Scenes from Port Jefferson village's Fourth of July parade. Photo by Bill Landon
Scenes from Port Jefferson village's Fourth of July parade. Photo by Bill Landon
Scenes from Port Jefferson village's Fourth of July parade. Photo by Bill Landon
Scenes from Port Jefferson village's Fourth of July parade. Photo by Bill Landon
Scenes from Port Jefferson village's Fourth of July parade. Photo by Bill Landon
Scenes from Port Jefferson village's Fourth of July parade. Photo by Bill Landon
Scenes from Port Jefferson village's Fourth of July parade. Photo by Bill Landon
Scenes from Port Jefferson village's Fourth of July parade. Photo by Bill Landon
By TBR Staff
Port Jefferson residents enjoyed a day of American patriotism, which included a procession of community members, festively dressed families with red, white and blue-adorned pets and more for their annual 4th of July parade. The parade began on Main Street at 10 a.m. and was held by the Port Jefferson Fire Department.
It’s so easy to take each other for granted. Of course mom is going to drop everything at work, where she has an incredibly important job, and race to watch you play clarinet with your dad during a day-time concert because that’s what she does and that’s who she is.
And, of course, grandma is going to bring the entire family together for various holidays, welcoming us with hugs and kisses and ensuring that the house has the specific foods each of us needs for the days we share.
But these moments are not a given, any more than sunshine during a picnic or a last minute, life-saving reaction that avoids a traffic accident is.
Recently, my wife and I attended a service for my late mother-in-law. In a small ceremony at the cemetery, almost the entire extended family came.
My wife and I, our children and father-in-law arrived together over 90 minutes early. We sat in the car, waiting for everyone else to arrive and for the ceremony to begin. Other cars slowly glided past us, as other families and friends came to pay respects and to honor those whom they were fortunate enough to know but had lost.
Our children and I climbed out of the car and walked up and down the road, looking at the significant life-defining dates — when someone was born and when they died. We calculated how old each person was. A child died at the age of two in 1931, while a grandmother lived well into her 90’s.
Small raindrops started to fall, sending us scampering back into the car just before a sudden and surprisingly strong downpour.
My wife checked the forecast, which suggested that the rain would stop before the ceremony. Sure enough, 20 minutes before we had to get out of the car, the rain eased up and the sun peaked through the clouds, as the mixed weather served as a backdrop for moments of appreciation and an awareness of the keen loss.
We greeted other family members, who hugged us, shook our hands, or, in some cases, ignored us, carrying grudges or standing on principle for slights real or imagined long ago.
We saw an extended relative and her fiancée whom we hadn’t seen in person since their engagement. We congratulated them on their upcoming wedding, asked about the planning for the big day, and enjoyed the reality of a multi-year relationship transitioning into an upcoming marriage.
The officiant called everyone over, causing almost every other conversation to stop. After some somber words, he urged us to reflect on the person we were so fortunate to know and on the valuable time we shared.
After he expressed awe at the incredible long-term marriage between my father-in-law and mother-in-law, he asked if anyone wanted to speak. In a soft voice, my father-in-law celebrated the relationship he had with his wife, recalling the first time he met her and the bond they formed over 66 years of marriage.
When the officiant asked if anyone else wanted to speak, he turned to the grandchildren. Our son, who is the youngest grandchild and who gravitated towards his mother to offer his support, nodded.
He remembered the way his grandmother called him over whenever we arrived, smiling broadly and signaling with her index finger for him to come kiss her, which he and all the next generation readily did.
He also remembered how grandma, who was among the smallest people in any room, was always the cake cutter for birthdays. He described how her tiny arms worked their way through each cake, even frozen ice cream cakes, as she made sure everyone got a piece.
With each word, he reflected the love she gave to all her grandchildren back out into the world. In that moment, when he so eloquently captured his grandmother’s dedication to family, he made it clear that he didn’t take her for granted, any more than my wife and I took him for granted.
Without any preparation, he rose to the occasion, helping us see her through his grateful eyes.
There was no “of course” that day for grandma or for her grandchildren, just gratitude.
