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Kidney

Stock photo

By Leah S. Dunaief

Leah Dunaief

If presented with a decision you do not wish to make, especially if told you have no choice, don’t do it. Don’t accept the unacceptable because you are told there is no other way to go. There is (almost) always another way. I will share with you a true story that recently happened to make my point. It may seem like the telling of a miracle.

A man I know, who lives many hundreds of miles away, was having abdominal pain and his abdomen was somewhat distended, so he made an appointment and went to see his primary care physician. The doctor palpated his distressed area, front and back, and sent him for imaging tests. Of particular concern was the fact that the patient had come into this world with only one kidney. When the results came back, the prognosis wasn’t good. He was sent by his doctor to an oncologist.

At this next appointment the grim news was confirmed. He had a cancerous tumor on the kidney, and the organ would have to be removed. That meant he was fated to be on dialysis the rest of his life. The oncologist then sent the patient along to an oncology team that specialized in cancerous kidney surgery in a big city hospital. The appointment was for four days later, and while he waited, the man did extensive research on the internet, learning everything he could about cancer of the kidney. At that next visit, the diagnosis was repeated and the team urged what they believed to be the inevitable: arrange to have the stricken kidney removed.

Three doctor appointments, and at all three, there was agreement as to the diagnosis and treatment. Realizing that he was about to have his life altered, and determined to make one more try at changing the outcome, he returned to the internet. One physician in particular, the renal department chairman of a research hospital, had been impressively profiled. The hospital was in a different part of the country, and COVID-19 was beginning to close down most airline flights. With little expectation of actually being seen by this specialist, and while he was worried about how he might get there and return, he nonetheless picked up the phone and called the department. He was given an appointment almost immediately. He almost didn’t accept it when he was told that he couldn’t bring his test results with him, that those tests would have to be done all over again. But in the end, he went.

It took three flights before he reached his destination, and together with his family, he checked into the hotel opposite the hospital, as he had been instructed to do.

For the next two days, there were extensive tests, and then the chairman told him the conclusion: the chances were 95 percent that they could save his kidney. He wheeled around and hugged the doctor.

Three days after the surgery, which involved a technique called modelling accompanied by 3500 pictures of the diseased kidney, he walked out of the hospital, holding his family tightly around him. The doctors told him the wondrous news. He was cancer free. The tumor had not yet begun to spread. 

He had found the right person to deal with his problem because he refused to accept the original path laid out before him, even though he had been told there was no choice. He was determined to find another way, creative in his casting about for an alternative and tenacious enough to transcend the obstacles on his way to a successful outcome.

I have known this story for more than a month, thrilled by its outcome yet not wanting to invade the privacy of the principals. So I have not identified any of the people or institutions involved. But I believe it is an experience that must be told to be of possible help for others. And the choices one is presented with don’t have to be life threatening. They can just be part of daily life. The moral is still the same.

Old friend gets third organ transplant with councilwoman’s help

Tom D’Antonio and Jane Bonner spend time after a successful kidney transplant surgery at New York Presbyterian Hospital. Photo from Bonner

A Brookhaven Town Councilwoman was elected in 2007 to serve the community. On April 26, she took the idea of public service to a whole new level.

Tom D’Antonio and Jane Bonner spend time after a successful kidney transplant surgery at New York Presbyterian Hospital. Photo from Bonner
Tom D’Antonio and Jane Bonner spend time after a successful kidney transplant surgery at New York Presbyterian Hospital. Photo from Bonner

Jane Bonner, councilwoman for Brookhaven’s second district, and Tom D’Antonio have known each other for almost 40 years. Bonner said she became friends with D’Antonio’s younger brother Steven in her seventh grade Spanish class at Middleville Junior High School in the Northport-East Northport school district, which has since closed, and the families have stayed in touch ever since. D’Antonio was diagnosed with juvenile diabetes when he was 10 years old. He said the disease has “wreaked havoc” on his kidneys over the years. The 57-year-old EMT has a medical history that most would consider unlucky. He wouldn’t agree.

“I’m living proof that what doesn’t kill you makes you stronger,” D’Antonio said.

He has had three successful kidney transplants and a pancreas transplant, and survived an acute coronary thrombosis, which was a 100 percent blood clot-blockage in a vessel of his heart in 2012.

