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Rita Egan

Local family goes from organizing basket raffles to hosting international symposium

Many battling the autoimmune disease APS Type 1 and their families, above, attended a symposium at Stony Brook University organized by Dave and Sherri Seyfert of Stony Brook. Photo from Sherri Seyfert

By Rita J. Egan

When their son Matthew, now 17, was diagnosed with Autoimmune Polyglandular Syndrome Type 1 11 years ago, Sherri and Dave Seyfert’s world was turned upside down.

The diagnosis led the Stony Brook couple to join the cause to find a cure for the rare autoimmune disease that affects 1 in 2 million people in the United States, and the results of their efforts culminated recently with the Second International Symposium on APS Type 1 at Stony Brook University July 13 through 15, an event they organized and hosted.

“Each time we have a hospitalization or emergency room visit or are in ICU, for the most part we learn something that will keep us out of there for that particular thing next time.”

—Dave Seyfert

The Seyferts with Todd and Heather Talarico of New Jersey founded the APS Type 1 Foundation with the main goal of making physicians more aware of the rare disorder. In the last decade, the families have raised $500,000 for research through fundraising events, which includes basket raffles organized by the Seyferts at the Setauket firehouse on Main Street.

The Seyferts said the basket raffles were always popular thanks to the support of local businesses and residents, and their fundraising success led to the hosting of the July symposium that gave researchers an opportunity to share information. It also provided patients and their loved ones a chance to find a much-needed support system.

Attendees traveled from all over the country as well as Ireland and South America to share their experiences. The couple said life after a diagnosis can sometimes be lonely for families.

“The symposium gave [families] the opportunity to share, to be able to provide each other with support and also listen to the researchers giving them hope that there’s a lot of research going on out there,” Sherri Seyfert said.

The Seyferts said “there are a lot of moving pieces” when it comes to APS Type 1, because the body has trouble metabolizing Vitamin D, which helps in the process of providing calcium to bones and muscles, including the heart.. A patient can experience various symptoms including cramping, bone mass problems and an irregular heart rhythm. However, a triad of disorders identifies the disease: adrenal insufficiency (Addison’s), hypoparathyroidism, and Candidiasis.

The Seyfert’s son Matthew was diagnosed when he was six years old. Photo from Sherri Seyfert

“So everybody is actually a little bit different as far as what conditions they have, even though they’ll share three things,” Dave Seyfert said. 

He said the disease overall is manageable, even though patients can develop something new every decade of their life.

“Each time we have a hospitalization or emergency room visit or are in ICU, for the most part we learn something that will keep us out of there for that particular thing next time,” the father said.

He said the couple chose the university to recognize the contributions of Stony Brook Children’s Hospital  to the community and their quick diagnosis of Matthew when he was six years old. At the time he was experiencing excessive fatigue and suffered a seizure in kindergarten. His father said it took 48 hours for the team at Stony Brook to diagnosis his son. It can sometimes take years to identify the disease in a patient.

The couple said the symposium included a section for children and teenagers to interact separately from adults. Matthew attended the event and assisted in escorting guests and served as a microphone runner during the Q&A.

Dr. Andrew Lane,  professor of clinical pediatrics in the Division of Pediatric Endocrinology at Stony Brook Medicine, and Dr. Mark Anderson, director of University of California, San Francisco’s Medical Scientist Training Program, were among the speakers at the symposium.

“I think that [the Seyferts] are just a fantastic example of encouraging people to believe that for whatever medical condition or other condition in the world they are interested in fixing, even small things can make a difference.”

—Dr. Andrew Lane

“I thought it was really uplifting,” Lane said. “It was really great to see all the families supporting each other. It was also great for the physicians and scientists in the audience to interact, and informally and formally hear each other’s work and help recognize what areas need further work.”

Anderson, who met the Seyferts at the first symposium in Toronto, Canada in 2015, said there is hope for those diagnosed with APS Type 1. He said with stem cell transplants, the thymus, a gland that sits in front of the heart and plays a part in APS Type 1, may possibly be reprogrammed.

“That’s the type of thing that families want to know that someone is working on the problem,” Anderson said.

Lane, who was part of the team that diagnosed Matthew, said the symposium was the perfect opportunity for families to raise concerns directly to internationally recognized researchers in the field, and he is amazed that the family went from organizing basket raffles to hosting a symposium.

“I think that [the Seyferts] are just a fantastic example of encouraging people to believe that for whatever medical condition or other condition in the world they are interested in fixing, even small things can make a difference and sometimes turn into really big things,” Lane said.

Matthew was too shy to comment on the event, according to his mother, but she said the whole family was left with hope after the three-day symposium.

“People were thanking me, and my response always was it’s an honor to be able do this for everyone,” his mother said.

For more information about APS Type 1 and future events, visit www.apstype1.org.

File photo by Greg Catalano

By Andrea Paldy

As another school year drew to a close, the final Three Village school board meeting of 2016-17 brought news of security enhancements and the district’s third phase of spending for its Smart Schools Bond allocation.

The Smart Schools Bond, an initiative approved by New York voters in 2014, allocated $2 billion to public schools across the state for education technology, preschool classrooms and security.

Three Village received $3.39 million from the fund, which is being spent on hardware, equipment and infrastructure. Speaking at the district’s final meeting for the school year, safety and security coordinator Jack Blaum said that the final phase of spending — about $1 million — will include an upgrade to security cameras, digital video recorder storage and card key access devices.

The district will convert cameras it already has on its properties from analogue to digital, Blaum said. Besides those cameras, located both in the interior and on the exterior of district buildings, officials plan additional digital security cameras at each school and will install wireless cameras at the two junior high schools to monitor the athletic fields. There is already a surveillance system for the fields at the high school.

