Times of Smithtown

Suffolk County police Capt. Kevin Williams. Photo by Kyle Barr

A Suffolk police officer offered startling insight into threats of school violence within the Smithtown community.

Suffolk County Police Department Capt. Kevin Williams gave his first presentation of what is expected to be many to Town of Smithtown officials at their May 8 town board meeting. As the town’s new liaison to the 4th Precinct, he gave an overall picture of what threats police are dealing with at area schools and in the community.

Graphic showing the 4th Precincts business investigations and arrests in 60 days prior to May 8. Graphic by TBR News Media

Williams said that since the Marjory Stoneman Douglas High School shooting in Parkland, Florida on Feb. 14, police have seen an increase in school-related incidents within the areas of Commack, Hauppauge, Nesconset and Smithtown.

“If you’ve seen it in the media, there’s probably one a day, threats from students against the school stating they are going to do a Parkland-like shooting or Columbine-type thing,” he said.

Williams said the increased cases of threats of school violence are not unique to Smithtown but are occurring in other precincts across the county. He advised parents to make a point of talking with their children about what may be inappropriate things to say and how they can raise a red flag with police. All threats are taken seriously, according to Williams, and are fully investigated taking a “decent” amount of time.

Suffolk police have been reaching out to and engaging in conversation with those school districts who have chosen to hire armed guards, including Hauppauge School District, following the Florida shooting, according to Williams.

“One of the most important things we all agreed is the people they hire are ex-law enforcement,” he said. “Highly trained professionals who have been out there and dealt with dangerous situations like this.”

He indicated a second school district within the Town of Smithtown is considering hiring armed guards in the future. As this becomes more common, Williams said cops are working to make sure they can quickly and easily identify armed guards in case of an active shooter situation.

Opiod overdoses reported by the the 4th Precinct. Graphic by TBR News Media

In April, the police department reported violent crimes and drug overdoses were all heading in the right direction in the first quarter of 2018. This trend has continued over the past 30 days in Smithtown.

Williams reported drug overdoses due to opioid use, both fatal and nonfatal, have decreased by 25 percent compared to the same time period last year. He credited this to the agency’s 852-NARC (6272) hotline, which receives approximately 12 to 15 phone calls a month from residents providing tips on drug dealers and sales. The officer said the 4th Precinct’s narcotic detectives executed 14 search warrants in January alone and made numerous arrests.

Over the last month, Williams said robberies are down, with one in 2018 compared to four over the same period of time in 2017, as well as a decrease in residential burglaries. The biggest culprit of home invasions remains unsecured homes or buildings, he said.

“It’s summer and people want to leave their windows open, but a screen is not protection,” he warned.

One exception to the decrease in crime is in the area of commercial burglaries. In the past 30 days, there have been four instances compared to none during the same period of 2017, according to Williams. One recent case involved an individual who attempted to pry open the back door of St. Thomas More R.C. Church in Hauppauge.

By Heidi Sutton

If your children have a sweet tooth and love live theater, why not head over to Smithtown and treat them to a scrumptious production of “Willy Wonka Jr.”? The Kids Performing for Kids show is currently in production at the Smithtown Center for the Performing Arts through June 24, and offers the perfect opportunity for young actors to hone their craft.

Directed by Christine Boehm, the play follows the original story closely, with all the wonderful music and unique characters (minus Slugworth) from the 1971 classic that we have come to love along with a few nods to the 2005 film (think nutty squirrels).

Charlie finds the last golden ticket.

Based on the 1964 novel “Charlie and the Chocolate Factory” by Roald Dahl, the show stars Willy Wonka (Alex Mahr), the famous candy man who has not been seen or heard from since he closed his factory to the public years ago, even though Wonka sweets are still being produced. Now he reappears to stage a contest by hiding golden tickets in five of his chocolate bars. Whoever finds a golden ticket will receive a free tour of the Wonka factory along with a lifetime supply of chocolate. But Wonka has an ulterior motive. He would like to retire and is looking for a child to take over his candy empire.

As each golden ticket is found, the audience is introduced to the winner — Augustus Gloop (Dylan O’Leary), Veruca Salt (Cassidy Torns), Violet Beauregarde (Erika Hinson) and Mike Teavee (Michael Puglisi) in one of the funniest scenes in the show, revealing all their little quirks, nasty habits and bad manners as their overindulging parents cringe.

