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TBR News Media covers everything happening on the North Shore of Suffolk County from Cold Spring Harbor to Wading River.

Meghan Chiodo gets to know her new service dog Polly, who was given to her thanks to Canine Companions for Independence. Photo by Jenna Lennon

By Jenna Lennon

After interviews, reference forms, applications and a year and a half of waiting, 10th-grader Meghan Chiodo from Greenlawn was finally able to meet her assistance dog, Polly.

Meghan and Polly were introduced thanks to Canine Companions for Independence Wednesday, July 26, at the nonprofit’s headquarters in Medford.

Polly, a black female Labrador-Golden Retriever will help Meghan with many different tasks aside from becoming a loyal and loving companion. Meghan was born with spina bifida and has little to no feeling or control of her legs from her knees down, so Polly will be especially helpful with giving her all the assistance she needs.

“Meghan is sort of an ideal candidate in the sense that she’s in that age where she wants to be more independent and the dog can really help provide that to her especially as she’s getting into her later years of high school,” Jessica Reiss-Cardinali, the participant program manager for the Northeast Region of Canine Companions said in an interview.

Meghan said Polly will help with tasks like “bringing my laundry from the living room to my room … the dog can carry something or I can carry it and the dog can open the door,” she said at the event. “I think those are the two [commands] I’ll probably use the most.”

Meghan’s mother Kerri said Polly will be a great assistance around the house.

“The wheelchair is now in our home, so she doesn’t have her hands free always,” her mom said. “So the dog will provide an extra set of hands for her for a little more independence and companionship. That’s going to be a big one. She’s one of four children. She’s the youngest, two are leaving off for college, so it’s nice to have a buddy.”

Canine Companions, the nation’s largest provider for trained assistance dogs, is an organization founded in 1975 aimed at providing service dogs, hearing dogs, skilled companions and facility dogs to people with disabilities free of charge. The Northeast Regional Center for CCI opened in Medford in 1989 and has since placed 861 Canine Companion teams together.

Golden Retriever, Labrador and Golden-Lab puppies are trained by volunteer puppy raisers who provide them with a safe and happy living environment, a healthy diet, obedience training and socialization.

When they are about a year and a half old, the puppies then receive professional training at a Canine Companion training center for six to nine months, learning 40 advanced commands. Then, they are matched with a child or an adult with a disability.

“Four times a year we invite people that are on our waiting list to come, and they stay with us here in Medford,” said John Bentzinger, the public relations and marketing coordinator for the Northeast region of Canine Companions. “They stay at our facilities, and we call it ‘team training.’ The dogs are already fully trained, but we’re teaching the people how to use the commands and how to care for the dog.”

Participants spend the first few days getting acquainted with the different dogs and with the commands necessary to interact with them.

On the third day of the two-week program, the matches are revealed to the participants. Matches are based on the interactions that trainers and program coordinators see during the first few days of the program between the dogs and the participants, as well as what the participants need from the dogs.

“It’s like a jigsaw puzzle where everybody has to fit together,” Reiss-Cardinali said. “We like to say this is like a 10-year commitment, so if you’re going to sign on for 10 years, we’d like it to be something that’s going to work for you. It’s a very happy time, and for the staff too. We’re all crying in the room because there’s a lot of work that goes into that 20 minutes.”

As for the matchup between Polly and Meghan, Reiss-Cardinali said it was a no brainer.

“They’re sort of at the same stage in life,” she said. “Polly is just coming out of young adulthood so I really feel like as Meghan grows, it will be a really nice way for them to grow together.”

By the day that the matches are revealed, participants in the program have already learned several commands to use as part of their team training with their new companion.

“We did sit, down, heel, let’s go, side, release, wait, kennel and okay,” Meghan said. “That’s it so far.”

Her mother said that’s no small feat.

“That’s it so far, but that’s a lot in two days … I think today we get six whole new commands, so that’s a lot,” she said. “The instructors are incredibly patient. You’ve got so many different people with so many different needs, and they’re accommodating all of us. I’m really impressed with this whole facility and what they do here. It’s incredible. These dogs are amazing.”

Meghan and Polly and the rest of their Team Training Class will graduate Aug. 4 at 2:30 at the Genesis Center in Medford.

To learn more about canine companions visit www.cci.org.

Leukemia survivor Aubri Krauss collected Band-Aid box donations for Stony Brook University Hospital’s hematology and oncology unit. Photo from Darcy Krauss

By Jenna Lennon

Three years ago, Jericho Elementary School student Aubri Krauss decided to start a Band-Aid drive to benefit Stony Brook University Hospital’s hematology and oncology unit.