It’s Thanksgiving again, even though it seems it recently was. Yes, time flies, and soon it will be Christmas and then the end of 2023. When did that all happen? It seems we were worried about what would occur when we turned the corner into the next millennium. Now we are almost one quarter into the new century.
Some things don’t change, and that includes the core menu for Thanksgiving dinner. While I always try to add a new dish, just for the surprise value, still there are the turkey, stuffing and cranberry sauce, the roasted veggies and mashed sweet potato, and the wonderful pies. I have to confess that my family prefers broccoli with garlic and oil to string beans, so we have put our own twist on the basic meal.
Every year, after dinner, we remain at the dining room table and share with each other what we are most grateful for particularly in this year. This way, I get to catch up on what’s been happening in my family’s lives that I might not know about, and they do as well.
But while Thanksgiving is always celebrated on the fourth Thursday of November, no two Thanksgivings are exactly the same because no two years are the same. For one thing, we are one year older. That changes our lives in minor and major ways as we move on.
For example, my granddaughter moved on this year and graduated from college. She now has her first full time serious job, is living on her own and tasting adult life.
My oldest grandson and his fiancee have been lovingly planning their wedding for next year. The bachelor party has already happened, the bridal shower, postponed once because the bride-to-be came down with COVID, will take place next month, and the couple have picked out their permanent home. They already have a BBQ for the backyard. Dresses have been selected, tuxes prepared, the event location secured and the menu chosen.
Speaking of COVID, its frightening grip on our lives has significantly loosened, but only after three years. We live with it, we have upgraded vaccines to protect us, and it’s not the scourge it used to be.
But other events threaten. There are two terrible wars raging in the world, and we are privy to them through news reports and social media daily. We hear less of Ukraine and Russia these days because the Middle East has taken center stage. And while Russian athletes and opera singers were shunned if they didn’t denounce Putin, still that conflict was at a distance. The Israeli-Palestinian conflict has spilled over into our country and is closer to home. Antisemitism and anti-Muslim demonstrations have poisoned our airwaves and frightened our residents.
It is against this backdrop that we sit down to enjoy each other and the family meal. While we are grateful for all that we have and all that we are, we cannot entirely shut out the tragedies happening elsewhere in the world. If anything, current events cause us to pull our families closer for support and security.
As the calendar turns, we will be moving into another presidential-election year, and when we next sit down to Thanksgiving dinner, it will be on the eve of a new presidential term, whoever wins.
We are on the threshold of a decisive year ahead. Knowing that, and dealing with the divisiveness within our borders, lessens the usual frivolity of the holidays. Yes, we are certainly thankful for our turkey, for our lives and for each other. We should use that gratitude somehow to help make this a better world.
We can commit to pushing back against prejudice and hate wherever we find them. We can teach our children by our example, living what has ben described as American exceptionalism. We can abhor violence. And in the face of bigotry, we can care for each other and together pray for peace.
Having been exposed to the pleasure of streaming movies on my “smart” television, I now look for good stories and have caught up with “The Sopranos.” I well remember how popular the series was, running from Jan. 10, 1999, to June 10, 2007, winning all kinds of awards and addicting millions with its 86 episodes. Somehow I never caught up with the drama, but now, thanks to HBOMax, I have turned the family room into a nightly theater and watch as Tony Soprano tries to balance his work “family” and his biological family responsibilities, thanks to the help of an Italian-American woman psychiatrist.
At the end of the latest installment, Tony, his wife Carmela and his daughter and son are driving at night when they are deluged by a wild rainstorm. Unable to see the road ahead, and with all of them feeling in peril, Tony parks and ushers his family into an Italian restaurant nearby. There, despite the loss of electricity, the proprietor cooks a marvelous pasta dinner for them, which they finally calm down and eat by candlelight, huddled together at a table in the warm and dry dining room. As he is appreciating the spaghetti on his fork, Tony looks up and says to his children something like, “When you think back on your childhood, it will be scenes like this that you will remember,” while the camera fades out.