When Charlie Bucket (Olivia Cox), a poor young boy from a loving family, finds the last ticket, he picks his Grandpa Joe (Logan O’Leary) to accompany him on the tour. As the afternoon progresses, each child misbehaves in the factory and is led away by the Oompa Loompas until only Charlie is left. Will he receive the keys to the factory or be punished for sampling the Fizzy Lifting Drinks?

The cast, ranging in age from 6 to 18, does an incredible job portraying the story and its overlying message to think positive, and the many numbers, especially “The Candy Man,” “Pure Imagination,” “Oompa Loompa” and “I Want It Now,” are executed beautifully. Costumes by Ronald Green III are top notch, from the green wigs on the Oompa Loompas to Willy Wonka’s top hat and coat. Designed by Mike Mucciolo, the dazzling set, complete with lollipops and candy mushrooms with “whipped cream,” are right out of Wonka’s pure imagination. Get your golden ticket today!

Running time is 2 hours and 20 minutes. Candy and water will be sold during intermission and booster seats are available. Meet Willy Wonka, Charlie Bucket and Grandpa Joe in the lobby after the show for photos and autographs. An autograph page is conveniently located on the back of the program.

The Smithtown Center for the Performing Arts, located at 2 East Main St., Smithtown will present “Willy Wonka Jr.” through June 24. Children’s theater continues with “Pinkalicious The Musical” from July 14 to Aug. 19 and “Mary Poppins” from Sept. 15 to Oct. 28. All seats are $15. To order, call 631-724-3700 or visit www.smithtownpac.org.

All photos by Danielle Nigro

 

A new playground is being installed at Gaynor Park in St. James. Photo by Sara-Megan Walsh

By Kyle Barr

Town of Smithtown officials will pay out more than $13,000 in past-due overtime pay and offer training to settle labor disputes involving more than 25 town employees.

The Smithtown Town Board approved settlements at the May 8 town board meeting for two labor grievances with unionized town park employees related to overtime pay and hiring a third-party contractor installing its new playgrounds.

Currently, Gibbs Pond Park in Nesconset, along with Gaynor Park and Veterans Memorial Park in St. James are receiving long-awaited renovations including the installation of new playground equipment. When the town bought the equipment in September 2017, it also hired the installation services of Minnesota-based Landscape Structures Inc. The members of Civil Service Employees Association local union Chapter 852 brought the labor grievance to the town board claiming that said town employees were not notified of the hiring of the third-party company and having an outside company install the playground equipment was a violation of the workers’ collective bargaining rights.

Despite repeated attempts, a representative from the union chapter could not be contacted by press time.

 [I]f somebody is ever hurt on that playground equipment the town is covered in terms of liability because certified people installed them, our guys were not certified.
– Ed Wehrheim

Some of the playground work included groundwork and removal of old playground equipment. The town paid Landscape Structures $144,000 for the installation of the Gibbs Pond equipment, $87,050 for Gaynor Park and $94,000 for Veterans Memorial Park for a total of more than $325,000.

Town Attorney Matthew Jakubowski said that the notification of hiring the third-party installer was run through the town’s Department of Parks, Buildings & Grounds.

“For the type of playground that was purchased, it requires a certified installer from the company,” he said.

Town officials said that the playground equipment required workers who had Certified Playground Safety Inspector licenses, which are the National Recreation and Park Association produced certifications giving lessons on playground safety issues such as hazard identification, equipment specifications, surfacing requirements and risk management methods, according to NRPA’s website.

“We put that out to bid to furnish and install that equipment,” Supervisor Ed Wehrheim (R) said. “The reason we did that is federal standards have changed in what we are required to do for liability purposes in playgrounds. In this case, when [the third party] installs, the equipment is warranteed. So, if somebody is ever hurt on that playground equipment the town is covered in terms of liability because certified people installed them, our guys were not certified.”

Under the settlement, Smithtown officials agreed with the union that, starting in 2019, the town will provide an opportunity for any town employee who wishes to get licensed to take the necessary classes and become certified. Wehrheim said the town will cover for any associated expenses.

