By Ernestine Franco
If you missed last year’s Butterfly Breakfast for a Cure fundraiser in Miller Place, you’ll have another chance to attend next week. And, no, this is not a fundraiser to help butterflies. It is a fundraiser to support research of the worst disease you have never heard of.
The event, to be held on Saturday, April 23 at Applebee’s Restaurant at 355 Route 25A with seatings from 8 to 9 a.m., will be held in support of DEBRA of America, an organization that provides assistance and education to families with children born with the genetic condition of epidermolysis bullosa.
Young people who suffer from this disease are called “butterfly children” because their skin is so fragile it blisters or tears from friction or trauma. Currently, there is no treatment or cure for this disease.
Although this event if often associated with Rocky Point resident Donna McCauley, she wants to make it clear that her daughter Kelly is the driving force behind the fundraiser.
“Three years ago, Kelly was inspired to get more involved with DEBRA of America. She has always felt a lot of compassion for those afflicted with my skin disease, having watched me and her Uncle Bob deal with its many challenges through the years. Her first year as a Young Ambassador for DEBRA, Kelly hosted a small fundraiser at the Rocky Point High School where she raised almost $500,” said McCauley in a recent email. “So, giving credit where credit is due, her dad Michael and I could not be prouder of what a kind, giving and compassionate young lady she has become,” she added. Last year’s event raised almost $5,000.
As they have in the past, members of Donna McCauley’s Girl Scout troop, of which Kelly is a member, will volunteer their time as servers for the breakfast. So come and “enjoy a short stack for a tall cause.”
Tickets are $10 for adults and $7 for children 10 and under, and include pancakes, sausage, scrambled eggs and a beverage (coffee, tea, juice or soda). There will also be a Buy-a-Chance auction with some fantastic prizes. Tickets can be purchased online at www.debra.org/butterflybreakfast2016 or by calling 631-821-6740.