When fielding questions from people asking why she didn’t go through all her schooling to become a doctor, she says, “because I wanted to be a nurse and do what nurses do.”

“I’m one of those very fortunate people that love the career that I chose,” she said. “Every time I go to work, I’m passionate about being there, I’m excited, and it’s always a new adventure for me.”

Highly respected among staff for the 26 years she’s worked at St. Charles, she tends to newborns in need of specialized medical attention — from resuscitation and stabilization to rushing those born critically ill or with a heart condition to Stony Brook University Hospital.

Donna Hunter during the delivery of her cousin. Photo from Donna Hunter

“Babies are the most vulnerable population, but are incredibly resilient,” she said. “Babies have come back literally from the doors of death and have become healthy, and to be part of that in any small way is very satisfying.”

Maryanne Gross, the labor and delivery head nurse at St. Charles, called her “the calm voice in the room.”

“Donna is who you want with you if you’re having an issue or in a bad situation,” Gross said. “She’s an excellent teacher and just leads you step by step on what you need to do to help the baby. She’s great to be around and I think she was born to do [this].”

Hunter has also dedicated herself to creating a better future regarding neonatal withdrawal, saying the hospital is seeing more and more babies in the Intensive Care Unit affected by their mothers’ opioid use.

She recently gave a 45-minute seminar on the subject at a chemical dependency symposium by St. Charles outlining the newborn’s symptoms, treatment options and what it means for future health. She not only wants to help the baby but also the mother, providing resources to help them recover successfully.

Even with all their accomplishments in the field, Jeffrey and Donna Hunter consider family their top priority. With three children — Jeffrey Jr., 27; Jake, 24; and Rachel —  they take advantage of every opportunity they have to be together.

“It’s a juggle as to who’s working, who’s got to go to a meeting, but we make it happen,” Donna Hunter said. “We even take time to play games at our kitchen table … a lot of families don’t do that anymore. We’re very fortunate.”

John T. Mather Memorial Hospital in Port Jefferson. File photo from Mather Hospital

No one wants to be sick enough to require a hospital visit, but North Shore residents learned last month they live near three of the best facilities in the Long Island/New York City area if that day should come.

Data compiled by Medicare based on patient surveys conducted from April 2015 through March 2016 and released in December ranked John T. Mather Memorial Hospital and St. Charles Hospital in Port Jefferson, as well as Stony Brook University Hospital, among the top seven in overall rating, and the top nine in likelihood patients would recommend the hospital to a friend or family member.

A patient receives care at John T. Mather Memorial Hospital in Port Jefferson, one of the top hospitals in the Long Island/New York City area based on patient survey data. File photo from Mather Hospital

Overall patient satisfaction ratings were based on recently discharged patient responses to survey questions in 10 categories, including effectiveness of communication by both doctors and nurses, timeliness of receiving help, pain management, cleanliness and noise level at night, among others.

Mather finished behind just St. Francis Hospital in Roslyn of the 27 hospitals considered in the New York/Long Island area in their overall rating. St. Charles ranked sixth and Stony Brook seventh. Mather was also the second most likely hospital for a patient to recommend to a family member or friend, with St. Charles and Stony Brook coming in eighth and ninth places, respectively. St. Francis also topped that category.

Stu Vincent, a spokesperson for Mather, said administration is proud to be recognized for its quality.

“The driving force behind everything we do at Mather is our commitment to our patients, their families and the communities we serve,” he said. “We know people have many choices in health care and we continually strive to ensure that our hospital exceeds their expectations through our employees’ commitment to continuous quality and patient satisfaction improvement.”

A spokesman from St. Charles expressed a similar sentiment.

“At St. Charles, the quality of care that we provide to our patients is first and at the center of everything we do,” Jim O’Connor, executive vice president and chief administrative officer at St. Charles said in a statement. “That commitment to quality is evidenced by these wonderful patient satisfaction scores and the successful number of high level accreditations St. Charles received recently.”

Stony Brook hospital spokeswoman Melissa Weir emailed a statement on behalf of hospital administration regarding its rank among other area facilities.

“We are constantly looking for ways to improve, and are continuously developing new approaches to ensure that our patients have the best experience while they are in our care,” she said. “One of our goals is to achieve top decile performance with a focus on matters such as improving communication, reducing noise, addressing pain management and implementing nurse leader hourly rounding and hourly comfort checks.”