To accommodate all of the new cameras, new DVR units will be purchased for the district’s schools. Blaum said the upgrades will also boost the number of key card readers at doors for faculty and staff at all schools, the North Country Administration Building and the old administration building on Nicolls Road. He said that there will also be additional ID scanners in building vestibules to produce visitor badges.

He discussed turning the old administration building into a command center where cameras and security vehicles could be monitored.

For Phase 1 of the Smart Schools Bond, money, about $1.2 million, has been budgeted for upgrading network infrastructure. Phase 2, recently outlined in April, will see the district spending about $1 million on classroom technology and on the district’s one-to-one device program that will provide notebook computers to junior high students.

The plan was posted to the district’s website for a 30-day period to allow residents to comment. The 30-day comment period has now passed, and the district is currently in the process of submitting the plan to the New York State Education Department for approval.

While the district still awaits approval of the first two phases of spending, he anticipates that many of the security requests will be “fast-tracked.”

Coordinating security within the district is like running a small city, Blaum said.

“All the infrastructure is great but, again, the support of all the staff and all the students are crucial,” he said.

Ward Melville valedictorian Kirti Nath and salutatorian Isabelle Scott before the graduation ceremony. Photo from Three Village Central School District

For Ward Melville’s valedictorian Kirti Nath, the importance of failure has been her biggest lesson during high school.

“The thing I can take away most, more than anything, is failure is progress, and you have to go with the flow,” she said in a phone interview. “When things happen to you, they may be a blessing in disguise, or they’re just part of the whole process.”

While Nath may recognize the value of failure in life, her high school career has been filled with many successes. In addition to taking advanced placement classes and a 106.52 average, she was involved in the school’s Science Olympiad program and was captain her senior year.  She was editor-in-chief of the school newspaper and also  a member of the Spanish Honor Society and National Honor Society.

She said some of her best memories from Ward Melville are her times with the Science Olympiad team, especially when they qualified for nationals in 2016 after not expecting to. She said there was a point this year where they thought they were behind, so the members put in extra time working on the competition. They scheduled seven practices, some as long as three hours, in a span of eight days.

“The team became more of a family than a team,” she said.

Gary Vorwald, Nath’s Science Olympiad coach when she attended P.J. Gelinas Junior High School, said he saw how driven she was even in her younger years.

Kiri Nath. Photo from Three Village school district

“The future is so bright for her,” he said. “She is such a high achiever.”

While in the junior high school, he said she came in first at a Science Olympiad competition in the category of Disease Detective. For the category, students need to identify the source of a disease and how it spreads. He said while in high school, she came back to Gelinas to coach the junior high team in the same category, and she has the work ethic and people skills needed to succeed in the future.

“Everything she does, she does with passion, with enthusiasm,” Vorwald said.

Nath said science happens to be one of her biggest interests. Earlier in high school, entomology, the science of insects, intrigued her, and then in her sophomore and junior years, she began working at the School of Marine and Atmospheric Sciences at Stony Brook University as a research assistant in a lab, which led to her senior year project.

“My senior year project involved studying the effects of pharmaceutical pollution on fish at the School of Marine and Atmospheric Sciences,” she said. “So I got to work a lot with fish — which was very challenging but super fun.”

Working with zebra fish embryos, and common antidepressants such as Prozac and Wellbutrin, the valedictorian said she discovered that when found in water, the drugs affect the respiration rate of the fish depending on the concentration of the prescription.

This fall Nath will enroll in the dual degree Life Sciences and Management program at the University of Pennsylvania, which the college’s arts and sciences department and the Wharton School of Business administer jointly.

“I really like the way the program is structured,” she said. “It offers a breadth of study that doesn’t pigeonhole you into looking into a specific thing right out of high school.”

Nath said she’s excited to see what areas she becomes passionate about while studying at the University of Pennsylvania.

“In college I’ll figure out what I’m most interested in, right now it’s probably more science related but it could change as I move forward,” the valedictorian said.

Ward Melville High School’s salutatorian Isabelle Scott dreams of traveling all over the world one day, and if the budding journalist gets her way, readers will be experiencing her adventures with her in print.

Scott will attend Brown University this fall and major in journalism — a field she said she believes will satisfy her love for travel.

“I didn’t want to get in the position of being at a desk job from nine to five,” she said. “I appreciate routine, but I don’t think I can stick with something like that for my whole life. I write a lot and it wasn’t something I wanted to give up, so I figured journalism was the best way to mix those two interests.”

Isabelle Scott. Photo from Three Village school district

Scott said her education at Ward Melville has prepared her for her future endeavors. Originally a student at The Laurel Hill School, she started her studies in the Three Village  school district at P.J. Gelinas Junior High School and  graduates from Ward Melville with a 105.1 grade point average. Besides taking advanced placement classes in all four main core areas, she’s been involved in Art Honor Society, mock trial club, French Honor Society and National Honor Society. Outside of school, she has sung with her youth choir at church and volunteered as a counselor and tutor at the local Boys and Girls Club as well as taken kickboxing and dancing classes.

Despite all the preparation for a college education, Scott said she won’t know just how well prepared she is until she is actually experiencing it even though her friends who graduated from Ward Melville before her have given her confidence.

“It’s hard to tell until you get there, but all of my friends who are already in college said they felt very prepared, particularly for the workload,” she said in a phone interview.

After college, Scott said she would love to go abroad and report from different countries, but not from war zones, as she said she is a pacifist. The budding journalist said she would love to do culture segment stories similar to the ones she sees in National Geographic or Time Magazine, reporting on ordinary life in various countries.

