Tags Posts tagged with "Terminal Illness"

Terminal Illness

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0 2025
Dana Urbinati and her team of students took a break from rehearsals Monday night to pose for a photo. Photo by Heidi Sutton

For the past 29 years, students  at Comsewogue High School have showcased their eclectic talents with the community at “A Night for Jason,” a student-run variety show produced in honor of Jason Mariano, a child in the school district who succumbed to leukemia in 1987. This year’s event will take place on Friday, March 18, at 7 p.m. in the school’s auditorium.

The money raised from the event benefits Friends of Karen, a tristate children’s charity with an office in Port Jefferson, that offers emotional, financial and advocacy support for children with life-threatening illnesses and their families in order to keep them stable, functioning and able to cope.

“This is always such a great way to keep our students involved in caring for our community,” said Dana Urbinati, a teacher at the high school and coordinator of the event. “Along with the talents and energy of everyone involved, we want people to know that the funds raised are going to help some very special families in our communities.”

A diverse  mix of talents have graced the stage in the past and this year is no exception. Emceed by Jason Kellar, Eli Smith, Aleyna Kaya, Nicholas Keller and Ethan Wright, the evening will feature 22 acts including musical performances by the high school’s Jazz Band and female choir, Tapestry, along with singing, dancing, comedy and student bands. “This is an extremely talented, hardworking group and I’m just so grateful that we are able to help such an amazing charity,” said Urbinati.

Comsewogue High School is located at 565 N. Bicycle Path, Port Jefferson Station. Tickets for this one-night event are priced at $12 in advance by calling 631-474-8179 or $15 at the door. For more information about Friends of Karen, call 631-473-1768.

Marissa Pastore and her mom, flanked by Disney characters. Photo from Katrina Kurczak

A 14-year-old Huntington Station girl who was recently diagnosed with a terminal illness got the wish of her life on Sunday when her favorite Disney characters came out to celebrate with her.

Marissa Pastore, who has been diagnosed with acute lymphoblastic leukemia (ALL) on April 20, was treated at the Cohen Children’s Center, but her fragile body was unable to handle the chemotherapy, according to a GoFundMe online fundraising account set up for the family. A few days later, Marissa returned home with her mom Risa, dad Domenick and two brothers Domenick and Ryan, to enjoy their final days together.

Marissa’s mom is an emergency department nurse at Huntington Hospital and her dad is a former Huntington Manor Fire Department chief and a fireman with the New York City Fire Department (FDNY), according to the account. Both are volunteers at the Huntington Manor Fire Department, and the account was set up so the family could “concentrate solely on loving Marissa.”

Marissa Pastore, 14, gets the surprise of a lifetime when Disney characters visit her. Photo from Katrina Kurczak
Marissa Pastore, 14, gets the surprise of a lifetime when Disney characters visit her. Photo from Katrina Kurczak

“Please help us support the Pastore family with any donation you can make which will go toward covering their living expenses while they take time off from work to celebrate Marissa’s life together.”

Not only did the account amass more than $55,000 by Wednesday, Marissa got a special surprise when Minnie Mouse, Mickey Mouse, Olaf and other characters from popular Disney movies greeted the 14-year-old Disney lover, thanks to the Make-A-Wish Foundation.

According to Katrina Kurczak, one of Marissa’s wish granters and assistant director of program services for Make-A-Wish, the nonprofit group and the family put together Marissa’s wish quickly. Family and community members contacted them Tuesday, April 28, and the group met with the family Wednesday. On Sunday, her wish came true.

“She was surprised and so happy, she couldn’t believe it,” Kurczak said. The characters rode in on fire trucks and greeted her.

The goal was to bring Disney to her, as Marissa is unable to travel due to her condition. Disney princesses Anna and Elsa from “Frozen” also made a special appearance and sang to the young girl.

“Her dad wanted to do something to make her smile,” Kurczak said.

Many volunteers came together to help make the day as special as possible. The Huntington Manor Fire Department, Cold Spring Harbor Fire Department and the FDNY also helped make Marissa’s wish come true.

To donate to the Pastore family, visit https://www.gofundme.com/sus6z8.