Officials also agreed that in the future the town discuss whether any new playground equipment or playground maintenance will be done by town employees or a third-party directly with the chapter president or other chapter officers.

The town also reached an agreement with parks employees on overtime equalization.

In 2017, unionized workers brought to the attention of the town board, problems with the equalization of overtime pay of parks department employees in 2016. Under current agreement, member employees are allowed an overtime equalization equal to 80 percent of the employee who received the highest overtime pay. Jakubowski said that a mistake in the parks department meant several employees were not given those funds.

The town will pay out the sum total of $13,775 divided among 25 employees who did not receive their proper overtime wages.

Huntington Station resident Michael Colangelo in uniform. Photo from Facebook

Two off-duty New York City police officers from Long Island were killed in an upstate car crash Sunday.

New York City Police Department said in a press statement Huntington Station resident Michael Colangelo, 31, and Hauppauge resident John Martinez, 39, were killed in a single-car crash May 20. Colangelo was assigned to the NYPD’s canine unit while Martinez worked in the 84th Precinct’s detective squad.

New York state police responded to reports of a fatal motor vehicle accident on Oliveria Road in Shandaken, New York at approximately 11:23 p.m. May 20. Police determined that Martinez was driving a 2018 Maserati when the vehicle left the roadway and struck a large tree, before flipping and coming to a stop on it’s roof. Both Colangelo, a passenger, and Martinez, were pronounced dead at the scene of the accident. A third passenger was transported to Albany Medical Center with non-life-threatening injuries.

Watch TBR News Media for more to come on this breaking news story.

Correction: Updated 2:38 p.m. May 21:  The NYPD officer killed is John Martinez, not James as first reported. 

Commack Superintendent Donald James. Photo from Brenda Lentsch

Across the Town of Smithtown, voters headed to the polls May 15 to show their overwhelming approval of their school district’s 2018-19 budgets. Many of the districts are planning to use funds to increase their security measures in schools or make critical infrastructure and building repairs.

Yet, threat of hazardous weather and early evening storms made for a light voter turnout, with fewer ballots being cast than in previous years. This disappointed school officials, who rely on their taxpayers’ votes for critical feedback and as a measurement of community involvement.

2018-19 budget 

Commack residents passed the district’s $193,222,797 2018-19 budget by 1,203 votes to 419 votes against. The approved budget contains a $3 million increase to expand college level courses at the high school while also conducting a districtwide security review.


Commack budget results
by the numbers

$193.2M 2018-19 budget: 1,203 Yes votes to 419 No votes

Board of education
Jarrett Behar: 1,302 votes 

The budget will maintain all current programs while expanding upon others. Classes that will be added include the pottery wheel classes for sixth-graders, more college level, project-based courses for high school students and a Movement in the Arts program that will attempt to give elementary students 40 to 60 minutes of physical activity during the school day.

The district’s spending plan also provides funding for replacement vehicles for the security and maintenance departments, updated computers with more antivirus and malware programs and enhancements to Wi-Fi connectivity in the district buildings.

Angela Cicalo, Commack’s PTA council president, expressed her concern about the low turnout of less than 2,000 voters.

“It’s sad that we have about 6,000 students in all of the buildings here in Commack, but only about 2,000 people normally come out and vote,” Cicalo said. “And there will probably be fewer than that this year. Sometimes the voter turnout is low when the incumbent is running unopposed and there aren’t a lot of candidates to choose from.”

Commack board of education

Voters did not have many options when it came to candidates for Commack’s board of education. There was one trustee seat up for vote, and incumbent trustee and current vice president on the board Jarrett Behar ran unopposed receiving 1,302 votes.

“I want to represent our children and our community while looking out for their best interests.”

— Jarrett Behar

Even though Behar was running unopposed, he still made the rounds before going to work: stopping at the high school first — with his two children, Jeffrey, 11, and Mollie, 6, in tow — to shake hands and introduce himself to voters.

“I’m very invested in the district,” he said. “I want to represent our children and our community while looking out for their best interests.”

For his second term, Behar said that he would “love to convince Albany to fix or abandon the Foundation Aid formula and start giving moderate wealth districts like Commack more aid, which would in turn reduce the tax burden on our community members.”