While she hopes one day to work for The New York Times, she said she is aware that the publishing world is constantly changing with the digital arena. Wherever her journalism studies take her, Scott said she sees herself doing a lot of traveling and immersing herself in a country and its culture to produce original work.

When it comes to communicating abroad, the salutatorian said she already knows a good amount of French, and she said when she feels more comfortable with the language she would like to study Spanish and Mandarin.

“I think it’s helpful to learn as many languages as you can,” she said.

While she said she has a lot of good memories from her time in Three Village, she said many occurred in ninth grade, including painting a mural in Gelinas with fellow students and visiting her English teacher’s office.

“I had an English teacher Ms. Cadolino, and one day I brought a bean bag chair into her office, and we used to just sit,” she said. “I would come to her for writing advice, and we would just talk. She was very much a mentor to me, so I have good memories of being in her office.”

Scott said she will also remember interacting with all the students who had diverse interests, many becoming her close friends. 

“I learned as much from the students as I did from the teachers,” the salutatorian said.

Poquott's Village Hall. File photo
John Richardson

Poquott residents headed to the voting booths June 20 with concerns over a future community dock and a lack of communication between residents and the village board.

With five candidates to choose from for two trustee seats, incumbent Jeff Koppelson and newcomer John Richardson garnered the most votes with 180 and 195 votes, respectively. Challenger Debbie Stevens, who ran with Richardson on the Peace Party ticket, received 178, while incumbent Harold Berry had 170 and Angie Parlatore came in fifth with 28 votes.

Results of the election were not finalized until early Wednesday afternoon. Village clerk Joseph Newfield said there were 306 voters and 84 absentee ballots. The counting of the ballots continued late into the night and 10 absentee ballots were challenged. The village met with the Suffolk Board of Elections Wednesday at noon and all ballots were verified and counted.

In a previous interview with The Village Times Herald, Koppelson said he was hoping to continue the work he accomplished in his first two years, citing the repairing and repaving of roads in the village, beach cleanup and working on plans for the dock. He said he was satisfied with the work he had accomplished with the mayor and his fellow trustees. 

Jeff Koppelson

“We want to continue our progress,” Koppelson said. “We’ve made a lot of good progress along with the mayor. We have a mission with what we want to do with Poquott.”

Richardson, a New York City firefighter, said in a previous interview he felt there was a lack of transparency in the village, and he would like to be “a conduit for the village and the residents.”

He said his background as a firefighter would be an asset to the village. 

“I work in a firehouse with 14 people,” he said. “I can definitely say I’m a team player, I have good communication skills. I will stand by what my platform is.”

Life is filled with various milestones. When the students at Imagination Pre-School in Stony Brook graduate June 19, owner, director and teacher Eileen Hummel will also be stepping into a new stage of her life.

A couple of months ago, Hummel, who owns the pre-school with her husband Sol, sent a letter out to parents notifying them the pre-school will be closing after 20 years. The owner said it wasn’t a decision she and her husband were planning on making in the near future, but when Unitarian Universalist Fellowship, the building’s owners she leases the space from at 380 Nicolls Road, decided they wanted to utilize the building for their own needs, and no longer wanted tenants, the Hummels decided it was time to move on.

It was in June of 1997 when the doors to the school officially opened. Hummel had 20 years of experience in the education field, which included seven years as a director and head teacher at a local private school. Through the years, she estimates over 2,500 have come through the school’s door not only for pre-k classes, but summer camp, too.

The location has been an ideal one, especially with Stony Brook University right down the road.

Imagination Pre-School owners Eileen and Sol Hummel participated in the 2016 Three Village Electric Holiday Parade. Photo from Eileen Hummel

“We chose it because at the time we felt it was a perfect location being on Nicolls Road, which is a well-traveled road, and we knew someone who belonged to the fellowship — one of my neighbors — and it seemed like a very good fit at the time,” the teacher said.

Danielle Short, 21, who is currently a junior at Salisbury University in Maryland majoring in respiratory therapy, was surprised when she heard the news. The former student, who also worked as a camp counselor at Imagination, said she still keeps in touch with a couple of people she made friends with there.

“I was surprised because the school was open for so long, and it’s a really popular school in the area — a lot of people go there,” Short said.

Elizabeth Avella, 23, who also attended the school and would often visit her mother who worked there, was also saddened by the news.

“It makes me sad because I went there — all my brothers went there, my mom works there, so it’s close to home,” she said. “It’s sad to see a place like that go.”

Hummel, who holds a master’s degree in early childhood education, created a pre-school where children can socialize and learn in a fun environment. She said one of her favorite things to do, and among the things she’ll miss most, is dressing up for holidays and special occasions. Through the years, she has played Santa’s helper and a leprechaun for St. Patrick’s Day, among other characters for the children.

“She dresses up for the holidays and everything,” Short said. “She’s always very spirited at the events.”

Hummel said in addition to missing special occasions with her students, she’ll miss the everyday running of the school, which included greeting parents and grandparents as they dropped their children off. 

“I loved owning a pre-school, and I loved interfacing with the families,” she said.

Eileen Hummel and Jenna Stimmel during her school days. Photo from Jenna Stimmel

While Hummel had created an entertaining environment for her students, who range in age from 2 to 4 years old, there was also a lot of learning going on both in scholastics and life skills.

“My philosophy is, especially for 2-year-olds and 3-year-olds, socialization is the most important thing,” Hummel said. “For the 4-year-olds, the academics to get them ready for school is as important as the socialization.”

