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Jack Muise, 14, is a national Tourette Syndrome Association youth ambassador. Photo from Jack Muise

A Northport teen will be standing on the steps of Capitol Hill, in Washington, D.C., this month to speak with lawmakers about Tourette’s syndrome.

Jack Muise, 14, is a national Tourette Syndrome Association youth ambassador. Photo from Jack Muise
Jack Muise, 14, is a national Tourette Syndrome Association youth ambassador. Photo from Jack Muise

Jack Muise, 14, is a ninth-grader at Northport High School. At the age of 10, Jack was diagnosed with Tourette’s syndrome, a neurological disorder characterized by repetitive, stereotyped, involuntary movements and vocalizations called tics, according to the National Institute of Neurological Disorders and Stroke.

Sponsored through the national Tourette Syndrome Association, Jack was selected as a youth ambassador — a title that will give him the opportunity to attend a two-day training in Arlington, Va., with 39 other 13- to 17-year-olds, from March 23 to 25, to learn how to educate peers about the disorder.

Jack, who says he is very excited about the training, learned about the program through his Tourette’s syndrome support group, which generally meets once a month from September through June in Old Brookville in Nassau County.

The youth ambassador program originated from Jack’s own support group — the national group’s Long Island chapter. Jennifer Zwilling, now 24, who also has Tourette’s syndrome, started the training program in 2008.

“The goal of this exciting program is to educate children all over the country about TS, a widely misunderstood disorder,” Zwilling said in a press release. “We are following the motto ‘think globally, act locally.’ Understanding and tolerance are the program’s goals.”

Since 2008, the youth ambassador program has completed more than 1,000 activities, including presentations, interviews and training sessions and, through its combined efforts, has reached over 5.5 million people.

Following the training, all of the youth ambassadors, Jack included, will meet with their respective local representatives on the steps of Capitol Hill on March 25.

Jack will be meeting with U.S. Rep. Steve Israel (D-Huntington), New York’s 3rd Congressional District representative, to advocate for support for the neurological disorder, he said.

“I think people don’t understand, for me personally, it’s when I say inappropriate things that I can’t control and people think I’m weird,” Jack said. “I just want to be able to explain what it is and make them aware and hopefully make them better people in general.”

After returning to Long Island, Jack, along with the three other Long Island youth ambassadors, will visit schools throughout Nassau and Suffolk County to educate children about the disorder.

Jack, who joined his support group three years ago, said that prior to joining, he never really knew or understood what the disorder was.

“Jack’s been through a lot,” Jack’s mom, Stephanie Muise said. “He’s had a lot of challenges, even just today. He’s really focused on training and how to talk to people about Tourette’s and hoping to raise awareness. He really wants people to understand him.”

Jack said that in his free time he likes to solve Rubix’s Cube and do card tricks. He also sings and is learning to play the piano.

“Over the years I’ve heard great stories about the training in D.C. and presentations the other kids have made,” Jack said in a press release. “I’m really excited that it’s my turn. It will be great to be able to share my story and educate others about a very misunderstood disorder.”

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A young boy stands in a pothole on Woodhull Avenue in Port Jefferson Station to demonstrate its size. Photo from Dawn Andolfi

The Brookhaven Town Highway Department is recouping from the cold and moving on to a new task: filling those pesky potholes.

“This proved to be an exceptional winter,” Highway Superintendent Dan Losquadro said in a Monday interview. “This year was worse than last year in terms of icing.”

The winter also proved to be costly. Losquadro estimated the department spent double the $3.6 million budgeted amount for snow removal, despite town officials injecting the budget line with an additional $1 million. Now, as the weather is warming up, the department is moving forward with repairing the roads.

A car swerves to avoid a pothole on Mount Sinai-Coram Road in Mount Sinai. Photo by Barbara Donlon
A car swerves to avoid a pothole on Mount Sinai-Coram Road in Mount Sinai. Photo by Barbara Donlon

Losquadro said the frequent below-freezing temperatures made the ground freeze deeper and is leading to potholes “literally forming overnight.” He said the warm daytime temperatures and colder nights aren’t helping the situation either, as the warming and refreezing of the ground allows liquid to get into cracks and expand.

Although the holes aren’t finished forming, repairs are on the way.