Mather’s ratings were at or above average for New York and nationwide in nearly every category as well as the likelihood to be recommended by a patient. St. Charles beat New York averages in nearly every category and was above the national average in likelihood to be recommended. Stony Brook was also above average compared to the rest of the area in most categories.

All three hospitals received their highest scores in communication by doctors and nurses, along with their ability to provide information to patients for effective recovery at home. All three hospitals were given their lowest ratings in noise levels at night and in patient’s understanding of care after leaving the hospital.

For a complete look at the ratings visit www.medicare.gov/hospitalcompare.

Putting one foot in front of the other never looked so inspiring.

A freak sledding accident in Vermont in 2009 left Greg Durso, 31, of Stony Brook unable to use his lower body from his stomach muscles down. With the help of St. Charles Hospital’s rehabilitation center, he stood and walked across a room Dec. 13 in front of his family and dozens of hospital personnel for the first time since his accident.

Greg Durso, who is paraplegic, walks at St. Charles Hospital Dec. 13 with help from an Indego exoskeleton. Photo by Alex Petroski
Greg Durso, who is paraplegic, walks at St. Charles Hospital Dec. 13 with help from an Indego exoskeleton. Photo by Alex Petroski

Durso was aided by a clinical trial product called the Indego exoskeleton, which is a wearable robotic frame. St. Charles is one of nine hospitals in the United States conducting the clinical trial, and the only one on Long Island. Durso is the first patient at the hospital to take the technology for a spin.

“It’s just an incredible feeling to be up there and be walking again — putting weight on your legs,” Durso said after his groundbreaking stroll. “Each step is kind of like a leap of faith … a month ago I probably couldn’t have told you I’d be here today, so when I heard about this, I was so happy to have the opportunity to do this.”

Indego is the second FDA-approved exoskeleton device used for lower limbs. The device weighs about 26 pounds, and requires no backpack or external wires, as other similar devices have in the past. Currently the machine is operated by Durso’s chest muscles, but future incarnations of the device will allow electrical stimulation in the muscles so that a patient’s own legs will make the machine work, according to St. Charles Physical Medicine and Rehabilitation Medical Director Jennifer Semel. The FDA gave the machine clearance in March.

“The future is really limitless,” Semel said in an interview. “It’s really exciting to see people who haven’t been able to stand up in several years not only to be at the same height as their peers, but to be able to walk. It’s really uplifting.”

Semel said Durso has been using the device for about a month, and last week required a walker in addition to the exoskeleton to get around. He progressed to crutches for his Dec. 13 walk. Semel said the plan is for Durso to continue using the device for several months to gain a better understanding of the health benefits and the impact it has on a patient’s gait.

“I think I was a little skeptical because you realize people always tell you there’s going to be advances, there’s going to be this and that in the future,” Durso said. “But when you see this — I actually get up, I actually walk, I gave my sister a hug for the first time in eight years face to face — it’s pretty emotional and empowering, and it’s just exciting to see where the future is going to go with this technology.”

It was an emotional day for the members of the Durso family in attendance. Durso’s older sister, Jessica Giovan, fought back tears trying to describe seeing her brother walk again for the first time in eight years.

‘It’s just an incredible feeling to be up there and be walking again — putting weight on your legs … each step is kind of like a leap of faith.’

— Greg Durso

“I just saw him look so proud and happy,” she said. “He works so hard at everything he does, so to see him put one foot in front of the other, literally, was just unbelievable … the person you see now is the person he has always been. He has not, for one second, wavered in his personality since the accident. In fact, he has only increased his perseverance and his humor, and he lives everyday to make everyone around him feel like it’s okay.”

His dad, Richard Durso, said he couldn’t have imagined he’d be sitting where he was, watching his son walk, when he heard the news of the accident eight years ago. He credited his son’s positive attitude for keeping him on track. His mom, Jean Durso, called what she saw “unbelievable.”

Durso has competed in Iron Man races and marathons in his life — the former both pre and post accident — and said he hopes to be able to regain some of that lifestyle in the future.

“I love to do athletic things. I mean, it could be anything. I just want to be out there, have fun and live my life the way I want to do it,” he said. “For me that’s enough.”

The Indego devices cost about $80,000 each.