She said 4-year-olds learned the alphabet and numbers. And no matter a child’s age, Hummel said she and the teachers felt it was important to teach good values, how to be polite and kind, and how to make friends. In addition to the basics, it’s most important for young students “to be able to love school and want to go to school every day,” she said.

Jenna Stimmel, 20, another former student who worked at the summer camp, remembers playing games at the pre-school. The former student said she met one of her best friends there.

“It’s so cool to have met someone in pre-school and still talk to them now,” Stimmel said.

For Stimmel, who is now a sophomore majoring in psychology at Binghamton University, it was a pleasure to work for her former pre-school as a camp counselor, and work with the children. She said it was heartwarming to see the kids look up to her as she had to her teachers and counselors.

“It was really cool to get to work with [the counselors] because I’ve seen them as a child and now I get to work with them,” she said.

Avella, who now works in the corporate design industry, remembers how sweet Miss Eileen was when she attended the school, and her first day of school when her teacher helped her get through the day.

“I remember my first day of school,” Avella said. “I was crying, and I remember the teacher Miss Denise was holding me all day, and she wouldn’t put me down.”

Like Stimmel, Avella made friends at the school and still keeps in touch with them and the teachers. When her mother used to be a teacher, she would volunteer to help her mother at the school.

Eileen Hummel dressed as a bunny for a holiday celebration. Photo from Eileen Hummel

“I’m glad I got the opportunity to go there,” Avella said. “You wouldn’t think pre-school would be so important, or that it would last this long. I mean, I’m 23, and I still talk to my pre-school teacher. That’s pretty cool.”

As she says goodbye to Imagination Pre-School, Hummel doesn’t plan to rest. She hopes to become involved with an organization that works with children on a volunteer basis. However, her school will always hold a special place in her heart.

“It was a huge part of my life the last 20 years, and I will miss interacting with the children, with the families,” she said.

Her former students hope she’ll enjoy her retirement.

“I feel like she’s been working so hard for so many years,” Stimmel said. “She was an incredible person to get to work with. She’s such an incredibly hard-working person, and I think that this retirement is well-deserved for her.”

Avella hopes Hummel will continue her career in childcare in some shape or form.

“I hope that she does what she loves still, and she can find a way to still incorporate kids into her life, and bring joy to kids, because I loved going there,” Avella said. “Everyone that works there is a family, so I hope she’s still able to do that. I hope she’s able to still bring joy to people’s lives.”

With great admiration, many in the area are remembering a jazz music preservationist who recognized the importance of the American-born genre from its early days. Ann Sneed, 87, formerly of Stony Brook and founder of the nonprofit foundation International Art of Jazz, died in Las Vegas, Nevada, April 21, from cancer.

Sneed founded the International Art of Jazz foundation in the 1960s and organized concerts in the Three Village area, as well as surrounding towns. The foundation also traveled to schools to introduce children to the sounds of jazz throughout the state.

When Tom Manuel, trumpet player and owner of The Jazz Loft in Stony Brook, decided to open his venue, he reached out to the music preservationist. He said for years he had heard about her from other musicians, who when they discovered he was from Stony Brook, would ask him if he was familiar with her.

Ann Sneed outside of The Three Village Inn before a campaign event for Assemblyman Steve Englebright in October of 2012. Photo by Maria Hoffman

“Ann used to produce these amazing concerts not just in Stony Brook but in the Three Village area, Port Jefferson, at the university,” he said in a telephone interview. “Some of the first jazz concerts at the university were produced by Ann. So, I always heard about her and was always kind of impressed that the oldest organization for jazz in the history of our country was founded right here in Stony Brook. What an amazing accomplishment.”

Manuel said Sneed’s health was failing when they connected, so the majority of their conversations occurred over the phone. The two of them would talk for hours about her life in music and her days running IAJ.

“She was there at the beginning,” he said. “There are so few people you can talk to like that now.”

Manuel described Sneed as spunky, bright, genuine and inspiring. He said he admired her for recognizing the importance of jazz music and preserving it.

“Everything she said was so powerful and so applicable today — that the music was so important, that the artists were so underappreciated,” he said.

Manuel was always in awe of her stories about all the musical artists she met, especially composer, pianist and bandleader Duke Ellington.

“She actually had a fairly well-established friendship with Duke Ellington, and that kind of floored me,” he said. “Not only just the fact that he was a jazz legend but Ellington was arguably one of the greatest American composers of all time, and so much of the jazz standards are Ellington compositions.”   

John Broven, music history author, also had the opportunity to meet Sneed when she lived in the Three Village area.

“For many years I knew Ann as the always-friendly ticket collector at Democratic fundraisers, but for a longtime had no idea of her background in classic jazz,” Broven said.

Sneed invited him to her home after she discovered his wife Shelley’s father was the founder of Golden Crest and Shelley Records of Huntington Station.

“It wasn’t until she asked me about three years ago to identify the valuable jazz albums in the large record collection at her Stony Brook home that I became aware of her deep involvement in the music,” he said. “As we browsed through the LPs with the red wine flowing, she brought alive revered artists as real people. She seemed to know them all, including Clark Terry, Marian McPartland, Billy Taylor and a personal favorite, Ruth Brown. Ann was a remarkable pioneering lady in the world of jazz, full of compassion for the musicians, and in a sense paved the way for today’s vibrant Jazz Loft facility in Stony Brook.”

In her autobiography “Miss Rhythm,” rhythm and blues singer Ruth Brown credits her participation in Sneed’s organization International Art of Jazz as being one of the opportunities that helped her get back on her feet after suffering with a career downturn and financial hardships.