That got me thinking. Can I recall such scenes from my childhood, when being with my family in a safe place was so comforting?
One of the first such memories for me was of an intense rainstorm in the Catskill Mountains. I was perhaps 5 or 6 and with my mother and sister in a dilapidated cabin, whose roof leaked ominously. After my mother put pails under the leaks, she realized I was frightened. “Just wait,” she said with a smile, “This storm has brought us pancakes.” With that, she took out a large frying pan from the cupboard, mixed together flour, eggs and milk, poured Hi-Hat peanut oil (the popular brand then) into the pan, and started cooking the mixture, as thunder cracked overhead. Almost immediately, the irresistible smell of the pancakes started to fill the rustic room.
My mother dabbed the extra oil from the dollar-sized pancakes at the stove, put them on a platter on the kitchen table, brought out a bottle of maple syrup, and my sister and I started to eat ravenously. Soon, my mother joined us at the table, and despite the frequent bolts of lightning I could see through the windows behind her head, and the dripping water in the buckets, I felt warm and safe.
The only trouble with that memory: every time there is a heavy rain, I get the urge for pancakes.
I asked my middle son if he had such a memory, and he remembered when we were out in the Sound in our 22-foot Pearson Ensign day sailboat, and the wind and seas suddenly picked up. We had been enjoying a sunny, peaceful sail near New Haven harbor, my husband and three sons and I, sprawled out in the big cockpit, when the unexpected shift in weather occurred.
With the waves towering around us, we pulled down the sail, put the outboard motor at the stern on high speed, and made for the harbor. My husband, at the tiller, gave each of us a task. My sons were to bail out the water that was flooding the cockpit with every crashing wave, and I was to sit on top of the motor to try and keep it in the water every time a wave pushed us up.
Needless to say, it was a harrowing ride until we finally reached shore and tied up at the marina, onlookers clapping. We left the boat and were thrilled to be on the sand. Drenched as we were, we walked the short distance to the harborside restaurant, Chart House and, laughing by then, had one of the best meals of our lives.
By the way, if you, too, missed “The Sopranos” the first time around, I heartily recommend it.
Afriend called the other day to wish us a happy new year and to tell us that she and her husband had sold their house. The buyers were going to tear it down and build a new one on the property. Before I could react, she assured me that they had lots of pictures from over the years, and their many memories of raising the children there would always stay with them. Clearly she had mixed feelings about what was happening.
It got me to thinking about what a house is. For starters, it’s four walls and a roof, maybe even a basement, but maybe not, in which we shelter ourselves, our families and our stuff. It is also a place where we invite friends and neighbors to drop in for a drink, a chat or even an elegant dinner party. Some of those guests may even stay over from time to time, so a house is a hospitality center in which we connect with those we enjoy and perhaps love.
A house is a physical location where we can be found. When people ask our names, they may immediately follow up with a second question: “Where do you live?” So to some extent, where we live helps define us. But a house is more, so much more. It is a home where those closest to us reside, perhaps where our children grow up, where we planned, and from which we traveled to and from work to become the people we are today.
Home is where we want to go immediately when we are not feeling well. It’s where we can get a soothing cup of tea or our regular sustenance at mealtimes. Home is a place where we rest, watch television, read the newspaper, use the computer, play video games, call our friends, wash our clothes, floss our teeth and sleep one-third of our lives. Home is our center, where our car knows to go automatically. Home is safe.
The longer we live there, the harder it is to leave.
When my elder brother died, leaving the co-op empty that my parents had bought and lived in for many years, I started slowly to have alterations made inside the apartment. The bathroom and kitchen needed to be brought up to date, appliances modernized, floors improved.
My cousin watched with some amusement. “You are making a temple to your parents’ memory,” she offered. Not really, I thought to myself. I was investing for a far more pragmatic reason. I had hopes of one day renting it out for some supplemental income.
But when I thought about her wry comment, I had to admit there was an element of truth in it. Our family had lived there happily for such a long time. I was even born there. It wasn’t just an apartment. It was the physical container for some of my happiest times. And it was comforting, somehow, that it was still there, even if we no longer were.