Losquadro said local asphalt plants are opening soon, which will benefit the department, as workers will no longer have to travel to and from Deer Park and Bay Shore to retrieve the materials.

“They were only able to [pick up] two loads a day, which doesn’t go a long way,” Losquadro said.

Despite the town’s effort, the potholes have been a nuisance for some residents. Mt. Sinai Bagel Cafe owner Marcus Argyros was driving on Mount Sinai-Coram Road on Monday when he popped a tire.

“I didn’t swerve and because it was in the middle of the road, I hit it and it popped my tire,” Argyros said, as he worked to put a spare tire on his car. “It’s like Mario Kart with all the potholes right now.”

In an effort to complete all of the repairs, Losquadro said the town is extending workdays by two hours.

Marcus Argyros changes his tire on the side of the road after hitting a pothole. Photo by Barbara Donlon
Marcus Argyros changes his tire on the side of the road after hitting a pothole. Photo by Barbara Donlon

While residents can try to get reimbursed, the likelihood of it happening during this time is unlikely, as the potholes are to be expected.

Losquadro urges residents to call the town when a pothole is visible so they can write it down and fix it as soon as possible.

As for next winter, Losquadro is already planning. He said he would ask for an increase in the snow removal budget, as he wants to avoid being in this situation again.

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Annual St. Baldrick’s event brings in five figures after students shave heads to benefit good cause

Commack High School students and administrators take turns trimming their hair or shaving it off completely to benefit cancer research. Photo by Jenni Culkin

By Jenni Culkin

A line of students from Commack High School trailed from the school’s gymnasium doors to the next hallway.
The students eagerly waited to cut their hair for a worthy cause while the room buzzed with music, pizza, smoothies, an auction and the countless surprised faces of the brave people who lost inches of hair to raise money and awareness for the St. Baldrick’s Foundation.

“Hey, free haircut!” one student joked.

According to St. Baldrick’s official website, the event, which took place on March 6, raised $75,304.50 by the end. During the event, students played all kinds of volunteering roles to join the fight against cancer.

“It’s a great cause,” said David Malinovsky, an 11th-grade Commack High School student who had his head shaved. “It’s one of the most special things that we can do besides giving money.”

Even some of the female students hopped into the chairs to get their hair cut significantly shorter. Some female students even decided to have their entire head shaved for the cause.

“My uncle recently died of cancer,” said Carrie Fishbane, a 12th-grade student who had her entire head shaved. “I’m doing this in memory of him.”

Others decided not to lose their precious locks but to still help out in other ways.

“I think it’d be fair for a change if everyone else had no hair,” says Kyle Critelli, a 10th-grade student.

Critelli volunteered to sweep hair from the gymnasium floor. Other students got involved by selling food, drinks and merchandise that would all benefit the students.

Even nonstudents from the community got involved in the effort. Tara Forrest, a professional hairdresser with 17 years of experience, has been volunteering to cut hair for St. Baldrick events for three years.

“My whole family does it,” Forrest said with excitement,

Forrest said she was first inspired to donate her time and effort after one of her young son’s classmates was diagnosed with kidney cancer. She told her son Michael that his classmate’s remission is credited to “people like us that raise money.”

With that inspiration, Michael, who is now in second grade, has helped to raise roughly $10,000 through St. Baldrick’s within three years.

But the Forrest family was not the only one to let a personal situation inspire them to participate in charity work.

Lee Tunick, a math teacher from Commack High School, became the advisor for Yodel Kadodel, an extracurricular club at the school that raises awareness and money for cancer research with various activities throughout the year. The club has been running a St. Baldrick event for the past six years. Since then, roughly $450,000 has been raised.

“I have a friend whose daughter is sick,” said Tunick. “You feel so helpless from one parent to another. You want to do something to help if you can.”

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Kim Revere of Kings Park In the kNOw speaks at the drug forum. Photo by Chris Mellides

By Chris Mellides

A grassroots advocacy group from Kings Park continued its quest to keep kids away from drugs last week with an informative forum flanked by a star-studded list of guest speakers.

Students attending William T. Rogers Middle School in Kings Park joined their parents at the school gym Wednesday night, March 4, in welcoming the speakers who assembled for the annual preventing destructive decisions forum.

Hosted by Kings Park In the kNOw (KPITK), a grassroots drug outreach and prevention organization, the forum served as an opportunity for parents and their children to become better educated on the perils of alcohol and drug addiction.