He added that he will continue to advocate “for the curtailment or abolishment of the numerous unfunded mandates that serve to further burden our community.” 

Behar said he would also like to continue the board’s efforts in improving the district’s communication with the community.

“It has definitely gotten better, but we will continue to try to improve,” he said.

Karen Forman contributed reporting. 

It’s that time of year again. Sweetbriar Nature Center, 62 Eckernkamp Drive, Smithtown will hold its annual Wildlife Baby Shower on Sunday, May 20 at 1 p.m. Come celebrate nature as it comes alive in the spring with beautiful flowers, vibrant green leaves, and, of course, baby animals. Sweetbriar takes in hundreds of orphaned animals a year. A Sweetbriar rehabilitator will show you how baby animals are cared for by their parents in the wild and here at the nature center.  A cake to celebrate will be shared with all to celebrate the occasion.

Please bring donations to help them feed their wildlife.

How you can help ……. wish list:

  • CHEERIOS
  • APPLESAUCE-NO SUGAR
  • TUNA IN WATER
  • AD/CANNED FOOD
  • DRY CAT FOOD
  • DRY DOG FOOD
  • CANNED CAT FOOD
  • CANNED DOG FOOD
  • WEE WEE PADS
  • RUG SKID PADS
  • ALMONDS
  • WALNUTS
  • DISH DETERGENT
  • LAUNDRY DETERGENT
  • VINEGAR
  • FACECLOTHS
  • OLD TEE SHIRTS
  • SPONGES
  • LARGE ZIPLOCK BAGS
  • LARGE TRASH BAGS
  • TOLIET PAPER
  • PAPERTOWELS
  • GRIT
  • OATBRAN CEREAL
  • OATMEAL
  • LIDS OF PEANUTBUTTER JARS
  • PUPPY FLEA SPRAY
  • VETWRAP
  • TRIPLE ANTIBIOTIC OINTMENT
  • ZIP TIES
  • WATER BOTTLES
  • SHREDDED WHEAT

Admission is $10 children, $5 adults, discounts available for scouts. For more information, please call 631-979-6344.

 

Smithtown school district's administrative Joseph M. Barton building on New York Avenue. Photo by Kyle Barr

Across the Town of Smithtown, voters headed to the polls May 15 to show their overwhelming approval of their school district’s 2018-19 budgets. Many of the districts are planning to use funds to increase their security measures in schools or make critical infrastructure and building repairs.

Yet, threat of hazardous weather and early evening storms made for a light voter turnout, with fewer ballots being cast than in previous years. This disappointed school officials, who rely on their taxpayers’ votes for critical feedback and as a measurement of community involvement.

Proposed 2018-19 budget

Smithtown voters approved Smithtown Central School District’s $244.9 million budget for the 2018-19 school year by 1,873 votes to 800 votes Tuesday night. The budget represents a 2.3 percent increase, or additional $5.5 million more than the current year.


Smithtown budget results

$244.9M budget: 1,873 Yes votes to 800 No votes
Proposition 2: 2,090 Yes votes to 583 No votes

Board of Education
Seat of Christopher Alcure
Mandi Kowalik: 1,618 votes
Christopher Alcure: 935 votes

Seat of Jeremy Thode
Jeremy Thode: 1,790 votes

The school district’s security will receive a funding increase under the approved budget. The planned security upgrades include vestibules in all school entrances that will be constructed over the summer as well as full-time, unarmed security guards for all elementary schools.

“Full-time security guards began on May 1 in all district elementary schools and will continue as part of the budget moving forward,” said James Grossane, district superintendent.

 

In addition, the district is looking to add an additional school psychologist, one
social worker and a guidance counselor to its staffing to address students’ mental health and well-being.

The district’s spending plan maintains all current programs while transitioning to universal elementary school start and end times from 9:20 a.m. to 3:25 p.m. It also allows the district to offer new elective courses at the high school including adding Advanced Placement Capstone Research in addition to the existing AP Capstone program.

The approved budget will impose a 2.95 percent tax levy increase, which is within the district’s state tax levy cap.

Proposition 2

Residents passed Proposition 2 by 2,090 votes to 583 votes. The measure will allow Smithtown school officials to use the district’s capital reserve funds to complete a number of repairs and renovations. The project list includes repairs to the tennis courts at Smithtown High School East and West, window
replacement in the Accompsett Middle School and roof and skylight repairs at the Smithtown Elementary School.