She had been diagnosed with leukemia in 2011. At just over 3 years old, she toughed out the treatment, and when finished, decided she wanted to do something to help others.

“[I want to] bring smiles to other kids who are going through what I went through,” she said.

Leukemia survivor Aubri Krauss collected Band-Aid box donations for Stony Brook University Hospital’s hematology and oncology unit. Photo from Darcy Krauss

“We were at the pediatrician’s office, and she saw all the Band-Aids they had and she was like ‘You know what mom? We used so many Band-Aids when I was sick — wouldn’t it be great if we could get a bunch of Band-Aids for all the kids that are still sick?’” Aubri’s mother Darcy Krauss said. “When they have to get their finger pricked, those plain Band-Aids are boring. That was one of the great things for Aubri was she got to pick her own fun, kid Band-Aid.”

Last year, Aubri decided to try something different and hosted a wrapping paper drive for the events that the clinic holds for the children during the holidays.

Aubri decided to return to the Band-Aid drive this year because “she thinks it’s more personal to the kids,” Krauss said. When she began, she hoped to beat her collection of 700 boxes from her previous Band-Aid drive, and she’s done just that, collecting over 800.

“And they’re not all the little 20 packs,” Krauss said. “Some people brought boxes that have hundreds of Band-Aids, some people bought boxes that have 200 Band-Aids in it. So it’s a lot of Band-Aids.”

Middle Country Board of Education member Dina Phillips met Aubri in 2012 when her father was the assistant coach of her son’s baseball team.

“When I met Aubri, she endured countless tests, procedures, chemo treatments and much more, yet managed to do so without ever losing her sense of joy,” Phillips said. “She had to learn what it means to live part of her life in a hospital room, to lose her hair, and to lose some of the freedoms that other kids her age get to enjoy.”

“She endured countless tests, procedures, chemo treatments and much more, yet managed to do so without ever losing her sense of joy.”

Dina Phillips

She said she was blown away by how Aubri did not let her circumstances define her.

“With a maturity far beyond her years, Aubri turned her illness into an opportunity to help other kids like her, and turned her pain into a way to bring smiles to others,” Phillips said. “I am extremely proud of her. I hope we can all do a simple gesture and help her achieve her goal.”

Band-Aid drives were held at Aubri’s elementary school, Raymour & Flanigan Furniture and Mattress Store in Lake Grove, and Stagecoach Elementary School, where Phillip’s son goes to school. The students there decorated the box for a collection at Stagecoach’s 50th Anniversary celebration on June 9th.

“I think when you go through something so hard and you can come out on the other end and be empathetic and understanding … it just makes me very happy and blessed to be her mom,” Krauss said. “Everyone is like ‘she’s so lucky to have you as her mom,’ and I’m like no, I definitely think I’m the luckier one to have her as my daughter.”

When Charles Murphy returned home to Northport in 1971 after serving 14 months in the Vietnam War, he wasn’t greeted with open arms or hand shakes. In fact, it was just the opposite.

“There was no band, no rallies, no thank you’s,” said Murphy, 68, an Army veteran. “You went back into the population and tried to cope with who you were. And you were a different person then. As a group, we Vietnam vets got the short end of the stick.”

Thomas Semkow, 71, who was in Vietnam between 1968 and 1969, said he remembers being looked down on when he came home.

“People weren’t very nice to us,” the Wading River resident said. “We were the outcasts of society.”

But Aug. 1 — more than 50 years since members of the U.S. Armed Forces first set foot on the battlegrounds in Vietnam — Murphy, Semkow and dozens of other Vietnam veterans within Rocky Point VFW Post 6249 and beyond finally got the recognition they’ve always deserved.

“People weren’t very nice to us. We were the outcasts of society.”

—Thomas Semkow

It happened during the intermission of  Suffolk County Legislator Sarah Anker (D-Mount Sinai) and the VFW’s annual Rocky Point free concert series.

Each of them stood together in front of a grand stage outside St. Anthony of Padua R.C. Church as Anker and Military Liaison Steven Castleton presented Vietnam veteran lapel pins on behalf of the U.S. Department of Defense and a special proclamation signed by President Barack Obama in 2012. Family members of veterans were also honored.

The veterans smiled with gratitude and hundreds of residents applauded as they received the accolades. Part of the proclamation read, “Let us strive to live up to their example by showing our Vietnam veterans, their families, and all who have served the fullest respect and support of a grateful nation.”

“I salute you all, thank you for your service … and welcome home,” said Joe Cognitore, the VFW post commander.