Opening the event, a member of the school faculty addressed parents and students who sat opposite a large stage and offered words of encouragement for the young members of the audience.

“Hopefully we can impress upon you tonight how much we love you and how much your families love you and the importance of the actions that you take at this level while you’re here with us at the middle school,” said the one faculty member, before introducing the night’s speakers.

The first speaker at the podium was Kim Revere, a volunteer for KPITK since 2007 and a mother of four. She described getting involved with the organization because of the growing drug problem gripping our communities and the difficulties she faced at home with her 27-year-old son, who at the time was struggling with heroin addiction.

“What Kings Park In the kNOw does is we try to bring educational programs into the schools and into the community to keep parents educated and educate kids as to what the trends are and try to have kids make positive decisions in their lives,” Revere said. “This town is growing and kids are dying. My son has been to rehab nine times; he is finally on the right track. He’s 27 years old and I will not trust him until the day I die. No matter how good he does. I don’t want another parent to live with that pain,” she added.

Suffolk County Legislator Robert Trotta (R-Fort Salonga) was also in attendance and drew from his 25-year background in law enforcement to discuss the lasting impact that narcotics have on local communities.

“I used to say you put the police radio on the counter and when it went off 90 percent of those calls coming out of there are drug or alcohol related,” Trotta said. “Whether it be domestic abuse, a car accident, a robbery or a theft, people break into houses to get stuff to sell to get drugs. They’re not going to be paying their mortgage with it.”

Trotta also delivered an overview of Suffolk County’s Social Host Law and New York State’s 911 Good Samaritan Law passed in 2011, which according to the legislator is a “great law” that states that if you are in a situation involving illicit substances and someone with you is in immediate danger that you should “call 911, and you will not be arrested” through implication.

Rounding out the forum were presentations from Thomas’ Hope founder and drug prevention advocate Linda Ventura, and Kym Laube, executive director of Human Understanding and Growth Services.

Ventura lost her son Thomas to drug addiction in March 2012, when he died from a heroin overdose. Since then she’s been making routine trips to Albany to push for change in the area of addiction treatment services and to better define how we should combat drug use in New York State. On the one-year anniversary of her son’s death, she launched Thomas’ Hope, a nonprofit foundation that promotes drug awareness, prevention and advocacy.

As executive director of HUGS, Laube recognizes the risks that are present for young people and that the unfortunate circumstances that shook Ventura’s household with the loss of her son are becoming increasingly common as drug use grows in popularity throughout Long Island and across the country.

Through the HUGS program she actively seeks to promote social growth among children and adolescents through leadership programs and retreats and allow them to bond and have fun in the absence of drugs and alcohol.

“All of our activities are meant to have kids feel like they are a part of something and a part of something bigger,” Laube said. “So, that we become just as fun of an activity as maybe some of the other high risk choices that are out there.”

Taking time to address the night’s event, Laube reminded parents and students that while beneficial, the real challenge presented to prevention experts and lecturers who engage with an audience is the impact of their messaging over the long term. In order for lasting change to occur, a large community effort is important and necessary, according to Laube.

“We know that unless we begin to have consistent messaging all throughout, that it’s just one night of information,” said Laube. “So what we encourage communities to do is to really begin to bring about that community-level change and to have events regularly and often, and have parenting sessions and get better programs in schools for kids so it moves beyond just this one-shot event.”

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Two girls prepare to have their locks chopped off at a St. Baldrick’s event last year. File photo

By Jenni Culkin

The St. Baldrick’s Foundation’s yearly fundraising effort to get local residents engaged in the fight against childhood cancers kicks off this month.

Participants volunteer to shave their heads and in the process raise money for cancer research.
Find an event in your community below, or visit www.stbaldricks.org/events for more information.