Nurses from St. Catherine of Siena Medical Center and St. Charles Hospital have a new contract. File photo by Alex Petroski

The final hurdle was cleared to avoid a work stoppage for nurses at two North Shore hospitals.

Registered nurses from St. Catherine of Siena Medical Center in Smithtown and St. Charles Hospital in Port Jefferson voted overwhelmingly to approve a new contract Nov. 10 — they had been working without a contract since March 2015.

The New York State Nurses Association identified inefficient staffing, health benefits and a pay increase as the key issues they wanted addressed during negotiations, and according to a statement, all three were achieved. Additional nurses will be added to shifts at both hospitals, nurses will receive a three percent pay increase and an increase in health benefits, according to a statement from the union.

After about 18-months of negotiations, the NYSNA and hospital administration from both facilities reached a tentative agreement for a new contract to avoid a work stoppage Nov. 5, and the Nov. 10 vote made it official.

“Nurses at St. Catherine are always willing to stand up for safe patient care.”

— Tammy Miller

“The nurses at St. Charles Hospital are happy to ratify an agreement that protects both nurses and patients,” Tracy Kosciuk, RN and president of the local bargaining unit at St. Charles Hospital, said in a statement. “The issues were so important to our nurses that we took a strike vote that overwhelmingly passed, by a vote of 96 percent, and we were willing to hold a two-day strike. We are grateful to have a union behind us to speak up and educate the community on these important issues, and we look forward to working with the community in the future.”

Kosciuk, who has been at the hospital for nearly three decades, said in a phone interview last week that the tentative agreement was reached in part thanks to a “marathon” negotiating session that spanned from the afternoon Nov. 4 until about 9 a.m. Nov. 5. Nurses at both hospitals, who are among about 40,000 in New York State represented by the NYSNA, had voted to authorize the union to give notice of a strike in October, though that never manifested.

“I’m happy with what we were able to retain in regards to nurse-patient ratio with the intensive care unit,” Kosciuk said. Typically six nurses are staffed for shifts in the ICU, though Lorraine Incarnato, a nurse at St. Catherine’s in the ICU for nearly 30 years, said, during a picket outside of the hospital in April, she frequently worked shifts with five or even four nurses on duty.

“It’s causing a lot of friction between administration and staff,” Incarnato said in April. “When you have staff working always short [staffed], always extra, and then knowing that there’s not the respect factor there, they’re unhappy. Unhappy staff doesn’t keep patients happy. We try to put on a really happy face, because the patients come first.”

Administration members from both hospitals were also glad to avoid a work stoppage.

Nurses and their supporters picket outside St. Charles Hospital on April 8, calling for higher staffing levels and encouraging passing drivers to honk in solidarity. Photo by Giselle Barkley
Nurses and their supporters picket outside St. Charles Hospital on April 8, calling for higher staffing levels and encouraging passing drivers to honk in solidarity. Photo by Giselle Barkley

“We are pleased to have reached a fair settlement and I’d like to commend both bargaining teams who worked very hard to reach this agreement,” Executive Vice President and Chief Administrative Officer at St. Charles Jim O’Connor said in a statement prior to the vote. “St. Charles Hospital is proud of our professional nursing staff and the high quality of care they provide to the members of our community.”

Leadership from St. Catherine of Siena expressed a similar sentiment.

“We are pleased to have reached a tentative agreement which is subject to ratification by NYSNA members at our hospital,” St. Catherine’s Executive Vice President and Chief Administrative Officer Paul J. Rowland said in a statement last week.

The more-than-a-year-and-a-half negotiating session featured pickets at both hospitals, with nurses frustrated by inadequate staffing and seeking better health benefits and a pay increase in their next contract.

“All of these issues affect retention and recruitment,” Tammy Miller, a nurse at St. Catherine of Siena, said in a statement in October. “Keeping and attracting experienced nurses are essential to quality care.”

Miller was proud of the efforts put forth by the union and nursing staff since their contract expired.

“Nurses at St. Catherine are always willing to stand up for safe patient care,” she said in a statement after the vote.

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St. Charles Hospital nurses and other staff wear pink bracelets as a sign of support for Desiree Bielski-Stoff, who is battling breast cancer. Photo from Bielski-Stoff

By Rebecca Anzel

Registered nurse at St. Charles Hospital in Port Jefferson Desiree Bielski-Stoff knows what a lump feels like — she had a small one removed from her left breast when she was 20. Since then, she performed self-examinations regularly and, coupled with her medical knowledge, thought she was “pretty good” at self-assessment.