I remember when I was still in elementary school, just down the block, that one of my young classmates came to school one day to wish us goodbye. With tears in her eyes, she explained that her family was moving to someplace called Ohio for her father’s job, and she would be leaving us.
“Don’t worry,” soothed the teacher, “you’ll go to a nice school there and make new friends. You’ll grow from the experience. And you can always come back to visit.” She nodded her head obediently, but I remember thinking then how sad it must be to leave one’s home and all associated with it to start over.
Leaving a home means interrupting the momentum of one’s life. I wondered if my father would ever move us all elsewhere and comforted myself with the thought that he seemed pretty anchored where he was, which meant I would continue to live near my school.
A house is just an inanimate thing, bought and sold. But when it is a home, it can be the soul of the people who once lived there.
As we marinate in the warmth of the holidays, we have a chance to spend time with friends and family.
We’ve chosen most of our friends ourselves. OK, maybe that’s not exactly true, as we inherit friends from our parents when we’re young: “Oh, why don’t you play with Timmy, who is the son of my best friend whom I met when I was your age”; and from our children when we’re older: “Hey, dad, can you hang out with Allisa’s parents while we wander through Great Adventure theme park.”
Despite the somewhat limited pool of people from which to choose our friends, we often pick those people who share similar values, a sense of humor or a tolerance for politicians.
We don’t have the same luxury with our families. We have nutty family members who say and do all kinds of things that make us cringe, that cause us to laugh long after the events are over or who simply make us scratch our heads.
We often think it’s the other family members who are the oddballs but, in truth, we’re all pretty strange.
Long before people voted each other off shows or islands in situations that seemed completely contrived in reality TV shows, family members confronted the awkward moments when they saw each other, year after year, at holidays, birthdays, special occasions and, perhaps, uncomfortable or less-than-ideal moments.
Families provide us with opportunities to test ourselves and our theories without worrying about losing a job, losing a friend or losing our minds. We can challenge ourselves and our families with ideas percolating in our heads, but that may not be exactly what we believe.
Our families receive the best and the worst of our impulses, as we step forward to help each other, but also encourage independent growth and development.
As older members of families, we hope to lead not only by our words but by our examples. Failing that, however, we hope that our spouses, children, parents and siblings can see us for the range of our contributions to the family, and not just for that ignominious moment that we’d just as soon forget.
Families offer reality checks on the myths we create for ourselves. “No, Dan, you didn’t win that horseback-riding ribbon because you had such a great ride. You fell off the horse and the judges felt sorry for you when you landed in horse manure. Good try, though.”
These moments when families hold up mirrors to us can help ground us, keeping us from becoming too proud or mighty. On the other side, however, when we’re feeling down, families can serve as the perfect counterweight, suggesting that we have succeeded in more difficult circumstances and that they are certain of a positive outcome, even if we harbor significant doubts.
Movies about families often run the gamut of emotions, from slapstick, to comical, to serious and even bruising, as rivalries that run amok can become the origin of dysfunction even when we step away from these familial contacts.
Certainly, therapists often start and end with the family dynamic, drawing an understanding of habits we may not know we have until we look back at the lives and roles that brought us to this point.
At their best, families can inspire and encourage, while suggesting that we can and should believe in ourselves while we pursue our goals. Ultimately, families who demonstrate unconditional love and support, even if they do laugh at us periodically, set the kind of example that makes the accomplishments of the next generation possible. Here’s to everything we give, get and laugh about from the people we call family.
I may be conflating two holidays, but this year, I’m thankful for love. Yes, I recognize that Valentine’s Day is a few months away.
I’m not just talking about romantic love between two people who laugh, plan and enjoy building a life together while dealing with the inevitable chaos and curveballs.
No, I’m talking about the kind of love that makes a cold, wet day manageable. We recently added a puppy to our home. We brought this new furry creature into our lives because we were moving and it seemed liked a way to add something to our house that would be ours in a new setting.