Cognitore, who served in an Army reconnaissance unit in Vietnam between 1969 and 1971, said the VFW has been putting on summer concerts for the community for more than 10 years and was excited at the prospect of giving back to those who warrant the attention.

“They were never welcomed home, and so I’m anxious to see them all come up tonight,” Cognitore said earlier in the evening. “Us Vietnam veterans look out for the guys and girls that are out serving now — we’re dedicating our lives to help them. Men and women who serve today are just unbelievable and we don’t want anything to happen to them like it happened to us.”

“Us Vietnam veterans look out for the guys and girls that are out serving now — we’re dedicating our lives to help them.”

—Joe Cognitore

Daniel Guida, of Shoreham, was an Army lieutenant in 1967 and 1968. He said it felt really good to be recognized not just with medals, but love and support from the community.

“Recently, when I had my Vietnam veteran hat on walking into K-Mart, six or seven people thanked me and wanted to shake my hand before I even got in the store,” Guida said. “That’s a foreign concept to me and it really brings a certain reality to what you did and shows that people do appreciate it.”

Members from the Long Island Young Marines stood holding flags during the concert’s opening pledge of allegiance and “God Bless America” performance before Cognitore addressed all the veterans in the crowd, from those who served in World War II to those currently enlisted.

The pin and proclamation ceremony ended with residents and veterans holding hands in a large group circle, swaying and raising them in the air to the chorus of the Southbound band’s cover of Lee Greenwood’s “God Bless the USA.”

“We’re all forever brothers,” Murphy said of his fellow Vietnam veterans. “No matter where we go. Forever brothers. We’re the only ones who know what we dealt with.”

Members of the community gather at Jackson Edwards’ Terryville home July 31 to welcome him home from a lengthy hospital stay in Maryland to battle leukemia. Photo by Kyle Barr

By Kyle Barr

After more than four months of treatment battling acute myeloid leukemia, a blood and bone marrow cancer, 11-year-old Jackson Edwards returned home Monday from Johns Hopkins Hospital in Baltimore, Maryland to the sound of a Terryville fire truck honking and the cheers of friends and family.

“I don’t know how to put it — it’s such a wave of emotions,” Jackson’s mother Danielle Edwards said. “We’re happy, finally. Jackson’s a little nervous because he’s so far away from the hospital and he’s thin from the treatment, but he’s happy to be with his people.”

Jackson waives to the crowd assembled at his home. Photo by Kyle Barr

Tired from the long trip and overwhelmed by the number of people who had shown up for the surprise homecoming, Jackson only stood outside for a few minutes July 31, waving to his friends and family before heading back inside. They had taken a 6-hour drive to get back to Terryville from Johns Hopkins.

“[Jackson and his mom] had no idea what was here,” Jackson’s aunt DeeDee Edwards said. She had helped plan the surprise homecoming, and was in charge of keeping the mother and son in the dark. “Jackson was counting the stoplights until we got here, and he was so overwhelmed by all the people who came to support him.”

Though the drive home was long, the real difficulty for Jackson and his family was the more than 100 days he spent in Baltimore fighting the rare form of cancer.. Jackson has always been a charismatic young man, according to his family. He’s a typical 11-year-old — he loves wrestling and football. His favorite comic book and show characters are Captain America and Optimus Prime. In December 2013 Jackson was diagnosed with AML. It was the start of an arduous treatment process that saw Jackson go into remission in May 2014.

Around Christmas 2016, Jackson started to feel sick again, and after taking him to Stony Brook University Hospital, the family learned that the his disease had returned and he had relapsed. In April he was transferred to Johns Hopkins in Maryland where he underwent a long and painful process of chemotherapy in preparation for a later bone marrow transplant. Meanwhile, friends and family worked hard to fund raise and help Jackson’s mother in finding options for his treatment.

Deirdre Cardarelli, a friend of the family, worked hard to help throw the surprise welcome for the Edwards’. For months Cardarelli was co-running the StayStrongJackson Facebook page alongside Jackson’s mom, and she was instrumental in forming a T-shirt drive and an Easter egg hunt to support the family’s travel and medical funds. The Facebook page and all the other social media efforts helped galvanize the local community in its support of Jackson, even those who were not necessarily close to the Edwards’..

Onlookers for the surprise homecoming brought signs of support to hold. Photo by Kyle Barr

“I don’t know the family personally, but our oldest, Michael, is in the same school with Jackson,” said community member Yoon Perrone. “We bought the shirts to support the family and we wanted to be here. I can’t imagine one of our own children having the disease.”