Smithtown board of education

There will be a new face at the table of Smithtown’s board of education come July. Newcomer Mandi Kowalik, receiving 1,618 votes, managed to unseat incumbent trustee Christopher Alcure, who received 935 votes in Tuesday’s race.

“I am thrilled and honored to have been elected to represent the Smithtown Central School District as Board of Education trustee,” she said. “I thank every single one of my supporters, I absolutely could not have held this strong without all of you standing behind me.”

Kowalik is a 14-year Smithtown resident and a published children’s author. She worked as a school teacher for nursery school through sixth grade for 13 years before leaving to raise her three children. Kowalik has one son starting kindergarten this September with two younger daughters she plans to
enroll in the district.

“I am thrilled and honored to have been elected to represent the Smithtown Central School District as Board of Education trustee.”
– Mandi Kowalik

Kowalik said during her campaign for the board seat that she wants to focus on security as well as the mental and physical well-being of students.

“The security of our students and staff are the most important issue that we are
currently facing,” she said. “I am prepared to do whatever it takes to keep our school safe.”

Kowalik said she believes students need time to socialize without adults actively interacting and closely monitoring them. While she said the district has explored this at some levels, she would like to continue to explore further avenues for it.

“I have truly been enjoying all of the meaningful dialogue, and I hope that people will continue to feel comfortable approaching me,” Kowalik said. “Let’s keep engaging in these important conversations, and together we will make a difference.”

Current board President Jeremy Thode ran unopposed for his third term as trustee and was re-elected with 1,790 votes.

Both Kowalik and Thode will serve three-year terms through the 2020-21 school year.

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Natalie Ardizzone smacks the ball into the outfield. Photo by Bill Landon
Right fielder Dani Badillo tracks down a fly ball in right. Photo by Bill Landon

By Bill Landon

The No. 4-seeded Smithtown West softball team found itself in a hole against No. 13 Lindenhurst that it started to climb out of before the May 15 Class AA playoff game was suspended due to weather.

“We made a couple of mistakes early on, and you can’t do that against a team like that,” said Smithtown West head coach Dave Miller. “Yeah, we’re the No. 4 seed and we won 14 games, but [Lindenhurst] hits the ball much harder than we do.”

The Bulls ended up in a 3-0 hole fast, with two of the runs being allowed on errors. In the top of the fourth inning, the deficit grew to 5-0 before Smithtown West started to rally.

Sophomore Keri Dufficy singled and got to second base on a sacrifice fly before stealing third. Sophomore third baseman Sarah Chapman’s bat spoke next with a drive to right field for a stand-up double that plated her team’s outfielder for the Bulls’ first run.

Third baseman Sarah Chapman throws the ball to first for an out. Photo by Bill Landon

In the bottom of the fifth with two outs, junior outfielder Kristin Horoszewski smacked the ball to right field and was able to stretch out a double. Junior second baseman and outfielder Natalie Ardizzone hit a long fly ball up center field that scored her teammate to trim Lindenhurst’s lead to three runs, 5-2.

Smithtown West’s defense helped retire the next three Lindenhurst batters before the wind picked up and the skies grew dark. A flash of lightening prompted a 30-minute delay, but as the storm picked up referees made the call to postpone the game.

“I think our pitch selection wasn’t as good as it should be — we have to be smart about that,” Miller said. “We’ve struggled with that the entire year. Hopefully we’ll finish this tomorrow, but we have to do the basics
correctly. Defensively we’ve been solid all year, but mistakes opened it up.”

Smithtown West is scheduled to retake the field Wednesday, May 16, and resume the game in the bottom of the sixth. If storms continue the game would once again be postponed to a later date.

By Rita J. Egan

It was a dream come true at the Smithtown Center for the Performing Arts. “Dreamgirls” opened on the Main Stage last Saturday, and with a talented cast, showstopping numbers and sparkling costumes, it had everything one would expect from a musical.