Miller Place
March 14
Napper Tandy’s Irish Pub
275 Route 25A

Port Jefferson
March 22, 2-7 p.m.
Hurricane Grill & Wings
1037 Route 112

March 28, 6-9:30 p.m.
Schafer’s
111 West Broadway

Stony Brook
March 29
Three Village Heroes at the Bench
1095 Route 25A

Lake Grove
March 15, 12-6 p.m.
Miller’s Ale House
4000 Middle Country Road

Centereach
March 6, 7 p.m.
Centereach Civic Association
Centereach Fire Department
9 South Washington Avenue

Kings Park
March 22
The Park Lounge
605 East Main Street

Commack
March 6
Commack School District
1 Scholar Lane

Huntington
March 18
Walt Whitman High School
301 West Hills Road

Northport
March 15, 5-8 p.m.
Laurel Avenue School
158 Laurel Avenue

March 14, 12-7 p.m.
Napper Tandy’s Irish Pub
229 Laurel Avenue

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Town Board members played along with Smithtown’s 350th anniversary celebration Tuesday night, dressing up in outfits similar to those when the town was first founded. Photo by Chris Mellides

By Chris Mellides

Take members of the Smithtown Town Board, dress them up in 17th century garb and the rest is history.

Officials commemorated the town of Smithtown’s 350th anniversary sponsored by the Smithtown 350 Foundation Tuesday with the opening of a time capsule and were joined by residents who braved the snow to attend the event at the Smithtown Center for the Performing Arts.

Town historian Bradley Harris hosted the night’s proceedings and was joined onstage by Supervisor Patrick Vecchio (R) and his colleagues who wore elaborate 17th century period clothing and read passages from the Richard Nicolls Patent of 1665 — which outlined instructions for governance under English rule of what are now the states of New York and New Jersey.

Throughout the presentation Harris and those town officials that participated onstage engaged in playful

Town Board members played along with Smithtown’s 350th anniversary celebration Tuesday night, dressing up in outfits similar to those when the town was first founded. Photo by Chris Mellides
Town Board members played along with Smithtown’s 350th anniversary celebration Tuesday night, dressing up in outfits similar to those when the town was first founded. Photo by Chris Mellides

banter and delivered light-hearted jokes that often got a rise out of the Long Islanders who watched from their seats.

As the night progressed, Harris often pulled from the pages of history and delivered facts about the founding of Smithtown that those in attendance might not have otherwise known.

Despite the witty quips and wisecracks exchanged in the theater room of what used to be a local cinema, the 71-year-old historian and Saint James resident was quite serious and resolute about the importance of preserving history and the passion he holds for his community.

“This town is very interesting because it started with one man’s dream to carve out a niche for himself where he would be his own master and I think that’s [Smithtown founder] Richard Smith in a lot of ways,” Harris said. “He’s left us so many things to venerate.”

During the course of the event, eyes were drawn to a 50-year-old milk can worn with age, which sat to the far right of the stage. The dirtied metal time capsule was originally buried in 1965, and thanks in large part to the town Engineering Department, which had a precise map of its location, its contents were ready to be shared for the first time with audience members.

Town officials and residents were on their feet and the excitement filling the room was palpable. With a hard crack of a hammer, the time capsule was forced open and placed on the long table, where Vecchio and his colleagues were seated.

Among the contents contained within the milk can were: two dusty hats, a phonebook, a local newspaper, a flyer advertising tercentenary pageant tickets and an assortment of aged coins.

James Potts a resident of Smithtown, who has lived in the area for 63 years, was among those in attendance. Potts’ father was the town surveyor, and, due to this, Potts claims to have a very strong knowledge of the town’s history.

Asked about the night’s presentation, Potts said he was very happy with how things shaped up.

“As you can see from how the theater filled up, it shows you the extent of the connection in this town with the residents and basically the pride in the town that they live in,” said Potts.

While he enjoyed the event, Potts expressed some disappointment with the contents of the time capsule and felt as though there could have been more items included that could have better illustrated what life was like on Long Island in the early 1960s.

Town Board members played along with Smithtown’s 350th anniversary celebration Tuesday night, dressing up in outfits similar to those when the town was first founded. Photo by Chris Mellides
Town Board members played along with Smithtown’s 350th anniversary celebration Tuesday night, dressing up in outfits similar to those when the town was first founded. Photo by Chris Mellides

Also expressing his dismay with the time capsule finds was Harris, who as a historian expected a lot more.

“It was the era of Kennedy’s assassination, and I would’ve thought there would have been some commentary on that, but there was nothing and that’s a little disappointing,” said Harris. “The guys who made up the time capsule certainly were trying to stir interest in the past and they did that, but what we learned tonight was very limited.”