It also seemed to be a way to enhance our ability to socialize with our neighbors. Who, after all, can resist a cute puppy bounding down the street? Well, as it turns out, almost everyone, particularly on unexpectedly cooler days in a city that was supposed to be much warmer. Sure, people wave through their gloves and smile behind the wheel, but no one has stopped to ask if he or she can pet the little fella. No one has asked his age, his name or where we got him.
But, hey, this isn’t about love for our neighbors, although I suspect over time we may come to love the distance we have from everyone or, on the bright side, a friendship that may seem inevitable after we meet other people eager to connect with those living nearby.
No, this is about that moment when I open the door to the puppy’s room and he greets me with a tail moving so quickly that it could generate enough electricity to power the house for the day.
As we and our kids get older, the excitement at greeting each other after absences, even for a few hours or a day, left the arena of unbridled joy. Sure, we’re delighted to see each other, but the squeal with delight moments have morphed into understated greetings and subtle head nods that don’t displace carefully coiffed hair.
We can also love the moments our senses pick up a familiar signal. That could be the scent of a pumpkin pie wafting across the living room, sending us back to our childhood when we visited with extended family that has long ago moved away. It could be the sound of our children practicing an instrument with such dexterity that the end of the composition brings both pride and sadness as the intricate sound has given way to silence.
It could also be an appreciation for a warm, crackling fire late on a cold day as the winter sunset turns the light outside a deep orange, contrasting with the yellow hue near the sizzling logs.
This is also the incredible season of anticipation, as we love the prospect of seeing people we haven’t seen in person in weeks, months or years. We can love the expectation of seeing their faces, sharing stories, taking long walks on quiet roads or windy beaches, as we tell tales about everything from the miraculous to the mundane in intersecting lives interrupted by time and distance.
As well, we can love the gift of time with each other, on our own or without particular commitment.
Then again, we can love a positive result at work, if we’ve sold the unsellable property, finally checked something off a to-do list that seemed to be festering forever, or found some unexpected result in a lab that may one day lead to a treatment for an insidious or life-depriving disease.
We are a thinking species, which ruminates over the past, contemplates the present and ponders the future. We are also blessed with the power of love, as Huey Lewis and the News sang in 1985. It’s still a powerful thing, even 33 years later.
Words are the symphony that warms the skin and colors the silence.
Words can be like the sound of reinforcements coming over the horizon when we feel penned down by an adversary. They rescue us just as we use them to swaddle others in their warmth.
As we make the transition from Halloween to Thanksgiving, Black Friday and, eventually, the December holidays and the new year, we can take solace in the anticipation of words that provide warmth through the darker days of winter.
We might take a trip to Central Park, where the sound of sleigh bells from carriages around a corner alerts us to the appearance of an approaching horse, even as the animal might remind us of a city that predated internal combustion engines.
Just the words “sleigh ride” might inspire our minds to play a song we performed in high school.
Words can also convey the remarkable scents of the coming seasons, with the air carrying the mouthwatering Pavlovian cue from gingerbread houses or holiday cookies.
I recently attended a wedding where a few well-chosen words triggered an almost immediate and reflexive “awww” from an audience delighted to hear how much a younger brother was inspired by his older brother, the groom.
Reading about how important our coat donations are can inspire us to rummage through our closets to help a child or an adult become more comfortable in the frigid air.
Well-chosen words can provide the kind of environment that empowers people to see and appreciate everything from the inspirational image of a person overcoming physical limitations to the intricate beauty of a well-woven spiderweb shimmering in the low light of winter.
Sometimes, as when a friend or family member is going through a significant medical procedure or crisis, words or prayer or encouragement are all we have to offer, giving us something to do or say as we hope the words provide even a scintilla of comfort.
Words can feel insufficient to express how we feel or what we hope happens when someone who has been in the foreground of our lives for years seems suddenly vulnerable.
Simple tools which we all take for granted, words can take us to a peaceful beach with the sound of water lapping on the coarse sand under our feet, transporting our minds and bodies away from the cacophony of busy lives.