“The work that she did, the pioneering work really that she undertook as the executive director of the International Art of Jazz, helped set the stage for the current level of appreciation that jazz has in our society.”

— Steve Englebright

Brown, who lived in Deer Park, wrote in her book how IAJ organized workshops in schools, from kindergarten to college, sometimes two or three times a week to expose children to jazz music.

In addition to her involvement in music, Sneed was also a member of the Suffolk County Democratic Committee, and she was a familiar face at many campaign events for Assemblyman Steve Englebright (D-Setauket) where she was a volunteer manning the front desk.

Englebright said he knew Sneed for 35 years but when it came to her productions he was only able to attend one in the early years of IAJ. However, he said through his conversations with her about jazz and her productions he felt as if he attended all of her events.

“She had the great luminaries of the years when she was there (IAJ) from all over the country and all over the world,” he said. “She was the catalyst really for bringing so many of these people to our shores and to our community on Long Island. I think she lifted the level of our cultural experience rather significantly.”

The assemblyman echoed both Manuel’s and Broven’s sentiments about Sneed’s groundbreaking work as well as her paving the way for jazz appreciation even in present times. “The work that she did, the pioneering work really that she undertook as the executive director of the International Art of Jazz, helped set the stage for the current level of appreciation that jazz has in our society,” Englebright said. “Ann Sneed was well ahead of her time.”

The assemblyman said that it was after Sneed’s work with IAJ that she began to volunteer at his campaign events.

“I was so very privileged and honored that she spent a good deal of her time working to help me in my work with the public,” he said. “Often she was the person who would greet you at the door at the Englebright fundraisers, graciously show you in and make you feel that all was good.”

Matthew Barton, curator at the Library of Congress’ National Audio Visual Conservation Center in Culpeper, Virginia, said recordings of the jazz concerts that Sneed produced are housed in the Library of Congress. The recordings include performances by jazz legends such as Brown, Wynton Marsalis, Illinois Jacquet, Johnny Hartman, Thad Jones and more.

“There are more than 200 of the jazz concerts that Ann Sneed mounted with the International Art of Jazz in the Library of Congress’ recorded sound holdings,” Barton said. “The tapes include a wonderful range of the best performers in jazz over several decades. It’s a wonderful and fitting legacy for someone who loved jazz so much, and did so much for it.”

Sneed is survived by her two daughters Jan Sneed and Kathleen Lukens and two grandsons. Services will be announced at a later date.

Vietnam-born Hakin Lienghot, the subject of Eileen Davenport's first novel, was 'adopted' by Three Village community

Eileen Davenport, on right, is writing a novel about Hakin Lienghot, on left, who was adopted by the Three Village community following his immigration to the United States from Vietnam. Hank Boerner, at center, worked for American Airlines and helped the then-13-year-old get a flight to his new home. Photo from Eileen Davenport

Eileen Davenport has embarked on a writing journey, and she’s hoping local residents will join her on a trip down memory lane. The Setauket resident is working on a book about Hakin Lienghot, better known as Kin, a young man adopted by Three Village community members when he immigrated to the United States from Vietnam in 1967. She is reaching out to the community asking for stories involving her longtime friend.

Davenport said Lienghot, who now lives in Rhode Island, was a Montagnard child from Da Me in the Central Highlands of Vietnam whose people were mistreated by their fellow Vietnamese. When James Turpin, an American doctor, visited his village with the independent relief organization Project Concern, he met Lienghot and discovered the teenager dreamed of one day going to college. When the doctor returned to the United States, he addressed the members of the Three Village Jaycees, a junior chamber of commerce where members were between 18 and 35 years old. He asked the community to help him bring the young man to the states.

Hakin Lienghot arrives at John F. Kennedy airport and is greeted by the Fleeson family, who he stayed with over winter break. Photo from Eileen Davenport

“All these people in Three Village started to stand up and say, ‘We will help this boy to get here,’” Davenport said in a phone interview. 

She said she’s not certain of all the details, but Lienghot was offered a five-year scholarship to The Stony Brook School, and members of the Jaycees offered additional help. A clothing store owner said he would give Lienghot clothes, others said he could stay at their home during school breaks. Hank Boerner, who had just moved to Stony Brook and worked for American Airlines, offered to approach the company to arrange Lienghot’s transportation.

When the 13-year-old landed at John F. Kennedy Airport, the Jaycees, his future schoolmates, the local public school band and the Stony Brook Fire Department were there to greet him. She said the young man carried two bows and two arrows in his hand.

“His father said, ‘Here take this to your host family as a gesture to say that we are so happy and proud that they took you,’” Davenport said. “It was just this big hospitality thing.”

Lienghot said he was overwhelmed when he arrived at the airport, as he didn’t expect to be greeted by so many people, and his knowledge of English consisted basically of “yes,” “no,” and “thank you.”

“I didn’t expect anything like that so I was overwhelmed; I was frightened,” Lienghot said. “But I was cool on the outside, and I was frightened on the inside. I didn’t know how to talk to people or communicate. They had someone from the Vietnamese consulate to interpret for me.”

He remembers it snowing when the Fleeson family of Stony Brook drove him to their home where he stayed with the family until school began after winter break. He remembered that first night trying Campbell’s chicken noodle soup and not liking the  taste of it, and the next day throwing snowballs with the neighborhood children, and the Fleesons taking him to Sears in the Smithhaven Mall.

Eileen Davenport and Hakin Lienghot dance at his wedding. Photo from Eileen Davenport

He said he tried his best to fit in with the American children he met, so much so that it wasn’t until he matured that he realized the significance of his experiences here.