In September, Bielski-Stoff, who is now 37, was diagnosed with breast cancer. Less than a month later, she had a double mastectomy at Memorial Sloan Kettering Cancer Center in Manhattan.

Bielski-Stoff waits to enter the operating room before her double mastectomy Oct. 4. Photo from Bielski-Stoff
Bielski-Stoff waits to enter the operating room before her double mastectomy Oct. 4. Photo from Bielski-Stoff

“I was looking for something like that mass in my left breast, something I could feel,” she said. “It wasn’t like a lighted sign going ‘Bling Bling, you have cancer — you have a mass in your breast,’ and I think that’s what we think we’re supposed to be looking for.”

October is national Breast Cancer Awareness Month, and Bielski-Stoff has been sharing her story with friends and family in the hopes they will not have to go through what she experienced. Every two minutes, a woman in the U.S. is diagnosed with breast cancer, a disease that kills more than 40,000 women each year, according to Right at Home, a senior care organization.

On average, women develop breast cancer at age 61. Bielski-Stoff’s diagnosis rattled her family, friends and coworkers. She has worked at the hospital since 2004.

“It’s eye-opening for all of us — I’m her age, you know? You never know,” Kim Audiino, an emergency room nurse at St. Charles Hospital and friend of Bielski-Stoff, said. “I think people need to open their eyes and be more alert about checking themselves.”

Bielski-Stoff was getting dressed after taking a shower in August when out of the corner of her eye, she noticed her right breast collapsed when she lifted her arm. Her first thought, she said, was that it was due to the 10 pounds she recently lost for her sister’s upcoming wedding. Bielski-Stoff conducted a brief self-exam, finding nothing out of the ordinary — nothing was swollen and she did not feel any lumps.

She showed her gynecologist that Wednesday. Bielski-Stoff said the doctor cocked her head, commented that it looked like a dimple and gave her a script for a mammogram and an ultrasound. The doctor told her it was probably nothing but she wanted to be on the safe side.

Her appointment was Sept. 7 at St. Charles with Dr. Jane Marie Testa, a doctor her coworkers recommended after Bielski-Stoff insisted she wanted to see the best. George, her husband, had asked if she wanted him to go with her, but she said no — she did not want to make it a big deal.

“I remember driving there and pulling up in the parking lot and thinking, either this is going to go in a good way or it’s not,” Bielski-Stoff said, “like, this could be the last time I feel normal.”

The tests took a few hours. When they were over, Testa came in and said she wanted to show Bielski-Stoff a few things with the ultrasound. There was a spot on her left breast the doctor wanted to take a sample of, and one on her right. Then Testa hovered over another spot on her right breast and said she was sorry — it was cancer.

There was no question about what it was, Bielski-Stoff said. It was a classic presentation of a cancerous mass. It was irregularly shaped and had vascularity and calcifications. Questions were flying through her mind about whether her life was over, if she would be in pain and if she was going to be okay, she said.

“The feeling that comes over you when somebody says cancer is just, I started crying,” Bielski-Stoff said. “I thought, ‘How do I absorb this right now. It was everything all at once — fear, a lot of fear.”

Her sister’s wedding was that weekend, so she booked the biopsies for the following Wednesday. Then she set about trying to find a surgeon.

Bielski-Stoff’s insurance company told her there was only one in network near her, so she turned to her coworkers at St. Charles for advice. With the help of her supervisor and the head of human resources, Bielski-Stoff learned the doctors at Memorial Sloan Kettering were covered.

The surgeon gave her two options: either Bielski-Stoff could get a lumpectomy with radiation or she could get a mastectomy. She opted for a double mastectomy.

“I have to live with this. This is what I can live with,” she said about her decision. “I’m young, 37. I can’t spend the rest of my life panicking that I’m getting cancer again.”

“The feeling that comes over you when somebody says cancer is just, I started crying. I thought, ‘How do I absorb this right now. It was everything all at once — fear, a lot of fear.”

— Desiree Bielski-Stoff

Her surgery was Oct. 3. Two weeks later, all the drains were out and she was sore but doing well. The support from her friends at St. Charles helped her through the experience, she said. They visited her every day, bringing her flowers and food, watching movies with her, checking her dressings, helping her bathe and delivering her medicine from the pharmacy.