For the bone marrow transplant the family had to find a donor that was as close of a match as possible. Rocco Del Greco, a friend of the family, said he felt a deep need to help the young man and his family once he learned of the cancer’s relapse.

“Since I was not so emotionally connected to their son I was able to channel my anger for what happened to the young man,” Del Greco said. He helped to jump-start a YouCaring page to crowd fund for Jackson, which managed to raise more than $8,000. Del Greco  also managed several bone marrow drives during the search for a suitable donor. From January to early April, Del Greco helped facilitate for almost 1,800 people to test their DNA for matches to Jackson.

Finding a sufficient match was not easy for the Edwards’. Jackson’s mother had a 50 percent match from her own marrow. She served as the donor, and the transplant was successful. After about a month-long recovery, the doctors said he was safe to continue treatment from home.

The process kept Jackson away from school and friends and forced him to endure weeks of treatment, including chemotherapy. Jackson was not able to attend his fifth-grade graduation ceremony from elementary school in the Comsewogue School District, but his older brother Cortez James “C.J” Edwards walked up on stage in his place. Jackson’s mother said that while the treatment process and lengthy hospital stay did get tough, her son powered through it by making new friends.

Members of the community gather at Jackson Edwards’ Terryville home July 31 to welcome him home from a lengthy hospital stay in Maryland to battle leukemia. Photo by Kyle Barr

“He met a whole bunch of new people, because he’s very charismatic, and he stole a bunch of other people’s hearts,” she said.

The transplant has left his immune system weak, and for another eight months Jackson is restricted from coming too close in contact with other people while he heals. This will prohibit him from attending school for several months, but his mother said they plan on continuing his education with tutoring.

Though he said he is excited to eventually go back to school, for now Jackson celebrated a Christmas in July, including a tree and presents surrounding it. He was unable to celebrate Christmas with his family when his cancer relapsed back in December.

According to the United States Centers for Disease Control and Prevention, more than 47,000 people were diagnosed with leukemia in 2014, the most recent year on record with data on leukemia.

Suffolk County Legislator Sarah Anker speaks during a press conference in 2017 about the creation of a permanent panel to address the ever-growing opioid crisis. File photo by Kyle Barr

By Kyle Barr

Following another year of rising opioid use and overdoses, Suffolk County officials announced legislation that would create a new permanent advisory panel to try to address the issue.

“We have lost people from this [problem],” Suffolk County Legislator Sarah Anker (D-Mount Sinai) said during a July 25 press conference. “Children have died, adults have died and we’re here to do more.”

The panel would have 24 members, including representatives from health and science groups, members of law enforcement, hospital employees and individuals from the Legislature’s Committees on Health, Education and Human Services and would focus on prevention, education, law enforcement and drug rehabilitation across the county, Anker said. The panel is planned to be broken up into sub-committees, which would tackle a specific area.

“This is an issue that needs all hands on deck,” Suffolk County Police Commissioner Tim Sini said. “We are not going to arrest ourselves out of this — this is a public health issue [of historic proportion], but law enforcement plays a critical role.”

Over 300 people from Suffolk County died from opioid-related overdosess in 2016, according to county medical examiner records. Sini said that in 2016, the police administered Narcan, a nasal spray used as emergency treatment to reverse the effects of an opioid overdose, in Suffolk County over 700 times.

A 2010 bill saw the creation of a similar advisory panel with 13 members, many of whom are members of the new proposed panel. The original, impermanent panel ended five years ago, but had made 48 recommendations to the legislature focused mainly on prevention education, treatment and recovery. Two recommendations from this committee that were put in effect were the Ugly Truth videos shown in public schools, and countywide public Narcan training.

Though proud of the work they did on that panel, members agreed the situation has worsened since it was disbanded.

“[Seven] years ago we stood here and announced the initial panel — I had the privilege of co-chairing that group — a lot of the things we recommended actually happened, some things didn’t,” said Dr. Jeffrey Reynolds, chief executive officer of the Family and Children’s Association. “Regardless, the problem hasn’t gotten any better, and in fact, it’s gotten progressively worse. Some of the gaps in prevention, access to treatment, recovery and law enforcement haven’t yet been filled. For us to have an ongoing opportunity to have a dialogue together — to brainstorm some new solution to disrupt the patterns here — is very, very valuable.”

On the education side, Islip School District Superintendent of Schools Susan Schnebel said at the press conference that education has to begin at a very young age.

“It’s important that schools take hold of what happens in the beginning,” she said. “That includes educating students at a very early age, educating the parents to know what’s there, what are the repercussions, what is the law. That needs to happen with a 5 or 6-year-old.”