In big moments, athletes often suggest that they are at a loss for words. In reality, their words and emotions are undergoing so much competition that their brain experiences a word bottleneck, with a flow of ideas and words awaiting the chance to dive from the tip of their tongues to the eager ears of their friends, family and fans.
The coming holiday season is filled with diametrically opposed experiences, as the joy of opening presents and reconnecting with friends and family for the first time in months or even a year is counterbalanced by the stress and strain of those people who feel overwhelmed or alone.
People who work at suicide hotlines or as 911 operators can and do use critical words to save people’s lives, bringing their minds back from the brink, restoring hope and offering a comforting verbal lifeline.
We take words for granted because we see and hear them so often, but the right word at the right time can transcend the routine.
Finding words that resonate is akin to strolling into a restaurant and discovering a combination of familiar and exotic flavors, all mixed together with a palate-pleasing texture that energizes us.
Participants in MLB’s Home Run Derby listen to the national anthem. Photo by Daniel Dunaief
It’s all about family.
Sure, there was plenty of high-powered baseball last week when I had the privilege of attending my first Major League Baseball All-Star Game at Nationals Park in Washington, D.C., July 17, with my son, but, ultimately, it’s clear between and outside the lines that the players fill their energy reserves with the support of their families.
Los Angeles Dodger Manny Machado signs autographs. Photo by Daniel Dunaief
After our first trip to FanFest — a gathering of dedicated baseball aficionados — we wandered over to a nearby burger joint where a man named Frank suggested we go to the Marriott across the street because that was where all the players were staying. We wolfed down the last of our burgers and found a lobby filled with kids of all ages — including adults who enjoy sharing the excitement of the game with their own children — waiting for a glimpse of their favorite stars.
Within a half-hour of our arrival, superstars wandered in the front lobby, where they had about a 50-foot walk between a huge revolving door and a private, security-protected hallway opposite a sign forbidding pictures or autographs.
Atlanta Braves first baseman Freddie Freeman, whose muscular 6-foot, 5-inch frame made him appear to be the picture of a professional athlete, carried his young daughter in one arm and luggage in another, making it impossible for autograph seekers to ask him to sign their baseballs, programs or notebooks.
Other athletes followed the same pattern, carrying their young children or holding their hands, making it impossible for fans to demand a signature or even to interrupt their family moments.
On the other side of the spotlight, many of the eager fans weren’t too far from their parents, who urged them on and wished them well.
“Who’d you get?” one fan asked her son as he raced back to her, holding a ball carefully by the seams to avoid smudging the valuable ink. “Manny Machado!” he beamed, referring to the former Orioles superstar who the Los Angeles Dodgers would soon trade five players to acquire a day later.
“Good for you,” she clapped and cheered, pleased with her son’s success.
Cameras follow Yankee star Aaron Judge’s every move. Photo by Daniel Dunaief
On another trip to FanFest, I watched parents clad entirely in the ubiquitous red uniform of the Washington Nationals. A father with an open jersey flapping at his sides led his two small children, whose jerseys were buttoned up to their clavicles, across the enormous space toward the Major League Baseball store.
At the Home Run Derby July 16, the event that precedes the game in which a few sluggers essentially see how far they can hit baseballs, Washington fan favorite Bryce Harper didn’t disappoint the rabid Nationals fans, beating a determined and electrifying Kyle Schwarber of the Chicago Cubs. After his victory, Harper thanked the fans and his pitcher who, as it turned out, was his father Ron.
At the game itself, we were fortunate to sit fairly near the families of the American League all-stars. Patty and Wayne Judge, parents of burgeoning Yankee-great Aaron Judge, watched their 26-year-old son’s every move, filming him during his introduction and cheering as he circled the bases after his home run against starting pitcher Max Scherzer of the Nationals. Many in the Judge entourage, like those from other families, proudly wore jerseys with the names and number of their all-star on their backs.
Rays’ pitcher Blake Snell’s family filled up almost an entire row of seats, with his name and his number “4” draped across their backs.
When Detroit Tigers pitcher Joe Jiménez entered the game from the bullpen, his family stood proudly, with each of them filming the jog from the left field fence.