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Stony Brook University runs a lab on the waterfront at Flax Pond and researchers there say they worry about the deteriorating water quality there and its impact on the wildlife. Photo by Phil Corso

The Village of Old Field is looking to do some ecological spring cleaning.

Flax Pond, a 146-acre tidal wetland on the North Shore, is in dire need of dredging before it deteriorates into an environmental disaster, nearby residents and advocates have contested. The pond’s last dredge was in 1947.

Residents’ names have been flooding a petition touting more than 210 signatures to date calling for action at the inlet there.

John Robinson, who lives near the water with his wife Fredelle and is at the mercy of the declining water quality there, has been helping circulate that petition and said the buildup of sand within the inlet has prevented the pond from properly emptying at low tide. He said he fears the region is just one major storm away from forcing the inlet to close off completely, which would have devastating effects on the ecosystem there, as the inlet acts as a marine nursery for the Long Island Sound.

“We have been watching the pond deteriorate over the last quarter of a century,” he said. “I’ve seen really major changes in the vegetation, the depth and the sea life. There are a lot of things going on, but one key aspect of this is the loss of adequate outflow.”

Fredelle Robinson, an avid fisher and nature lover, said the negative impacts were both aesthetic and environmental. Not only is the wildlife changing, but her waterfront home could be at risk if the water does not drain, she said.

“I used to stand in the inlet at night and fish. We could hear the striped bass and their tails flopping in the water,” she said. “You just don’t hear that anymore. Saltwater marshes all over are under stress and this is just another example.”

Old Field Mayor Michael Levine and the board of trustees also called on legislators from the county, state and town levels to join with Stony Brook University and the New York State Department of Environmental Conservation to see the pond dredged and protect the fin and shellfish populations known to once thrive there.

A throng of concerned citizens, elected officials and Stony Brook University researchers gathered at the Childs Mansion near the inlet Sunday for a lecture sponsored by the Friends of Flax Pond to explore ways to address the clogging.

State Assemblyman Steve Englebright (D-Setauket) has been at the forefront of the Friends of Flax Pond’s efforts to address the deterioration on the water and spoke at the group’s Sunday panel. He said there were many factors that went into the best course of action for both the inlet and the surrounding community, all of which needed to be ironed out before taxpayer dollars get thrown into the mix.

“While we’re searching for money to do something to make sure the inlet doesn’t close, we’re also searching for answers to the questions of how to actually write a description of what we’d like to have done,” Englebright said. “We don’t have a scope of work yet that is well defined.”

Nancy Grant, program director with the 12-year-old grassroots Friends of Flax Pond group, said the large mound of sand in the middle of the inlet has gotten worse with each passing year. And if not addressed, the saltwater pond could potentially revert back to a freshwater body, which it has not been for nearly 200 years, she said.

“Flax Pond serves as a buffer to that whole area as far as flooding is concerned. It has also been supporting a lot of the health of the Long Island Sound,” Grant said. “It absorbs the crashing of the waves. There are homes at risk. There are species at risk.”

Grant’s group hosts a lecture series each winter and also sponsors various environmental workshops in conjunction with Stony Brook University, which works out of a lab directly on the inlet. Steve Abrams, manager of the lab, described Flax Pond as one of the most pristine marshes on all of Long Island. He said a dredging was necessary in order to sustain marine life at the inlet.

“It has been really important for studying plants and animals in a relatively natural state. But over the last number of years, serious storms have changed things,” he said. “Tides don’t drain the way they should. It would be unfortunate if species there lost their place to live and it would be less than desirable for research.”

Shawn Nuzzo, president of the Civic Association of the Setaukets and Stony Brook, said Flax Pond was an example of what the Long Island Sound faces as a whole and includes factors beyond the small Village of Old Field. He said old-fashioned power plants, like one in nearby Port Jefferson, dump warm water into the sound, which translates directly into the Flax inlet. He cited recent legislation out of the Town of Brookhaven requiring improved wastewater standards in the Carmans River on the South Shore and said similar action was needed on the north end.

“We must take a hard look at how we are going to stop this loop if we intend on preserving our waterways for future generations,” Nuzzo said.