The flip side to the hard luck of requiring three kidney transplant surgeries is the fact that three times, D’Antonio had a willing and able donor who was also a match. The first time was in June 1988 when his then girlfriend Cheryl, who he has been married to for 27 years now, stepped up and donated D’Antonio a healthy kidney. He said at the time, doctors told him the chances of his girlfriend being a match were one in a million.

In 1999, he underwent a pancreas transplant, which he said at the time was somewhat experimental. The result was the formerly insulin-dependent diabetic was essentially cured. But by 2002, the diabetes had done damage to his wife’s former kidney. This time, D’Antonio’s sister stepped up. She wasn’t an option in 1988 because she had just given birth.

Everything was fine until October 2012 when the blockage caused his heart to stop for about 14 minutes while he was riding the Long Island Rail Road one day. An EMT riding the train performed CPR to resuscitate D’Antonio. Luckily, the incident occurred near the Mineola train station, which is about five minutes walking distance from Winthrop University Hospital. Doctors told him they thought he’d have brain damage if he survived the ordeal, emphasis on “if.”

D’Antonio’s brain was okay, but the heart stoppage caused damage to his sister’s kidney. He was back in a familiar position. For a third time he needed a family member or close friend to step up and offer an organ that would save his life.

‘Once I make up my mind, I’m pretty steadfast and determined. I’m a big believer in God having a plan.’ — Jane Bonner

According to the National Kidney Foundation, more than 3,000 new patients are added to the kidney waiting list every month, and 13 people die every day waiting for a kidney transplant. According to the Living Kidney Donors Network, more than 80,000 people are currently on the waiting list, where most people remain for more than five years waiting for a life-saving donation while on dialysis.

D’Antonio found himself in need of a kidney with his options exhausted. In October 2015, Bonner invited D’Antonio and his wife to meet her and her husband, John Sandusky, to join them and some friends at the Huntington Lighthouse Festival in Huntington Harbor. Bonner and Sandusky sailed their boat from Mount Sinai, while the D’Antonios took the short trip by boat from their home in Eaton’s Neck.

“We almost didn’t stop — we didn’t want to intrude,” D’Antonio said about that October day. He revealed to Bonner he was in need of a kidney once again, and told her that a family member who might have been an option was not going to work out.

Tom D’Antonio, his wife Cheryl and Jane Bonner sail on the open seas, which is where Bonner first told D’Antonio she’d like to donate her kidney. Photo from Bonner
Tom D’Antonio, his wife Cheryl and Jane Bonner sail on the open seas, which is where Bonner first told D’Antonio she’d like to donate her kidney. Photo from Bonner

“I said, ‘I’ll do it,’” Bonner said. Taken aback, D’Antonio suggested Bonner should think it over and maybe discuss it with her husband and family.

“John!” D’Antonio said Bonner called out to her husband across the boat. “I’m going to give Tommy a kidney!”

That was all the discussion the Bonners needed, which D’Antonio said was apropos of their relationship.

“Once I make up my mind, I’m pretty steadfast and determined,” Bonner said. “I’m a big believer in God having a plan.”

On April 26, Bonner donated her left kidney to D’Antonio in what she called a “minor surgery” at New York Presbyterian Hospital.

As that master plan has played out since, Bonner said doctors discovered two precancerous polyps that were about two years away from manifesting into colon cancer during the litany of tests she had to undergo in preparation for the donation.

D’Antonio said he’s not sure what his outlook would have been if Bonner hadn’t offered to help.

‘I’m living proof that what doesn’t kill you makes you stronger.’
— Tom D’Antonio

“I know that right now I wouldn’t be feeling as good as I’m feeling,” he said. “I was to the point, the week of and the week before the surgery, if I walked a block I’d have to stop and rest. It’s like a slow, miserable, downward spiral.”

Bonner has since shared news about the transplant on social media using the hashtag #ShareTheSpare, and plans to advocate for programs like the Kidney Paired Donation Pilot Program, which is managed by the United Network for Organ Sharing and is an option for patients with a living donor who is not a match.

“It’s more dangerous to drive to work every day than it is to live with one kidney,” Bonner said. “There’s no greater gift to give than the gift of life.”

Bonner, who missed just eight days of work, has been hesitant and uncomfortable with the baskets, flowers and cards she’s received since the surgery.

“There’s like this common element that runs through people who do that,” D’Antonio said. “They’re all like ‘it’s a no brainer.’ Clearly it’s more than that. That’s the thing that’s hard to express in words — how that makes you feel.”

D’Antonio shared what he said to Bonner in response to that hesitancy to accept thanks or praise.

“Get used to it.”