“I would love to hear about what people remember about me, because I was so focused on fitting in,” he said.

Lienghot, who is now a clinical social worker specializing in children with ADHD and autism has fond memories of his time in the area. He said he would walk down Quaker Path to go to West Meadow Beach and Christian Avenue into Stony Brook Village. From his walks to the village, he remembers looking out into the harbor and going to the shops, and he got his first American haircut from a Stony Brook Village barber.

He started at The Stony Brook School during a time when there were only 47 boys in the prep school, and Davenport said the students came from some of the most elite families, such as Edmund Lynch from the Merrill Lynch family.

While the original plans were for Lienghot to return home during summer vacation, circumstances in Vietnam prevented it. The Viet Cong attacked his village, and people were shot at point-blank range. In the attacks, he lost his brother-in-law and cousin as well as 36 others in his village. When he did get home in 1969, he was almost drafted when he was stopped while riding a scooter. He said he pretended to only know English, and for identification he just showed his Stony Brook School ID. After that, he knew he couldn’t return to his village again. 

The Three Village Jaycees, who already helped Lienghot with food, clothing and books, now opened up their homes to ensure he would have a place to stay during every school break and summer vacation.

“It was a collective community thing, really kind of parenting him,” the writer said.

Hakin Lienghot arrives at John F. Kennedy airport with flight attendants. Photo from Eileen Davenport

Davenport said she hopes Three Village residents can help her with the story of Lienghot, because her family only became a part of his life after he left The Stony Brook School. She said it was in the early 1970s when her father, Ed McAvoy, joined the Jaycees and was the newly elected president of the group. Lienghot was graduating from high school at the time, and her father decided to go to the graduation ceremony.

As her father was leaving, her mother Mary Ann said to him, “Just make sure he has somewhere to go.”

When Davenport’s father saw Lienghot, the young man didn’t know where he was going for the summer, and McAvoy invited him to stay at his home for the summer with his wife and four children.

While Lienghot was at the McAvoys they helped him pack for college and obtain his green card since his student visa ended. The young man had a four-year scholarship playing soccer at Barrington College and eventually went on to Boston University. Every college school break he came back to the McAvoy family, and through the decades has visited the family regularly.

“He kind of adopted us as family and we adopted him,” Davenport said.

The new author said many have told Lienghot to write a book, and but he never believed anyone would be interested in his story. She said while she has no experience in writing books, she’s an avid reader of memoirs and non-fiction inspirational stories, and she believes many would read a book about a community coming together and taking in an immigrant child during war.

The future author said to her adopted brother,  “I read stories like this all the time, and I know it’s a good story to tell.”

Those who remember Lienghot can email their stories to [email protected].

Local legislators and members of the Three Village Community Trust unveil sign for the newly acquired portion of Patriots Hollow State Forest in Setauket. Photo by Rita J. Egan

Thanks to the efforts of elected officials and a decision by a legacy family on the North Shore, Setauket has gained additional preserved land in the hopes of being able to protect local waterways, among other environmental benefits.

April 21, a day before Earth Day, the New York State Department of Environmental Conservation and local elected officials held a press conference to announce the state’s acquisition of 17 acres of woodlands stretching from the corner of North Country Road and Watson Street in Setauket. The property expands the already 28.3-acre Patriots Hollow State Forest, which runs adjacent to Route 25A and is located across from Setauket’s Stop & Shop.

DEC’s regional director on Long Island, Carrie Meek Gallagher, who grew up in Setauket, started the press conference by welcoming everyone who gathered in the woodlands. She also thanked  Assemblyman Steve Englebright (D-Setauket); Peter Scully, deputy county executive for administration and former DEC regional director;  Legislator Kara Hahn (D-Setauket);  Councilwoman Valerie Cartright (D-Port Jefferson Station); and Robert de Zafra and Cynthia Barnes from the Three Village Community Trust for their efforts in securing the land.

Gallagher said the preservation of the land, which was once utilized for potato farming, plays a part in safeguarding the Long Island Sound watershed, and supports forest health while providing a habitat for wildlife.

Many in attendance recognized Englebright for his determination in acquiring the property in the Old Setauket Historic District. The land is where the Fitzsimmons family established their farm in 1939, and through the decades, they began acquiring more land parcels. Once farming ceased, the parcel remained open land where red cedar, gray birch, poplar, black locust and Norway maple trees now stand. Descendants still live in the family home today, and Englebright commended them for choosing preservation over selling the land to developers.

“These beautiful woods that disappear in an eternity behind us could have been more suburbia, could’ve easily been converted into something other than preservation,” he said. “The consequences of that — more traffic, poor air quality, and even worse, a compromised water chemistry in our nearby shores and harbor.”

He said creeks in the area drain into Conscience Bay, which is part of Setauket Harbor, and the bodies of water form the most western part of the Port Jefferson Harbor complex. He also added that the land was the missing link to the Setauket-Port Jefferson Station Greenway Trail.

“We are connected to history, to water chemistry, to wildlife diversity and our sense of place,” Englebright said. “This is an important acquisition.”

Scully, who has worked on land preservation projects with Englebright in the past, including the original acquisition of property for Patriots Hollow from the Roman Catholic Diocese of Rockville Center diocese in 2010, thanked Englebright for his leadership.

“I know that your interest in this property was a motivating factor in the state of New York’s decision to move forward,” Scully said.

Hahn echoed the importance of acquiring the property as well as praise for Englebright. 

“Steve, really our community’s thanks is to you,” Hahn said. “Your dedication, your commitment, your persistence on this piece of property, I know how long this has been in your vision.”