Cleveland shortstop Francisco Lindor electrified his family with a hit that almost made it out of the stadium on a record-setting night for home runs. As he jogged back to the dugout to get his glove, his family stood and applauded his effort, as his broad, patented smile crossed his face.
Yankee pitchers Aroldis Chapman and Luis Severino play catch. Photo by Daniel Dunaief
In the top of the eighth, Lindor’s replacement at shortstop, the Mariners’ Jean Segura crushed a three-run homer, triggering a big celebration from his extended family, who high-fived each other and who received congratulations from the nearby Lindor family.
Segura was an unexpected hero, who was the last player named to join the American League team, beating out Yankee Giancarlo Stanton, among others.
Yes, we witnessed all-stars with the ability to hit balls over 400 feet. Ultimately, though, we had the chance to see families share a weekend that mirrored similar scenes around the world, albeit on a smaller scale. Watching all these families come together to celebrate their baseball achievements made me feel like I was at a high-profile Little League game. Parents, siblings and friends stand on the sidelines, supporting their sons, daughters, brothers and sisters as they revel in the opportunity of the next at-bat.
The result? The American League triumphed over the National League, 8-6, in the 10th inning of an unforgettable all-star game.
My earliest memory of my sister is of a very young child, sitting in a stroller, reaching out her arms to hug me. She wasn’t able to talk yet, but I was two years older and interpreted her coos and cries for the rest of the world. Most often what she wanted was to be loved, and I would run over and wrap my arms around her.
We were a loving family. The world was a happy, secure place; this despite the fact that the time was World War II.
We lived in an apartment house in Manhattan. When my mother went shopping, she would push the stroller along the sidewalk, and I would hold on to the metal sidepiece and skip alongside. It was at those times that I sensed something was wrong. People would smile down at me but then stare at my sister.
Then I heard the word and asked my mother about it. It was the first time I ever saw my mother flinch. I was immediately hushed and told not to use that word again. I didn’t until I was in my teens.
The word my mother, a courageous woman of tremendous fortitude and intelligence, recoiled from was RETARDED. My sister Maxine was, and is, retarded.
My sister was not accepted among “normal” people and never would be. She was a social disgrace. And all the while, she laughed and played. She was able to talk now and would often say, “I love you.”
Reality forced itself on my mother when she went to register my sister for public school in first grade. The principal, a blunt, middle‐aged woman, took my mother aside and stated simply, “Maxine cannot go to a normal school. She’s retarded. Just keep her home. Retarded children don’t live very long, anyway.”
My sister was lucky. She had a family that would always look after her. But what is to happen to those others? Retarded children become retarded adults. And then what? What happens to them when their parents die and there is no one to pick up the burden? What happens to those who have the advantage of the latest programs and training but now need a place to live?
Only those very few retarded at the lowest end of the intelligence spectrum cannot function, at least to some minimal degree, within a home. The state has attempted to set up hostels for these retarded adults within a home like setting, assigning five or six to each house under the care of a supervisory couple. Communities, by and large, have reacted to these hostels with hostility, fearing for their property values and uncomfortable with the ever‐present social stigma.
I find that few know anything about retardation, and I suspect that this lack of contact is responsible for the hostility the retarded face. Many think retarded people are deranged or emotionally unstable. Those are fears, not facts. Retarded people are inherently gentle and unaggressive, which makes them defenseless. The retarded are simple human beings with the same basic needs of all of us: food, clothing, shelter — and especially love.
It might seem, from my account, that it took great sacrifice to live with my sister, and in some ways, it did, particularly from my mother. But in other ways, it taught us so much. Maxine taught us compassion for the disadvantaged. She also served, curiously, to test the mettle of all we met. Those who were reluctant to accept her proved not to be worth our company. Her life showed us, by example, what the most important values should be. Maxine did not understand affect, materialism or hypocrisy. She did not understand social embarrassment. She has the same basic concern for the dog that lives in the next apartment as she does for its owners. It is a respect for all life, and for her, life is music, and laughter and love.