“We were pretty much her nanny 24/7 while her husband was working,” Audiino said. “She was never alone, and she had more care than anyone I’ve seen because she’s so well-known and well-liked. We love her to pieces.”

Audiino and another friend, Colleen Miller, raised just about $600 selling over 150 pink bracelets around the hospital. Her Facebook page is littered with pictures of coworkers wearing their bracelets — some say Faith, others say Hope and Survivor. The funds paid for the hotel room Bielski-Stoff’s husband stayed in the night before her surgery.

St. Charles is letting employees donate their vacation time to Bielski-Stoff. She has exhausted hers between her cancer experience and working on the hospital’s negotiating team.

“All of us at St. Charles wish Desiree the best of health — I am very proud of our staff for supporting Desiree during this difficult time,” Jim O’Connor, executive vice president and chief administrative officer at St. Charles, said in an email. “Their gesture also brings awareness to this important health issue and the need for screening and early detection.”

Others have been doing what they can to show their support as well. A former patient’s family drove to her house from the North Shore to drop off supermarket gift cards, and her sister set up a GoFundMe account.

Bielski-Stoff said this experience has been traumatic because it feels like she does not just have cancer, but all her friends and family do. Her diagnosis has made the people around her aware of the importance of conducting self-examinations and going to a doctor regularly.

“It made me have a different look on life and it definitely opened my eyes to making sure that I take care of myself and my children, and that all of my friends keep up with checking for themselves,” Miller, a nursing assistant at St. Charles, said. “In the meantime, we all have to be ‘Dezzy strong,’ as I call it, and be there for her while she’s recovering.”

Bielski-Stoff found out on Halloween she’ll need four months of chemotherapy. 

“That’s going to change me as well and make the fight a little bit harder,” she said.

Bielski-Stoff’s friend Jimmy Bonacasa is hosting a fundraiser for her at the Harbor Crab in Patchogue Sunday, Nov. 13, from 4 to 8 p.m. There is a suggested donation of $20.

This version was updated Nov. 1 to include Bielski-Stoff’s treatment plan.

Nurses and their supporters picket outside St. Charles Hospital on April 8, calling for higher staffing levels and encouraging passing drivers to honk in solidarity. Photo by Giselle Barkley

By Alex Petroski

Registered nurses at St. Catherine of Siena Medical Center in Smithtown and St. Charles Hospital in Port Jefferson have been working without a contract since March 2015, but they may be nearing a tipping point.

Nurses from both hospitals voted overwhelmingly to authorize a strike this week, according to a statement dated Oct. 17 from the New York State Nurses Association, a union that represents about 40,000 registered nurses in the state.

Nurses and their supporters picket outside St. Charles Hospital on April 8, calling for higher staffing levels and encouraging passing drivers to honk in solidarity. Photo by Giselle Barkley
Nurses and their supporters picket outside St. Charles Hospital on April 8, calling for higher staffing levels and encouraging passing drivers to honk in solidarity. Photo by Giselle Barkley

“We are very frustrated with management,” Tracy Kosciuk, a St. Charles nurse in the maternal child unit who has been with the hospital for nearly three decades, said in a statement. Kosciuk is also the president of the union’s executive committee for St. Charles. “We feel a total lack of respect. Our community appreciates our dedication and management should too.”

Spokespersons from both hospitals responded to the union’s actions in emailed statements.

“We are working diligently to resolve all issues and have made great progress toward that goal,” separate statements from St. Charles executive director for public and external affairs, Marilyn Fabbricante, and St. Catherine’s executive vice president and chief administrative officer, Paul Rowland, each said. “We look forward to a mutually satisfactory collective bargaining agreement which rewards our nurses and meets the needs of our hospitals.”

Fabbricante added that St. Charles has not yet been informed by the union of plans to go on strike. Carl Ginsburg, a spokesman for the union, said they have strike authorizations from members at both hospitals, though negotiations are ongoing and no dates have been determined for the strikes. Unions are required to give health care institutions at least 10 days notice prior to a strike, according to the National Labor Relations Board — and Ginsburg said that had not yet occurred.

According to the release from the union, its members are frustrated by inadequate staffing and are seeking better health benefits and a pay increase in their next contract. In 1995, performance of nurses and other health care professionals became subject to ratings based on patient surveys conducted by the Agency for Healthcare Research and Quality, according to its website.