A scene from ‘Dreamgirls’

Set in the 1960s and ’70s, the story follows three female singers from Chicago, Effie, Deena and Lorell, as they evolve from the Dreamettes — singing backup for a popular rhythm and blues singer named Jimmy Early — to the Dreams headlining shows on their own. Through song and a bit of dialogue, the audience gets a glimpse into the girls’ relationship, and watches as the three young women fall in love with the men in their lives: Jimmy, songwriter C.C. and Curtis, the group’s manager. 

The show also touches on the struggles of black singers to find a place on the pop charts in the ‘60s, while facing segregation in the South and watching as white pop music stars rerecorded their music.

“Dreamgirls” premiered on Broadway in December 1981 and ran for nearly four years, winning six Tony Awards. In 2006, a movie based on the musical was released starring Beyoncé, Jennifer Hudson, Eddie Murphy and Jamie Foxx. 

With book and lyrics by Tom Eyen and music by Henry Krieger, Ronald Green III masterfully directs a talented cast of 22 actors in SPAC’s latest production. The local presentation originated at The Noel S. Ruiz Theatre at the CM Performing Arts Center in Oakdale in September last year under the direction of Patrick Grossman, and many of the original cast members, sets and costumes remain the same.

A scene from ‘Dreamgirls’

Crystal Fauntleroy (Effie), Aisha Phillip (Deena) and Amanda Camille (Lorell) blend beautifully together as the Dreamettes/Dreams, and when Effie is fired from the group, Steffy Jolin (Michelle) effortlessly replaces her. The actors are excellent in the musical numbers “Move (You’re Steppin’ on My Heart),” “Dreamgirls” and “One Night Only.”

Fauntleroy is dynamic as Effie, portraying her with just the right amount of attitude and strength, and shines in every number. During the emotional “And I Am Telling You I’m Not Going,” she delivers the song with all the passion audience members expect from this number. For anyone who has ever suffered a broken heart, be warned, tissues will be needed.

As the musical progresses, Phillip transitions from timid backup singer, to confident front woman with ease. After Curtis decides he wants a singer with a softer voice leading the group, believing the sound will be more acceptable to pop audiences, he moves Deena to the lead spot and Effie to the back. Phillip has a melodic singing voice that is fit for this role. This is especially apparent during the tender duo with Curtis, “When I First Saw You.”

A scene from ‘Dreamgirls’

Camille is sassy as Lorell, and she has the opportunity to show off her powerful voice during “Ain’t No Party.” Jolin as Michelle embodies the spirit of a girl group singer. Her stunning smile and the way she carries herself seems to say, “I don’t care if I’m not the lead singer, I’m a star.”

The ladies are not the only ones who are front and center in this show as the male actors have exceptional stage presence. Dondi Rollins is on fire as he plays a James Brown-inspired Jimmy. Rollins sings and dances his way into the hearts of the audience, especially with the high energy “Fake Your Way to the Top.”

David William Hughes is convincing as the slick Curtis, and his smooth vocals help to deliver a swoon-worthy performance. It’s no surprise that both Effie and Deena fall for their manager. 

Londell Collier is a sweet and endearing C.C., and his vocals are just as sweet, especially when he starts off the ensemble number “Family.”

Hughes, Rollins, Collier and Kevin Knight as Marty, Jimmy’s manager, sound fantastic together during “Cadillac Car.” Seneca Bell plays the masters of ceremony with flair, Justin Steele as Tiny Joe Dixon adds to the sensational vocals, and the whole ensemble rounds out the cast perfectly.

The musical has its comedic moments, too. After Jimmy and friends think they have a hit with “Cadillac Car,” Hans Paul Hendrickson appears on stage as a Pat Boone-inspired character singing the song and looking as wholesome as a ‘50s sitcom character. During the number “I Want You Baby,” Rollins is hysterical as he portrays a restrained Jimmy during a show in a whites-only club in Miami.

Once again, SPAC has produced a musical worthy of Broadway, and those behind the scenes also deserve to be applauded. The fast-paced musical is filled with fun dance moves choreographed by Milan McGouldrick, and conductor Melissa Coyle and the theater musicians magnificently accompany the singers on each number. Green, doubling as costume designer, also ensures all the bright colors and sparkling attire of the era are represented beautifully.