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Linda Ventura, center, holds up a picture of her son Thomas, who overdosed on heroine three years ago. She will be one of the many speakers at a Kings Park drug forum in March. File photo

By Jenni Culkin

A forum will be held at William T. Rogers Middle School, 97 Old Dock Road, Kings Park, on Wednesday, March 4, at 7 p.m., with the hope of keeping the next generation of Kings Park residents safe and informed, event organizers said.

The event is going to be geared toward middle school students and their parents, making a point to intervene while the middle school students of Kings Park are still young and impressionable.

“The best way to stop addiction is through prevention,” says Kimberly Revere, president of Kings Park In The kNOw.

Attendees can expect Kym Laube, the executive director for Human Understanding & Growth Services, to speak to the parents about understanding trends in addiction and other decisions that have potentially destructive outcomes. She will also be discussing the role that parents play in their teenagers’ attitudes and provide them with the tools and information that they need to navigate the challenges of their children’s teen years.

“Parents are still the number one influence on their teenagers,” Laube said.

There’s also going to be a speaker for the adolescent attendees. Linda Ventura, a mother who lost her son to an overdose. She will be sharing the journey that she and her family went through.

Suffolk County Legislator Robert Trotta (R-Fort Salonga) will also be speaking. All of the attendees will listen to a brief overview of laws like the Social Host Law and the 911 Good Samaritan Law that affect those who are involved with, or know somebody who is involved with, drugs and alcohol. Trotta is a retired Suffolk County police detective who was assigned to the FBI’s Violent Crime Task Force for over 10 years.

In The kNOw’s goal is for each of the communities in the state to take care of itself in order to take care of the overall problem.

Even those who have no substance abuse are still affected, and they are advised to attend to learn about what the community can do to prevent any possible damage.

“We are facing an opiate epidemic in this country,” Revere said. “Something has to be done.”

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Suffolk County Legislator Rob Trotta with his dog Buddy. Photo from Susan Eckert

By Jenni Culkin

Suffolk County Legislator Robert Trotta (R-Fort Salonga) will be holding a food drive for pet food in his office from now until Thursday, April 30.

Donations will be accepted during the normal business hours of 9 a.m. to 5 p.m. on the normal business days of Monday through Friday.

The drive is going to bring pet food to the Harry Chapin Food Bank so that those who are assisted by the food bank can feed their pets as well as themselves.

Trotta also said he believes that pets can be an extremely important part of people’s lives, especially when they’re down on their luck.

“Pets keep many people going, giving them comfort and a reason to survive in difficult times,” said Trotta.
Trotta himself has a dog named Buddy.

The office is currently accepting donations of canned and dry cat or dog food, dog treats, birdseed, fish food, kitty litter and small toys that are unused.

According to Long Island Cares, the organization that runs the food bank, dog and cat food are items with high demand because the costs of heating a home, buying medications, paying the bills, and putting food on the table prevent some people with financial hardships from properly caring for their pets without assistance.

Long Island Cares has been providing pet food for its clients since 2009. There is hope that the people of Suffolk County can continue the pet food donation trend well into this frigid winter over five years later.

Donations can be dropped off at 59 Landing Ave. in Smithtown throughout the duration of the drive, Trotta said.

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Emma, one of the Angela’s House children, rides a pony earlier this year. Photo from Bob Policastro

By Jenni Culkin

The Town of Smithtown will host a night of saying thanks to a group known for its generosity.

The Watermill Caterers of Smithtown is set to hold a special gala on Thursday, March 19, to honor two important contributors to the nonprofit group, Angela’s House.

Hundreds of children and their families reach out to Angela’s House each year to provide them with a safe and comfortable place to go to ease the pressure of caring for a child with specific medical needs: 24-hour nursing care, case management, family counseling and other beneficial programs sustain the caring and attentive environment of the organization.

The two honorees, Ron and Rob Brigati of White Post Farms, donate their time, effort and resources toward an annual summer party for the residents of Angela’s House and their families. Their actions provide a carefree summer day to relax and take a breather from their daily responsibilities.

“The smiles and joy that they see as a result makes it very special,” Ron Brigati said.

Now it was time for Angela’s House to return the favor, the organization said. At $100 per ticket, local residents can enjoy an evening at one of the area’s most distinguished wedding halls by socializing at a cocktail hour, a reception and a formal dinner. Guests will also have the opportunity to win prizes during auctions and raffles. The money raised from the event will go toward the children that Angela’s House assist on a daily basis.

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