Executive director of the North Shore Youth Council Janene Gentile, and member of the proposed panel, feels that the advisory panel is an important step. She said she hopes that it will be able to do more in helping prevent people, especially young people, from using opioids in the first place, and hopefully help those exiting rehab.

“Implementing a family component when they are in rehab is really crucial, while they are in rehab and when get out,” Gentile said. “There are other agencies like mine — 28 in Suffolk County. If we can reach out to them they can help with re-entry [into society]. They go on the outside and the triggers that started them on opioids are still there, and they need to have places where there are no drugs. We’ve gone through a lot, but we’ve got to do more — and prevention works.”

The Rocky Point Fire District’s North Beach Company 2 station is located at 90 Kings Road. File photo by Kevin Redding

Sounding all alarms. Big changes within the Rocky Point Fire District will be left up to voters next month.

On Aug. 8, between 3 and 9 p.m., qualified residents in the district are encouraged to take to the North Beach Company 2 firehouse on 90 King Road to decide the fate of the decades-old building.

Following a resolution adopted by the Board of Fire Commissioners in June, voters will decide on two propositions: an authorization to completely demolish the existing firehouse and construct a new one on its footprint with updated infrastructure with a maximum, an estimated cost of $7,250,000; and the purchasing of a new aerial ladder truck with a maximum estimated cost of $1,250,000.

“It needs a lot of renovations and it’s not cost-effective to renovate. It’s cost-effective to look to the future to make it better.”

— Edwin Brooks

According to the fire district, if the propositions are approved, residents will see an increase in taxes, but will gather interest on each proposition in no more than 30 years and 20 years, respectively.

Built in the early 1950s, the current building has been in need of repair and renovation for decades, to accommodate for more modern requirements of firefighters — from new safety regulations to larger updates to equipment and apparatuses as well as mandatory handicap-accessibility.

A new firehouse will make for better safety to the community as well, according to fire district commissioners.

“This enables us to continue the service we’re already providing well into the future,” District Vice Chairman Kirk Johnson said at last month’s commissioner meeting. “It’s just a modern, environmentally-conscious building that will be able to run over the next 20, 30 years — one of our main focuses with the new building.”

Rocky Point Fire District Secretary Edwin Brooks echoed Johnson’s words.

“The old one has reached the end of its useful life,” he said. “It needs a lot of renovations and it’s not cost-effective to renovate. It’s cost-effective to look to the future to make it better. It’s good for everybody — good for the fire department, good for the public. It’s a win-win situation.”

Brooks said there are no projected tax figures or construction timelines as of yet in the event that the propositions are approved.

One protestor comforts another during a protest in Smithtown July 27. Photo by Jill Webb.

By Jill Webb

In a show of unity, North Shore residents resoundingly condemned President Donald Trump’s (R) intentions to ban transgender people from the military this past week.

Individuals gathered in front of the U.S. Army Recruitment Center in Smithtown in disapproval of President Trump’s announced ban July 27.

The ban stemmed from a series of tweets President Trump put out July 26, citing his reasoning for the transgender ban being that the military “cannot be burdened with the tremendous medical costs and disruption that transgender in the military would entail.”

Trump’s declaration of the ban on Twitter led the Long Island Transgender Advocacy Coalition to come out to Smithtown to oppose the ban in a peaceful demonstration. The group advertised the demonstration via Facebook as a way for the transgender community and their allies to speak up for transgender service members.

Juli Grey-Owens, executive director of LITAC led the demonstration with a loudspeaker in hand, chanting in solidarity with the transgender community.

The goal of the demonstration, according to Grey-Owens, was to put transgender soldiers in the spotlight.

“To make people aware of the fact that there are Americans that are supporting our transgender troops — that’s important,” she said. “Number two, it’s to make people aware of the fact that the transgender community is constantly under duress, constantly being discriminated against and this is just one more thing.”

The aim of LITAC is to advocate for the transgender community, often through forums, demonstrations, and putting on informational sessions that Grey-Owens refers to as transgender 101s.

The Sexual Orientation Non-Discrimination Act, passed in 2003 makes it unlawful for anyone in New York State to be discriminated against in employment, housing, credit, education and public accommodations because of their actual or perceived sexual orientation.

A protestor shows support for transgender military members. Photo by Jill Webb.

But the law isn’t as clear for transgender individuals. SONDA does not explicitly prohibit discrimination based on gender identity and expression — but it does apply when a transgender person is discriminated against based upon his or her actual or perceived sexual orientation, according to the New York State Attorney General’s office.