The Smithtown Center for the Performing Arts, located at 2 E. Main St., Smithtown will present “Dreamgirls” through June 17. Running time is 2 1/2 hours with one 15-minute intermission. Tickets are $38 adults, $34 seniors, $25 students. For more information or to order, call 631-724-3700 or visit www.smithtownpac.org.

From left, Zoey, Emily Ciano, Lucas, Debbi Haupert and Smithtown Supervisor Ed Wehrheim watch the rose bush being planted May 10. Photo by Kyle Barr

Five-year-old Lucas Cianci watched Town of Smithtown officials plant a rose bush in front of town hall May 10. He could watch, but he wasn’t allowed to go touch it or play in the dirt. Lucas knew the reason why –he has been diagnosed with cystic fibrosis.

Lucas Ciano, 5, enjoys his new Kindle Fire. Photo from Debbi Haupert

“Cystic fibrosis is extremely germ driven, even by bacteria contracted in water and soil, which really is everywhere,” Lucas’ grandmother, Debbi Haupert of Smithtown, said. “[Lucas] knows he’s different. He knows he’s restricted from doing things that other children do.”

Cystic fibrosis is caused by a genetic mutation that causes a thick buildup of mucus in the lungs, pancreas and other organs. The mucus traps bacteria inside the organs which leads to infections and extensive lung damage.

Smithtown town officials pledged May 10 to plant 65 rose bushes in the upcoming weeks in honor of National Cystic Fibrosis Awareness Month this May with the help of several local civic  and community groups.

The story behind the 65 Roses Project dates back to 1965 when 4-year-old Ricky Weiss, who when he first diagnosed with the disease could not say cystic fibrosis, but called it by the closest approximately he could “65 Roses.”

Supervisor Ed Wehrheim (R) also gave Lucas a bag of superhero toys with a Kindle Fire so he can read books without having to pick up books that might have bacteria on them. When Lucas opened the Kindle, there was a personal message on it calling him a superhero.

“You know who else have genetic mutations? Superheroes,” Wehrheim said to Lucas. “You’re our superhero.”

Every day Lucas, a Merrick resident, has to go for airway clearance treatments that can last 20 to 30 minutes at a time. As people with cystic fibrosis get older, the treatment can take as long as four hours.

“You know who else have genetic mutations? Superheroes. You’re our superhero.”
Ed Wehrheim

“It’s a progressive disease, so as the years go by the need for additional treatments increases,” Lucas’ mother Emily said. “Right now, it’s not overwhelming for us, but it’s hard. It’s hard telling [Lucas] to sit still during treatment – he’s just a kid.”

Approximately one out of every 31 people in the United States are carriers for cystic fibrosis, according to the nonprofit Cystic Fibrosis Foundation. If both parents are carriers, there is a 25 percent chance the child will be born with the disease.

Lucas’ mother, Emily Ciano, a graduate of Smithtown High School, said that before she became pregnant she could not imaginethat she or her husband, James, were both carriers for cystic fibrosis.

“I was blindsided with it while I was already pregnant with Lucas,” she said. “It’s overwhelming to find out this information when you could have found out before hand with a simple blood test.”

Smithtown spokeswoman Nicole Garguilo plants a rose busy in front of town hall May 10. Photo by Kyle Barr

She expressed how important it is for prospective parents to get tested for being cystic fibrosis carriers before they make any decision. The American Academy of Obstetricians and Gynecologists recommends that doctors offer pre-pregnancy screenings to all women.

Ciano said she has marveled at the strides that researchers have made in treating cystic fibrosis, and is optimistic that by the time her son needs more extensive treatment that there will be more options offer to help him.

Many area community organizations have pledged to help spread awareness of cystic fibrosis by joining the town in its 65 roses project. Local leaders including Rob Cartelli, of the Smithtown Chamber of Commerce; Tony Tanzi, president of the Kings Park chamber; Vincent Puleo, of the Nesconset chamber; and Kerry Maher-Weisse, Bill Capurso and Mario Mattera of the Community Association of Greater St. James have all made commitments to planting rose bushes at various plazas and parks in their respective hamlets. Bob Souto and Marie Gruick volunteered the assistance of the Nesconset Civic Association to help with the planting.

Smithtown residents who wish to be part of the 65 Roses project are encouraged to post photos of roses they plant in their yard on Twitter with the hashtag #65RosesSmithtown.