Cartright said Brookhaven Town has been committed to preserving open spaces, and she appreciated the cooperation from all levels of government on the issue.

“We are grateful to be in partnership with the state as well as the county as it relates to the preservation of open spaces,” she said.

She also alluded to key initiatives when it comes to preservation in the future.

“We ask you keep your eyes and ears open as it relates to that,” she said. “But this is an amazing announcement on such an appropriate day as we approach Earth Day.”

Before the unveiling of the new park sign which stands on the new acquisition, Robert Reuter, president of the Frank Melville Memorial Foundation, thanked the elected officials in attendance calling them a “rogue gallery of people who really make a difference” and expressed gratitude to the Fitzsimmons family, who were unable to attend.

“Nothing reinforces the integrity of a historic district like open space,” Reuter said. “In so many cases, I sort of have this joke about preventing the future — we’re protecting the past, we’re preventing the future. In this case, it’s really quite apt, except the future is our environmental health, and this is a huge triumph.”

Michael Calvin and coach Thomas Cooper spar before the big fight. Photo from Michael Calvin

For amateur boxers, making it to the finals of the Daily News Golden Gloves tournament is a huge achievement. Recently fighters from Port Jefferson Station’s Royals Boxing Gym had their chance for glory in the ring, and one of them brought home the gold.

Two days before the fights the energy was high and the excitement was palpable at the gym as co-owner Michael Calvin of Setauket was balancing work and training to compete in the welterweight finals of the tournament at Manhattan Center’s Hammerstein Ballroom April 21. Golden Gloves finalist and Stony Brook resident Michael Misa was also at the gym that night. He was sparring in preparation for his light heavyweight match that was held at the Aviator Sports and Event Center in Brooklyn April 22. 

Calvin proudly wears his Golden Gloves shirt and necklace. Photo from Michael Calvin

Calvin, 26, a Ward Melville graduate, made it to the semifinals in 2013 but had to bow out due to an injury. He was looking forward to fighting in the finals this year.

“It’s a surreal feeling,” Calvin said. “I guess it will sink in more when the experience is over. Right now, I am so immersed in the circumstances.”

Misa, 26, was also excited and said he was preparing to face his competitor Matt Klingerman with his trainer Adam Willett.

“It’s always a challenge, the finals,” Misa said. “I know my opponent. He has really good cardio. He always comes forward. We’re just working on using range and everything we worked on in the gym.”

Misa, who just started boxing last year, said this would actually be his third fight in the tournament, as opposed to his fourth like others in the Golden Gloves, because his opponent didn’t show up for the semifinal fight.

“It was kind of bittersweet,” he said. “You know it’s nice to get into the finals but I really wanted to earn my way into the finals. We worked really hard on it.”

Calvin said the two were training at least 20 hours a week in the lead-up to the tournament. Hard work is nothing new to them.

Besides running Royals Boxing Gym with his partner, Calvin is a personal trainer at Remedy Gym in Setauket and works with Giant Step Services, which educates and assists adults with developmental disabilities.

Calvin said he has been involved with boxing since he discovered it at the age of 16 when he saw children competing outside of the Boys & Girls Club of Suffolk County. He said working with boxers seven days a week in addition to training keeps him in top form. He said whether practicing, training others or leading demonstrations, he’s always going over his technique.

“My biggest weapon is this constant reinforcement of my fundamentals — it has gotten me exponentially better,” he said.

Misa, who grew up in Mount Sinai and is a liberal arts student at Suffolk County Community College, said years ago he became involved in jiujitsu and mixed martial arts at a competitive level. It was after a four-year stint in the Navy that he first tried his hand at boxing, even though he always followed it as a kid. He said he believes his training in the martial arts helps him when it comes to boxing. Misa also played hockey growing up but he said he prefers competing on his own like he does in boxing.   

“It’s an individual sport so it’s more on you,” Misa said. “Obviously you have your coaches and teammates that are pushing you in the gym, but at the end of the day, it’s only you and the other guy in the ring. That’s why I love it so much.”

Besides physical dedication, the sport takes a strong mental attitude.

“It takes a lot of mental preparation,” Calvin said. “I stay pretty calm. I never really get nervous. I’m not nervous until the walk to the ring, and that walk to the ring is the most heart-wrenching thing. It’s terrifying. Everything in you is telling you to turn around and walk away because you know there’s a 100 percent chance you’re going to get hit, but all your training and everything and your ego tells you to keep trucking
forward.”

As for punches, Calvin said when he’s fighting, he doesn’t register them coming.

“When you’re in the ring everything happens so fast,” he said. “It’s all reactive. You don’t have time to process anything in the ring at all. You have to react … all a result of training.”

Before the match, Thomas Cooper, co-owner of Royals who also trains Calvin, was optimistic about the fight and said that the boxer is a “special talent in the sport” and felt he was the top fighter in the competition.

“He has speed and power and that’s an excellent combination to have in boxing,” Cooper said. “He has fast feet, fast hands. He always listens to what you have to tell him. He’s always trying to do things better.”

“I stay pretty calm. I never really get nervous. I’m not nervous until the walk to the ring, and that walk to the ring is the most heart-wrenching thing. It’s terrifying.”

— Michael Calvin

Willett coaches both fighters and had great faith in them before they met their opponents in the ring. He met Misa a couple of years ago in the world of mixed martial arts. 

“He transitioned very well because he has an open mind,” the coach said. “I always tell everyone I gave him a map, and he followed it to the ‘t.’ So, it’s why he’s at where he is now. It’s kind of unheard of for someone who was in mixed martial arts to go into open class, because open class is semi-pro.”