Specific counties and areas, including Nassau and Suffolk County have taken matters into their own hands and passed more specific anti-discrimination legislation for sexual orientation.

Grey-Owens said that LITAC’s objective is to step in at any time the transgender community is being discriminated against.

The executive director, along with many of the other attendees of the demonstration, was aggravated with Trump’s accusations against the expenses of transgender health.

“One of things that they found is the number is so small in comparison to the defense budget, that it is a point zero something of the actual cost,” Grey-Owens said. “The army spends more on Viagra — ten times more on Viagra — then they will on transgender health costs.”

One of the best ways to help the transgender community, according to Grey-Owens, is to unite with them.

“If you take look at the crowd that’s here now, there are way more cisgender people [someone who’s gender identity matches the sex they were assigned to at birth] than transgender people here, and that’s made our voice louder,” she said. “People are adopting our cause as their cause. If they’re interested in helping out, this is how you help us: expand our voice.”

One participant, Edna White, said that she was in attendance in support of her transgender family and friends. She stressed the negative effects of the segregation.

“Taking a serious defense of our country — that shouldn’t be separated,” she said. “We’re already separated enough in war as it is, so to do that is really disheartening for me.”

Heather Sacc, another protestor said she found Trump’s sudden tweets against the transgender community very alarming.

“There’s 6,000 trans people in the military that have risked their lives,” she said. “The military didn’t ask for this. It’s just [Trump] woke up in the middle of the night and decided ‘oh that’s what I’m gonna do.”

A protestor shows support for transgender military members. Photo by Jill Webb.

Jay Gurecio attended the demonstration representing the LGBTQ+ visibility coalition, a group she is a co-founder of. Gurecio said she felt betrayed by Trump going back on his claims he would support the LGBTQ+ community during his campaign.

Trump tweeted in June 2016, thanking the LGBT community.

“I will fight for you while Hillary brings in more people that will threaten your freedoms and beliefs,” he said.

Guercio believes he has not kept to his promise.

“For him to go back on something that was implemented a year ago, that trans-people were allowed to serve and were allowed to get their surgery and their hormones covered, it’s just outright wrong,” Gurecio said.

Gurecio thinks the message Long Island should take from the demonstration is there is an LGBT community that will do everything in their power to stand in solidarity with each other.

“We’re peaceful, this isn’t angry, this isn’t something that’s even violent in any which manner,” Gurecio said. “I want people to understand that we just want to live our lives, and that we want the same rights as everyone else.”

The following day protestors continued to berate Trump during a visit he made in Brentwood to the Suffolk County Police Department.

Patricia Rios was holding a sign saying she voted for Trump and regretted her decision.

“Once he comes for the ‘T’ [talking about Transgendered] he’s going to come for the L, the G and the B,” she said. “So we’re here to protest that.”

Dr. David Kilmnick, CEO of LGBT Network, a Long Island LGBT advocacy group said more than just transgender military members rights were ignored this week.

“We found out… Trump was coming here, and timing would have it that he tweeted that he was going to ban transgender folks from serving our country and serving our military,” he said. “That wasn’t the only thing he did to the community this week — which was big enough. His attorney general filed a court brief saying that Title VII doesn’t protect LGBT people from discrimination from the federal government. Having Trump here on Long Island, having Trump as president is an embarrassment, a disgrace. He doesn’t represent the values of our country of equality and justice.”

A Reuters/Ipsos opinion poll released July 28 showed a large portion of the county disagrees with Trump on this position.

According to the poll, 58 percent of adults agreed transgender people should be allowed to serve while 27 percent said they should not.

Currently it’s unclear if Trump’s announcement will lead to real policy change, as the

Joint Chiefs of Staff Chairman Gen. Joseph Dunford said last week the current military policy would not be changed until the White House issued further guidance.

Additional reporting contributed by Kyle Barr and Victoria Espinoza.

The first few cherry blossom trees were donated from the FealGood Foundation and the 9/11 Responders Remembered Memorial Park. Members of both groups and the historical society smile. Photo from Smithtown Historical Society

By Kyle Barr

The Smithtown Historical Society is looking to create memories that will last a tree’s lifetime with their most recent project.

The Walk Under the Trees Project intends to recreate the feel of the famous Washington D.C. cherry blossom pathway,  encourage the planting of trees and help create a beautiful destination for Long Islanders to visit.

Historical society spokeswoman Priya Kapoor was the driving force behind the project.