“You can’t have two people lifting a patient all the time…When people are going out with back injuries, then [hospital administration members] wonder why.”

—Dawn Bailey

“All of these issues affect retention and recruitment,” Tammy Miller, a nurse at St. Catherine of Siena, said in a statement. “Keeping and attracting experienced nurses are essential to quality care.”

Dawn Bailey, a registered nurse and labor bargaining unit executive committee member of the NYS Nurses Association, said during a picket outside the Smithtown medical center in April that working a shift without adequate staff can be dangerous not only for patients, but for nurses as well, on top of the potential damage it can do to ratings.

“You can’t have two people lifting a patient all the time because there’s not that other person available,” Bailey said. “When people are going out with back injuries, then [members of hospital administration] wonder why.”

Kosciuk expressed a similar sentiment during a picket in April.

“Unfortunately the mentality … nowadays in the industry is [that] all hospitals are short staffed,” she said. “That’s not acceptable to have that mind-set.”

Victoria Espinoza contributed reporting for this story.

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Nurses and their supporters picket outside St. Charles Hospital on April 8, calling for higher staffing levels and encouraging passing drivers to honk in solidarity. Photo by Giselle Barkley

Members of the New York State Nurses Association had drivers honking their horns near St. Charles Hospital in Port Jefferson on Friday, as picketers called for increased staffing of nurses.

Between 11:30 a.m. to 2 p.m. on April 8, nurses and supporters marched and chanted outside the hospital to spread awareness of their cause. According to the nurses’ association members, some nurses tend to 10 or more patients and those working in St. Charles’ Intensive Care Unit are exceeding what they call a safe limit of one to two patients per nurse.

Increased staffing would help nurses devote more time to their patients, according to group members, which is better for the patient.

Nurses and their supporters picket outside St. Charles Hospital on April 8, calling for higher staffing levels and encouraging passing drivers to honk in solidarity. Photo by Giselle Barkley
Nurses and their supporters picket outside St. Charles Hospital on April 8, calling for higher staffing levels and encouraging passing drivers to honk in solidarity. Photo by Giselle Barkley

Nancy Joly, the New York State Nurses Association’s deputy director, said the organization has data showing that when ICU nurses have more than two patients “the chances of death are skyrocketed.”

The picketing comes as the St. Charles nurses’ union is negotiating with the hospital on a new contract, after the previous one expired in March 2015.

According to a statement from the hospital, the facility bases staffing guidelines on various factors, including when nurses call in sick, how much nursing care a patient needs, the number of patients who need care and guidelines set in previous union contracts.

Tracy Kosciuk, a St. Charles nurse of 27 years and president of the state nurses’ association’s executive committee for St. Charles nurses, said when they have too many patients, it’s difficult for nurses to give their “100 percent” and care for each patient, including teaching the patient and their family about their health.

“Unfortunately the mentality … nowadays in the industry is [that] all hospitals are short-staffed,” Kosciuk said. “That’s not acceptable to have that mindset.”

But St. Charles said the nurses and the hospital share the same goal of providing their patients with high-quality care. While the group has a right to picket, according to the hospital statement, it would prefer to discuss the nurses’ contract in a formal meeting.

“St. Charles remains committed to negotiating a fair contract … that supports our caregivers and the communities we serve,” the hospital said. “We will continue to negotiate in good faith with the union.”

Nurses and their supporters picket outside St. Charles Hospital on April 8, calling for higher staffing levels and encouraging passing drivers to honk in solidarity. Photo by Giselle Barkley
Nurses and their supporters picket outside St. Charles Hospital on April 8, calling for higher staffing levels and encouraging passing drivers to honk in solidarity. Photo by Giselle Barkley

Stony Brook resident Barbara Cea was among the nurses chanting outside St. Charles and celebrating when drivers honked their horns in solidarity. She has worked at the hospital for the past 32 years.

“They seem to be ignoring our pleas to increase the nurse-to-patient ratio so that we could provide adequate and safe care, which is more and more important,” Cea said. “We have to keep the nurses at the bedside.”

Cea supported the hospital’s statement that it’s trying to establish fair contracts with appropriate staffing guidelines, but said it’s been a slow process.

“Nobody knows when they’re going to end up in the hospital,” Joly said. “A lot of people are worried about their community hospitals being well-staffed. You really need to have good staffing everywhere.”