On the night of April 21 Calvin was unanimously declared the 152-pound open title champion in the welterweight division. The next day Misa lost his match in the 178-pound open title bout. Calvin said making it to the finals, for a new boxer like Misa, is a great achievement in itself.

Cooper was extremely proud of Calvin after the fight, and said the boxer dominated his opponent, Michael Hughes, a 2012 Golden Gloves champion, with his in-and-out movements and speed and power in the three, three-minute rounds.

“He did all the things we’ve been working on, and it really seemed in that final fight that a lot of things came together,” Cooper said. “He put it all together. He was in and out, he was moving. It was fantastic.”

He was excited to see his business partner and teammate win after years of hard work.

“When he got those golden gloves around his neck, I was extremely happy for him because it changes his life,” the coach said.

A couple of days after the fight, Calvin was still shocked as he prepared for the national tournament, which will be held in Lafayette, Louisiana’s Cajundome the first week of May.

“It really hasn’t hit me yet because I’m so focused on nationals,” the boxer said. “But the feeling of having those gloves around my neck was really spectacular … and getting my hands raised in front of all those people.”

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Route 25A in Setauket looking east from Woods Corner Road. Photo by Rita J. Egan

Following public forums, the future of the Route 25A corridor in the Three Village area is coming into focus.

More than a year ago, the Brookhaven Town Department of Planning, Environment and Land Management was authorized to create a land use study and plan regarding the state highway from the Smithtown town line heading east to the Poquott Village line. This was after town Supervisor Ed Romaine (R) and Councilwoman Valerie Cartright (D–Port Jefferson Station) co-sponsored land use resolutions at the Jan. 14 and Feb. 4, 2016, town board meetings.

the inconsistent architecture of buildings located at Woods Corner. Photo by Rita J. Egan

After the go-ahead from the town, the Citizens Advisory Committee was formed with co-chairs George Hoffman, vice president of the Three Village Civic Association, and Jane Taylor, assistant head of The Stony Brook School. The committee organized a number of community meetings to give business owners, store tenants and residents in Stony Brook, Setauket and East Setauket the opportunity to discuss their concerns and hopes for land use along the state road.

The meetings, led by consulting firm BFJ Planning, culminated with a wrap-up session at The Stony Brook School earlier this month, and the result will be a document that will guide business and landowners when it comes to building and renovating in the future.

Hoffman said he found the process over the past year rewarding.

“We really made a lot of progress pulling together all the groups that make up our community, and I think we have a clearer vision of what we like about it, and what we’d like to enhance as we go forward,” Hoffman said.

At the March 4 meeting, residents were given a summary of the community’s visions for the hamlets based on previous visioning meetings. Frank Fish, Noah Levine and Graham Cavanagh of BFJ Planning informed those in attendance both unique and shared elements along the Route 25A corridor as well as recommended goals and objectives for the future.

Romaine, Cartright and state Assemblyman Steve Englebright (D-Setauket) were among elected officials who attended the visioning meetings. Englebright said he was impressed at how constructive the meetings were, and how Cartright and Romaine made themselves accessible during the process.

The assemblyman said he wasn’t surprised by the concerns and desires raised. Many residents said they did not want to see the road widened, but instead would like it to include more green space. Another hope of many residents is to make the road safer by adding a continuous sidewalk and creating lanes for bicyclists.

“The historic architectural style and character of the Three Village area is something that is a constant reminder of why a lot of us live here.”

— Steve Englebright

“I look forward to doing everything possible to add a sidewalk — the walkability aspect of this and [a lane] for bicycles,” Englebright said.

Both Hoffman and Englebright said Woods Corner at the southeast corner of Route 25A and Nicolls Road was another concern brought up by many at the meetings. Hoffman said people would like to see the buildings located on the corner updated with some sort of consistent architecture “because it’s the gateway to the Setaukets.”

The architectural consistency in all the hamlets was an additional topic raised at the meetings.

“The historic architectural style and character of the Three Village area is something that is a constant reminder of why a lot of us live here,” Englebright said. “We love the architecture. … People indicated how much they value it, and that for any reconstruction or new construction, that should be a benchmark of expectation to be compatible with who we are architecturally.”

According to BFJ Planning’s March 4 visioning report, the flow of traffic where 25A variously intersects Stony Brook Road, Nicolls Road and Main Street were also discussed at hamlet meetings. Roundabouts were suggested for both Stony Brook Road and Main Street, and the New York State Department of Transportation is considering a traffic light at the soft right turn onto Nicolls or removal of the soft right altogether. 

While other transportation issues and wants were discussed, including creating pullover areas for buses and supporting a trolley bus service for Stony Brook students and residents, recreation areas were another concern. The talks included improved civic space for gatherings, picnics and similar recreational activities as well as maintenance of the New York State Department of Environmental Conservation-administered Patriots Hollow State Forest.

Hoffman said some of the proposed guidelines have already been a help to Parviz Farahzad, who is constructing Stony Brook Square located across from Stony Brook train station. Development of the shopping center was approved at the March 6 town planning board meeting. Farahzad has agreed to add more trees to the final site plan, will require tenants use signage that consists of wood-base signs with gooseneck lighting among other concessions.  The developer also hopes to install a low nitrogen septic system if he receives a waiver from the county for the new system. According to Hoffman, such systems help to protect the water in local harbors.

Hoffman said BFJ Planning is compiling a final document and, in a few weeks, the CAC will present a report to the town board. The ultimate goal is for the town to take into consideration the suggestions and incorporate them into future land use changes in the area through zoning changes.