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Photo from Brandpoint

College student Jamie Schanbaum was studying at the University of Texas at Austin, just 19 years old, when she was rushed to the hospital with severe symptoms that seemed related to asthma or the flu.

Jamie Schanbaum

Two days later, Jamie and her family were stunned to learn she had contracted meningococcal disease, a serious, life-threatening illness. Meningococcal bacteria can infiltrate the brain and spinal cord, known as meningitis, or the blood, causing septicemia. People can carry the bacteria in their nose or throat without being aware of it and spread it to others. Jamie ‘caught’ the bacteria and developed septicemia.

While Jamie fortunately survived, her life would not be the same. Her legs and fingers needed to be amputated due to the infection. But her strength and determination have caused her to become an effective advocate for meningitis awareness, and after two years of walking on prosthetics, Jamie joined the USA Paralympic Cycling team in 2011.

“Jamie is making a difference for others every day,” said her mother, Patsy Schanbaum, “including inspiring the founding of the J.A.M.I.E. Group, a nonprofit organization that raises meningitis awareness and educates people about the importance of prevention through vaccination. We work with many other meningitis groups, often started by families impacted by this horrible disease, to help save lives.”

The J.A.M.I.E. Group has also worked to pass legislation requiring meningitis vaccination for college students, who are at higher risk for meningitis.

What is meningitis?

Meningitis is a devastating and debilitating infection that can affect anyone, anywhere, at any time. Those at higher risk of meningococcal infection include young children, adolescents, older adults, people living with chronic and immunocompromising conditions (such as HIV) and those living in close quarters – including college students and military recruits.

Bacterial meningitis is the most common type of meningitis. Even with prompt diagnosis and treatment, death and brain damage in survivors are common outcomes. Most cases of bacterial meningitis are caused by three different bacteria: Haemophilus influenzae type b (Hib), Pneumococcus (Pnc) and Meningococcus.

Meningococcal disease is transmitted person-to-person, through droplets of secretions from people who are carriers. Carriers are healthy people who have meningococcus in their nose and throat. Transmission is also through contact with contaminated items such as utensils and living in close quarters with a carrier.

Symptoms of meningococcal disease may begin like influenza (the flu), but can worsen rapidly to include fever, severe headache, stiff neck and a skin rash.

Approximately 10-20 percent of people with bacterial meningitis will die within 24-48 hours after onset of symptoms, and 10-30 percent of people will sustain permanent damage and disability, leading to life-changing events including brain injury, depression, hearing loss and/or limb loss.

The good news: Meningitis is preventable

Vaccination has been shown to be highly effective in reducing the risk of illness and disease transmission, which is especially crucial during the winter months when more people are spending time together indoors and many different viruses are spreading.

Routine use of vaccines in infants and children against Hib, Pnc and the common groups of meningococcus that cause the majority of illness have been very successful in preventing disease. The CDC Advisory Committee on Immunization Practices (ACIP) recommends routine administration of a single dose of quadrivalent meningococcal conjugate vaccine against serogroups A, C, Y and W to children 11 or 12 years of age, with a booster dose at age 16. Meningococcal B vaccination is available to all adolescents and young adults (ages 16-23).

Vaccine protection can decrease within five years following vaccination, so getting vaccinated at the recommended times maintains your protection and reduces the risk of illness and disease transmission.

Prevention is power. Talk to your doctor about vaccination against meningococcal disease for you and your family members, especially those who may be at higher risk. Visit MeningitisAwareness.org to learn more. (BPT)

Vivian-Viloria-Fisher. File photo by Kyle Barr

By Vivian Viloria-Fisher

I thought I had taken all the right steps to protect myself against tick borne diseases; avoided going onto tall grassy areas without gloves, long white pants and white socks, and I sprayed legs — and shoes — and arms with repellents. All that notwithstanding, I did find more than one tick on me this summer. Again, I followed the prescribed steps and collected the vermin, saved it and saw my doctor, who prescribed a prophylactic dose of doxycycline. After the requisite weeks, I had blood work done which showed no sign of disease.

So, when I was flying home from a visit with our two sons in California and was not able to eat my salad at my layover stop, I was surprised but not concerned. I’d had a very busy week enjoying time with my kids and grandson. I felt very achy but chalked that up to the long drive from Marc’s home in Sebastopol to Dan and Megan’s home in Thousand Oaks. That’s more than 400 miles.

I was very tired the next morning but pushed myself to get up and get ready for the funeral that caused me to shorten my trip. During the Mass, I swung from hot to shivering cold and began to feel lightheaded. I turned to my husband, Stu, and told him that I felt as if my head was exploding in a white flash before my eyes. He helped me to my feet, and we made our way out of the church, quickly hugging my cousins as we passed. We bought a thermometer at a drugstore across the street from the church. It read 103 degrees.

This was Friday, the beginning of a week of fevers rising and falling, no ability to eat, muscle aches, headaches, earache and fatigue. My search for answers included three visits to doctors’ offices and finally, on Thursday, Mather Hospital Emergency Department in Port Jefferson where Dr. Hirsch did not dismiss it as just a virus. I told him I thought I had meningitis. He shook his head and said, “I suspect Lyme.”

My father had meningitis when I was 5 years old. He had continued to work although he was sick with mumps, and the infection spread. I remember the grown ups’ conversations about the tube driven into his head to relieve pressure. That left me with a very vivid but equally inaccurate image of what he endured. I wished something could relieve what I knew was going on in my head.

Stu and I had just watched “Jeopardy!” on Friday evening, and my right eye hurt so much that I decided to go to bed, since I couldn’t read or watch TV. I looked in the mirror as I brought the toothbrush to my mouth and saw that only half my mouth was opening. Off we went to Mather ED.

Within a day it was determined from the spinal fluid that the Lyme disease did cause the meningitis — and the palsy that froze the right side of my face.

I refer to tick borne diseases as the Black Plague of our county. These diseases are not to be taken lightly either by the public who don’t believe it will happen to them or by health providers who don’t consider the possibility of Lyme as often as they should. One can be bitten and walk away free of any infection or one can be bitten, feel safe because blood work shows no infection and find oneself close to death. I was very lucky to have had excellent medical care, both in the hospital and at home. I was discharged with a midline for a 28-day course of intravenous antibiotics and a service that provided a nurse who came to our home once a week and instructed my devoted husband on how to administer the medication when she wasn’t there.

Nobody drilled a hole in my head. Instead, my family, my friends and my community surrounded me with love, care and prayers. I am so grateful.

Vivian Viloria-Fisher and her husband live in East Setauket. She is a former county legislator in the 5th District, and is now chair of the Jefferson’s Ferry board of directors.