“The idea started in the beginning of the year, and we started approaching people back in June,” she said in a phone interview. “We want to make the grounds more welcoming and make it more of a community centered place so that people can walk there, they can bring their kids and their dogs.”

Executive director Marianne Howard said she hopes this project stops Smithtown residents in their tracks.

“We’re always seeking an opportunity to beautify our grounds,” Howard said. “People drive past us and they don’t know we’re here, and this will help people to stop and come look at something beautiful.”

On July 19 the historical society commemorated its first set of trees with John Feal of the FealGood Foundation, and Martin Aponte, president of 9/11 Responders Remembered Memorial Park. The FealGood Foundation, an organization that seeks to  improve the lives of 9/11 first responders,  donated five trees with the memorial park donating one. The plan is for the trees to line  the dirt road to the historical society’s main set of buildings.

Feal is a frequent D.C. visitor himself and is very familiar with the cherry blossom paths there.

“You think of beautiful trees, you think of cherry blossoms,” Feal said in a phone interview. “Every year I go to Washington — only because I have to — to try and get legislation passed, but I sometimes get to see the cherry blossoms.”

Now Feal will not have to drive as far to see those special trees.

Aponte said that for those who work with 9/11 first responders, trees have a big significance for those who worked at Ground Zero.

“After those buildings came down there was one particular tree that stood amongst all the wreckage and debris that was falling,” Aponte said in a phone interview. “They dug it out and got seedlings and saplings and made more trees from that particular survivor tree. We surrounded our park with these survivor trees and they’re growing today. They symbolize that we as Americans are survivors regardless of what happened and the aftermath of it.”

Feal said his organization and the historical society have a good working relationship, and that the history of 9/11 first responders and the town are intertwined.

“9/11 is part of the history of Smithtown,” Feal said. “The memorial park tells the story of the history of 9/11 and the courage and the honor and the sacrifice of the men and women who worked at ground zero, and many of them are from Smithtown.”

The Smithtown Historical Society is accepting donations sponsoring new trees, flower beds and even small donations for bricks in a planned walkway. If you are interested in sponsoring a tree, or for information, contact the historical society offices at 631-265-6768.

Jenn McNary and her children, above, are featured in the movie ‘To the Edge of the Sky.’ Photo from Brian Ariotti

By Jenna Lennon

Duchenne muscular dystrophy is the number one genetic killer of boys in the world.

In “To the Edge of the Sky,” Emmy and Oscar Award winning producers, and Old Field natives, Jedd and Todd Wider tell the story of four mothers in their fight against the U.S. Food & Drug Administration for the approval of a potentially life-saving drug for this fatal disease.

The world premiere of the 118-minute documentary at the 22nd annual Stony Brook Film Festival was met with a standing ovation July 23. Continued feedback from the audience, during and after the Q&A period, has been nothing but positive for the brothers and for raising awareness for treatment of this disease.

“As a documentarian, there’s no greater reward than hearing audience members come up afterwards and ask how we can help, what we can do, how can we bring further attention or shine further light on these issues and help the families that are suffering so deeply,” Jedd said.

‘To the Edge of the Sky’ is produced by Jedd and Todd Wider brothers who grew up in Old Field. Photo from Brian Ariotti

“We spoke to so many people after the film who wanted to get involved and that’s incredibly rewarding to us as filmmakers,” he continued. “We invest years of our lives into these topics to help bring attention to these issues to help these families and for us there’s just nothing greater than that, than hearing that response.”

With such a large audience, Todd couldn’t help but be emotional as he took the stage with his brother for the Q&A session.

“It was a weird thing — I’m not normally that emotional during a screening,” he said. “I got to say it …. was a little surreal. It’s not like I hadn’t seen it before. I’ve probably watched it about a thousand times now, but I found that screening was extremely, unbelievably, emotionally powerful.”

Jenn McNary, one of the mothers in the film, brought her sons Max and Austin to the July 23 premiere.

“Jenn and her family have been incredibly supportive of the film from the very beginning, as has all of the other families as well,” Jedd said. “They’ve all been strongly behind the film and hoping that this film could bring more attention to these issues and bring more attention to the potential companies out there and the foundations that are working to help fund further research.”

Filming took place periodically over almost four years and “was a significant emotional investment,” Jedd said.

“At any given point, the story line would change on the drop of a dime,” he continued. “We became very attached to these boys and very attached to these families.”

Duchenne is the most common type of muscular dystrophy and occurs from a mutation in the gene for the protein dystrophin. Symptoms begin appearing around the age of three or four. At first, young boys start having trouble walking. By their early 20s, they’re essentially paralyzed from the neck down.

“To the Edge of the Sky” examines the fight for FDA approval of the drug eteplirsen, produced by Sarepta Therapeutics, that is meant to help produce the missing protein. In 2016, and at the end of the film, the FDA granted an accelerated approval for the drug, but Todd said the fight is far from over.

“We live in the United States of America where we’re in a functioning democracy, and we can move our political organizations and our political institutions with the power of our will if we choose to,” Todd said. “And in the case of this situation, it was really these four moms that really moved the needle, we feel, on how the FDA was sort of dealing with this … it was the power of their advocacy and the connection and their love for their kids that helped to sort of focus that attention on what was going on in terms of the drug approval process in this particular case.”

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Fionn Whitehead (Tommy) in a scene from ‘Dunkirk’ Photo courtesy of Warner Bros. Pictures

By Kyle Barr

How many war movies say that mere survival is not enough? In these films heroics are often displayed by those who sacrifice their lives for their fellow soldiers or defeat the enemy against overwhelming odds.

In “Dunkirk,” directed by Christopher Nolan, our empathy doesn’t end at the people who risk life and limb to save others, but the movie also places us firmly in the shoes of soldiers who want to do nothing more than survive. And while the film has a few small problems with pacing, Nolan tries to say something about battles like Dunkirk, that sometimes survival is victory, and survival is in turn heroic.

Fionn Whitehead (Tommy) in a scene from ‘Dunkirk’. Photo courtesy of Warner Bros. Pictures

Every director with enough clout has to have their war movie. The best directors have found the war or battle that fits their directing style. Spielberg went for the overarching heroics of World War II soldiers during and directly after the invasion of Normandy. Kubrick went for the general insanity and dehumanizing nature of the Vietnam War.

So what does Christopher Nolan, who has directed and written such intricately designed plots for movies like “Inception” and “Memento,” do? He again goes for the complicated, so much so that he put his sights on the evacuation of Dunkirk after the German blitzkrieg of France where French, British and other Allied soldiers were pushed back to the beaches of the city and surrounded on all sides. German U-boats prowled the English Channel and German bombers and fighters constantly pounded the men on the beach who were desperately trying to find a way to return to English shores.

There is the subtle hint of a ticking clock in nearly every scene that grows ever more menacing as the tension ramps up. We don’t even see a German soldier until the very end the film. Instead, time is the enemy.

Nolan uses time to structure the film in a very different way. The film is broken up not just into three different points of view, — of young soldier Tommy (Fionn Whitehead); boat captain Mr. Dawson and his son Peter (Mark Rylance and Tom Glynn-Carney); and an RAF fighter pilot Farrier (Tom Hardy) — but also into three separate time frames — that of a week, a day and an hour, respectively.

This does cause some confusion as the point of view jumps from one character to the next. If you are invested in one character’s story, it can be hard to readjust to what another character is doing and remember that some things that have happened in one man’s story have yet to happen in another.

But what is so masterful about this film is how well the tension ramps in tandem with each individual story. Events get more suspenseful for each character as Tommy grows more desperate to get off the beach, Mr. Dawson braves more dangerous waters filled with German U-boats and surrounded by German planes, and Farrier spends more and more fuel in order to stay in the air longer and protect the men below him.

In a movie as technical as this, most audience members will even lose the names of the characters among the minutia; so it is so important the actors carry the rest of the emotional weight. Thankfully the entire cast is up to the task. Hardy has to express himself constantly stuck in a airplane cockpit and wearing a mask, but you can tell how pained he is as he counts down his fuel reserves. Whitehead is a relatively unknown actor but his desperation is keenly felt throughout the entire film.

Most of the attention, however, has to go to Rylance, who holds a good part of the film’s emotional weight on his shoulders. His gentle, yet determined demeanor represents all those on the civilian boats who helped ferry the thousands of soldiers off the beach, and he does it so effortlessly it’s hard not to feel empathy for his struggle.

But why do the film with three separate point of views and three separate time frames? It all seems a little egotistical on Nolan’s part until it becomes clear at the very end, where a soldier reads Winston Churchill’s famous speech of June 4, 1940. At Dunkirk, survival was heroism because it meant those soldiers could live to fight another day and that England would not surrender its forces so eagerly.

As Winston Churchill said before the House of Commons: “[W]hatever the cost may be, we shall fight on the beaches, we shall fight on the landing grounds, we shall fight in the fields and in the streets, we shall fight in the hills, we shall never surrender.”

Rated PG-13 for intense war experience and some language, “Dunkirk” is now playing in local theaters.